Leadership Training for Individuals with Disabilities and Family Members

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1 Leadership Training for Individuals with Disabilities and Family Members Participant Manual Module One Module Two Module Three Appendices References and Index This training was developed and sponsored by the Munroe-Meyer Institute, at the University of Nebraska Medical Center, and was supported in part by funds provided by the Nebraska Planning Council on Developmental Disabilities, the Nebraska Department of Health & Human Services.

Munroe-Meyer Institute, at the University of Nebraska Medical Center, and was supported in part by funds

2 Leadership Training for Individuals with Disabilities and Family Members Developed and Offered by the Munroe-Meyer Institute for Genetics and Rehabilitation Nebraska Medical Center Omaha Primary Investigator: Mark A. Smith, M.S. Co-Primary Investigator: Shirley A. Dean, B.A Curriculum Developers: Mary Angus and Ann Lauritzen Project Advisory Committee: Ann Anderson, the Ollie Webb Center; Glenda Davis, PTI-Nebraska; Eric Evans, Nebraska Advocacy Services; Linda Gardels, The Nebraska Planning Council on Developmental Disabilities; Kathy Hoell, The Statewide Independent Living Council; Linda Liebendorfer, Nebraska Family Support Network; Mary McHale, Omaha Down Syndrome Parent Association; Chris Reed, Family Voices; MaryAnn Schiefen, Munroe- Meyer University Center on Disabilities Consumer Advisory Board; Patty McGill Smith; The Arc of Nebraska; Janet Tibbs, People First of Nebraska; Deborah Weston, The Arc of Nebraska. Special thanks to: Pam Ferrick, Warren and Elaine Phillips-Stork, Munroe-Meyer Institute; and Brad Meurrens, Nebraska Advocacy Services. Funds in support of this Project were provided by the Munroe-Meyer Institute University Center for Disabilities and The Nebraska Planning Council on Developmental Disabilities, The Nebraska Department of Health and Human Services

A Curriculum Developers: Mary Angus and Ann Lauritzen Project Advisory Committee: Ann Anderson, the Ollie Webb Center; Glenda Davis, PTI-Nebraska; Eric Evans, Nebraska Advocacy Services; Linda

3 Leadership Training for Individuals with Disabilities and Family Members Welcome! Our goal is to provide information on the development of leadership skills in advocating for the improvement of services/systems for people with disabilities and their families in Nebraska and beyond. Do you believe that each person should have the opportunity to lead a self-directed life an enviable life? If this is what you believe, then this training is for you. It is designed for family members, people with disabilities, and other concerned citizens, who have some experience as disability advocates and who are interested in becoming more informed in working to improve the services for people with disabilities. This manual which accompanies this 2 day training is divided into 3 Modules: 1. History, philosophy, and the importance of advocacy. 2. Communication skills for advocates, and 3. Systems of services and approaches to change. Each module is followed by a section of supporting materials. Additionally, there is an Appendix of reference materials and a list of references. Please note that key ideas are highlighted throughout these materials. We wish to thank the advisory group members that provided overall direction to our efforts, the MMI Media Department, as well as, the presenters who will bring this training to you. We hope you find this training helpful in your future advocacy endeavors and that the manual provides reference materials that are useful to you.

Do you believe that each person should have the opportunity to lead a self-directed life an enviable life? If this is what you believe, then this training is for you.

4 Leadership Training for Individuals with Disabilities and Family Members Agenda THE VISION MODULE 1 - The History, Philosophy, and Values of the Disability Movement MODULE 2 -Communication & Problem Solving Skills for Advocates DAY 1 WELCOME All people should have the opportunity to lead a selfdirected life..an enviable life. Participants will learn about the history, philosophy and values of the disability movement in the U.S. that have shaped the current system, so that participants will understand the need for continued advocacy. Participants will enhance personal skills for communication, problem solving and self care. EVALUATION MODULE 2 - Communication & Problem Solving Skills for Advocates MODULE 3 Nebraska Services, Disability Advocates and Innovative Practices DAY 2 WELCOME Complete discussion on communication, problem solving, and self-care. Participants will be provided information about systems of services, Medicaid Waivers, current sources of services, disability advocacy groups, the political process, grassroots organizing, and other ways to advocate for positive systems change. At the end of this session participants will write individual plans for systems level advocacy. PERSONAL ADVOCACY PLAN DEVELOPMENT EVALUATION

Participants will learn about the history, philosophy and values of the disability movement in the U.S.

5 Table of Contents Welcome Table of Contents Agenda Module One Agenda Day 1 3 Curriculum Materials 4 Support Materials 48 Module Two Agenda Day 1 3 Agenda Day 2 Continued 4 Curriculum Materials 5 Support Materials 35 Module Three Agenda Day 2 Continued 3 Curriculum Materials 4 Highlighted Practices: Some Ways to Get There 71 Support Materials 90 Appendices 1 Table of Contents 2 Advocacy and Disability Groups in Nebraska 1 Communication 1 Glossary 1 History 1 Information & State Agencies 1 Laws 1 Models 1 Political Contacts 1 Problems and Resolutions 1 Websites 1 References 1 Keyword Index 1

Practices: Some Ways to Get There 71 Support Materials 90 Appendices 1 Table of Contents 2 Advocacy and Disability Groups in Nebraska 1

Nebraska LEND Project ORGANIZATION AND ADMINISTRATION

Nebraska LEND Project ORGANIZATION AND ADMINISTRATION University of Nebraska System and Medical Center The University of Nebraska is Nebraska's only public university. Founded in 1869, its land-grant heritage