HOW TO MEASURE ETHICAL AND LEGAL ISSUES IN NURSING SCIENCE? (8 ECTS)

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1 FINNISH POST-GRADUATE SCHOOL IN NURSING SCIENCE PROGRAM HOW TO MEASURE ETHICAL AND LEGAL ISSUES IN NURSING SCIENCE? (8 ECTS) Time: Lectures Seminars Place: Course leader: Teachers: Language: Amount of students: Purpose: Learning methods: Literature: University of Turku, Finland; seminar room 4 (4th floor) at 8-12am AND 227 at 12-4pm 2 nd floor seminar room 5; 8am-4 pm, University of Turku Professor Karina Lovell, Manchester University, UK Adjunct Professor, Head of Finnish Information Centre for Register Research ReTki Irma-Leena Notkola, The National Institute for Health and Welfare (THL) Lauri Kuosmanen, PhD, University of Turku Heli Hätönen, MSc, PhD-student, University of Turku, University of Turku Finnish/English Max 20 students will be accepted to the course To deepen students understanding of the conceptual and methodological issues related to measuring ethical and legal issues in health care. These issues are, for example, self-determination, coercion, self-management and quality of life in different health care areas (prevention, primary care, acute care, long-term care). - independent studying with selected literature (pre-reading and preparatory work) - lecturing - seminars with discussions - assignment (deadline January 2010) - power point presentation to be presented and discussed in seminars Students will familiarize themselves with the pre-course literature. Outcomes and evaluation: Accepted/rejected

2 After the course students should be able to 1. identify central methodological and practical questions measuring latent phenomenon in health care (e.g. self-determination, self-management, coercion etc.) 2. be aware of different solutions for measuring and describing latent phenomenon 3. to find out the most relevant methods to evaluate outcomes of nursing interventions Contact person: Deadline for course registeration to Heli Virtanen PROGRAMME Preliminary information of the day Rationale for the course: what is a latent phenomenon? Theoretical and methodological questions related to ethical and legal issues in health care Students will describe shortly their own topic of interest (5 minutes each) [Lunch break] Some examples of measuring ethical and legal issues in health care Lauri Kuosmanen, PhD University of Turku [Coffee break] Health registers and the use of registers in health care research Adjunct Professor, Head of Finnish Information Centre for Register Research ReTki Irma-Leena Notkola, The National Institute for Health and Welfare (THL) Discussion

3 Methodologiacl questions related to outcome evaluation research Professor Karina Lovell, Manschester University, UK [Break] Topics to be continued [Lunch break] International and national guidelines related to ethical and legal issues in health care Heli Hätönen, MSc, doctoral-student University of Turku Introduction to independent work and seminars Discussion and feedback PREPARATORY WORK Before the course ( ) a student will read a literature listed below and write max 3 page (space line 1,5) essay to answer the following questions: 1. Keeping in mind the topic of your doctoral dissertation, what are the main challenges when measuring the topic? 2. How you could solve these challenges (use the literature listed below)? 3. What kind of support you need based on this course?

4 RECOMMENDED PRE-READING TO BE USED IN PREPARATORY WORK: Bakitas MA. Self-determination: analysis of the concept and implications for research in palliative care. Canadian Journal of Nursing Research. 37(2):22-49, 2005 Barlow, J., Wright, C., Sheasby, J., turner, A. Hainswoth, J. (2002). Self-management approaches for people with chronic conditions: a review. Patient Education and Counseling 48, Blenkiron, P. & Hammill, C.A. (2003). What determines patients satisfaction with their mental health care and quality of life? Postgraduate Medical Journal 79, Burckhardt CS & Hanestad BR. Nursing strategies and quality of life outcomes: A systematic review. Vård I Norden 23 (1) 4-9, Carpenter, W.T., Gold, J.M., Lahti, A.C., Queern C.A., Conley, R.R., Bartiko, J.J., Kovnick, J. Appelbaum, P.S. (2000). Decisional capacity for informed consent in schizophrenia research. Archieves of General Psychiatry. 57, Cockcroft S, Sandhu N, Norris A. How does national culture affect citizens' rights of access to personal health information and informed consent? Health Informatics Journal. 15(3):229-43, 2009 Crombie IK, Irvine L, Elliott L & Wallace H. How do public health policies tackle alcohol-related harm: a review of 12 developed countries. Alcohol and Alcoholism. 42: , Cutcliffe J. Happell B Psychiatry, mental health nurses, and invisible power: Exploring a perturbed relationship within contemporary mental health care. International Journal of Mental Health Nursing. 18(2):116-25, 2009 European Commission. Ethical issues in EU research proposals checklist. EU. Available at: (accessed 12 February 2008), Freeman T. Best practice in focus group research: making sense of different views. Journal of Advanced Nursing 56, , 2006 Graneheim UH & Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24, , Hoekstra T, Lendemeijer HH & Jansen MG. Seclusion: the inside story. Journal of Psychiatric and Mental Health Nursing 11, , Kaltiala-Heino R & Välimäki M.Involuntary Commitment in Health Care; An Analysis of the Status and Rights of Involuntarily Treated Psychiatric Patients in Comparison with Patients Treated Involuntarily under Other Acts. European Journal of Health Law 8(4) , 2001.

5 Kuosmanen L, Hätönen H, Malkavaara H, Kylmä J & Välimäki M. Deprivation of liberty in psychiatric hospital care: the patient's perspective. Nursing Ethics 14, 79-89, Lau-Walker M. Thompson DR. Self-management in long-term health conditions--a complex concept poorly understood and applied? Patient Education & Counseling. 75(2):290-2, Montalvo-Liendo N. Cross-cultural factors in disclosure of intimate partner violence: an integrated review. Journal of Advanced Nursing. 65(1):20-34, 2009 Salize J & Dressing H. Epidemiology of involuntary placement of mentally ill people across the European Union. British Journal of Psychiatry 184, , Schilling LS. Dixon JK. Knafl KA. Lynn MR. Murphy K. Dumser S. Grey M. A new self-report measure of self-management of type 1 diabetes for adolescents. Nursing Research. 58(4):228-36, Schröder A, Ahlström G & Larsson BW. Patients perceptions of concept of the quality of care in the psychiatric setting: a phenomenographic study. Journal of Clinical Nursing 15, , Tengland PA Empowerment: a conceptual discussion. Health Care Analysis. 16(2):77-96, 2008 Välimäki M. Psychiatric patients' views on the concept of self-determination: findings from a descriptive study. Journal of Clinical Nursing. 7(1):59-66, 1998