Belgium Ghent University Ghent, Flanders, Belgium PI: Dr. Bart Loeys Coordinator: Sylvia De Nobele Phone Number: 32-9-332.63.39 E-mail address: sylvia.denobele@ugent.be Canada Hospital For Sick Children Toronto, Ontario, Canada PI: Dr. Brian McCrindle Coordinator: Liz Radojewski, RN Phone Number: 1-866-613-7778 Email: elizabeth.radojewski@sickkids.ca Toronto General Hospital - UHN Toronto, Ontario, Canada PI: Dr. Tim Bradley Coordinator: Liz Radojewski, RN Phone Number: 1-866-613-7778 Email: elizabeth.radojewski@sickkids.ca California Cedars-Sinai Medical Center Los Angeles, CA PI: Dr. David Rimoin Coordinator: Mitchel Pariani Phone Number: 310-423-9861 E-mail address: Mitchel.Pariani@cshs.org Heart Institute, Rady Children's Hospital - UCSD School of Medicine San Diego, CA PI: Dr. Paul Grossfeld Coordinator: Terri McLees-Palinkas Phone Number: 858-966-8066 E-mail address: tmclees@rchsd.org Stanford University Stanford, CA PI: Dr. David Liang
Coordinator: Elizabeth Merkel, RN Phone Number: 650-736-0644 E-mail address: merkel@stanford.edu Illinois Children's Memorial Hospital Chicago - Northwestern University Chicago, IL PI: Dr. Luciana Young Coordinator: Megan Domenico Phone Number: 773-880-8331 E-mail address: mdomenico@childrensmemorial.org Maryland Johns Hopkins University Baltimore, MD PI: Dr. Hal Dietz Coordinator: Mary Rykiel, BSN Phone Number: 410-502-2014 E-mail address: mrykiel1@jhmi.edu Massachusetts Children's Hospital Boston Boston, MA PI: Dr. Jane Newburger Marfan Co-Chair: Ron Lacro Coordinator: Martha King Phone Number: (617) 355-8239 E-mail address: martha.king@cardio.chboston.org Minnesota Children's Hospital & Clinic St. Paul, MN PI: Dr. Mary Ella Pierpont Coordinator: Jessica Attwood Hirsch Phone Number: 612-813-6658 E-mail address: jessica.attwood-hirsch@childrensmn.org Mayo Clinic - St. Mary's Hospital Rochester, MN PI: Dr. Heidi Connolly
Coordinator: Susan Nelson Phone Number: 507-255-4670 E-mail address: nelson.susan@mayo.edu Missouri Washington University in St. Louis St. Louis, MO PI: Dr. Angela Sharkey Coordinator: Cheryl Rainey Phone Number: 314-454-6147 E-mail address: rainey_c@kids.wustl.edu New York Children's Hospital of New York New York, NY PI Name: Dr. Daphne Hsu Coordinator: Rosalind Korsin, RN Phone Number: 212-342-0524 E-mail address: rk271@columbia.edu Mt. Sinai Hospital New York, NY PI: Dr. Bruce Gelb Coordinator: Kerri Lee, MS Phone Number: 212-241-6012 E-mail address: kerri.lee@mssm.edu New York Presbyterian Hospital/ Weill Cornell Medical Center New York, NY PI Name: Drs. Mary Roman and Dick Devereux Coordinator: Rosalind Korsin, RN Phone Number: 212-342-0524 E-mail address: rk271@columbia.edu North Carolina Duke University Durham, NC PI: Dr. Page Anderson Coordinator: Ming Xu, RN, MSN Phone Number: 919-668-6352 E-mail address: mingfen.xu@duke.edu
Eastern Carolina Univeristy Greenville, NC PI: Dr. Charlie Sang Coordinator: Lori Jo Sutton, AAS, CCRC Phone Number: 252-744-2161 E-mail address: suttonlo@ecu.edu Wake Forest University Winston-Salem, NC PI: Dr. Wesley Covitz Coordinator: Kari Crawford, MS, APRN, BC, CPNP-AC Phone Number: 336-713-2228 E-mail address: kcrawfor@wfubmc.edu Ohio Cincinnati Children's Hospital Cincinnati, OH PI: Dr. Woody Benson Coordinator: Mary Pat Benham Phone Number: (513) 636-3891 E-mail address: MaryPat.Benham@cchmc.org Pennsylvania Children's Hospital of Philadelphia Philadelphia, PA PI: Dr. Victoria Vetter Coordinator: Kathy Lee Phone Number: 267-426-5386 E-mail address: leek@email.chop.edu Children's Hospital of Pittsburgh Pittsburgh, PA PI: Dr. Steven Webber Coordinator: Kevin Stiegler Phone Number: 412-692-6516 E-mail address: kevin.stiegler@chp.edu Marfan University of Pennsylvania Philadelphia, PA PI: Dr. Reed Pyeritz Coordinator: Kathy Lee Phone Number: 267-426-5386 E-mail address: leek@email.chop.edu
Marfan South Carolina Medical University of South Carolina Charleston, SC PI: Dr. J. Philip Saul Coordinator: Teresa Atz, RN, BSN Phone: 843-792-1213 E-mail: atz@musc.edu SVR, SVR Extension, and Marfan Tennessee Vanderbilt University Medical Center - Monroe Carell Jr Children's Hospital Nashville, TN PI: Dr. Larry Markham Coordinator: Cheryl Kinnard Phone Number: 615-343-2880 E-mail address: cheryl.kinnard@vanderbilt.edu Marfan Texas Texas Children's Hospital Houston, TX PI: Dr. Jeff Towbin Coordinator: Andres Menesses-Diaz, MD Phone Number: 832-826-5667 E-mail address: admeness@texaschildrenshospital.org Marfan Utah Primary Children's Medical Center Salt Lake City, Utah PI: Dr. L. LuAnn Minich Coordinator: Jun Awakawa Phone Number: (801) 662-5417 E-mail address: j.awakawa@utah.edu Washington Children's Hospital and Regional Medical Center Division of Cardiology, Children's Heart Center Seattle, WA PI: Dr. Mark Lewin Coordinator: Amy Payne Temporary Phone Number: 206-987-1083 E-mail address: amy.payne@seattlechildrens.org