N E W J E R S E Y. Genetics Section Gordon Hutcheon, M.D., Pediatrician and Geneticist

Transcription

1 Used with permission and taken from: Charting the Future: Resource Directory for the Diagnosis, Prevention and Treatment of Fetal Alcohol Syndrome (2000). Barbara A Morse and Corinne Barnwell, editors. Developed by the: Fetal Alcohol Education Program, Boston University School of Medicine and supported by: Maternal and Child Health Bureau, Health Resources and Services Administration, US Department of Health and Human Services Grant #MCJ Resource information in some instances has been updated since the original publication of the directory. N E W J E R S E Y DIAGNOSIS OF FAS, FAE AND ARND Hackensack University Medical Center - Institute for Child Development Marvin Gottlieb, M.D., Chair, Department of Pediatrics 30 Prospect Avenue Hackensack, New Jersey St. Joseph s Hospital and Medical Center 703 Main Street Patterson, New Jersey Child Development Center Joseph Halahan, M.D., Developmental Pediatrician Aparna Mallik, M.D., Developmental Pediatrician Genetics Section Gordon Hutcheon, M.D., Pediatrician and Geneticist Robert Wood Johnson University Hospital - Department of Child Neurology David Mandlebaum, M.D. 97 Patterson Street New Brunswick, New Jersey Fax:

2 The Valley Hospital Neonatology Section Frank Manginello, M.D., Developmental Pediatrician 223 North Van Dien Avenue Ridgewood, New Jersey Fax: Mid-Atlantic Regional Human Genetics Network New Jersey Medical School Giselle Rodriguez, Coordinator 90 Bergen Street, Suite 5400 Newark, New Jersey Web site: States Served: Delaware, Maryland, New Jersey, Pennsylvania, Virginia, Washington D.C., West Virginia. Staff provides referral information to physicians who specialize in genetics. FAS New Jersey Regional FAS Diagnostic Centers Northern Regional Centers Susan Adubato, Ph.D., Coordinator Child Evaluation Center UMDNJ-NJMS Department of Pediatrics 30 Bergen St., ADMC 1608 Newark, NJ (973) Barbara Caspi, Ph.D., Coordinator--CHATT Cynthia Earl, Contact Person Children's Hospital of New Jersey at Newark Beth Israel Hospital An Affiliate of the St. Barnabas Health Care System 201 Lyons Ave. Newark, NJ (973)

3 Central Regional Centers Denise Aloisio, MD Mary Jane Drury, RN, Contact Person Jersey Shore Child Evaluation Center Medical Arts Building 1944 Route 33, Suite 101-A Neptune, NJ (732) Uday C Mehta, MD, MPH, Medical Director Sandra Wells, Contact Person UMDNJ-Robert Wood Johnson Medical School The Laurie Neurodevelopmental Institute Child Evaluation Center 97 Paterson St. New Brunswick, NJ (732) Southern Regional Centers Roberta Dihoff, Ph.D. Director South Jersey Hospital System Child Development Center 1138 E Chestnut Ave, Bldg. 3B Vineland, NJ (856) Kelly Hargadon, Ph.D., Coordinator David Rufo, Contact Person Children's Seahorse House of The Children's Hospital of Philadelphia Child Development Center in Atlantic City 35 South Annapolis Ave. Atlantic City, NJ (609) or (888) 490-KIDS (toll free)

4 COMMUNITY RESOURCES AND FAMILY SUPPORT GROUPS Bergen County Council on Alcoholism and Drug Abuse, Inc. Ronnie Jacobs, Resource Center Coordinator 10 East Broadway Hackensack, NJ Fax or Website: FAS/FAE information and referrals to FAS Diagnostic Centers in NJ and other services and contacts in NJ, and elsewhere in the U.S. Member of NJ Task Force on FAS Prevention. Ruth Hladyk, Parent 4 Dogwood Lane, Box 489 Mt. Tabor, New Jersey [email protected] Ms. Hladyk is part of the national Parent Network for the Post-Institutionalized Child. Loretta Shea Campbell, Parent?? have we reached her? 15 Mary Lane Waldwick, New Jersey Foster parents with an adopted teenager who has FAS.. TREATMENT SERVICES FOR AFFECTED INDIVIDUALS The Arc of New Jersey Ann Wilson, Director 985 Livingston Avenue North Brunswick, New Jersey Fax: Presents parent training conferences on FAS/FAE. Southern New Jersey Perinatal Cooperative 2500 McClellan Avenue, Suite 110 Pennsauken, New Jersey Fax: Staff does training-of-trainers, responds to telephone requests, and can make referrals for families dealing with FAS at home.

5 BGCenter for Cognitive-Developmental Assessment, Rehabilitation and Training Boris Gindis, Ph.D., Psychologist 13 S Van Dyke Avenue Suffern, New York Fax: Web site: International adoption medical and developmental consultations are available (fees are charged). Consults with Families for Russian-Ukrainian Adoption FRUA and also with the Parent Network of New York. PREVENTION PROGRAMS, INCLUDING TREATMENT FOR WOMEN New Jersey Department of Health - FAS Prevention and Perinatal Addiction Treatment Projects Carol Kaslander, M.P.H. 50 E State Street P O Box 364 Trenton, New Jersey Fax: Risk Reduction Specialists work in prenatal clinics around the state; they are specially trained to identify and refer patients who are substance abusers. Department of Health - Division of Alcoholism, Drug Abuse and Addiction Services 120 S Stockton Street, 3 rd Floor Trenton, New Jersey Fax: Web site: Can refer to treatment resources pregnant and/or parenting women with their young children. Pregnancy Healthline Kelly Bertolazzi, R.N. Southern New Jersey Perinatal Cooperative 2500 McClellan Avenue, Suite 110 Pennsauken, New Jersey Information on teratogens for patients and health professionals in southern New Jersey.

6 OTHER New Jersey Protection and Advocacy, Inc. 210 S Broad Street, 3 rd Floor Trenton, New Jersey Toll-free: Fax: [email protected] Statewide agency for persons with developmental disabilities.