Thursdays from 11:30-2:30 pm in VH 1156 from January 8 to April 2, except February 19

Transcription

1 York University Health Policy and Management and Graduate Program in Critical Disability Studies HH/HLST and GS/CDIS Public Policy and Disabilities Winter 2015 Thursdays from 11:30-2:30 pm in VH 1156 from January 8 to April 2, except February 19 Instructor: Prof. Rachel Gorman Office: HNES 407 Hours: Thursdays from 2:30-4:30pm Phone: (416) ext during office hours gorman@yorku.ca COURSE INTRODUCTION This course examines the ways in which policy at the international, federal, provincial, and municipal levels organize and/or impede social life and participation for people with disabilities in Canada. We will pay attention to ways in which disability is defined through law and policy, and ways in which the enactment of policy excludes some and leads to surveillance for others. We will emphasis the role of disability advocacy in the development of disability policy. For our major project, we will follow a process similar to disability advocacy and alternative policy organizations. Based on principles of action research, and guided through weekly seminars and guest lectures, students will investigate ways in which textual and enacted policies shape access and inequality. Working as a group will allow us to collect more information from a wider range of sources, and to evaluate specific policy documents in their political economic contexts. Through investigating policy issues identified by class participants, we will learn about a range of current issues and challenges in disability policy. Most importantly, through a seminar format will provide a space to develop a Critical Disability Studies approach to policy. Course readings will provide students with a solid grounding in disability policy literature. Guest speakers will recommend research strategies and will highlight the contradictions between written, enacted, and de facto policy; and between formal rights and lived reality for disabled people. REQUIRED READINGS Bring a memory stick to the first class to download all of the readings in pdf format. Students requiring the readings in word format can contact me; or contact Claudio Iacoe transerv@yorku.ca if you have registered with transcription services 1

2 RESOURCES Acts and Regulations Alliance for Equality of Blind Canadians AODA AODA Alliance AODA Homepage ARCH Disability Law Centre Bakerlaw Disability and Human Rights Law Caledon Institute of Social Policy Canadian Association for Community Living Canadian Association of the Deaf Canadian Association of Muslims with Disabilities Canadian Charter of Rights and Freedoms Canadian Disability Policy Alliance CCD Immigration Council of Canadians with Disabilities COMSOC CPP Disability Benefits Empowerment Council ESDC Canada Independent Living Canada Mental Health Commission of Canada OHRC Ontario Provincial Schools Branch Sport for Persons with a Disability UN Enable World Network of Users and Survivors of Psychiatry SUPPLEMENTARY READING The following books provide a comprehensive background in the history of disability policy and advocacy in Canada. Available as an ebook at and on reserve at Scott Library: Boyce, William et al (2001) A Seat at the Table: Persons with Disabilities and Policy Making (Montréal & Kingston: McGill-Queen s University Press) Prince, Michael (2009) Absent Citizens: Disability Politics and Policy in Canada (Toronto: University of Toronto Press) Pothier, Dianne & Richard Devlin, eds. (2006) Critical Disability Theory: Essays in Philosophy, Policy, and Law (Vancouver: UBC Press) 2

3 Available on 3-day reserve at Scott Library: McColl, Mary Ann & Lyn Jongbloed eds. (2006) Disability and Social Policy in Canada Second Edition (Toronto: Captus Press) Stienstra, Deborah & Aileen Wight-Felske eds. (2003) Making Equality: History of Advocacy and Persons with Disabilities in Canada (Toronto: Captus Press) COURSE REQUIREMENTS 1. Seminar participation Ongoing 20% 2. Reading notebook Ongoing 20% 3. Short paper on emerging research interest + reading Due Mar. 2 20% 4. Final report, paper, or article (UG=15 p; G=20 p) Due Apr. 6 40% SEMINAR PARTICIPATION Full attendance at all scheduled seminars, for the duration of the class, is required. If you have schedule conflicts, or if you have planned an absence for any of the classes, you should find a different course to fulfill your program requirement. The 20% participation mark will be based on your work in the context of the seminar. This work includes: Coming to class with thoughtful questions about the assigned readings Updating the class on each stage of your research process Offering resources and ideas related to your colleagues research projects Making a short presentation on your research during the last three weeks of class For people who are uncomfortable with, or disadvantaged by, presenting your ideas in a group, I am happy to accept short written reflections based on in-class discussions and guest lectures. READING NOTEBOOK This notebook is intended to help you efficiently reflect on large quantities of literature that you are responsible for reviewing as a policy analyst. The purpose will be to reduce note taking to a minimum, to identify the type of document you are dealing with (academic article, policy report, community intervention, graduate research), and to grasp the questions and issues it raises. You are encouraged to do this task collectively, by dividing the readings producing shared notebooks. SHORT PAPER & READING This paper ( words, APA format) will serve as a research proposal for your final paper. It will include a succinct background of the topic, preliminary literature review, statement of the research question or problem, the sources you intend to look at, and your preliminary observations or hypotheses. You will have been discussing your proposal in the weekly seminars, and therefore I will be looking for evidence that your project has developed and grown through considering your colleagues (and my) suggestions. In addition to the paper, you must also submit one or two suggestions for readings that are directly related to your project. You are encouraged to do this project in pairs or teams, based on shared interests. 3

4 FINAL PAPER This paper may be written in the format of a research paper; an academic article (if you are contributing a new way of problematizing or framing your topic); or a report with recommendations (if you are contributing to disability rights advocacy). Standards for 4000-level and 5000-level papers will be discussed in class. In the process of doing your research for this paper, you will 1) identify and review international, federal, provincial, and municipal laws and policies related to this issue; 2) identify the political and economic entities organizing (around) this issue; 3) collect related policy critiques and recommendations prepared by disability advocacy groups; 4) identify potential ways to track how these laws and policies are actualized in people s lives from the perspective of service providers, regulators, and consumers; 5) Identify policy gaps, contradictions, and inequities related to this issue; and 6) review recent and relevant academic publications which focus on the policy questions and social relations your are studying. I encourage you to produce this paper or report jointly in research pairs or teams. COURSE POLICIES 1. I am happy to work with you to develop alternate formats for participation. These may include blogs, video or audio recordings, or other formats. 2. the short assignment on March 2, with the subject line policy short assignment. 3. me the final paper on April 7, with the subject line policy final assignment. 4. My desire is for all students to finish their course work in a timely manner, and in my experience, accommodation and modification before the fact is key to accomplishing this. Please approach me with your hopes and concerns, and we can work out a solution. 5. Undergraduate students: please see policies on the Grading Scheme, Academic Honesty, and Academic Accommodations for Students with Disabilities: Graduate students: for SGS guidelines around grading practices, missed assignments, and late work, link to Student Survival Guide at See pages & for policies on Assignment Deferred Standing Agreements; Grading Systems; Academic Honesty; and Accommodations for Students with Disabilities. NOTE ON LEARNING ENVIRONMENT As an instructor, it is my responsibility to foster a supportive, inclusive learning environment that will encourage both individual and collective growth. As emerging scholars, organizers, and policy-makers, it is your responsibility to become conscious of, and engaged in, the creation of a transformative, anti-oppressive collegial environment. We will spend time during the first class strategizing ways to support everyone s participation in an inclusive and collective way. The goal is to develop a working environment that echoes community-based, advocacy, or team-research projects this will be your mode of working upon graduation! For advocates in our group, it may already be your mode of working. 4

5 WEEKLY SCHEDULE PART ONE POLICY DOMAINS January 8 International Wehbi, Samantha et al (2009) Neo-colonial discourse and disability: The case of Canadian international development NGOs, Community Development Journal 45 (4): Lang, Raymond (2009) The United Nations Convention on the right and dignities for persons with disability: A panacea for ending disability discrimination? ALTER - European Journal of Disability Research 3 (3): World Health Organization & World Bank (2011) Understanding disability; Disability A global picture, in World Report on Disability (Malta: World Health Organization) pp. 1-46; search on-line Lord, Janet et al (2010) Disability and International Cooperation and Development: A Review of Policies and Practices (The World Bank) search on-line Oliver, Mike & Colin Barnes (2012) Back to the future: The World Report on Disability, Disability & Society 27 (4): Bickenbach, Jerome (2011) The World Report on Disability, Disability & Society 26 (5): January 15 National GUEST SPEAKER MABEL AGBONGHAE Kanani, Nadia (2011) Race and madness: Locating the experiences of racialized people with psychiatric histories in Canada and the United States, Critical Disability Discourse, 3 Hirji-Khalfan, Raihanna (2009) Federal supports for Aboriginal people with disabilities, Critical Disability Discourse 1 McColl, Mary et al (2010) A Canadians with Disabilities Act? (Queen s University: Canadian Disability Policy Alliance) search on-line Jongbloed, Lyn (2003) Disability policy in Canada: An overview, Journal of Disability Policy Studies, 13 (4):

6 Burns, Katharina & Gary Gordon (2010) Analyzing the impact of disability legislation in Canada and the United States, Journal of Disability Policy Studies, 20 (4): January 22 Provincial GUEST SPEAKER BEN McCOLL Mullings, Donna (2013) A pragmatic look at employment and the Accessibility for Ontarians with Disabilities Act 2005: Lessons from the Americans with Disabilities Act 1990 (York University: MRP) Available electronically from professor Lattanzio, Roberto (2013) Chapter six Disability and public education in Ontario, in in Disability Law Primer (Toronto: ARCH Disability Law Centre) search on-line Bond, Rebecca & Mary McColl (2013) A Review of Disability Policy in Canada, 2 nd Edition (Kingston: Canadian Disability Policy Alliance) pp. 1-12; & ; search on-line Access ON (2012) A Guide to Integrated Accessibility Standards Regulation (Ontario: Ministry of Community and Social Services) search on-line Beer, Charles (2010) Charting a Path Forward: Report of the Independent Review of the Accessibility for Ontarians with Disabilities Act, 2005 (Independent Reviewer) search online PART TWO POLICY FRAMEWORKS January 29 Status GUEST SPEAKER YVONNE SIMPSON Durst, Douglas et al (2006) Urban First Nations people with Disabilities speak out, Journal of Aboriginal Health September: Penner, Anna (2012) An Excessive Demand: Immigrants with Disabilities and Medical Admissibility in Canada s Immigration System (Ryerson University: MRP) search through Ryerson digital commons Durst, Doug & Mary Bluechardt (2004) Aboriginal people with disabilities: A vacuum in public policy, Saskatchewan Institute of Public Policy Briefing Note, 6 (January) search on-line Wong, Edward (2012) Not welcome: A critical analysis in Canadian immigration policy from 1869 to 2011, Critical Disability Discourse 4 6

7 Health Management Branch (2011) Handbook for Designated Medical Practitioners (Ministry of Citizenship and Immigration) search on-line February 5 Rights GUEST SPEAKER AHMED ALI & HAZEL HUNTER Minkowitz, Tina (2007) The United Nations Convention of the Rights of Persons with Disabilities and the right to be free from nonconsensual psychiatric interventions, Syracuse Journal of International Law and Commerce 43 (2): Courtis, Christian (2008) The right to life and the right to health of children with disabilities before courts: Some Latin American examples, in Disabled People and the Right to Life: The Protection and Violation of Disabled People s Most Basic Rights (London: Routledge) pp ; available through York library as ebook Loeb, Mitchell (2009) Chapter two: The effect of failed states in the well-being and lives of people with disabilities, in Malcolm MacLachlan & Leslie Swartz (eds.) Disability and International Development: Toward Inclusive Global Health (New York: Springer Publishing) pp ; available through York library as ebook Rioux, Marcia & Fraser Valentine (2006) Does theory matter? Exploring the nexus between disability, human rights, and public policy, in Dianne Pothier & Richard Devlin (eds.) Critical Disability Theory: Essays in Philosophy, Policy, and Law (Vancouver: UBC Press) pp ; available through York library as ebook Portero, Israel (2012) Are there rights in a time of crisis? Disability & Society 27 (4): February 12 Mental Health GUEST SPEAKER SAVITRI PERSAUD Early-Onset Illness and Mortality Group (2011) Forty is too Young to Die: A Call for Action from Toronto s Early-Onset Illness and Mortality Working Group (Toronto: Houselink) search on-line Tam, Louise (2012) Chapter two: Cultural competency and producing a fundable self, in Governing Through Competency: Race, Pathologization, and the Limits of Mental Health Outreach (University of Toronto: MA thesis) pp ; available through York library Proquest dissertations Vukic, Adele et al (2011) Aboriginal and Western conceptions of mental health and illness, Pimatisiwin: A Journal of Aboriginal and Indigenous Community Health, 9 (1):

8 Morrow, Marina et al (n.d.) The Recovery Dialogues: A Critical Exploration of Social Inequities in Mental Health Recovery (Simon Fraser University: Centre for the Study of Gender, Social Inequalities, and Mental Health) search on-line Khanlou, Nazilla (2009) Immigrant Mental Health Policy Brief (Ottawa: Strategic Initiatives and Innovations Directorate of the Public Health Agency of Canada) search on-line NO CLASS FEBRUARY 19 READING WEEK PART THREE POLICY SECTORS February 26 Education *PROPOSAL & READING DUE* GUEST SPEAKER TAMMY BENRNASKY Malhotra, Ravi & Morgan Rowe (2014) Chapter three Educational barriers, in Exploring Disability Identity and Disability Rights through Narratives (London & New York: Routledge) pp ; available from professor Snoddon, Kritsin (2009) Chapter two: American Sign Language and Early Intervention, American Sign Language and Early Literacy: Research as Praxis (U of T: Dissertation) pp ; available through York library Proquest dissertations Winn, Stephen & Ian Hay (2010) Transition from school for youths with a disability: Issues and challenges, Disability & Society 24 (10): Vickerman, Philip & Milly Blundell (2010) Hearing the voices of disabled students in higher education, Disability & Society 25 (1): Hibbs, Teri & Diane Pothier (2006) Post-secondary education and disabled students: Mining a level playing field or playing in a minefield, in Dianne Pothier & Richard Devlin (eds.) Critical Disability Theory: Essays in Philosophy, Policy, and Law (Vancouver: UBC Press) pp ; available through York library as ebook March 5 Employment GUEST SPEAKER BONNIE HEATH 8

9 Malhotra, Ravi & Morgan Rowe (2014) Chapter four Employment barriers, in Exploring Disability Identity and Disability Rights through Narratives (London & New York: Routledge) pp ; available from professor Vick, Andrea & Ernie Lightman (2010) Barriers to employment among women with complex episodic disabilities, Journal of Disability Policy Studies 21 (2): Wilton, Robert (2008) Workers with disabilities and the challenges of emotional labour, Disability & Society 23 (4): Wilton, Robert (2006) Working at the margins: Disabled people and the growth of precarious employment, in Dianne Pothier & Richard Devlin (eds.) Critical Disability Theory: Essays in Philosophy, Policy, and Law (Vancouver: UBC Press) pp ; available through York library as ebook Allison, Dean (2008) Workers with disabilities, in Employability in Canada: Preparing for the Future (Ottawa: Standing Committee on the Human Resources, Social Development and the Status of Persons with Disabilities) pp ; search on-line March 12 Community GUEST SPEAKER SHAHINA MANJI Khedr, Rabia (2007) Parenting with a Disability: Diversity, Barriers & Requirements An Exploratory Research Report (Toronto: diversityworx) available from professor Powers, Elizabeth (2011) Should government subsidize caregiver wages? Some evidence on worker turnover and the cost of long-term care in group homes for persons with developmental disabilities, Journal of Disability Policy 21 (4): Letheren Laurie (2013) Chapter seven Obtaining services for persons who have been labelled with and intellectual disability, in Disability Law Primer (Toronto: ARCH Disability Law Centre) search on-line Krogh, Kari & Jon Johnson (2006) A life worth living: Challenging medical and economic reductionism in home support policies for people with disabilities, in Dianne Pothier & Richard Devlin (eds.) Critical Disability Theory: Essays in Philosophy, Policy, and Law (Vancouver: UBC Press) pp ; available from York Library as an ebook Palmer, Michael (2011) Disability and poverty: A conceptual review, Journal of Disability Policy Studies 21 (4):

10 PART FOUR POLICY TOPICS March 19 Selected policy topics RESEARCH PRESENTATIONS We will read excerpts from participant-selected articles or policy documents March 26 Selected policy issues RESEARCH PRESENTATIONS We will read excerpts from participant-selected articles or policy documents April 2 Selected policy issues *PAPER DUE APRIL 7* RESEARCH PRESENTATIONS We will read excepts from participant-selected articles or policy documents 10