HEALTH CARE DATA IN SAUDI ARABIA: CHALLENGES IN COLLECTING, SHARING, AND APPLYING



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HEALTH CARE DATA IN SAUDI ARABIA: CHALLENGES IN COLLECTING, SHARING, AND APPLYING Mohammed Al-Kelya MS, PhD Vice President, ISPOR Saudi Arabia Chapter and Head Quality Management, KAIMRC Riyadh, Kingdom of Saudi Arabia & Abdulaziz Al-Saggabi, MSc, PharmD President, ISPOR Saudi Arabia Chapter and Director, Drug Policy & Economics Center, NGHA Riyadh, Kingdom of Saudi Arabia

Health Care System In Saudi Arabia Every Saudi citizen has the right to have access to free medical services and no one should be denied medical attention because of economic reason 2

Health Care System Indicators Population Population 65 Years Old & Above Gross National Income Per Capita (PPP Int. $) Total Expenditure On Health As A Percentage Of Gross Domestic Product General Government Expenditure On Health As A Percentage Of Total Expenditure On Health Private Expenditure On Health As A Percentage Of Total Expenditure On Health Private Prepaid Plans As A Percentage Of Private Expenditure On Health Percentage of government budget allocated to Health Service Out-of-pocket Expenditure As A Percentage Of Private Expenditure On Health Governmental Insured Population Population Insured by Private Health Insurance 28376355 2.86(%) 24700 3.69 68.93 (%) 31.07(%) 19.37(%) 6.84(%) 58.06(%) 71% 29% 3

Saudi Health Care System Delivery Provider Affiliation Governmental Providers Hospital N (%) MOH 251 KAUH,R KKUH,R KFUH,K RCHs AHF KFSH,R NGHs SFH KFSH,J ARAMCO Hs 39 Private Private sectors 130 Beds N (%) 34450 (58.9) 10948 (20.0) 13298 (21.1) PHC or centers Visits Per Year N (%) ( Millions) 2109 65.97 (50.0) Annual Admissions N (%) (In 1000) 1700.18 (56.2) NA 23.15 (17.6) 519.16(17.1) 2185 polyclinic 198 clinics 42.73 (32.4) 808.24 (26.7) Total 420 (100) 58696(100) 131.86 (100) 3027.58(100) 4

Saudi Health Care Services Providers, Beneficiaries and Type of Drug Formulary Provider Affiliation Providers Eligibility Governmental Semi governmental Type of Drug Formulary MOH Saudi citizen and Resident Closed M.O. Defense National Guard Ministry of Interior Higher Educations Public Education & others Governmental industrial institutions Governmental insurance hospitals Employees & their dependents Referred Cases Free Of charge, FFS for self referral Employee, student, referred cases (free) Employee, student, Employees & their dependent Private Private sectors FFS Total Closed & More Generous than MOH Similar to MOH Closed Less than MOH Closed More generous Closed Open formulary Out of pocket Open formulary Out of pocket 5

Barriers and Opportunities

Fr Publication Increase Publication Trend of QOL related Studies in Saudi Arabia 45 40 35 30 25 20 15 Article Confernce Abstract 10 5 0 2009 2010 2011 2012 Year Web of Science Database (ISI) 7

Registries Thromboembolic Disorders Registry Venous Thrombosis Registry Cleft/Lip Palate & Craniofacial Disorders Registry National Family Safety Registry Pan Arab Liver Transplantation Registry Rare Dental Disorder Registry Chronic Diseases Registry Organ Transplantation Registry Saudi Bio-bank Trauma Registries 8

Registries (continued) Saudi National Diabetes Registry Saudi Cancer Registry National Congenital Heart Defects Registry National Epilepsy Registry Neural Tube Defects Registry Neuromuscular Disease Registry Primary Immunodeficiency Registry 9

Clinical Studies in Saudi Arabia http://www.clinicaltrials.gov/ 10

PE Study Enablers Demand for PE Studies Data PE Research Teams

Demands for PE Studies in Saudi Arabia Evidence base medicine focused. Focus on cost containment not CE. Health Care providers Awareness. Awareness of Policy Makers in Health Care Organizations. PE Guidelines by Regulatory Body.

Data for PE Studies in Saudi Arabia MOH list can be used as proxy for the cost across all Saudi hospitals -Data is not standardized yet -Will be By 2014 Cost lists -MOH Medical procedures price lists(fixed price) -SFDA Drug Price List Claims Data -Health Insurance Companies -CCHI Clinical Data -Local Clinical Studies -Registries -Hospital Data -Accessibility -Standardization -Data usability

PE Research Team Not equipped with all capabilities and focus at institution level Institutionalization -Only few local PE Centers - No Entity at national level responsible for TA -No formal networking connecting experts and outcomes of their efforts. Integration -Building database all PE hospital studies -Sharing expertise and data Human Capacity -No educational program -Few training programs -Unsustainable training -Short training programs