State of the States in State Profile: Illinois Selected State Background Characteristics Population Total Pop. (millions) 12.7 293.7 Pop. 60+ (thousands) 2,045.4 48,883.4 % 60+ 16.1 16.6 National Ranking 60+ 39 N/A % White (60+) 81.1 81.4 % African American (60+) 11.1 8.5 % Hispanic/Latino (60+) 4.6 6.1 % Asian (60+) 2.6 2.9 % Native Hawaiian/ Pacific Islanders (60+) % American Indian/ Alaska Native (60+) % Two or More Races (60+) 0.0 0.1 0.1 0.5 0.4 0.6 Pop. 65+ (thousands) 1,520.6 36,294.0 % Pop. 65+ 12.0 12.4 National Ranking 65+ 39 N/A Pop. 85+ (thousands) 219.4 4,859.6 % Pop. 85 1.7 1.7 National Ranking 85+ 31 N/A Economic Indicators Per Capita Income $34,725 $33,041 Median Household Income $45,787 $44,473 Total State Expenditures Per Capita $3,960 $4,009 % Pop. 65+ Below Poverty 8.4 9.4 % Pop. 50+ Who Did Not Visit Doctor Due to Cost 7.9 8.1 Socio-Demographics Average Household Size 2.7 2.6 Average Family Size 3.2 3.1 % Pop. in Rural Area 13.3 16.9 Households with Persons 65+ (millions) % Persons Age 65+ Living Alone 1.10 25.2 32.1 29.8 % Pop. 65+ in Major Cities 35.5 40.1 % Households with Internet Access Informal Caregivers 51.2 54.7 # of Caregivers 1,500,000 34,000,000 # of Caregiving Hours (millions) Value of Caregiving (millions) % Grandparents Living with Grandchildren % with Responsibility for the Grandchildren 1,620 36,720 $16,200 $350,000 3.3 3.4 1.4 1.4 Where to Call to Arrange Help in the Home for Elderly Relatives or Friends % Relative or Friend 26.2 21.5 % Self 19.0 17.2 % Medical Support 23.4 21.6 % Religious Support 0.2 0.4 % Area Agency on Aging 2.5 2.0 % Other 4.9 4.5 % Don t Know 23.6 32.7 Updated November 2007. Data sources for selected characteristics are available at http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1185 1
State of the States in Selected State Background Characteristics Long-Term Care Medicaid Spending on Long-Term Care % Spending on Nursing % Spending on Home Health & Personal Care # of Certified Nursing % of Certified with Family Councils # of Certified Nursing Facility Beds (thousands) Certified Nursing Facility Occupancy Rate Average Cost Per Day in a Nursing Home Average Assisted Living Monthly Cost Average Daily Cost for Adult Day Services Average Hourly Cost for Home Health Care Average Hourly Cost for Personal/Home Care Nursing Facility Residents as % of 65+ Pop. # of Licensed Adult Day 47.7 46.0 26.9 37.3 752 15,209 44.1 43.2 89.5 1,579.9 80.6 85.5 $192 $213 $3,345 $2,969 $60.33 $61 $19.33 $19 $17 $18 4.8 3.8 88 3,407 Care Receivers % Pop. 21-64 Years w/disability 9.3 12.1 % Pop. 65+ w/disability 38.1 39.6 % 65+ by Type of Disability Sensory 14.9 16.0 Physical 29.4 30.2 Self-Care 8.8 9.3 Mental 9.5 10.9 Difficulty Going Outside Home 15.4 16.3 Medicare Prescription Drug Plans # of Companies Offering PDPs 16 N/A # of PDP 42 N/A # of Companies Offering Medicare Advantage Drug Plans 17 N/A # of Home Health Aides 24,180 751,480 Median Hourly Wage Certified Nursing Assistant $10.10 $10.67 Home Health Aide $9.68 $9.34 Personal Care/Home Care Aide $8.22 $8.54 Updated November 2007. Data sources for selected characteristics are available at http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1185 2
State of the States in State System of Home and Community-Based Services (HCBS) Legislation Enacted Within the Last Three Years (2001-2003) that Addresses Family Caregiving Issues Task Force or Commission Specifically to Examine Family Caregiver Issues Name of Task Force: Single Point of Entry for State System of HCBS Single Point of Entry Includes Access to State s Caregiver Support Program Uniform Assessment Tool for All HCBS Programs for the Elderly and Adults with Disabilities Assessment Includes Caregiver Component At Least One State Program with Consumer-Directed Option for Family Caregivers HB 3774 (Enacted 2003) Appropriated funds for Senior Caregivers of Adult Disabled Children. Illinois Caregiver Advisory Committee State Program Information Administrative Structure Administering State Agency Department on Aging Department on Aging Department of Human Services Organizational Unit or No Person Specifically Designated for Caregiving Programs or Activities Geographic Region Served Statewide Statewide Statewide Local Program Administrative Responsibility AAA SUA Medicaid agency Funding & Caseload Major Sources of Program OAA, Title III-E Medicaid HCBS waiver Funding State general fund FY 2001 Expenditures $4,732,281 n/a n/a FY 2002 Expenditures $5,344,843 n/a n/a FY 2003 Expenditures $5,855,455 $36,066,462 (total waiver) n/a FY 2001 A/D Waiver Respite Participants FY 2002 A/D Waiver Respite Participants N/A n/a n/a N/A n/a n/a Medicaid HCBS waiver State general fund Francisco, CA: Family Caregiver Alliance. 3
State of the States in Eligibility Caregiver Age Requirement 18+ N/A 18+ Care Receiver Age 60+ 60+ 18+ Requirement Care Receiver Functional OAA guidelines ADL/IADL combination Status Requirement Nursing home level of care Client Population Family caregiver Care receiver Care receiver ADL/IADL combination Physically disabled Assessment Program Assesses Both family caregiver and care Care receiver Care receiver receiver Uniform Assessment Tool No Includes Caregiver Assessment N/A No No Areas Addressed by Caregiver Assessment N/A N/A N/A Services All Caregivers Eligible for Program Have Access to Same Package of Services Services Provided Specifically to Family Caregivers Types of Respite Care Offered No N/A Assistive technology Care mgt. Consum. supplies Counseling Educ. & training Emerg. response Family consult. Family meetings Home modification/ repairs Homemaker/chore/ personal care Info. & assistance Legal and/or financial consultation Support groups Transportation In-home Overnight Weekend/camp N/A Assistive technology Care mgt. Counseling Emerg. response Home modification/ repairs Homemaker/chore/ personal care Info. & assistance Legal and/or financial consultation In-home Francisco, CA: Family Caregiver Alliance. 4
State of the States in Services (cont d) Caregiver Must Live with Care No N/A No Receiver to Receive Respite Respite Cap Varies N/A Respite cap varies by need Uniform Respite Cap Across No N/A No Program Sites Entity that Formulates the Respite Cap Administering local agency N/A Administering local agency Consumer Direction Consumer-Directed Options Family Members Can Be Paid to Provide Care Types of Services Families Can Be Paid to Provide A menu of services from which caregivers can choose A voucher or budget for respite and/or supplemental services Direct payments to family members for the purchase of goods or services (in one Planning and Service Area) Personal care (but must meet certain requirements) Homemaker/chore Personal care Francisco, CA: Family Caregiver Alliance. 5