BORDERLINE PERSONALITY DISORDER: IF ONLY WE HAD KNOWN

Perry D. Hoffman, Ph.D. BORDERLINE PERSONALITY DISORDER: IF ONLY WE HAD KNOWN Extended Abstract: Over the past two decades the diagnosis of borderline personality disorder (BPD) has received increasing attention from researchers and clinicians. While still debated because of the paucity of surveys to determine prevalence, the frequency of the disorder in the general population is now estimated to be more than 5%.Ten percent of BPD patients eventually suicide making BPD a serious health challenge. While no data exist on the prevalence in the Orthodox community, those knowledgeable about the disorder can attest to it presence and to the level of suffering that result from its symptoms both for the sufferer and for their families. Unfortunately, awareness of the disorder severely lags behind other mental illnesses. Similarly, treatment options are often a mystery. This presentation will orient the workshop attendees to the constellation of BPD symptoms, its co-occurring illnesses that complicate recovery, update the current research as well the research-based treatment that is considered to be the state-of-the-art, Dialectical Behavior Therapy (DBT). In addition, some video clips from the recently released series called If Only We Had Known will be shown. Brief Abstract: This presentation on borderline personality disorder focuses on its symptoms, co-occurring illnesses complicating recovery, current research as well the treatment considered to be the state-of-the-art, Dialectical Behavior Therapy (DBT). In addition, some video clips from the recently released series called If Only We Had Known will be shown. Objectives: 1. Participants will be able to recognize and have a better understand the diagnosis of borderline personality disorder 2. Participants will gain a first-hand experience on living with the disorder 3. Participants will gain a first-hand experience on having a family member with the disorder

7/31/2011Principal Investigator/Program Director (Last, First, Middle): BIOGRAPHICAL SKETCH Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2. Follow this format for each person. DO NOT EXCEED FOUR PAGES. NAME Perry D. Hoffman, Ph.D. President-National Education Alliance for Borderline Personality Disorder (NEA-BPD) era COMMONS USER NAME: perryh Voluntary Faculty The Mount Sinai School of Medicine EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.) INSTITUTION AND LOCATION DEGREE (if applicable) FIELD OF STUDY Temple University, Philadelphia, PA B.S. Education Lehman College, Bronx, NY M.S. Education Fordham University, New York, NY M.S.W. Social Work New York University, New York, NY Ph.D. Clinical Social Work A. Positions and Awards: National Institute of Mental Health (NIMH) Principal Investigator: Translating Research into Clinical Practice 1R13MH081768-01 09/01/08-6/30/11 National Institute of Mental Health (NIMH) Principal Investigator: Family Perspectives on Borderline Personality Disorder 1 R13 MH068456 7/10/03-6/30/08 NIMH Principal Investigator: Family Influences on Borderline Outcome 5K08 MH01602 06/01/99-02/28/05 03/01/05-2/28/06: One year no-cost extension NIMH Co-Principal Investigator: Living with Borderline Personality Disorder 1 R43 MH069050-01A1 10/25/05-3/25/2006. 4/15/04 NIMH Member Data Safety and Monitoring Board (DSMB) October 2003-present New York State Office of Mental Health Grant Award: Family Connections Editorial Board: Journal of Personality Disorders 2009-present National Alliance on Mental Health (NAMI) 2011 NAMI Excellence in Community Mental Health Award Continuation 1Format Page

B. Professional Experience: 2001- Current- President and Co-founder-National Education Alliance for Borderline Personality Disorder (NEA-BPD) 2005-2006 -Director, Dialectical Behavior Therapy (DBT) Programs, The Mount Sinai School of Medicine 1986-2005 New York Presbyterian Hospital-Weill Medical College of Cornell University 1999-2005: Director: Dialectical Behavior Therapy (DBT) Continuing Day Treatment Program 2003-2005: Family Consultant-Borderline Personality Disorder Resource Center 1992-1999: Director: Family Programs; Admissions Coordinator, DBT Continuing Day Program 1986-1993: New York Presbyterian Hospital-Senior Social Worker 1986-1986 Harlem Valley Psychiatric Center-Social Worker, Day Treatment Program 1984-1986 Westbrook Psychiatric Center-Social Worker Conference Course Director: 1. October 2002: From Research to Community: Family Perspectives on Borderline Personality Disorder. National Education Alliance for Borderline Personality Disorder and Columbia University College of Physicians and Surgeons. 2. January 2003: Co-host with Herbert Pardes, M.D.- Addressing the BPD Crisis. National Education Alliance for Borderline Personality Disorder. 3. May 2003: Diagnosing Borderline Personality Disorder: What on earth is that? National Education Alliance for Borderline Personality Disorder and Chippenham Hospital. 4. October 2003: Course Director- Family Perspectives on Borderline Personality Disorder. Co-Occurring Disorders. National Education Alliance for Borderline Personality Disorder, NIMH, Weill Medical College of Cornell U. 5. June 2004: Borderline Personality Disorder: Origins, Treatments, Coping. National Education Alliance for Borderline Personality Disorder, the Mount Sinai Medical Center, NAMI. 6. October 2004: Borderline Personality Disorder: Origins, Treatments, Coping National Education Alliance for Borderline Personality Disorder and St. Joseph s Hospital 7. October 2004: Family Perspectives on Borderline Personality Disorder: Current Issues. National Education Alliance for Borderline Personality Disorder, NIMH and Lifespan Learning Institute 8. November 2004: Borderline Personality Disorder: Origins, Treatments, Coping. National Education Alliance for Borderline Personality Disorder and Menninger Clinic 9. May 2005: Borderline Personality Disorder: Yale University School of Medicine. 10. June 2005: The Mount Sinai School of Medicine 11. October 2005: McLean Hospital Borderline Personality Disorder: Historical and Future Perspectives 12. March 2006: Recent Scientific and Treatment Advances in Borderline Personality Disorder: A Symposium for Consumers, Families and Professionals. Menninger Clinic 13. April 2006 Borderline Personality Disorder: International Perspectives on Engaging Families and Delivering Services. London, England National Education Alliance for Borderline Personality Disorder, National Health Service and University of London 14. April 2006 Borderline Personality Disorder: Professionals, Families and Consumers Working Together May 2006 Borderline Personality Disorder Yale University School of Medicine June 2006 The Mount Sinai School of Medicine 15. October 2006 Borderline Personality Disorder: New Findings in Neurobiology and Treatment. University of South Carolina Medical College 16. March 2007 Borderline Personality Disorder: Course, Outcomes, Treatments University of Michigan, Department of Psychiatry 17. May 2007 High Risk Adolescents and Their Families: Understanding and Treating Borderline Personality Disorder 18. October 2007 Borderline Personality Disorder From Research to Treatment: Advancing the Agenda Fort Worth, TX 19. October 2007 Insights into Borderline Personality Disorder: Neurobiological Research and Clinical Interventions Mt. Sinai School of Medicine New York, NY 20. October 2008 Borderline Personality Disorder: Research across the Lifespan and Clinical Applications for Treatment Minneapolis Minn. Continuation 2 Format Page

C. Publications: Principal Investigator/Program Director: Hoffman, Perry D. 1997 Hoffman, PD: A Family Partnership. The Journal of the California Alliance for the Mentally III. Vol. 8/9. 1998 Hoffman, PD, Hooley, JM: Expressed emotion and treatment of borderline personality disorder. In Sessions: Psychotherapy in Practice. Vol. 4/3; 39-54. John Wiley & Sons, Inc. NY, NY. 1999 Hooley, JM, Hoffman, PD: Expressed emotion and outcome in borderline personality disorder. American Journal of Psychiatry: 156:10: 1157-1562. 1999 Hoffman, PD, Fruzzetti, AE, Swenson, CR: Dialectical Behavior Therapy-Family Skills Training. Family Process, Vol. 38, no. 4: 399-414. 2003 Hoffman, PD, Buteau, E, Hooley, JM, Fruzzetti, AE, Bruce, ML: Family Members Knowledge about Borderline Personality Disorder: Correspondence with their Levels of Depression, Burden, Distress and Expressed Emotion. Family Process, Winter Issue: 469-478. 2005 Gunderson, JG and Hoffman, PD, (Eds) Understanding and Treating Borderline Personality Disorder: A Guide for Professionals and Families. American Psychiatric Press Inc. 2005 Hoffman, PD, Fruzzetti, AE, Buteau, E, Neiditch,E; Penney, D., Bruce, M., Hellman, F, Struening, E. Family Connections: A Program for Relatives of Persons with Borderline Personality Disorder Family Process. June 05. 2005 Hoffman, PD., Fruzzetti, AE. Psychoeducation in The American Psychiatric Publishing Textbook of Personality Disorders Textbook of Personality Disorders. (Eds) Oldham, J. Skodol, A, Bender, D. American Psychiatric Press Inc. 2005 Hoffman, PD & Fruzzetti Family Interventions in Borderline Personality Disorder (Ed) Zanarini, Mary, Marcel Dekker, Inc., 2006 Fruzzetti, AE; Santistiban, D, Hoffman, PD. Family DBT in Dialectical Behavior Therapy Adaptations. (Eds) Dimeff, L, Linehan, MM. Guilford Press, in press. 2007 Hoffman, PD, Fruzzetti, AE, Buteau, E. Understanding and Engaging Families: An Education, Skills and Support group for families impacted by Borderline Personality Disorder Journal of Mental Health, Feb (16) 1 2007 Hoffman, PD & Fruzzetti, AE. Personality Disorders Section of Current Psychiatry Reports Advances in Interventions for Families with a Relative with a Personality Disorder Diagnosis" Current Psychiatry Feb 2007 Hoffman, PD & Burland, J. Borderline Personality Disorder: A Most Misunderstood Illness. NAMI Advocate 2007 Hoffman, PD (Editor). Borderline Personality Disorder. Social Work and Mental Health: Special 2007 Hoffman, P. D., Buteau, E., & Fruzzetti, A. E.. Borderline personality disorder: NEO- Personality Inventory ratings of patients and their family members. International Journal of Social Psychiatry. March 2007 Fruzzetti, AE; Santistiban, D, Hoffman, PD. Family DBT in Dialectical Behavior Therapy Adaptations. (Eds) Dimeff, L, Linehan, MM. Guilford Press. 2008 Hoffman, PD, Steiner-Grossman, P. (Eds) Borderline Personality Disorder: Meeting the Challenges of Successful Treatment. The Haworth Press D. Presentations: 1. November 1996: Association for Advancement of Behavior Therapy: Expressed Emotion with Borderline Personality Disorder Patients. Co-presenter: Jill M. Hooley, D. Phil. New York, NY. 2. November 1996: Association for Advancement of Behavior Therapy: Dialectical Behavior Therapy in a Day Hospital Setting. New York, NY. 3. November 1996: 1 st International Society for the Improvement and Teaching of Dialectical Behavior Therapy Workshop; Using DBT with Families. New York, NY. 4. June 1997: International Conference for the Study of Personality Disorders; Expressed Emotion with Borderline Personality Disorder Patients. Co-Presenter: Jill M. Hooley, D. Phil. Miami, Fla. 5. September 1997: National Institute of Mental Health: Conference Improving the Condition of People with Mental Illness: The Role of Services Research; Poster Session: Expressed Emotion with Borderline Personality Disorder Patients. Bethesda, MD. 6. November 1997: Association of Advancement of Behavior Therapy Symposium: Expressed Emotion and Behavior Therapy Outcome. Miami, Fla. 7. July 1998: 15 th Annual Cape Cod Summer Symposia, Cape Cod, Fruzzetti AE, Hoffman PD: Dialectical Continuation 3 Format Page

Behavior Therapy with Couples and Families. Cape Cod. Mass. 8. November 1998: 3 rd International Society for the Improvement and Teaching of Dialectical Behavior Therapy. Dialectical Behavior Therapy with Couples and Families. Charleston, SC. 9. December 1998: Conference, New York Presbyterian Hospital: Dialectical Behavior Therapy. White Plains, 10. March 1999: Family Therapy Networker- Symposium: Dialectical Behavior Therapy-Family Skills. DC 11. September 1999: 6 th International Conference on the Disorders of Personality; Symposium Chairman: Family Interventions for Borderline Personality Disorder; DBT-Family Skills Training. Geneva, Switzerland. 12. January 2000: Society for Social Work and Research. Paper: Expressed Emotion in Borderline Personality Disorder Patients and a Family Intervention. Washington, DC. 13. June 2000: Grand Rounds. University of Toronto, St. Michael s Hospital, Toronto, Canada. Dialectical Behavior Therapy-Family Skills Training. Toronto, Canada. 14. March 2001: Conference. New York Presbyterian Hospital, White Plains, New York. Self-Injury Awareness Day-Theory and Treatments. White Plains, NY. 15. March 2001: BOCES Northern Westchester, Yorktown, New York. Dialectical Behavior Therapy. Bedford, NY. 16. June 2001: Grand Rounds. North Shore University Hospital. Dialectical Behavior Therapy and its Application in a Day Treatment Setting. Manhasset, NY. 17. May 2002: Conference: National Institute of Mental Health-New Directions. Families of Borderline Personality Disorder Patients: Needs; Challenges; Opportunities. Minneapolis, Minn. 18. June 2002: Conference: National Institute of Mental Health-Moving Forward. Borderline Personality Disorder- Prevalence, Problems, and Opportunities. Bethesda, MD. 19. October 2002: Opening Remarks-From Research to Community: Family Perspectives on Borderline Personality Disorder. New York, NY. 20. October 2002: NAMI New York State Annual Convention: Borderline Personality Disorder for Families. 21. December 2002: NAMI Connecticut: Borderline Personality Disorder for Families. Stamford, CT. 22. January 2003: Opening Remarks with Herbert Pardes, M.D.- Addressing the BPD Crisis. New York, NY. 23. May 2003: Opening Remarks: Diagnosing Borderline Personality Disorder: What on earth is that? Richmond, 24. July 2003: Opening Remarks: Families Make a Difference-Constance and Stephen Lieber, NEA-BPD Awards 25. October 2003: NAMI Westchester: Borderline Personality Disorder for Families. White Plains, NY. 26. October 2003: Opening Remarks-Family Perspectives on Borderline Personality Disorder. Co-Occurring Disorders. White Plains, NY 27. November 2003: Harlem Hospital, Grand Rounds. Borderline Personality Disorder in the Community. 28. November 2003: 8th International Society for the Improvement and Teaching of Dialectical Behavior Therapy Family Connections: A Dialectical Approach for Families. Boston, Mass. 29. February 2004: Parent Empowerment-Family Connections and Borderline Personality Disorder. Kingston, NY. 30. April 2004: Family Connections Training Retreat-Orientation and Education. Armonk, NY. 31. June 2004: Borderline Personality Disorder: Origins, Treatments, Coping. Family Stress, Distress and Well-being. New York, NY. 32. June 2004: 3e Amsterdam Symposium Dialectische Gedragstherapie: DBT for Adolescents and Families 33. July 2004: NIMH International Think Tank for More Effective Treatment of Borderline Personality Disorder: Borderline Personality Disorder and its Impact on Families. Bethesda, MD. 34. August 2004: NAMI California- Borderline Personality Disorder and Families; Family Connections. San Francisco, Cal. 35. October 2004: Origins, Treatments, Coping; Borderline Personality Disorder and Families; Family Connections. Toronto, Canada. 36. October 2004: Current Issues in Borderline Personality Disorder. Family Connections, Los Angeles, Cal. 37. November 2004: Borderline Personality Disorder: Origins, Treatments, Coping. Borderline Personality Disorder and Families; Family Member Stress, Distress and Support. Menninger Clinic Houston, TX. 38. November 2004 American Public Health Association 132nd Annual Meeting, Family Connections, DC. 39. November 2004: 9th International Society for the Improvement and Teaching of Dialectical Behavior Therapy. Family Member Well-Being: Family Connections. New Orleans, LA. 40. November 2004: Association of Advancement of Behavior Therapy Symposium. A Dialectical Approach for Families. New Orleans, LA. 41. December 2004: NEPDA Community Conference: What Families Need to Know about Borderline Personality Continuation 4 Format Page

Disorder, McLean Hospital, Belmont, MA. 42. May 2005 American Psychiatric Association: Psychoeducation for Family Members with a Relative with Borderline Personality Disorder. Atlanta, GA. 43. May 2005 American Psychiatric Association: "Educating Patients and Families about BPD," Atlanta, GA. 44. May 2005 Borderline Personality Disorder: Yale University School of Medicine. Family Member Stress, Distress and Well-being, New Haven Conn. 45. June 2005 The Mount Sinai School of Medicine, Borderline Personality Disorder: Current and Future Research. 46. June 2005 The Mount Sinai Hospital. Social Work Grand Rounds. Borderline Personality Disorder: What is It, How to Treat It and Family Well-being. 47. June 2005 NAMI National Convention Ask the Doctor Borderline Personality Disorder. Austin, Texas 48. December 2005 University of Minnesota Borderline Personality Disorder: Clinical and Family Perspectives. 49. March 2006 Menninger Clinic Recent Scientific and Treatment Advances in Borderline Personality Disorder: A Symposium for Consumers, Families and Professionals 50. April 2006 Borderline Personality Disorder: International Perspectives on Engaging Families and Delivering Services London, England 51. April 2006 Borderline Personality Disorder: Professionals, Families, and Consumers Working Together, Akron 52. May 2006 Current Research and Treatment, and Consumer and Family Support Options Yale University School 53. June 2005 Borderline Personality Disorder: Current Knowledge and Future Directions Professional and Family Perspectives UCLA Medical Center 54. June 2006 NAMI National Convention Ask the Doctor, Borderline Personality Disorder. Washington, DC 55. October 2006 Borderline Personality Disorder: New Findings in Neurobiology and Treatment. University of the South Carolina Medical College 56. November 2006 Borderline Personality Disorder Clinical and Family Perspectives Dept. of Psychiatry Minneapolis 57. December 2006 Borderline Personality Disorder: Professionals, Families, and Community Working Together Department of Psychiatry, McGill University 58. March 2007 Borderline Personality Disorder: Course, Outcomes, Treatments University of Michigan, Department of Psychiatry 59. May 2007 High Risk Adolescents and Their Families: Understanding and Treating Borderline Personality Disorder 60. May 2007 Borderline Personality Disorder: What is it and How to Treat it. Verafrench, Iowa 61. June 2007 Borderline Personality Disorder Demystified Bethesda Maryland 62. June 2007 NAMI National Convention Ask the Doctor, Borderline Personality Disorder. San Diego, Cal 63. October 2007 Borderline Personality Disorder From Research to Treatment: Advancing the Agenda Fort Worth, TX 64. October 2007 Insights into Borderline Personality Disorder: Neurobiological Research and Clinical Interventions Mt. Sinai Hospital, New York, NY 65. November 2007 Borderline Personality Disorder Clinical and Family Perspectives Dept. of Psychiatry Minneapolis 66. December 2007 Borderline Personality Disorder: A Most Misunderstood Disorder. NEFESH Conference Stamford Conn 67. March 2008 Advocacy and Borderline Personality Disorder: Menninger Clinic, Houston Texas 68. April 2008 Borderline Personality Disorder: Past, Present and Future. State University of New York. Brooklyn 69. May 2 Family Connections Yale University School f Medicine 70. May 2008 Learning from the Experiences of Families ARPD Washington DC 71. October 2008 Borderline Personality Disorder: Research across the Lifespan and Clinical Applications for Treatment, Minneapolis Minn. 71. May 2009 Family Connections Yale University College of Medicine, New Haven, CT 72. May 2009 Can Disclosure of a Diagnosis of Borderline Personality Disorder Help Guide Treatment for Clinicians, Patients and their Families American Psychiatric Association, San Francisco, Cal. 73. May 2009 Combating Stigma of Borderline Personality Disorder American Psychiatric Association, San Francisco, Cal. 74. August 2009 Replicating Borderline Personality Disorder Advocacy Across the Continents. International Society of the Study of Personality Disorders New York, NY Continuation 5 Format Page

75. October 2009 Keynote Speaker Borderline Personality Disorder: Unraveling the Mystery. NAMI Minnesota 76. October 2009 NAMI NYS Borderline Personality Disorder 77. October 2009 NAMI Conn. Borderline Personality Disorder 78. December 2009 NEFESH Conference Borderline Personality Disorder: A Most Misunderstood Illness 79. March 2010 Borderline Personality Disorder: Genetics and Treatment Richmond VA 80. May 2010 Borderline Personality Disorder: Obesity and Eating Disorders Yale University College of Medicine, New Haven, CT 81. April 2011 Dialectical Behavior Therapy: State of the Art and Science. Seattle Washington 82. April 2011 Empirically Supported Therapies for Borderline Personality Disorder: Common and Distinguishing 83. Aspects of Dialectical Behavior Therapy and Mentalization Based Therapy. Yale University College of Medicine, New Haven, CT Continuation 6 Format Page