Your Guide to the. Cancer Patient Information. Tom Baker Cancer Centre. Holy Cross Centre. Peter Lougheed Centre

Transcription

1 Your Guide to the Tom Baker Cancer Centre Holy Cross Centre Peter Lougheed Centre Tom Baker Cancer Centre Cancer Patient Information Peter Lougheed Centre Holy Cross Centre

2 Medical Oncologist My Health Care Team Radiation Oncologist Surgical Oncologist Other Physicians Primary Nurse Dietitian Social Worker Psychologist Other CancerControl Alberta uses a team approach to your healthcare. This means you may be cared for by a number of healthcare professionals after you choose a treatment plan.

3 Welcome to the Tom Baker Cancer Centre A cancer diagnosis can be a difficult time for everyone involved. We want your first visit at the Cancer Centre to be as stress-free as possible. This guide will help answer questions like what you need to bring, where to park, what services are available and other useful information. We, at CancerControl Alberta, want to provide you with the best care possible. We encourage you to ask your healthcare team any questions you may have and take advantage of available supports and classes so we can work together to achieve this goal. 1

4 Phone Numbers Tom Baker Cancer Centre and Holy Cross Centre If you have questions or concerns related to your chemotherapy treatment, call: Days 8:00 am - 4:00 pm Chemotherapy Symptoms Toll Free Evenings and Nights 4:00 pm - 8:00 am Foothills Hospital Ask for the cancer doctor on call Main Switchboard (Operator) Patient Registration and Appointments Blood and Marrow Transplant Program Cancer Library (Knowledge Centre) Chemotherapy Appointments Chemotherapy Symptoms Out of Town Patients (toll free) Clinical Ethics Service or Colposcopy (Betty Flagler Clinic, Holy Cross) Diagnostic Imaging (Foothills Medical Centre) Radiology/X-ray (SSB) Nuclear Medicine and PET Scan MRI

5 Dietitians Drug Access Coordinator Healing Arts (Arts in Medicine) Laboratory Medicine Medical Daycare Unit... see Chemotherapy Appointments Nutrition Services (Dietitians)... see Dietitians Patient Relations Department Pharmacy Psychosocial Oncology Psychology Social Work Spiritual Care Radiation Therapy Rehabilitation Oncology (Occupational Therapy, Physical Therapy, Lymphedema) Release of Information Security Toll-free Number (Chemotherapy Symptoms) Volunteer Drivers (Canadian Cancer Society) Peter Lougheed Centre Main Switchboard (Operator) Outpatient Hematology Specialty Clinic After Hours - Emergency Only (If your doctor is based at the Peter Lougheed Centre, call this number for emergencies only and ask for the Hematologist on call) 3

6 Table of Contents Tom Baker Cancer Centre Driving, Public Transportation...6 Parking and map Places to eat in the centre and where to stay...9 Floor Maps What you will find (Departments)...10 Blood and Marrow Transplant Chemotherapy (Medical Daycare) Clinics (Outpatients and Medical Daycare) Clinical Trials Unit Diagnostic Imaging (Xrays, CT, etc.) Laboratory Services Pharmacy Radiation Therapy...18 Reception (Main) Holy Cross Centre Parking and map & 21 Places to eat in the centre...19 What you will find Main Building ( nd St SW)...20 Pharmacy Rehabilitation Oncology...21 Family Medicine ( nd St SW)...22 Psychosocial Oncology Peter Lougheed Centre Parking and map...24 What you will find Floor Map...25 Outpatient Hematology and Treatment...26 Laboratory Diagnostic Imaging Outpatient Pharmacy 4

7 Social Work...27 Spiritual Care Inpatient Unit 38 Your First Visit A checklist of what to bring Arriving for your appointment...29 Meeting Your Healthcare Team Questions about your cancer care Things to Know About Your Treatment Covering the costs of your cancer care Treatments...33 Transportation during your treatment...34 What to bring to treatments and follow-up Clinical and Support Services Available Dietitians Drug Access Coordinator Clinical Ethics Service Library / Knowledge Centre...36 Healing Arts Interpreter Services Pharmacy Services...37 Psychosocial Oncology Rehabilitation Oncology Speech and Swallowing...38 Spiritual Care Volunteer Driver Program Volunteer Services...39 Cancer Education Your Rights and Responsibilities 5

8 Tom Baker Cancer Centre Address St NW Calgary, AB T2N 4N2 Main Number Appointments and Registration After Hours You will get a number from your care team Driving We are attached to the Foothills Medical Centre, on the east side. It is on the corner of 16th Avenue and 29 Street NW. Public Transportation Call for information. Calgary Transit routes 20, 40, 91 and 419 will bring you to the centre. 6

9 Parking Parking for patients and visitors is available in Lot 1 and Lot 6. Wheelchair accessible spaces are in Lot 1 in front of the centre on the upper level. Please note that there is no elevator from the lower level of Lot 1. In addition, if there is a parking attendant present, you may be able to enter the upper level of Lot 1 even when it is full by showing your white cancer centre patient identification card. However, once in the lot, you may still need to wait for a space to become available to park in. 2 hour free parking is available on Toronto Crescent, across 29 Street to the east of the centre. Where can I get a parking pass? You can get weekly parking passes from the machines inside the entrance of the Tom Baker. If you want a monthly pass, you'll need to fill out a Parking Validation form and take it to the Foothills Parking office. Ask the nurses or clerks at the Cancer Centre for one of these forms. Parking Office Room 060, Women s Health Centre/North Tower Foothills Medical Centre Business Hours: 8:00 am 4:00 pm Monday Friday (closed on holidays) Phone: Parking rates apply 24 hours a day 7

10 Tom Baker & Foothills Centre Parking Lot Map 8

11 Are there patient drop off and pick up areas? There are 2 drop off and pickup areas at Tom Baker: The main entrance (north side) The back entrance (south side; Radiation Therapy entrance) Places to eat at the Tom Baker Cancer Centre The eateries are in the Foothills Medical Centre (FMC). The Timberline cafeteria is on the ground floor of the FMC and is open Monday to Friday from 7:00 am 3:00 pm. The Garden Deli is on the main floor of the Special Services Building (attached to Tom Baker). It is open 6:30 am 10:00 pm (closes at 8:00 pm on Statutory holidays). The Good Earth Cafe is in the Foothills Hospital Atrium between the main lobby and Emergency. It is open 24 hours a day. Vending machines are on the ground floor around the corner from the main FMC elevators. Volunteers also offer refreshments and cookies throughout the day in the treatment waiting areas at the Cancer Centre. Places to stay near the Cancer Centre If you live outside of the Calgary area and need a place to stay during your treatments, call the Foothills Medical Centre Patient Hostel at or pick up a copy of the booklet How to Find Accommodation in Calgary from the pamphlet racks. 9

12 What you will find (see maps pages 12 17) (departments in alphabetical order) Blood and Marrow Transplant Program Located on the ground floor Provides before and after transplant care for patients undergoing blood and marrow transplants Chemotherapy (Medical Day Care) Located on the ground floor Provides Intravenous (IV) chemotherapy treatment for patients and provides support to help you with any side effects you may have during treatment Appointments and scheduling Chemotherapy Symptoms or toll-free for out of town patients Clinics (Medical Day Care and Outpatients) Located on the ground floor There are 2 clinic areas at the Tom Baker where you will have your visit with the doctor, nurse and care team Clinical Trials Unit Located on the basement floor We do all phases of trials, including trials involving new drugs, vaccines, and treatment 10

13 The clinical trials nurse coordinates the clinical trial and is a member of the multidisciplinary team To learn more about clinical trials, pick up the pamphlet Participating in a Cancer Clinical Trial or visit: albertacancerclinicaltrials.ca Diagnostic Imaging (X-ray, CT Scan and Ultrasound) X-rays, CT scans and ultrasound appointments are done on the ground floor. Turn left out of the beige Special Services Building elevators. MRI appointments are on the basement floor. Laboratory Services (Lab) Located on the ground floor, around the corner from the Outpatient Clinic area (fast access from the beige Special Services Building elevators). Blood and specimen tests can be done here. If you can, it's a good idea to visit a lab closer to home. Ask your nurse if this is a good idea for you. If it is, your nurse will give you the forms you need. Pharmacy Services Located on the ground floor. Turn left out of the silver Tom Baker elevators. Only cancer treatment prescriptions will be filled here. Fill your prescriptions for side effects and other medicines at your local pharmacy. 11

14 Main Floor Tom Baker Cancer Centre Stairs Pathology Class Room CC121 Offices Department of Oncology Offices Class Room CC109 Stairs Offices Board Room CC Knowledge Centre (Library) Silver Elevators Auditorium CC104 Sta

15 Main Floor Offices Personal Well-Being Kiosks Main Reception Volunteer Services Foothills Pharmacy and Garden Deli CHR Social Work Gift Shop Patient Advocate Spiritual Care Stairs Beige Elevators Offices Discharge Lounge airs Fire Exit Only Alberta CHR Cancer Clinical Foundation Nutrition 13 Main Entrance

16 Ground Floor Tom Baker Cancer Centre Stairs Offices A Medical Daycare B Unit (Chemotherapy) Pharmacy Kitchen C Medical Daycare Reception Silver Elevators Stairs Pamphlets Reception Blood and Marrow Transplant Clinic Offices 14 Pharmacy Reception

17 Ground Floor Offices Stairs Beige Elevators X-Ray CT Scan Ultrasound Outpatient Clinic (Consultations) Blood Lab Timberline Cafe and Foothills Fire Exit Pamphlets 15 Fire Exit Outpatient Clinic Reception Offices Counselling and Social Work Stairs

18 Basement Floor R Un Fire Exit Only Tom Baker Cancer Centre Offices R R Exam Room Exam Room Basement Entrance Stairs Ex it Medical Physics RT 9 Change Area Class Room CCB20 RT Unit 8 Dietitian Silver Elevators RT Unit 7 16 Exam Room Change Area Pamphlets To RT Unit 10 Radiation Reception Exam Room RT Unit 6

19 RT nit 1 RT Unit 4 Radiosurgery Reception Treatment Planning To MRI and Foothills Exam Ortho Stairs Nurses' Patient Day Offices Room Offices 6 17 Fire Exit Only PostPreSurgery Surgery Operating Room Exam RT Unit 5 Stairs RT Unit 3 Radiosurgery Exam Room Change Area Cast and Mould Beige Elevators RT Unit 2 Simulator Procedure Area Change Area Simulator Procedure Room To Clinical Research Fire Exit Only Basement Floor Exit to Ambulance Bay

20 Radiation Therapy Located on the basement floor. We have 10 treatment units staffed by Radiation Therapists. If radiation therapy is part of your treatment options, therapists and nurses will teach you about what to expect and which unit to go to. Reception (Main) Located on the main floor, inside the front doors of the Tom Baker. If you are coming for your first doctor visit, you will check in here and pick up your white identification card. Once your treatment has started, you do not need to check in here each time. Instead you can check in at the reception desk in the area of your treatment or clinic visit. 18

21 Holy Cross Centre Many patients will have their first doctor s visit and follow-up appointments at this centre. There is no treatment (chemotherapy or radiation) at this centre. It is for clinic visits only (doctor/nurse appointments). See page 20 for address and phone numbers. Parking Parking for patients and visitors is available in the main lot in between the buildings (wheelchair accessible spaces are located here also). Please see page 20 for the parking map. Some free parking is available in the area as well but only for 2 hours. Please read the signs carefully. Places to eat at the Holy Cross Centre The Mission Bistro cafeteria is on the ground floor of the Holy Cross Building and is open Monday to Friday from 8:00 am 3:00 pm. 19

22 Address Holy Cross Centre nd St SW Calgary, AB T2S 3C3 Main Number Appointments and Registration After Hours You will be given a number by your care team Colposcopy (G101) Psychosocial Oncology Building nd Street SW (separate building to the north of the main centre) Rehabilitation Oncology What you will find in the main building nd St SW Oncology Clinics (Ground and 2 nd Floors) Two large clinic areas are available for new patient visits, and follow-up visits. Most patients with prostate, breast, lung, colorectal, bladder, kidney and testicular will be first seen at the Holy Cross Centre. Pharmacy (Ground Floor) Fills prescriptions for cancer treatment drugs only. 20

23 25th Avenue SW To Erlton / Stampede LRT Station Ambulatory Oncology Clinics nd Street SW Staff Parking 24th Avenue SW Main Entrance to Clinics Elbow River Holy Cross Lane SW Loading Docks Staff Parking Psychosocial Resources and Cancer Screening nd Street SW Entrance Public Parking 2nd Street SW (2 hour free parking on West side) N E S W CancerControl Holy Cross Centre Parking Map Psychosocial & Screening Parking 23rd Avenue SW 21st Avenue SW 22nd Avenue SW 4st Street SW Rehabilitation Oncology (2 nd floor) This program provides cancer patients with physiotherapy and occupational therapy outpatient services for issues related to their cancer or cancer treatments. The program can also help with managing lymphedema (swelling of a body part) that can sometimes happen after the removal of lymph nodes or radiation treatment. You need a doctor s referral to access these services. If you think this is something you need, please ask your doctor or nurse at your clinic visit to make the referral. If you need more information, please call

24 What you will find in the Family Medicine building ( nd Street SW) Psychosocial Oncology (see map page 21) The staff are trained professionals in psychology, psychiatry and social work and are focused on helping patients and their families cope with the emotional, psychological and social stresses that can come from the experience of cancer and its treatment. They offer counselling, financial help, classes and support groups. Please call for information. 22

25 Peter Lougheed Centre Some patients with blood-related types of cancer are treated at the Peter Lougheed Centre. If your doctor works at this centre, then you may have your first visit in the Outpatient Specialty Clinic and your treatments in the nearby Treatment room. Address Avenue NE Calgary, AB T1Y 6J4 Switchboard/Hospital Operator Hematology Clinic and Treatment After Hours Emergency Department All support services and education classes are available to you at the Tom Baker Cancer, even if you are receiving treatment at the Peter Lougheed. 23

26 Parking The visitor parking area is on the west side of the main building. Parking passes are available at the Parkade Kiosk. Parking Office (Room 0332B) Business Hours: 8:00 am 4:00 pm Monday Friday (Closed on holidays) Phone or Parking Kiosk (East entrance, Lot 11 Parkade - P3 on map) Business Hours: 7:00 am 11:00 pm Monday Friday (Closed on holidays) 24

27 EMERGENCY ENTRANCE Peter Lougheed Centre Avenue NE Calgary, AB T1Y 6J NORTH Welcome to the Peter Lougheed Centre Knowledge Centre / Library Conference Rooms Level 0 Basement Volunteer Resources Market Café Courtyard General Café Legend Parking Office P Rehabilitation Auditorium Parking Kiosk P Day Maximum $13 Visitor Parking Entrance P WEST ENTRANCE One Way Visitor Parking Lot To Sunridge Mall Psychiatric Consultation Liaison Second Cup Diabetes Cholesterol Hypertension Clinic Outpatient Clinics / Outpatient Admitting Clinic 1 Clinic 2 Social Work GI Clinic? Flower Shop Gift Box Calgary Health Trust Cast Clinic Clinic 3 HPTP Outpatient Pharmacy Level 1 Main Spiritual Care Services Pre- Admission Clinic Staff Elevator On 26 Avenue N.E. Diagnostic Imaging Main Elevator Take Ten? X-ray SOUTH ENTRANCE Laboratory Services (Outpatient) Minor Surgery Business Office Admitting Sacred Space Emergency Health Records E Protection Services Emergency Parking P? East Wing via Main Elevator ? Information Washrooms P Parking Centre / Knowledge L:ibrary $ ATM 36 Street N.E. LRT Line Retail Pharmacy X-ray Diagnostic Imaging Transit E Emergency Elevator Telephone Sacred Space Protection Services Food Services East Wing Accessible via Main Elevator Units 28, 29, 38, 39, 48, 49 PLC Floor Map 25

28 Public Transportation Call for information. The Sunridge C-Train station is a short walk from the hospital. If you park at Sunridge Mall, you may get a parking ticket. What you will find (see map page 25) Outpatient Hematology and Treatment Clinic This is the main clinic area at the Peter Lougheed Centre where you meet with your cancer specialists and nurses. If you need treatments, you will receive them down the hallway from the clinic in the Treatment Room. (See map page 27, Clinic 1 - Hematology) Laboratory Lab hours: Monday Friday 7:00 am 5:00 pm Located on the Main Floor. Diagnostic Imaging Located on the main floor at the Peter Lougheed Centre This area is where you may have tests such as CT scan, MRI, X-Ray or ultrasound. Outpatient Pharmacy Hours: Monday Friday 8:00 am 5:00 pm Located down the main hallway from the Specialty Clinics area. 26

29 166 Women s Health Sacred Space Take Ten Calgary Health Trust The Gift Box Psychiatric Consultation Liason Service Diabetes/ Hypertension / Cholesterol Clinic Social Work Social workers are available to help you cope with cancer and emotional, social or financial concerns. Spiritual Care Services Spiritual care coordinators are available to offer you support whether or not you have a formal faith tradition. The Sacred Space is a space for multi-faith services and quiet reflection. It is open 24 hours a day, 7 days a week and is on the Main Floor of the Peter Lougheed Centre. Inpatient Unit Unit 38 is located on the 3rd floor of the East Tower. You may be admitted here if you need inpatient care. Clinic 1 - Hematology Clinic 1 - Respiratory Clinic 2 - Vascular, Gastroenterology, Internal Medicine, Endocrinology, Pediatric Transition, Fine Needle Aspirate, AMS, CCDM, Anticoagulation Clinic, Day Medicine Clinic 3 - General Surgery, Hand Clinic, Neurology Cast Clinic Home Parenteral Therapy Program Endoscopy / ERCP & Post Procedure Recovery Pulmonary Function Testing PFT Day Medicine Rexall Pharmacy Trach / AADL Clinic HPTP EMG / EEG 3 Trach/ AADL GI/ ERCP 2 SOUTH ENTRANCE Cast Clinic EMERGENCY ENTRANCE Protective Services Admitting/ Business Office Cafeteria Pre- Admission Clinic Rexall Pharmacy Outpatient Clinics: Clinics 1, 2, 3 Cast Clinic Rexall Pharmacy Respiratory Hematology WEST ENTRANCE EMERGENCY Triage / Admitting Rehabilitation WEST ENTRANCE Calgary s Own Flower Co. Second Cup Diagnostic Imaging MRI / CT Scan Ultrasound / Nuclear Medicine Meeting Room 1148 Outpatient Laboratory PLC - Outpatient Clinics Map - Clinic 1 - Hematology 27

30 Your First Visit What should I bring to my first appointment? Alberta health care card and photo I.D. A list of the medicines you are currently taking including vitamins and natural health products. Your pain medicines (if you are taking any). A list of questions you may have (for ideas go to page 31). Something to read or a portable device to watch or listen to. Please bring earphones. Bring something to eat or drink or money to buy something if you prefer. A support person such as a family member or friend. It may be helpful to have them take notes during your appointment. If you have a smartphone or tablet you may want to use it to record what is said during your appointment. Make sure you ask for your healthcare providers permission first. 28

31 Arriving for your appointment Please check in at the registration desk at the main entrance when you arrive at the Tom Baker Cancer Centre. You will receive a white identification card in a plastic sleeve. Please bring this card to all of your future appointments. You will then be told where to go for your visit. How long will my first appointment take? You should plan to spend 2 to 4 hours for your first visit. Meeting Your Healthcare Team Our doctors, nurses, and other healthcare providers work together as a team to care for you. You may have more than just one doctor or nurse caring for your needs. The members of your team may change during the course of your care if your needs change. Your healthcare team may include some of the people below: Cancer doctors There are different types of cancer doctors. You may see a: Medical Oncologist (chemotherapy doctor) Radiation Oncologist (radiation doctor) Surgical Oncologist (surgeon) Hematologist Oncologist (blood cancer doctor) They will tell you your treatment options and the risks and benefits. The doctor makes the treatment plan with you. 29

32 Nurse Practitioners Are advanced practice registered nurses who have specialized education and experience and may manage your care. Nurses Coordinate your care, teach you about cancer, tests, treatments and will work with you to manage your concerns. They will direct and connect you to other members of your healthcare team as needed. Radiation Therapists Plan your radiation treatments with the radiation doctor. They will also teach about what to expect, administer the radiation treatments and help you manage your concerns. Pharmacists Fill your cancer medicine prescriptions, answer questions about your current medications and provide information about your cancer medicines and their effects. Supportive Care Professionals Cancer and cancer treatments can impact your quality of life in many ways. A team of supportive care professionals is available to help you throughout your cancer journey. This may include professionals such as: Doctors who specialize in managing pain and symptoms Cancer rehabilitation professionals: physiotherapists, occupational therapists, speech-language pathologists Psychosocial professionals such as psychologists or social workers. 30

33 Clerks Greet and direct you to where you need to go. They will also book your appointments, notify you of any changes and check you in when you arrive. The Tom Baker Cancer Centre is a teaching facility. Students, interns and residents may be involved in your care. Please ask the healthcare team questions if you are unclear about who people are and what their responsibilities are. Questions about your cancer care Your cancer doctor will answer most of your questions while you are talking about your cancer care. Listen carefully and be clear with your doctor about your concerns. If you wish, you can use these questions to guide you when you are talking with your doctor. Make sure you get all the answers you need during your appointment. 1. What kind of cancer do I have, and where did it start? What is the name of my cancer? 2. Has the cancer spread to other parts of my body? If it has, where? 3. How advanced is my cancer? 4. What treatment option or options do you recommend for me? 5. What are the goals of the treatment you recommend? 6. If I choose not to have treatment what will happen? 31

34 Things to Know About Treatment Covering the Costs of Your Cancer Care Alberta Health Care pays for the costs of chemotherapy and radiation therapy in most cases. However, it does not cover pain and anti-nausea medications. These medications can be very expensive, so it s important to have extra coverage. How can I cover these other medications? You can use a private or provincial health insurance to cover the costs not covered by Alberta Health Care. If you have private or public insurance call and ask your insurance company: Do I have a yearly maximum for prescriptions? If yes, what is it? What is my co-pay portion? Is my plan a direct bill plan or a reimbursement plan? What level of coverage do I have? For example, is it full or partial coverage? What if I have no drug coverage? You can still apply even with a pre-existing illness. If you have no drug coverage, we encourage you to apply for Alberta Blue Cross Non-Group as soon as possible. It will take about 3 months before Alberta Blue Cross starts covering your medicines. For example, if you apply in March you will not get drug coverage until July 1. 32

35 You can find information and application forms for Alberta Blue Cross Non-Group at: alberta.ca/services/drugs-non-group.html What if I need more help? If you want help with filling out the paperwork, have more questions about what your plan covers, or need more information, please call the Drug Access Coordinator at or one of our Social Workers at Treatments You may need one of the below treatments, or a combination of them. The main treatments we offer include: Surgery: Certain types of day surgeries to treat cancer are performed at the Tom Baker Cancer Centre, but most surgeries take place in hospital operating rooms. Radiation Therapy: Radiation therapy uses radiation to treat your cancer. You will get information about what to expect with the treatment and side effects, and have the opportunity to take classes that may help you manage during your treatment. Chemotherapy: These are drugs designed to destroy or target your cancer cells. You may get these drugs by intravenous (IV), injections or by pill depending on the type of drugs you need and the best way to get them into your system. We offer classes and information about chemotherapy and how to manage the side effects you may have. 33

36 Transportation during your treatment We recommend you arrange a ride for your first treatment. For future treatment appointments, if you need help travelling to and from your cancer treatment appointments, the Canadian Cancer Society offers a volunteer driver program. Call for more information. What to bring to your treatment and follow-up appointments Your CancerControl Identification card A list of questions you want to ask staff A list of medicines you need renewed by your oncologist Alberta health care card and photo I.D. A list of the medicines you are currently taking including vitamins and natural health products. Your pain medicines (if you are taking any). Something to read or a portable device to watch or listen to. Please bring earphones. Bring something to eat or drink or money to buy something if you prefer. A support person such as a family member or friend. It may be helpful to have them take notes during your appointment. 34

37 If you have a smartphone or tablet you may want to use it to record what is said during your appointment. Make sure you ask for your healthcare providers permission. Ask staff to arrange for an interpreter, if you have trouble understanding English. Clinical and Support Services Available (alphabetical order) Dietitians (Nutrition) Registered Dietitians can help you eat well during your treatments. You can see a dietitian by attending one of the classes they offer, or call for advice or book an appointment. Nutrition is important in cancer care. Available Monday Friday 8:00 am to 4:15 pm. Drug Access Coordinator The Drug Access Coordinator can help you understand how your medication coverage works and what options may be available to you during your cancer treatments. Please call if you would like information about programs that can help with the cost. Clinical Ethics Service or This service provides support and guidance for patients, families and healthcare providers with difficult decisions such as choosing between two treatment options, or refusing to be treated. 35

38 Library / Knowledge Centre Library and information services are available for patients, families and friends. The Library in the Tom Baker Cancer Centre specializes in books and journals on cancer care, treatments, research and supportive care. Library staff is happy to help you search and find cancer information. You may borrow books, DVD s, videos and CD s. The Centre is on the main floor near the escalators. Please call for library hours. Healing Arts / Arts in Medicine Creative expression can help patients and family members face feelings that come with a diagnosis of cancer. Supports available through the Healing Arts program include both individual and group art therapy, as well as arts-based groups designed to provide a safe space to express and play. Please pick up an Arts in Medicine pamphlet from the racks for more information on upcoming opportunities. Classes are also listed in the Classes for Patients and Families booklet. Interpreter Services You can ask for an interpreter during your clinic visits. Professional interpreters are available in more than 200 languages. If possible, please let us know before your appointment if you would like to have an interpreter. This is a free service. 36

39 Pharmacy Services Tom Baker pharmacy: ground floor (left off of the elevators). Holy Cross pharmacy: ground floor Cancer Centre pharmacies provide your cancer treatment drugs that you may receive in clinic or take at home. These medicines are covered by your provincial health care insurance. You will need to fill your prescriptions for other medicines at your regular pharmacy. Our pharmacists review your current medications and provide information about your cancer medicines and their effects. Make sure you have a list of all current prescription and nonprescription medications including vitamins and herbal products. Psychosocial Oncology Staff focus on helping patients and their families cope with the emotional, psychological and social stresses that can come from cancer and its treatment. Staff offer services such as counselling, assessment, support of finances, educational classes and support groups. Call for more information or pick up the brochure "Counselling and Support" from the pamphlet racks. Rehabilitation Oncology This program provides cancer patients with physiotherapy and occupational therapy outpatient services for issues related to their cancer or cancer treatments. The program also helps with managing lymphedema (swelling of a body 37

40 part) that can sometimes happen after the removal of lymph nodes or radiation treatment. You need a doctor s referral to access these services. If you think this is something you need, please ask your doctor or nurse at your clinic visit to make the referral. If you need more information, please call Speech and Swallowing Cancer and cancer treatments can cause a wide variety of disorders that affect people s ability to communicate or swallow effectively. If you are having difficulties with speaking or swallowing, a Speech Language Pathologist may help you. You need a doctor s referral for this service. Please ask for one at your clinic visit if you feel it would help you. Spiritual Care Helps patients and families explore their beliefs, values and emotions, keeping the feelings of hope and purpose strong in their lives. It offers support to all, whether religious or non-religious and individual counselling is available by appointment. There is a multi-faith chapel available on the main floor of the Foothills Medical Centre. Volunteer Driver Program The Canadian Cancer Society operates a shuttle service for patients who are receiving treatment and are living in the Calgary area. Please pick up an information sheet from the pamphlet racks or call for more information. 38

41 Volunteer Services Volunteers generously give their time and energy to help patients find their way, serve refreshments, prepare patient information packages, operate the Gift Shops, as well as many other things. If you are interested in being a volunteer, please visit the website Cancer Education New Patient Information Sessions Every Thursday (except on holidays; any exceptions would be listed in the "Classes for Patients and Families" booklet) 2:00 pm 3:00 pm, Tom Baker Auditorium (main floor) This session will help prepare you for your medical care and give you information about the centre. Family and friends are welcome! Please note: If you are unwell, physically unable, or staying in hospital, please do not come to the class. You will be given any information that you need at your clinic visit instead. If you live out of town, you may attend if you like. If not, you will be given information at your clinic visit instead. To Register There is no registration necessary. Please come to any session. 39

42 Other Classes We also offer other classes on chemotherapy, radiation, nutrition, and lifestyle matters. For all of the details, pick up the brochure Classes for Patients and Families. Useful Websites Your healthcare team is happy to answer your questions. But if you d like to do some of your own research, the internet can have a lot of good, and up-to-date information. Remember that not all sites are reliable. Here are some websites to get you started: Alberta Health Services albertahealthservices.ca/cancer.asp American Cancer Society cancer.org Canadian Cancer Society (CCS) cancer.ca Canadian Cancer Trials canadiancancertrials.ca CancerNet cancer.net Cancer View Canada cancerview.ca My Health Alberta myhealth.alberta.ca National Cancer Institute (U.S.) cancer.gov OncoLink oncolink.org 40

43 Your Rights and Responsibilities Your Health Information We collect only what we need to do our job. When possible, we work with information that doesn t include your name or other information that could identify you. Your health information may be used to: Provide you with the best possible health services Determine what health services you re eligible for Evaluate your care Gather statistics on cancer and help in cancer prevention Conduct research if approved by an ethics committee Patient Rights What You Can Expect From Us As a patient, you have a right to: Be treated with care, dignity and respect. Expect that your medical records be kept confidential. Review your health records. Have your diagnosis, treatment options, prognosis and other information explained in clear and understandable terms (with the help of a medical interpreter for another language, when needed). Know the benefits and risks of a procedure or treatment offered to you. Decide whether you wish to be treated or not. If you refuse treatment, you will be told of the likely medical results of your decision. 41

44 Refuse to sign a consent form (agreement) if you feel everything has not been clearly explained. You can cross out any part of a consent form that you do not want applied to your care. Change your mind about any treatment or procedure for which you have given your consent (agreement). Agree or refuse to take part in medical training and research programs. Voice comments and concerns regarding the quality of the care and service you receive, and know that this will not have a negative effect on your care. If you have something you would like us to know, please feel free to talk with our staff, ask for the Manager of the area or inform the Patient Feedback Line at Alberta Health Services by calling or ing patientfeedback@albertahealthservices.ca. Patient Responsibilities Help Us to Help You Appointments It is very important that you come to all your appointments, and diagnostic tests. If you cannot come to an appointment, please call us as soon as possible to reschedule. Keep in mind that if you need to reschedule an appointment, it may cause a delay in your care. Make Sure Your Phone Number is Not Blocked When we call you from the Cancer Centres, our identity is blocked from your telephone to help ensure your privacy at your home or work setting. 42

45 If your telephone service blocks phone numbers that are not identified, then we may not be able to reach you with important calls regarding your care. Please check your service and make sure that your telephone does not require an identity from the caller in order to reach you. If You are Sick Call the Cancer Centre if you have an appointment and have any of these symptoms: Fever New Rash Cold Symptoms 43 Sore Throat Diarrhea New Cough Cancer treatments can weaken your immune system, which makes it easier for you to get sick while you are on treatment. If we know that you are sick before your appointment, we can better protect your health and the health of others. Please Don t Wear Scents Many patients and staff members are allergic to perfumes, colognes or lotions. Please don t put on any scented products such as body sprays, scented deodorant, or hairspray, on days you are coming to the Cancer Centre. If you forget, do your best to wash it off. Be Active in Your Care We encourage you to participate in your care. Speak up if you have any questions or concerns. You are the most important member of your care team.

46 Attend our classes. There are many presentations for patients each week that are free of charge. Knowing what to expect and how to manage your treatments and symptoms is important. Use the many supportive services the Cancer Centre offers for you. Respect the Privacy of Others If another patient is talking with a staff member, give them privacy. Keep a respectful distance from reception desks when staff are serving other patients. Don t share the identity of other patients with people outside the cancer centre, unless they give their consent. 44

47 Notes

48 Cancer Patient Education General Info PatientGuide TBCC 2015 B0002