RECOMMENDATIONS AND BEST PRACTICES FOR DATA SHARING IN NEW PROJECTS - THE FOT-NET DATA SHARING FRAMEWORK

Transcription

1 RECOMMENDATIONS AND BEST PRACTICES FOR DATA SHARING IN NEW PROJECTS - THE FOT-NET DATA SHARING FRAMEWORK 10 March 2015 Helena Gellerman, SAFER

2 INTRODUCTION New projects retrieving data in two ways Collecting data (New areas - VRU, automation ) Re-using data (Driver behaviour, normal driving, risk factors ) Data sharing within and between projects FOT-Net Data Sharing Framework provides recommendations 2

3 DATA SHARING FRAMEWORK (DSF) FOR NEW PROJECTS DSF Topic Project collecting data Project re-using data Project agreements Focus sets the DS rules Funds, available datasets Data and metadata description Data protection Focus decide early on data and descriptions Focus through all project steps Focus data sufficiently documented? Demands from data provider Education Important, but easy Demands from data provider Support and services Mid-end of project Focus Financial models Mid-end of project Focus what costs are involved? Application procedures Mid-end of project Focus 3

4 DATA SHARING IN PROJECT DOCUMENTS 1. Grant agreement 2. Consortium agreement 3. Participant agreement 4. External data provider agreement Participant agreement I also consent to have collected data (including video recordings and pictures) to be re-used in other research projects focusing on factors Yes No Grant agreement Requirements on data sharing after project Conditions for data sharing, i e funding of data External data provider agreement May data be accessed by another project partner/third party? Special conditions for what the data could be used for? 4

5 CONSORTIUM AGREEMENT /PROPOSALS Ownership and access to data and data tools Storage and download of data Access methods Areas of use Post-project re-use of data Post-project financing Storage and download of data Where will the data be stored, centrally or distributed? What are the requirements on data protection and how are they assured? Shall all data/part of the data be downloadable for all partners and if so, under which conditions? Shall all data/part of the data be downloadable for third parties and if so, under which conditions? Is there a time limit to request data for download? 5

6 DATA AND METADATA DESCRIPTION FOT/NDS Study Design and Execution documentation Why the dataset was collected? How data collection was executed? Objectives / Research questions / Experimental plan / Sample selection criteria Descriptive Metadata What is in the dataset? How each item was collected or calculated? List of measures and their characteristics / Events and performance Indicators and definitions DATA Context/Collected / Derived /Aggregated Structural Metadata How the dataset is organized? Data containers and format / Database schema design Administrative Metadata How the dataset is accessed and maintained? Rights management / Preservation 6

7 DATA PROTECTION Data provider analysis sites Personal, confidential, nonsensitive data Public download, conditioned download, remote access, on-site access Requirements and implementation guidelines 7

8 FINANCIAL MODELS Items requiring funding Financial models some considerations Fee for whole project/organisation/access point Funding for storage and analysis platform already covered pay for support and services Same fee for project, PhDs, master projects. Items requirering funding Research infrastructure for FOT/NDS data Management & coordination Analysis platform support Facilities & analysis work stations IT operations Data documentation Comments Management of the infrastructure Data management expert knowledge Tool support - further develop and adapt the analysis tools to new types of analysis Access management Physical secure work space Database servers, storage and licenses Post-project clean-up and structuring of data 8

9 APPLICATION PROCEDURES The application procedure shall at least address the following items: Where to apply Which information is needed? Who can approve an application, response times, conditions to be taken into account in the approval decision? Requirements on mandatory training Information on the data access procedure Requirements on data protection Potential costs for data access, support and research services Requirements on acknowledgements on publications, reports and presentations Documentation of data applications and the related approval decision(s). 9

10 DATA SHARING FRAMEWORK STATUS Aim: Data Sharing Framework accepted and adopted by FOT/NDS community Drafts developed together with stakeholders Data and metadata description Data protection Agreements, education, support and services, financial models, application procedures Drafts on website; Help us develop the framework, comment the draft! 10

11 THANK YOU! Contact info: Helena Gellerman /03/15 10/03/2015 WP4 FOT Data Data sharing and in Tools new projects

12 For more information & cooperation opportunities

13 EDUCATION Two levels: Web-based general education; e.g. NIH Education on local procedures The content of local procedures could involve Description of the data with special focus on personal data and Intellectual Property Rights (IPR) Requirements on the data handling from a legal point of view The content of the consent forms, especially the specific active consents related to data sharing Data ownership and access rights for partners/third parties The set-up of the physical workspace Local procedures on how to perform analysis 13

14 SUPPORT AND SERVICES Support and research services a core in data sharing Support services will assist the researchers, who does the actual work. Includes analysis tools. Research services - perform the research itself or extract usable datasets. 14