Renfrewshire Carers Strategy Supporting Carers in Renfrewshire - a partnership approach

Transcription

1 Renfrewshire Carers Strategy Supporting Carers in Renfrewshire - a partnership approach

2 Contents Page Foreword 2 Chapter 1 Introduction 3-4 Chapter 2 Policy Context 5-7 Chapter 3 Demographic Changes 8-10 Chapter 4 Older Carers 11 Chapter 5 Young Carers Chapter 6 Young Adult Carers 14 Chapter 7 Carers in Renfrewshire Chapter 8 Progress on the Priorities set out in Renfrewshire Carers Strategy Chapter 9 Consultation with local carers Chapter 10 Priorities 21 Renfrewshire Carers Strategy Action Plan Renfrewshire Carers Strategy Partnership 34 Useful Contacts 1

3 FOREWORD As local community based social work, health and voluntary sector services, we recognise the crucial contribution that carers make to the lives of local people, and that unpaid care will continue to increase with the growing number of older people and those living longer with complex health conditions. Without the support of carers, it is likely that many people would require higher levels of support and care from health and social care services and may not be able to live as independently as possible in their own homes. It is widely accepted at a national level that such an increase would be very difficult for public services to manage with the current level of resources. Although many carers tell us that they find caring a rewarding and worthwhile experience, it is recognised that caring responsibilities can also impact upon the health and wellbeing of carers themselves. It is vital then that we take a partnership approach to supporting carers. Carers have been working together with Renfrewshire Council, Renfrewshire Community Health Partnership and local health services, and Renfrewshire Carers Centre to develop a range of actions that take us towards the good outcomes that carers want and deserve. The strategy sets out the outcomes we want to achieve, how we intend to achieve them, the timescales in which the work will be done and who will do the work. In this way we can make sure all carers that want to be are supported and recognised for the major contribution they make in the provision of care in the community. Peter Macleod Diane Goodman David Leese Director of Social Work Centre Manager, Director of Renfrewshire Carers Centre Renfrewshire Community Health Partnership 2

4 1 INTRODUCTION 1.1 Renfrewshire Carers Strategy , sets out what Renfrewshire Council, Renfrewshire Community Health Partnership and local health services, and Renfrewshire Carers Centre want to achieve to enable us to support carers to continue in their caring role. The strategy acknowledges the significant role carers play and recognises carers as partners in the delivery of care. 1.2 As the importance of the role of carers has increased in line with population and social trends, more recognition and value is being placed on the contribution they make. In addition to the value they add to the cared for person's quality of life on a daily basis, they contribute towards enabling people to remain within their communities for as long as possible, keeping emergency hospital admissions down and enabling timely discharge back from hospital into the community. 1.3 The outcomes and actions in the strategy will ensure that carers will be supported to manage their caring responsibilities with confidence and in good health, and to have a life of their own outside of caring. The strategy details the progress made over the lifetime of the previous strategy, while acknowledging the work that still needs to be done. What do we mean by carer? 1.4 Caring Together, The Carers Strategy for Scotland 1 defines a carer as: someone of any age who provides unpaid support to family or friends who could not manage without this help. This could be caring for a relative, partner or friend who is ill, frail, disabled or has mental health or substance misuse problems, or a combination of them. Some carers care intensively or are lifelong carers, others care for shorter periods. The carer does not need to be living with the cared-for person to be a carer. 1.5 Renfrewshire Carers Strategy uses the term carer to mean those providing unpaid care. National Outcomes for Carers 1.6 The national carers strategy set out five strategic outcomes for carers, carers will: have improved emotional and physical wellbeing. have increased carer confidence in managing the caring role. have the ability to combine caring responsibilities with work, social, leisure and learning opportunities and retain a life outside of caring. 1 Caring Together: The Carers Strategy for Scotland

5 not experience disadvantage or discrimination, including financial hardship, as a result of caring. be involved in planning and shaping the services required for the service user and the support for themselves. 1.7 Locally, the actions and outcomes set out in the Renfrewshire Carers Strategy Action Plan will contribute to achieving the national outcomes for carers. 4

6 2 POLICY CONTEXT 2.1 The key legislation for carers in Scotland is: The Social Work (Scotland) Act 1968 (Section 12AA) Carers (Recognition and Services) Act 1995 The Children s (Scotland) Act 1995 (Section 24) Community Care and Health (Scotland) Act Carers, and the valuable contribution they make, are recognised in a number of local and national strategies including: Caring Together, The Carers Strategy for Scotland Getting it Right for Young Carers, the Young Carers Strategy for Scotland Renfrewshire Community Plan Renfrewshire Council Social Work, Service Improvement Plan Renfrewshire Community Health Partnership, Development Plan 2.3 The role of carers is also being acknowledged in a number of thematic and condition specific strategies relating to Older People, Children, Autism, Learning Disability, Sensory Impairment, Dementia and Mental Health. Reshaping Care for Older People 2.4 The Scottish Government established the Reshaping Care for Older People Change Fund to enable health and social care partners to implement local plans for making better use of their combined resources for older people's services. It provides bridging finance to facilitate shifts in the balance of care from institutional to primary and community settings. Each local area has been required to draw up a plan of how the money will be used and the guidance states that 20% of all monies are to be spent supporting carers of older people The Renfrewshire Partnership Change Fund Sub Group has allocated over 300,000 to provide direct support to carers in 2013/14. The proposals being funded are: increased respite provision for older people. additional independent advocacy services within Renfrewshire Carers Centre which will be aimed at carers of older people as a priority. additional resources within Renfrewshire Carers Centre to identify carers and to work with social work and health staff to develop their knowledge and awareness of carers issues. development of a network of community support for local people with dementia and their carers. an awareness raising campaign to promote the need for advance planning and to put into place Power of Attorney arrangements at the earliest possible opportunity. Integration of Adult Health and Social Care 2.5 The Scottish Government recently announced its intention to integrate adult health and social care to enable services to work more closely together by integrating services and 5

7 resources. Integration aims to shift the balance of care from that provided in hospital and residential homes towards more personalised services provided in the community, enabling people to remain at home. Self Directed Support 2.6 Self Directed Support (SDS) aims to give people a range of options for how their social care is delivered, empowering people to decide how much ongoing control and responsibility they want over their own support arrangements. The Social Care (Self-directed Support) (Scotland) Act, which was passed by the Scottish Parliament in November 2012, makes specific mention of carers and requires Councils to provide appropriate support to them following a carer s assessment, and also requires Councils to provide information, advice and support for carers and those they care for to understand the various options they have within SDS. Welfare Reform 2.7 The UK Government is changing the benefits system and these changes will mainly affect people of working age (currently years old). The start date for a number of major reforms is 2013; these include: Under Occupancy - New rates of housing benefit will take account of the size of each property compared to the number of occupants. Benefit Cap - The UK government is introducing a cap on the total amount of benefit that working age people (16 64 years old) can receive. Changes to Council Tax Benefit - On 1 April, Council Tax Benefit will be abolished and replaced with a new Council Tax Reduction Scheme across all local authorities in Scotland. Changes to Social Fund - Crisis grants and community care grants are currently managed by the Department for Work and Pensions (DWP). From April 2013, they will come under the new Scottish Welfare Fund which will be managed by local councils. Moving from Disability Living Allowance (DLA) to Personal Independence Payment (PIP) - Disability living allowance (DLA) will be phased out and replaced with personal independence payments (PIP) for year-olds. People of pension age will stay on DLA. Universal Credit - The UK Government plans to gradually introduce the new universal credit benefit from October It will replace six of the main means-tested benefits and tax credits. Universal credit will replace: income-based jobseeker s allowance income-related employment and support allowance income support child tax credits working tax credits housing benefit 6

8 Carers may be affected by the changes directly or they may have an impact on the person they care for or a family member. Renfrewshire Council and its partners have put in place a range of advice and support for those affected by the changes. 7

9 3 DEMOGRAPHIC CHANGES 3.1 The demographics of our country are changing. Scotland s population will age significantly in the period , and Renfrewshire will see a similar ageing of its population. 3.2 Renfrewshire s population in 2011 was 174,900 2 and by 2035 the population is projected to be 160,872 3, a decrease of 8%. 3.3 The number of people aged 65 and over in Renfrewshire is forecast to increase considerably, according to the latest projections produced by the General Register Office for Scotland. The older adult population is expected to rise by 16.6% on current levels by 2020, and by 53.9% by In contrast, the adult (16-64) population is forecast to drop steadily over the next 25 years and, although a slight increase in the birth rate is expected in the next decade, the trend for the child population shows a decline in the longer-term. 3.4 Table 1.1 below indicates the expected changes to the structure of Renfrewshire s population for the period until The change in the proportion of the population aged under 16 only shows a slight decline but there is a much greater decline in the proportion of the population who are of working age. This sector of the population will only make up 57.5% of the population by 2035 compared with 65.5% in Meanwhile, the over 65s will account for just over a quarter of the population by 2035, compared with one-sixth in As Table 1.2 shows, this means there may be almost 44,000 people aged 65 and over in Renfrewshire by 2035, compared with the current population of 28,417. Table 1.1: Structure of Renfrewshire s population (2010 based) % 17.6% 17.7% 17.6% 17.1% 16.6% % 64.3% 62.9% 61.2% 59.0% 57.5% % 18.1% 19.4% 21.2% 23.9% 25.9% Table 1.2: Renfrewshire population projection (2010 based) All ages 170, , , , , , ,274 30,006 30,369 30,033 29,151 28, , , , , ,448 97, ,417 30,978 33,139 36,326 40,619 43, When projections for the older people population are broken down further, it is clear that the most marked increase is in the cohort aged 85 and older. The short-term trends indicate a 16% increase between 2010 and 2015 for this age group All population projections are based on figures from the General Register Office for Scotland 8

10 Carers 3.6 By 2035 there will be larger numbers of very old people who are living longer and a proportionately smaller, younger working and taxpaying population. Society as a whole will become even more dependent on carers vital contribution to health and social care delivery. More people will be cared for at home for longer periods. Carers will play an increasingly important role in the support, care and treatment of people with long-term and multiple conditions, disabilities and illnesses including dementia, alcohol and drug dependency. 3.7 Estimates suggest that 13% of the population is providing care to someone; this figure applies to carers of all ages. Figure 1 shows the banded age of carers in Scotland. Figure 1: Banded age of carers 4 18% 6% 9% 0-18 yrs yrs 11% yrs yrs 19% yrs 18% yrs 19% 70+ yrs 3.8 The population projections for Renfrewshire indicate that the numbers of carers aged 65 and over will see the biggest increase in the period (Table 1.3 and Figure 2). Table 1.3: Carers 65 and over in Renfrewshire projection (2010 based) ,257 5,731 6,131 6,720 7,515 8,091 Figure 2: Total population 65 and over, and carers 65 and over projection (2010 based) 4 Caring in Scotland: Analysis of existing data sources on unpaid carers in Scotland 9

11 Total 65+ Carers 65+ Dementia 3.9 Table 1.4 projects the number of older people who may suffer from dementia in the future, based on population trends and information on prevalence rates. This will have implications for the number of people caring for someone with dementia, as well as specialist provision within residential services, day care services, home care provision and respite services. Table 1.4: Estimated number of older people with dementia Total Learning Disability 3.10 Projections show an overall decline in the number of clients with learning disabilities. However, the age structure is expected to change, with the figures showing a significant increase in the number of clients aged 65 and above. The proportion of adults over 50 is expected to rise from 37% to 42% in that ten-year period. The ratio of males to females will be largely unchanged. Many carers of people with learning disabilities will experience a lifetime of caring for a son, daughter or sibling. This has consequences for the carer as they grow older and may find caring more challenging and the cared for person who may become the carer for their parent or carer. Table 1.5: Estimate of number of clients with Learning Disability Total

12 4 OLDER CARERS 4.1 As noted above, the population changes provide carers, services and communities with many challenges to consider for the future. For many older carers, planning or enjoying their retirement is simply not an option. Carers aged often juggle caring with the demands of work and financial pressures while those aged 70 and above often find it difficult to cope with the physical demands of caring. For those caring for a partner, the change to a relationship can be hard to adjust to especially when it comes to issues around dementia or an older carer caring for a child with a learning disability. 4.2 It is estimated that 19% of carers are aged years and 18% are 70+ years. In the local consultation for the strategy, 57% of carers were 65+ years old and 18% were 75+ years old. 4.3 From the consultation carried out with carers in Renfrewshire, older carers identified a number of priorities: Information Respite Emergency and Future Planning Physical and Mental Health Training Financial support Involvement in the planning of support for the cared for person 4.4 The strategy recognises the distinct experience of older carers and the action plan includes a range of actions to ensure that older carers are supported to continue in their caring role. 11

13 5 YOUNG CARERS 5.1 Getting it Right for Young Carers, the Young Carers Strategy for Scotland, defines a young carer as a: child or young person aged under 18 who has a significant role in looking after someone else who is experiencing illness or disability Caring for someone can be a good experience for a child or young person, it can make them feel more valued and included; give them more responsibility and greater self-esteem; and help them feel more mature, confident and able to deal with problems. Caring can give young people skills in managing money, looking after the home and dealing with health and social care services. 5.3 However, caring can have a significant impact on young people, bringing issues that are unique to young carers. These issues can include: poor attendance at school/college lack of time to do homework, and poor concentration physical and mental health issues difficulty in finding free time for friends a greater risk to young carers of neglect and abuse, e.g. where there are drug and alcohol issues financial pressures, especially when a single parent family is involved While young carers face unique challenges, they have the same rights as all other children and young people, as set out in the United Nations Convention on the Rights of the Child (UNCRC). The demands made on young carers as a consequence of their caring responsibilities can often result in them being denied some of their rights as set out in the UNCRC. The actions set out in the Young Carers section of the action plan for this strategy (see Appendix 1) will promote and protect these rights. 5.5 This strategy and the Renfrewshire Carers Joint Planning, Performance and Implementation Group (Carers JPPIG) aim to ensure that young carers receive the support that they need to develop into successful learners, confident individuals, effective contributors and responsible citizens. It recognises that young carers should be: Safe Healthy Achieving Nurtured Active Respected 5 Getting it Right for Young Carers: The Young Carers Strategy for Scotland Getting it Right for Young Carers: The Young Carers Strategy for Scotland

14 Responsible and Included. 7 Young carers should receive the support they need to allow them to be children and young people, first and foremost. 7 A guide to Getting it right for every child 13

15 6 YOUNG ADULT CARERS 6.1 Young adult carers aged between 16 and 25 years can face particular challenges. At a time when others their age are leaving school and making plans for employment, training and education, young adult carers often have to deal with demands, responsibilities and emotions that limit their future opportunities. 6.2 Young adult carers may, for example: be committed to continue to provide care, but may not be able to tell others, including careers advisors and jobcentre staff, that this is why they are not making other plans; feel that they have to continue to care, or professionals may assume they are going to; be anxious about leaving home because of worries about the person they care for or fear that a younger brother or sister may have to take on caring responsibilities; and be desperate to leave home at the earliest opportunity, but not have the knowledge and skills to deal with the challenges this brings Many young adult carers face these difficulties when their young carers group is no longer able to support them, either because they have a high demand for places or because they aren t funded to work with young people over 18 years. Young adult carers can also feel they don t fit in to the services provided for adult carers. Ensuring that young adult carers are supported through this transition is vital. 8 Getting it Right for Young Carers: The Young Carers Strategy for Scotland

16 7 CARERS IN RENFREWSHIRE 7.1 The 2011 Census found that Renfrewshire had a population of 174,900 9 and estimates suggest that 13% of the population is providing care to someone. 7.2 The same survey also states that 61% of single pensioner households in Renfrewshire are home to someone with a long-term health problem, illness or disability, and 33% of single pensioner households require regular, informal care. Current figures indicate there were 10,430 single pensioner households in 2010, meaning that an estimated 3,442 people aged over 65 need support from a carer. By 2020, the number of single pensioner households in Renfrewshire is predicted to rise by 13%, which would mean an additional 448 people relying on informal care assuming no other demographic changes. 7.3 As part of the development of the strategy a programme of consultation was carried out with local carers, including a survey which gathered information on carers. The survey found that, of the carers who responded: 18% were over the age of 75 57% care for someone over the age of 65 67% were caring full time 15% care for more than one person 25% were caring for their son/daughter; 20% care for their parent 42% were caring for someone who has a physical and/or sensory disability; 17% were caring for someone who has a learning disability; 35% were caring for someone who has a mental health problem Young Carers in Renfrewshire 7.4 As part of the Achieving Step Change in Children's Outcomes programme, Renfrewshire s Children s Services Partnership is developing a strategy that will both refocus services for those children with a high level of need and steer the implementation of evidence based early intervention programmes to improve the well being of all children. 7.5 As part of the project, a survey of 9 to 18 years school based young people was carried out, and the results below are taken from the young carers part of the survey: 23 % reported that they care for someone 35% reported that the person they care for lives with them Those who care for someone reported that they cared for a: Brother 9% Grandparent 39% Sister 5% Other family member 14% Parent 18% Other person 16%

17 Those who care for someone indicated how often they cared or looked after the person: Several times a day 16% Once a week 17% Every day 29% Once a month 7% Twice a week 22% Less than once a month 9% Those who care for someone indicated why the person needs extra help: Long term physical illness 11% Drug dependence 2% Mental ill health 8% Alcohol dependence 4% Physical disability 16% Old age 31% Learning disability 6% Other 21% 7.6 A health and wellbeing survey was conducted in Renfrewshire s secondary schools in Of the pupils who responded to the question, 14% indicated they had caring responsibilities. 7.7 Of those who had caring responsibilities, 54% spent between 1 and 4 hours per week caring for their relative; whereas, a further 37% spent 5 to 20 hours and 9% spent 21 or more hours caring for their relative. 7.8 Young carers appeared to suffer negative consequences as a result of their responsibilities and reported feeling stressed 24%, tired 23% and anxious 12%. 7.9 In addition to their caring responsibilities, young carers were more likely to have additional demands on their time. 30% of young carers had a job compared to 25% without caring responsibilities. 16

18 8 PROGRESS 8.1 Much has been achieved for carers in Renfrewshire and real progress has been made to ensure that carers are supported to continue to care. The Carers JPPIG which has representation from local carers, the Carers Centre, Social Work, CHP and local health services, and other relevant partners, monitors progress against the priorities identified in the previous Renfrewshire Carers Strategy Below are examples of what has been achieved. Priority 1 Increase respite services for carers A new home based respite service has been developed using Change Fund monies. Ensure carers issues are integral to service developments/redesign plans Priority 2 across all JPPIGs There is carer representation on all JPPIGs (Carers; Older People; Mental Health; Learning Disability; Physical Disability; Palliative Care) As part of the development of the strategy a programme of consultation was carried out with carers, including a survey, focus groups and consultation event. 131 adult carers and 18 young carers took part in the survey. 50 carers were consulted through focus groups; the groups were drawn from the carers support groups run by the Carers Centre. The groups were: Alzheimer s, Parkinson s, mental health, stroke, older people, kinship, male, and parent carers. 33 carers attended the Reshaping Care for Older People Carers consultation event. Implement Carer Self Assessment tool within and across agencies and review Priority 3 Carer Assessment tool Carer Self Assessment is now available. The number of completed Carer Self Assessments increased from 159 in 2010/11 to 202 in 2011/12. Priority 4 Develop training opportunities for carers and staff A comprehensive training programme is in place, it includes: Managing challenging behaviour when caring for someone with dementia; Carers rights; Coping with depression; Healthy thinking; Art Therapy. Carer rights and issues are included in Adult Protection Training Programme and Care Management Training Programme for Renfrewshire Community Health Partnership staff. Carer Awareness Raising Sessions have been provided to District Nurse Services; Allied Health Professional Services and Rehabilitation & Enablement Services. Priority 5 Improve information and advice available to carers Respite leaflets have been produced and disseminated. A new Renfrewshire Carers Centre website has been launched and the carer s page on the Council s website has been updated. A carer s information worker is in post. Priority 6 Ensure carers are regularly consulted about services and service 17

19 developments Carers participate at JPPIGs; the Carers JPPIG has been re launched to lead the development and implementation of this strategy and to monitor and report progress on the actions contained in the Action Plan. Carers were consulted as part of the development of Renfrewshire Carers Strategy Carers are consulted on Reshaping Care for Older People programme. Single point of access developed. Priority 7 Identify needs of young carers Young carers needs identified through: Young Carers group; survey of secondary school pupils; Achieving Step Change survey; and through regular Renfrewshire Carers Centre young carers meetings. Young Adult Carers worker is in post to work with carers and services on the transition from child to adult. Young Carers Education Worker is in post to work with schools on identifying young carers and highlighting the issues they may face. Priority 8 Develop a generic carers strategy Renfrewshire Carers Strategy will be relevant to all carers. 18

20 9 CONSULTATION WITH CARERS 9.1 As part of the development of the strategy a programme of consultation was carried out with carers, including a survey, focus groups and consultation event: 131 adult carers and 18 young carers took part in the survey. 50 carers were consulted through focus groups; the groups were drawn from the carers support groups run by the Carers Centre. The carers cared for people with Alzheimer s, Parkinson s, mental health issues, stroke and older people and with kinship, male and parent carers. 33 carers attended the Reshaping Care for Older People Carers consultation event. 9.2 The consultation sought to find out what support and services were most important to carers and what the voluntary and statutory sector could do to support carers in their caring role. The results of the consultation are reflected in the action plans. 9.3 From the Renfrewshire Carers Survey, Adult carers told us that what is most important is: Advice and information Social activities and support Respite Day Care Help from others Training and learning Financial assistance 9.4 From the Renfrewshire Carers Survey, Young carers told us that what is most important is: Having a voice Training Respite Emotional Support Information Help from others 9.5 At the Renfrewshire Carers Centre Support Groups, we spoke to carers who cared for people with Alzheimer s, Parkinson s, mental health issues, stroke and older people and with kinship, male and parent carers. They told us that their priorities are: Access to appropriate, planned respite Better planning of child to adult transition Being kept informed of how services are Long term planning going to support the cared for person Access to advocacy services A say in what services will be provided Access to training A carers assessment Continued support from the Carers Centre Respect Local activities that the cared for person can take part in 9.6 At the Reshaping Care for Older People Carers Event, carers told us that the priorities need to be: Better co-ordination of services for A greater degree of personalisation of carers, including single points of contact carers services 19

21 for information and support Adequate provision of flexible respite Identifying hidden carers Specialist training for staff and carers on the needs of people with particular longterm More early intervention work to support carers before crisis point is reached. conditions More dedicated resources and long-term funding for carers services 20

22 10 PRIORITIES 10.1 To ensure the strategy focuses on what is most important to carers, an analysis of the consultation carried out with local carers identified the following priorities which will form the basis of the action plan linked to the strategy Information and advice Carers have access to good quality timely information which is available in easily understandable and accessible formats Independent advocacy Carers have access to independent advocacy Respite Carers are able to take regular breaks and are supported to continue in their caring role Identification of carers Carers are identified as early as possible to enable them to access support Carers assessments and carers self assessments Carers are recognised and supported as partners in care and enjoy a good quality of life Skills and training to care Carers have the confidence, skills and knowledge they need for their caring role Health and well-being Carer s physical and emotional health is not adversely impacted by their caring role Financial inclusion, employment and education Carers are able to maximise their income through access to work and benefits advice and are able to remain in or return to education and employment Involvement in the planning, shaping and delivery of relevant support and services Carer s needs are considered and addressed within relevant Health, Social Work, Council and Community Plan planning processes Emergency and future planning Carers are able to plan for emergencies and for the future, including addressing issues such as Power of Attorney. 21

23 11 RENFREWSHIRE CARERS STRATEGY ACTION PLAN 11.1 The Renfrewshire Carers Strategy Action Plan sets out the outcomes and actions which will be progressed over the lifetime of this strategy. The Carers Joint Planning, Performance and Implementation Group will oversee the monitoring and implementation of the action plan and related work. The work progressed through the action plan will focus on achieving local outcomes as well as contributing to national outcomes. 22

24 OUTCOMES OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION INFORMATION, ADVICE AND INDEPENDENT ADVOCACY Carers have access to good quality timely information which is available in easily understandable and accessible formats Carers have access to independent advocacy Carers are informed about the services available to support them Carers are able to access independent advocacy Council and Health staff are carer aware Carers are identified as early as possible Number of Carers Centre newsletters published Number of hits on the Carers Centre website Number of carers active on the Carers Centre forums Number of awareness raising sessions held with services Number/percentage of carers reporting that they feel they have the information they need to support them in their caring role Number of events/initiatives to identify carers Number of carers attending identifying carers events Number of carers accessing independent advocacy support Lead Timescale Review and update all sources of published and web based public information including alternative formats Provide information in formats which suit a range of needs Undertake a range of events and initiatives to identify carers Ensure carers are aware of service developments relating to carers through the Reshaping Care for Older People process and the Change Fund via the Carers JPPIG Develop independent advocacy services within Renfrewshire Carers Centre to support older carers Raise awareness of Self-Directed Support via the Carers JPPIG Within existing resources 23 Carers Centre, SW, NHS Carers Centre, SW, NHS Carers Centre, SW, NHS December 2013 Ongoing April 2014 Carers Centre April 2014 Carers Centre July 2013 SW, Carers Centre April 2014

25 OUTCOME OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION RESPITE Carers are able to take regular breaks from their caring role Carers are better informed of the options available for planned respite Carers are able to access culturally specific or specialist respite services Number of overnight respite nights provided for children (0-17 years) Number of daytime respite hours provided for children (0-17 years) Number of nights of respite care provided for other adults per 1,000 (18-64 years) Number of daytime respite hours provided for other adults per 1,000 (18-64 years) Number of nights of respite care provided for elderly people per 1,000 (65+ years) Number of daytime respite hours provided for elderly people per 1,000 (65+ years) Number of carers reporting that they have regular respite and shorts breaks from their caring role Lead SW, Publish clear information on respite services Carers Centre Review current schemes across all carer groups, identify gaps and consult with SW, carers and partner agencies to develop responsive services Carers Centre Carers Centre, Monitor respite service provision through Carers JPPIG SW, NHS Carers Centre, Increase uptake of respite services SW, NHS Within existing resources Timescale December 2013 December 2013 Ongoing April

26 OUTCOME OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION CARER ASSESSMENT Carers are recognised and supported as partners in care and enjoy a good quality of life Carers are informed of their right to a carer s assessment Carers needs are identified and taken into account to assist in continuing to care Carers have access to support and services Carers have the opportunity to complete a carer s assessment Carers have the opportunity to complete a carer s self assessment Carers wishes for the cared for person are recorded Number of carers attending training provided by the Carers Centre who go on to complete a carers self assessment Number of new carers identified and given carers self assessment booklet Number/percentage of new carers identified who complete a carers self assessment Number of carers' assessments completed for adults (18+) Number of carers' self assessments received for adults (18+) Number of carers completing a carers self assessment who go on to complete a full assessment Lead Timescale Provide appropriate training for those undertaking Assessments SW Ongoing Explore potential for Carers Centre to carry out assessments Review and monitor recording processes around carers and carer s assessments Within existing resources SW, Carers Centre SW December 2013 December

27 HEALTH AND WELLBEING OUTCOME OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION Carers physical and emotional health is not adversely impacted by their caring role Carers are supported to access appropriate health and wellbeing support and services Carers needs and circumstances are fully considered within the hospital discharge planning process Carers are supported in the event of a crisis/emergency Carers are supported to consider planning for the future Percentage of carers reporting that caring has a negative impact on their health Percentage of carers reporting that they feel valued and supported Number/percentage of carers with an emergency plan in place Ensure emotional and counselling support is available to carers Ensure carers have information on a range of health improvement services that they can access to improve their health and wellbeing Ensure carers have access to future planning support including guidance on Power of Attorney Lead Carers Centre, SW, NHS NHS, SW, Carers Centre SW, Carers Centre, NHS Timescale April 2014 April 2014 April 2014 Explore future options around emergency and future planning service Carers Centre August 2013 Within existing resources 26

28 FINANCIAL INCLUSION, EMPLOYMENT AND EDUCATION OUTCOMES OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION Carers are able to maximise their income through access to work and benefits advice Carers are able to remain in or return to education/ employment/ training Carers are aware of the financial support available to them Carers are supported to remain in or return to employment/ education/ training Number/percentage of carers identified by Carers Centre who are supported to remain in or return to: training education employment Number/percentage of carers reporting that caring has had a negative impact on their: financial situation work education training Lead Provide carers with information about changes to the benefits system under the Welfare Reform Act 2012 Timescale Carers Centre April 2014 Offer carers access to income maximisation services Carers Centre Ongoing Support carers to access employment/education/ training opportunities Review employment policies to ensure that carers are supported to balance care and work responsibilities Within existing resources Carers Centre, SW, NHS Carers Centre Ongoing December

29 OUTCOME OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION SKILLS AND TRAINING TO CARE Carers have the confidence, skills and knowledge they need for their caring role Carers are informed about the diagnosis, prognosis and impact of illness/disability of the person they care for Carers are supported to continue to care Number of training courses provided to carers Number of new carers accessing training Number of training courses provided to young carers Percentage of carers on the Carers Centre training who subsequently complete a carers self assessment Percentage of carers attending Carers Centre training who report that they feel confident in their caring role Percentage of carers attending Carers Centre training who report that the training met their needs Lead Timescale Provide carers with skills development/training opportunities relevant to their caring role Increase the range and volume of training opportunities for carers to include manual handling advice, coping with dementia etc Consider carers needs within the long term conditions framework and self directed support agenda Explore opportunities to involve carers in health and social work training Carers Centre Ongoing Carers Centre April 2014 SW, NHS April 2014 SW, Carers Centre December 2013 Evaluate training courses and their effectiveness Carers Centre April 2014 Within existing resources 28

30 OUTCOME INVOLVEMENT IN THE PLANNING, SHAPING AND DELIVERY OF RELEVANT SERVICES AND SUPPORT Services are responsive to the changing needs of carers OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED RESOURCE IMPLICATION Carers are involved in the planning, development and monitoring of relevant services Carers are represented at Carers JPPIG meetings Carers are represented at JPPIG meetings Number of Carers Forum meetings Number of carers attending Carers Forum meetings Number of carers attending JPPIG meetings Number/percentage of carers reporting that they feel listened to Number/percentage of carers reporting that they have a say in how things are done Lead Timescale Survey and evaluate carer s views Carers Centre April 2014 Ensure Carers JPPIG meets regularly and that papers are available within appropriate timescales SW, NHS April 2014 Involve carers in relevant operational and strategic service planning and delivery SW, NHS April 2014 Involve carers in the Reshaping Care for Older People process SW, NHS, Carers Centre April 2014 Ensure Carers JPPIG has a broad representation of carers Carers Centre August 2013 Develop a Carer s Forum Carers Centre June 2013 Organise and facilitate 6 Carers Forum meetings per year and support carers to attend Carers Centre April 2014 Establish on-line forum for feedback and discussion Carers Centre July 2013 Within existing resources 29

31 OUTCOME OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED YOUNG ADULT CARERS Young adult carers are supported in their caring role to provide equity in life chances with other young adults Young adult carers are supported to access training/education Young adult carers are supported to achieve bronze Duke of Edinburgh Award Young adult carers are supported to access a Carers Assessment Young adult carers have knowledge and understanding of health and wellbeing issues Young adult carers are involved in the planning and development of relevant services Number/percentage of partner agencies reporting an increased understanding of how to identify young adult carers Number/percentage of young adult carers reporting increased confidence and self esteem. Number of young adult carers achieving Duke of Edinburgh bronze award. Number/percentage of young adult carers reporting an increase in skills as a result of accessing training through Carers Centre Number of young adult carers completing a carers self assessment Number of young adult carers completing a carer s assessment Number/percentage of young adult carers reporting that they feeling better equipped to undertake their caring role after completing a Carers Assessment Number/percentage of young adult carers reporting an improved understanding of the caring role as a result of working with adult carers Number/percentage of young adult carers attending the Carers Centre s drug/alcohol workshop who report a better understanding of the impact of drug and alcohol use Number/percentage of young adult carers participating in the wellbeing workshop reporting having used the techniques taught in the workshop during the three months following the course Number/percentage of young adult carers reporting an increased understanding of health and wellbeing issues Lead Timescale Raise awareness of young adult carers needs with local colleges, universities and Skills Development Scotland by: organising an open day for the above services / organisations, and establishing a forum to consider Young Adult Carers issues. Develop partnership working with schools, More Chances More Choices team and New Direction team to identify young adult carers. Three meetings will take place and a direct referral system will be implemented. Carers Centre Carers Centre, Integrated Children Services (ICS) December 2013 December 2013 Support young adult carers to achieve Duke of Edinburgh Award bronze award Carers Centre April

32 RESOURCE IMPLICATION Provide young adult carers with information on training opportunities Carers Centre Ongoing Arrange workshops on budgeting and debt management Carers Centre April 2014 Provide support to young adult carers to complete the Carers Self Assessment Carers Centre Ongoing Raise awareness of the needs of young adult carers with relevant services and within communities Carers Centre, ICS, NHS April 2014 Involve young adult carers in adult Carers Centre activities Carers Centre Ongoing Provide two drug and alcohol workshops for young adult carers Provide two Steps to Wellbeing workshops for young adult carers Work with young adult carers to identify health needs and work with partners to develop training/ information sessions Within existing resources Carers Centre, ICS, NHS Carers Centre, ICS, NHS Carers Centre, ICS April 2014 April 2014 April

33 OUTCOME OUTPUTS/ SHORT TERM OUTCOMES MEASURES ACTIONS REQUIRED YOUNG CARERS Young carers are supported in their caring role to provide equity in life chances with other young people Young carers needs are identified and appropriate support is provided to meet their needs Young carers are confident in their caring role Young carers are involved in all decisions affecting them Young carers are involved in the planning and development of relevant services The stigma attached to being a young carer is reduced Number of young people identifying themselves as young carers Number of young carers identified by significant adults Number/percentage of Primary Schools participating in sessions Number/percentage of Secondary Schools participating in sessions Number of pupils participating in sessions Number/percentage of pupils who feel that that know more about young carers as a result of participating in sessions Renfrewshire young carers self assessment developed and available for use by young carers Number of training sessions delivered using training package Number of staff participating in training Number of young carers completing a Renfrewshire Young Carers Self Assessment Number/percentage of young carers indicating that they feel supported in their caring role Number/percentage of young carers indicating that they feel listened to Lead Timescale Map the number of young carers in Renfrewshire ICS, NHS, December Carers 2013 Centre Identify young carers through planning processes ICS Ongoing Maintain established links with schools and develop work within schools: Continue to work with 9 Secondary Schools Build relationships with remaining 2 Secondary Schools Work with 12 Primary schools Deliver awareness raising sessions to pupils Deliver 8 presentations within 2 Secondary and 12 Primary Schools Deliver a training package for significant adults (for example, teachers, youth workers, and health professionals) 32 Carers Centre Ongoing Carers Centre April 2014 Ensure that the additional needs of young carers are considered when carrying out ICS Ongoing

34 RESOURCE IMPLICATION single and inter agency assessments Inform young carers of their right to an assessment which considers the challenges they face as a young carer Develop and implement a Renfrewshire Young Carers Self Assessment Provide young carers with relevant information and advice Raise awareness about the role that young carers play in supporting people, the pressures they face and positive aspects of being a young carer Highlight the issues faced by young carers and look at the types of support they may need once identified Offer training to services and agencies working with young carers which covers welfare and wellbeing issues in relation to young carers and other children / young people in the household (for example, Child Protection Training) Review existing inter-agency Child Protection and GIRFEC training to ensure that it has considered the needs of young carers Within existing resources ICS, NHS, Carers Centre ICS, Carers Centre Carers Centre Carers Centre ICS, NHS, Carers Centre ICS, Carers Centre ICS, Carers Centre Ongoing April 2014 Ongoing Ongoing Ongoing Ongoing April

35 Renfrewshire Carers Strategy Partnership NHS GGC Renfrewshire Council Renfrewshire Carers Centre RCHCP Committee Joint Management Group (SW, Health) Social Work, Health and Well Being Policy Board Renfrewshire Carers Forum Change Fund Implementation sub group Older Peoples JPPIG Carers JPPIG 34

36 Useful Contacts Renfrewshire Carers Centre Unit 55 Embroidery Mill Abbeymill Business Centre Seedhill Paisley PA1 1TJ Renfrewshire Council Social Work 3rd Floor, Renfrewshire House Cotton Street Paisley, PA1 1UJ Renfrewshire CHP Renfrewshire House Cotton Street Paisley PA1 1AL Renfrewshire Carers Strategy is available at: