Useful Organisations Below is a list of some useful contacts that you may find useful: Accessible Britain FREE Rough Guide to Accessible Britain if you hold a Blue Badge, Disabled Person's Railcard or you're a Motability customer. Usual cost 6.99. To obtain your book either download a form or telephone 0800 953 7070. For large print or Braille versions of the guide telephone 0800 953 7070. Arthritis Care Arthritis Care is a national registered charity that works with and for people with arthritis. It provides information and helpline services, support, self-help, information and campaigns on issues related to arthritis. Address: 4 th Floor, Linen Court, London, N1 6AD Telephone: Helpline 0808 800 4050 Email: Info@arthritiscare.org.uk Association for Spina Bifida and Hydrocephalus Address: ASBAH House, 42 Park Road, Peterborough, Cambridgeshire, PE1 2UQ Telephone: 08454 507 755 Fax: 01733 555 985 Email: helpline@asbah.org Association of Wheelchair Children The Association of Wheelchair Children (AWC) is a national charity that runs expert wheelchair training courses for children and their families across the whole of the UK and Ireland. Address: 6 Woodman Parade, North Woolwich, London, E16 2LL Telephone: 0844 544 1050 Fax: 0844 544 1055 Email address: headoffice@wheelchairchildren.org.uk
Family Information Service Directory This is a useful information website to find information about services and events for parents/carers, young people and children. Limbless Association The Limbless Association is a charity which provides support for individuals without one or more limbs, their carers and prospective amputees. Services include a helpline for people born without upper or lower limbs or who have had amputations. It offers emotional support and advice on a variety of issues including prostheses, aids and adaptations, welfare benefits and holidays. It also promotes rehabilitation through a home/hospital visiting service and makes representations to statutory authorities. Address: Jubilee House, 3 The Drive, Warley Hill, Brentwood, CM13 3FR Telephone: 01277 725 182 Fax: 01277 725 379 Email address: enquiries@limbless-association.org Motability If the patient is receiving motability they can use part of their allowance towards the cost of a scooter or powered chair. Address: Motability Operations, City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. Telephone: 0845 456 4566 (8.30am till 5.30pm Monday to Friday) If you have specialist Minicom equipment, call ou text phone on 0845 675 0009 Motor Neurone Disease Association The Motor Neurone Disease Association is an organisation which supports people with motor neurone disease (group of related progressive and fatal diseases affecting the motor neurones in the brain and spinal cord). It provides an information and advice service (Mind Connect), regional care development advisors, local branches, the loan of specialist equipment and limited financial support. It also funds research into Motor Neurone Disease. Address: PO Box 246, Northampton, NN1 2PR Telephone: Helpline 08457 626 262, 01604 250 505 Fax: 01604 638 289 Email address: enquiries@mndassociation.org
Multiple Sclerosis Society The Multiple Sclerosis Society is a national charity which provides information and support for anyone affected by multiple sclerosis (MS). It has local branches across the country providing information on symptoms, treatments, welfare benefits, employment, education, complementary therapies, relationship problems and sexuality. It produces numerous publications on MS and runs a freephone specialist helpline. Address: MS National Centre, 372 Edgware Road, London, NW2 6ND Telephone: Helpline 0808 800 8000, Admin 020 8438 0700 Fax : 020 8438 0701 Email address: info@mssociety.org.uk Muscular Dystrophy Campaign The Muscular Dystrophy Campaign is a national charity which funds research to find effective treatments and cures and campaigns to raise awareness of Muscular Dystrophy. It awards grants towards the cost of specialist equipment, such as powered wheelchairs and care advisors based in hospitals provide practical, medical and emotional support to people affected by the condition. It also provides telephone information and support relating to neuromuscular conditions. Address: 61 Southwark Street, London, SE1 0HL Telephone: 0800 652 6352, 020 7803 4800 Email address: info@muscular-dystrophy.org The Neurological Alliance The Neurological Alliance is a charity which campaigns for better services for people with neurological conditions and their carers. They represent neurological charities working to achieve better health and support services for people with neurological conditions. Address: Dana Centre, 165 Queen's Gate, London, SW7 5HE. Telephone: 020 7584 6457 Email address: admin@neural.org.uk
SCOPE SCOPE is a national disability charity whose focus is people with cerebral palsy, a physical condition that affects movement. It provides residential services, independent living schemes, education and employment opportunities, support for families and carers, advocacy, support for self-help groups. It also provides Scope Response, a telephone helpline offering information, advice and support on cerebral palsy and related disability issues. Address: PO Box 833, Milton Keynes, MK12 5NY Telephone:Scope Response 0808 800 3333 Email address: response@scope.org.uk Spinal Injuries Association (SIA) The Spinal Injuries Association (SIA) is a charity which offers support to people affected by spinal cord injury, including the family and friends of the disabled person. Its services include an advice line and peer support for people with spinal cord injuries, a community link scheme putting people who have shared similar experiences or conditions in touch. Address: SIA House, 2 Trueman Place, Oldbrook, Milton Keynes, MK6 2HH Telephone: Helpline 0800 980 0501, General enquiries 0845 678 6633 Fax: 0845 070 6911 Email address: sia@spinal.co.uk Steps Steps is a charity which provides support and information for families of children and individuals with lower limb abnormalities and for health professionals. Services include a telephone helpline and information service and a one to one support programme for parents with children with lower limb conditions. Parents who have experience of children with lower limb conditions volunteer to support parents who are beginning the treatment with their child. Formerly known as steps - Association for People with Lower Limb Abnormalities. Address: Warrington Lane, Lymm, Cheshire, WA13 0SA Telephone: Helpline 0871 717 0044 Fax: 0871 717 0045 Email address: info@steps-charity.org.uk
Stroke Association The Stroke Association is a national charity which provides information for people affected by strokes, their carers and professionals. It runs a range of local services including communication support groups, family and carer support services and supports a network of affiliated stroke groups. It also funds research and gives one-off welfare grants. Address: Stroke House, 240 City Road, London, EC1V 2PR Phone number: Helpline 0845 303 3100, Switchboard 020 7566 0300 Fax: 020 7490 2686 Email address: info@stroke.org.uk Whizz-Kidz Whizz-Kidz is a charity which provides customised mobility equipment for disabled children and young people that is not available via the NHS. Equipment includes powered and manual wheelchairs, tricycles, specialist walking frames and sports wheelchairs. It also campaigns on children's mobility issues. Address: Elliot House, 10-12 Allington Street, London, SW1E 5EH Phone number: 020 7233 6600 Events hotline 020 7233 9696 Fax: 020 7233 6611 Email address: info@whizz-kidz.org.uk