North Carolina Disability Resources



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North Carolina Disability Resources ARTS and CREATIVITY http://www.vsarts.org/x342.xml North Carolina-Center for Creative Arts 200 North Davie Street, Box13 Greensboro, NC 27401 Phone: 336-379-9461 Fax: 336-379-9460 Email: vsa_artsnc@bellsouth.com ASSISTIVE TECHNOLOGY http://www.ncatp.org/ North Carolina Technical Assistance Projects Department of Health and Human Services Division of Vocational Rehabilitation Services 1110 Navaho Drive, Suite 101 Raleigh, NC 27609-7322 Phone/TTY: 919-850-2787 Fax: 919-850-2792 Email: rahiatt@nctap.org www.sedbtac.org Southeast DBTAC Center for Assistive Technology & Environmental Access (CATEA) at Georgia Tech 490 Tenth St. Atlanta, Ga 30318 Phone/TTY: 404-385-0636 Fax: 404-385-0641 Email: sedbtacproject@catea.org

CAREGIVERS INFORMATION http://www.caregiver.com/regionalresources/states/nc/index.htm North Carolina Support Groups Well Spouse Association Chapel Hill/Research Triangle Park WSSG Chapel Hill Russell Wiener Phone: (919) 541-1910 (w) (919) 933-7600 (h) Wiener.Russell@epa.gov Triangle Area WS Support Raleigh Rosemary Rollmann Phone: (919) 844-9216 rrollmann@earthlink.net CRIME VICTIM ASSISTANCE www.nccrimecontrol.org/index2.cfm?=000003.000016 North Carolina Crime Victim Compensation Phone: 919-733-7974 Fax: 919-715-4209 www.ncgccd.org/index.cfm North Carolina Victim Assistance Choose Your State and the Type of Assistance you are looking for Phone: 919-733-4564 Fax: 919-733-4625 http://ovc.ncjrs.org/findvictimservices/search.asp Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for http://www.safehorizon.org Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: 1-800-799-SAFE (7233)

National Resource Center on Domestic Violence: 800-537-2238 http://www.aardvarc.org/dv/states/ncdv.shtml Aardvarc s North Carolina Violence Crisis and Support Resources by City/County http://www.nccadv.org/ North Carolina Coalition Against Domestic Violence 115 Market Street #400 Durham, NC 27701 Phone: 919-956-9124 Fax: 919-682-1449 EASTER SEALS OFFICES www.nc.eastersealsucp.com Easter Seals UCP North Carolina- State Office 2315 Myron Drive Raleigh, NC 27607-3399 Phone: 919-783-8898 GOVERNMENT OFFICES http://www.ncgov.com/ North Carolina State Website http://www.nc-ddc.org/ North Carolina Council on Developmental Disabilities 3801 Lake Boone Trail, Suite 250 Raleigh, NC 27607 Phone/TDD: 919-420-7901 800-357-6916 Fax: 919-420-7917 http://www.dhhs.state.nc.us/docs/divinfo/dvr.htm NC Department of Health and Human Services Division of Vocational Rehabilitation 2801 Mail Service Center Raleigh, NC 27699-2801 Phone: 919-855-3500 Fax: 919-733-7968 http://www.dhhs.state.nc.us/dma/

North Carolina Medicaid Office North Carolina Department of Health and Human Services 1918 Umstead Drive Kirby Building Raleigh, NC 27699-2501 Phone: 919-857-4011 800-662-7030 877-733-4851 Email: care.line@ncmail.net http://www.dhhs.state.nc.us/dma/cpcont.htm North Carolina Health Choice (NCHC) for Children North Carolina SCHIP Program (State Children s Health Insurance Program) PO Box 30111 Durham, NC 27702-3111 Phone: 800-422-4658 http://www.ncdoi.com/consumer/shiip/shiip.asp North Carolina SHIIP Program (Seniors Health Insurance Information Program) Phone: 800-443-9354 http://www.ncdoi.com/ North Carolina Insurance Commissioner http://www.ic.nc.gov/ North Carolina Industrial Commission Workers Compensation Mailing address 4319 Mail Service Center Raleigh, NC 27699-4319 Street address Dobbs Building 6 th Floor North Salisbury Street Raleigh, NC 27603-5937 Phone: 919-807-2500 Fax: 919-715-0282 http://www.christopherreeve.org/c.ddjfkrnofig/b.4518671/k.6aba/find_your_electe d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. http://www.dol.gov/odep/state/directry.htm#ncarolina North Carolina Governor s Committee on Employment of People with Disabilities 2801 Mail Service Center Raleigh, NC 27699-2801

Phone: 919-855-3500 Fax: 919-733-7968 http://www.dol.gov/odep/state/directry.htm#ncarolina North Carolina Governor s Advisory Council for Persons with Disabilities 1314 Mail Service Center Raleigh, NC 24699-1314 Phone: 800-821-6922 TDD: 888-268-5535 Fax: 919-733-9173 Email: GACPD@ncmail.net http://www.ncdhhs.gov/aging/ombud.htm State LTC Ombudsman Sharon Wilder NC Division of Aging & Adult Services 2101 Mail Service Center Room 307 Raleigh, North Carolina 27699 Phone: (919) 733-8395, ext. 227 Fax: (919) 715-0364 The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING http://www.ilru.org/html/publications/directory/northcarolina.html North Carolina Independent Living Centers www.fanniemae.com Fannie Mae North Carolina Partnership Office 112 South Tryon Street, Suite 1100 Charlotte, NC 28284 Phone: 704-344-6960 Fax: 704-344-6970 Southeastern Regional Office 950 East Paces Ferry Road Suite 1800 Atlanta, GA 30326-1161 Phone: 404-398-6000

http://www.hud.gov/local/index.cfm?state=nc North Carolina Housing and Urban Development (HUD) Office Greensboro Filed office Asheville Building 1500 Pinecroft Road Suite 401 Greensboro, NC 27407-3838 Phone: 336-547-4001 Fax: 336-547-4138 Email: NC_Webmanager@hud.gov Multiple Sclerosis Association of America owns and operates five barrier-free apartment complexes in North Carolina. MSAA Suites at Jacksonville 1711 Hargett St. Jacksonville, NC 28540 Phone: 910-938-3632 LIBRARY SERVICES http://statelibrary.ncdcr.gov/lbph/ North Carolina Library for the Blind and Physically Handicapped State Library of North Carolina Department of Cultural Resources 1811 Capital Boulevard Raleigh, NC 27604-23188 Phone: 919-733-4376 888-388-2460 TDD: 919-733-1462 Fax: 919-733-6910 Email: nclbph@ncmail.net francine.martin@ncmail.net http://www.disabilityrightsnc.org/ Disability Rights North Carolina 2626 Glenwood Avenue, Suite 550 Raleigh, NC, 27608 Phone: (919) 856-2195 (877) 235-4210 PROTECTION and ADVOCACY North Carolina Client Assistance Program (CAP)

North Carolina Department of Health and Human Services 2806 Mail Service Center Raleigh, NC 27699-2806 Phone: 919-855-3600 800-215-7227 Fax: 919-715-2456 Email: Kathy.Brack@ncmail.net SERVICE DOGS Nanhall Training Center 2206 Martin Luther King Dr. Greensboro, NC 27406 Phone: 919-272-6584 Carolina Canines For Services PO Box 12643 Wilmington, NC 28405 Phone: 910-362-8181 910-362-8184 SPORTS and RECREATION http://www.dsusa.org/ Disabled Sports USA National Headquarters 451 Hungerford Drive Suite 100 Rockville, MD 20850 Phone: 301-217-0960 Fax: 301-217-0968 No current listings for NC. www.unitedspinal.org/ United Spinal: Sport & Recreation Programs of North Carolina No listings currently available for NC www.carolinashealthcare.org BlazeSports Charlotte Carolinas Rehabilitation Phone: (704) 355-1062

UNITED WAY OFFICES http://national.unitedway.org/ National United Way Enter postal code for a United Way office in your area National Headquarters 701 North Fairfax Street Alexandria, VA 22314 Phone: 703-836-7112 VETERAN BENEFITS http://www1.va.gov/directory/guide/facility.asp?id=240&dnum=all&map=1 VA Benefits Administration - Winston-Salem Regional Office Federal Building, 251 N. Main Street Winston-Salem, NC 27155 Phone: 800-827-1000 http://www.pva.org/site/pageserver?pagename=memb_chapters_nc Southeastern Chapter PVA Offices (covers NC which has no separate chapter) 4010 Deans Bridge RD. Hephzibah, GA 30815 Phone: 706-796-6301 706-796-6338 ALS www.catfishchapter.org The Jim Catfish Hunter Chapter of the ALS Association 1425-113 Rock Quarry Road Raleigh, NC 27610 Phone: 877-568-4347 Fax: 919-755-0910 Email: info@catfishchapter.org Muscular Dystrophy Association s ALS Research Centers:

MDA/ALS Center at Carolinas Medical Center Charlotte (704) 446-6257 E-mail: jrosenfeld@carolinas.org MDA/ALS Center at Duke University Durham E-mail: bedla001@mc.duke.edu Phone: 919-668-2839 BRAIN INJURY www.bianc.net Brain Injury Association of North Carolina PO Box 748 Raleigh, NC 27602 Phone: 919-833-9634 800-377-1464 Fax: 919-833-5415 State Brain Injury trusts Email: bianc@bianc.net http://www.carolinas.org/services/rehab/cir/brain_system.cfm TBI Model facility Carolinas TBI Rehabilitation Research System Charlotte Institute of Rehabilitation Charlotte, NC Phone: 704-355-4330 800-634-2256 CEREBRAL PALSY http://www.nc.eastersealsucp.com Easter Seals UCP North Carolina 2315 Myron Drive Raleigh, NC 27607 Phone: 919-783-8898 800-662-7119 Fax: 919-782-5486 Email: info@nc.eastersealsucp.com

FRIEDREICH S ATAXIA http://www.ataxia.org/ National Ataxia Foundation 2600 Fernbrook Lane Suite 119 Minneapolis, MN 55447 Phone: 763-553-0020 Fax: 763-553-0167 North Carolina Ataxia Support Group 123 Swan Quarter Drive Cary, NC 27519 Phone: 919-362-4010 Email: jfisher@nc.rr.com GUILLAIN-BARRÉ SYNDROME / CIDP http://gbs-cidp.org/ Guillain-Barré Syndrome / CIDP Foundation International Phone: 610-667-0131 Call for information in your area MULTIPLE SCLEROSIS http://www.nationalmssociety.org/chapters/ncc/index.aspx Central North Carolina Chapter of National Multiple Sclerosis Society 2211 West Meadowview Road, Suite 30 Greensboro, NC 27407 Phone: 336-299-4136 800-FIGHT-MS Email: ncc@mss.org http://www.nationalmssociety.org/chapters/nct/index.aspx Eastern North Carolina NMSS Chapter 3101 Industrial Drive Suite 210 Raleigh, NC 27609 Phone: 919-834-0678 Email: nct@nmss.org http://www.nationalmssociety.org/chapters/ncp/index.aspx

Mid-Atlantic NMSS Chapter 9844 C Southern Pines Blvd Charlotte, NC 28273 Phone: 704-525-2955 800-477-2955 Multiple Sclerosis Association of America Southeast Regional Office PO Box 66565 St. Petersburg, FL 33736 Phone: 727-367-1137 800-532-7667 x154 Fax: 727-367-1195 Email: lchaney@msaa.com MUSCULAR DYSTROPHY http://www.mdausa.org/ Muscular Dystrophy Association National Headquarters 3300 East Sunrise Drive Tucson, AZ 85718 Phone: 800-572-1717 Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. POST-POLIO SYNDROME http://www.post-polio.org/net/poldir.pdf Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO 63108-2915 Phone: 314-534-0475 Email: info@post-polio.org Directory lists Health Professionals, Clinics, and Support Groups by state. SPINA BIFIDA

http://www.sbanc.org North Carolina Spina Bifida Association of America Chapter 3915 Grace Court Indian Trail, NC 28079 Phone: 704-882-0988 Email: sbanc@mindspring.com SBAA North Carolina Clinics: Olson Huff Center 50 Doctor s Drive Asheville, NC 28801 Phone: 828-213-1780 UNC School of Medicine Spina Bifida Clinic Campus Box 7220 Chapel Hill, NC 27599-7200 Phone: 919-966-5165 Meckleburg County Health Dept. Myelodysplasia Clinic 249 Billingsley Road Charlotte, NC 28211 Phone: 704-432-1463 Duke University Medical Center Myelodysplasia Clinic 3000 Erwin Road Durham, NC 27710 Phone: 919-681-5456 East Carolina University Spina Bifida Clinic ECU-SOM Dept. Phys Med Rehab 600 Moye Blvd Greenville, NC 27858 Phone: 252-847-6606 Wake Forest University Health Sciences Myelodyspasia Clinic Dept. of Neurosurgery Medical Center Blvd Winston-Salem, NC 27157-1029 Phone: 336-716-9728

SPINAL CORD INJURY www.spinalcord.org http://www.spinalcord.org/chapters/listing.php?stateid=34 National Spinal Cord Injury Association s North Carolina Chapter 3701 Wake Forest Rd. Raleigh, NC 27609 Phone: 919-350-4172 Email: dmyers8@triad.rr.com kvasquez@wakemed.org STROKE http://www.strokeassociation.org/presenter.jhtml?identifier=1200037 American Stroke Association National Center 7272 Greenville Avenue Dallas, TX 75231 Phone: 1-888-478-7653 Call them for the stroke support group in your area SYRINGOMYELIA/CHIARI MALFORMATION http://www.asap.org American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX 75606-1586 Phone: 903-236-7079 800-ASAP-282 Fax: 903-757-7456 Email: info@asap.org TRANSVERSE MYELITIS http://www.myelitis.org/local/nc/index.htm Transverse Myelitis Association North Carolina Support groups Paul Stewart 12209 Danboy Road Pinesville, NC 28134 Phone: 704-543-0263 (Home) 704-450-1635 (Cell)

http://transmyelitis.meetup.com/ TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES http://www.disabilityresources.org/north-carolina.html Disability Resources.org: North Carolina http://www.familyvillage.wisc.edu/comm/northcarolina.html Family Village Resources for North Carolina www.nichcy.org http://www.nichcy.org/pages/statespecificinfo.aspx?state=nc North Carolina NICHCY: National Dissemination Center for Children with Disabilities http://www.yellowpagesforkids.com/help/nc.htm North Carolina Yellow Pages for Kids with Disabilities North Carolina Governor s Advocacy Council for Persons with Disabilities (GACPD) 1314 Mail Service Center Raleigh, NC 27699-1314 Phone: 800-821-6922 888-268-5535 Fax: 919-733-9173 Email: GACPD@ncmail.net http://www.ncota.org/home North Carolina chapter of the American Occupational Therapy Association (NCOTA) PO Box 20432 Raleigh, NC 27619 Phone: 919-785-9700 Fax: 919-771-0115 Email: wtown@mindspring.com www.ncpt.org North Carolina Chapter of the American Physical Therapy Association

316 West Millbrook Road Suite 105 Raleigh, NC 27609-4482 Phone: 919-841-0268 Fax: 919-841-0269 Email: nctahq1@aol.com http://www.ncapse.org/ North Carolina chapter of Association for Persons in Supported Employment SET/UCP 843 Medical Drive Plaza Suite 100 Charlotte, NC 28262 Phone: 704-333-8220 Fax: 704-333-7066 Email: pkeul@ucpnc.org http://www.healthboards.com/boards/index.php Healthboards.com message boards on health related topics. Topics include SCI, CP, Stroke, and more. http://www.211.org First Call 2-1-1 Phone: 211 Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, location, hours of operation, and any other relevant information for the inquiry. All calls are confidential. Available in Forsyth, Guilford, Randolph, Rockingham, Davie and Davidson Counties. www.thinkfirst.org ThinkFirst National Injury Prevention Foundation 29W120 Butterfield Rd., Suite 105 Warrenville IL 60555 Phone: 630-393-1400 800-THINK56 Fax: 630-393-1402 Email: thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab.

The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.