Background Information The Thematic Network ENS4Care is an EU funded programme of 24 partners (listed in question 8) led by the European Federation of Nurses Associations, which is expected over two year period to deliver evidence based ICT (Information and Communication Technology) guidelines for the implementation of ehealth services in nursing and social care. This questionnaire aims to collect key information on examples of good practices (e.g. online platforms, services, products, protocols, guidance, clinical guidelines, education and training programmes, etc.) in the EU and EEA countries in respect to nurses and/or social workers for the use of ICT tools/systems in one of the following areas: prevention, clinical practice, advanced roles and nurse eprescribing. It may take approximately 4 minutes to complete the questionnaire, which is available in English only and must be answered in English. All questions with an asterisk must be answered. If you want to submit more than one practice, you need to complete an additional questionnaire. The questionnaire will be open until 14 March 2014. If you want to submit more than one practice or if you feel that the practice you are about to submit addressed more than one ENS4Care category (Prevention, Clinical Practice, Advanced Roles or Nurse eprescribing) please remember that you need to submit a second questionnaire. Submitter responsibility: the submitter is responsible for the information provided in the questionnaire and needs to ensure that it is valid and reliable before submitting. The Work Package Leader may request further information or clarification to the submitter. Disclaimer:The information provided in the questionnaire is only being collected for the purposes of the identification of good practices in ehealth in the framework of the ENS4Care project. All rights are reserved. Published materials and original references are used by the submitter, in order to provide the evidence based information. Any mention of specific companies, or of certain manufacturers products does not imply that they are endorsed or recommended by ENS4Care in preference to others of a similar nature that are not mentioned. Information about the submitter 1. Forename & Surname: 2. Email address: 3. Phone number (include country code, e.g. Belgium +32): 4. Institution/Organisation/Other. Profession/Position: Page 1
. I am responding from the perspective of a: Service user Carer Professional Other (please specify) 7. Country: 8. From which of the ENS4Care partners did you receive the questionnaire? European Federation of Nurses Associations C3 Collaborating for Health Danish Nurses Organisation Helsinki Metropolia University of Applied Sciences Irish Nurses and Midwives Organisation European Platform for Patients Organisations, Science and Industry European Nursing Research Foundation International Federation of Social Workers Europe Northern Health and Social Care Trust Royal College of Nursing Consociazione Nazionale delle Associazioni Infermiere Infermieri Ordem dos Enfermeiros Nieuwe Unie 91 European Institute of Women s Health Fundacion Salud y Sociedad Escuela de Ciencias de la Salud European Union of General Practitioners European Association Working for Carers Association of Patients with Cancer and friends European Public Health Alliance Cittadinanzattiva Onlus 1.&2. Million Club The European Coordination Committee of Radiological, Electromedical and Healthcare IT industry (COCIR) Continua Health Alliance Microsoft Other (please specify) Page 2
General Information 9. The practice you are submitting belongs to the following ENS4Care area: Prevention Clinical Practice Advanced Roles Nurse eprescribing Prevention The focus of this area will be the use of appropriate techniques to support individuals and groups to make lifestyle changes that promote health and prevent disease. The development of the process of social prescribing to address issues such as social isolation, mental health challenges, recommended levels of physical activity, healthy eating and work life balance will be encouraged. The examples or practices should focus on technologies that are used by nurses or social workers to support individuals or groups in adopting healthier behaviours. The examples may also include technologies that nurses and social workers use themselves or encourage patients and citizens to use to promote their own health, well being or self care. Examples of all types of technologies will be welcome including telephone coaching, etc. Please bear in mind that all examples or practices shall address the following key criteria as conditions of submission: 1. ICT component: the example or practice shall include the use of ICT technologies supporting the delivery of health and social care. 2. Nurses and/or social workers: the example or practice needs to be introduced or implemented primarily with nurses and/or social workers involvement. 3. Cost effectiveness: the example or practice should demonstrate that the services enabled by ICT tools have the potential of providing cost effectiveness to the health and social care system. 4. Patient empowerment: the example or practice should demonstrate that the services enabled by ICT tools have improved or have the potential to improve and empower patients/citizens.. Usability and usefulness of the ICT tool/service: the example or practice should demonstrate that the ICT tool is considered easy to use and useful by both professionals and patients/citizens.. Person centredness, safety and privacy: the example or practice should respect patient (or person) centredness, address issues related to patient safety and respects patient privacy and associated ethical issues. Clinical Practice This area focuses on the most common technologies that nurses and social workers use to deliver integrated care to patients in their daily practice. Examples could be technologies/ict (telehealth, telecare) that support the treatment, care and follow up of patients with COPD, diabetes, dementia, mental disorder, wounds etc. Another focus is clinical Page 3
guidelines or protocols on the use of the technology/itc and how different professionals should interact in the patient care pathway. It is important to look at the necessary organisational changes and clarification as regards roles and responsibilities. Please bear in mind that all examples or practices shall address the following key criteria as conditions of submission: 1. ICT component: the example or practice shall include the use of ICT technologies supporting the delivery of health and social care. 2. Nurses and/or social workers: the good practice needs to be introduced or implemented primarily with nurses and/or social workers involvement. 3. Cost effectiveness: the example or practice should demonstrate that the services enabled by ICT tools have the potential of providing cost effectiveness to the health and social care system. 4. Patient empowerment: the example or practice should demonstrate that the services enabled by ICT tools have improved or have the potential to improve and empower patients/citizens.. Usability and usefulness of the ICT tool/service: the example or practice should demonstrate that the ICT tool is considered easy to use and useful by both professionals and patients/citizens.. Person centredness, safety and privacy: the example or practice should respect patient (or person) centredness, address issues related to patient safety and respects patient privacy and associated ethical issues. Advanced Roles The focus of this area will be on the ICT components to be considered in the development and introduction of advanced roles of nurses and social workers in health and social care. The knowledge, skills and competences will not focus only on the technology to use but on a general approach including management, leadership, education and communication for person centred care, family, community and continuity of care, where ICT (telehealth or telecare) services are of use. The purpose of this questionnaire is to look into good practices but highlighting the key components on education that professionals need when delivering care with the use of ICT. Please bear in mind that all examples or practices shall address the following key criteria as conditions for submission: 1. ICT component education needed: the example or practice shall include information about competences of the advanced roles needed for the effective use of ICT technologies supporting the delivery of health and social care. 2. Nurses and/or social workers: the example or practice needs to address nurses and/or social workers advanced involvement. 3. Cost effectiveness: the example or practice should demonstrate that the advanced role has the potential of providing cost effectiveness to the health and social care system. 4. Patient empowerment: the example or practice should demonstrate that the advanced roles have the potential to improve and empower patients/citizens.. Usability and usefulness of the ICT tool/service: the example or practice should demonstrate that the advance roles contributes to the usability and usefulness of the ICT tool by the patients/citizens.. Person centredness, safety and privacy: the example or practice should respect patient (or person) centredness, address issues related to patient safety and respects patient privacy and associated ethical issues. Nurse eprescribing Page 4
The European Patient Smart Open Services (epsos) defines eprescribing as the electronic prescribing of medicine with the use of software by a legally authorised health professional and the electronic transmission of the prescription data to a pharmacy where the medicine can then be dispensed (epsos 2012). The focus of this nurse eprescribing questionnaire is to identify existing or scheduled programmes of development of nurse eprescribing in European Countries. The main objective is to share existing knowledge and expertise in relation to planning deployment and evaluation of nurse eprescribing with a view to developing a guideline based on best practice and available evidence. When answering the questionnaire you may wish to provide high level information in relation to nurse eprescribing or critical factors that require careful consideration in planning and deployment. For example, you may wish to consider what the key information requirements are to ensure a standardised approach to data collection on every prescription that is written by a prescriber is adopted such as; site, date, prescriber and patient/individual identification, clinical information, medicinal product, dose, frequency, route, or alternatively you may wish to include key recommendations for local delivery and implementation such as; software and network access, patient safety (including clinical decision support and individual patient alerts) and patient identifiers and integration with pharmacy or wider stock control issues. Examples of social workers eprescribing are also welcome. Information provided in this questionnaire will contribute to the development of clinical guidelines and educational resources on implementation of eprescribing systems. Please bear in mind that all examples or practices shall address the following key criteria as conditions of submission: 1. ICT component: the example or practice shall include the use of ICT technologies supporting the delivery of health and social care. 2. Nurses and/or social workers: the example or practice needs to be introduced or implemented primarily with nurses and/or social workers involvement. 3. Cost effectiveness: the example or practice should demonstrate that the nurse eprescribing system has the potential of providing cost effectiveness to the health and social care system. 4. Patient empowerment: the example or practice should demonstrate that the nurse eprescribing system has improved or has the potential to improve and empower patients/citizens (e.g. patients know the medication taken and understand early symptom recognition).. Usability and usefulness of the ICT tool/service: the example or practice should demonstrate that nurse eprescribing system is considered easy to use and useful for professionals.. Person centredness, safety and privacy: the example or practice should respect patient (or person) centredness, address issues related to patient safety and respects patient privacy and associated ethical issues. General Information 10. Name of the selected practice: Page
11. Please, describe the content of the practice and the implementation process (who, how, when and main steps): Links to additional information are welcome 12. Current status of development: Demonstrator Pilot Fully Implemented 13. Geographical coverage: Local Regional National European International General Information Page
14. Which technology does the practice require? Internet connection Telephone Mobile phone Smart phone Tablet Electronic data base Telemonitoring system Other (please specify) Main Features 1. Does the practice involve sharing of clinical information or exchange of clinical messages within your national system? If, how? 1. To your best knowledge, is the practice based on a "data set"? (e.g. related to minimum conditions, standards, etc.) If, which? Page 7
17. To what extent does the practice have the potential to empower patients/citizens? 18. How is the practice financed? 19. How and to what extent does the practice have the potential to be cost effective? Knowledge & Competencies Page 8
20. Which knowledge, skills and competencies are needed in the practice? Academic Clinical Technical Relevant diplomas/degrees Clinical leadership Please provide additional information: 21. Are the health professionals and/or social workers provided with specific education/training/courses? If, please provide the name and small description of the content: 22. Are the patients/clients/citizens provided with specific education/training/courses? If, please provide the name and small description of the content: Main Results Page 9
23. What benefits have been identified as a result of this practice, including care delivery, health outcomes, and professionals' and patients/citizens' attitudes to change? 24. Has the practice changed the relationships between departments and units? (e.g. between hospital and community care, pharmacy and hospital, etc.) If, how? 2. Has the practice changed the role and/or responsibilities of professionals? Please explain: 2. Has the practice changed the division of tasks between departments/sectors? If, how? Page 10
27. What have been the main obstacles in setting up the practice (regulation, timing, policies, economy, infrastructures, etc.) and how have they been overcome? 28. What lessons have been learned that might improve the introduction and use of the practice in other settings or countries? 29. Has the practice been part of an European project funded by the European Commission? I don't know If, which? Policy Support 30. Which policies/strategies/roadmaps have been developed to support and disseminate the practice? Please include links with further information. Page 11
31. Is there a local/regional/national ehealth strategy framework in place? If, please name and describe it briefly: Thank you THANK YOU! If you want to submit more practices or if you believe that the practice you submitted addresses more than one ENS4Care area (Prevention, Clinical Practice, Advanced Roles and Nurse eprescribing), please follow the link below to submit another questionnaire. ENS4Care Questionnaire ENS4Care partners thank you for your time and contributions!! Please follow us on ENS4Care website Page 12