DermLex, Patient Registries, DermBase and More: What s New in

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1 DermLex, Patient Registries, DermBase and More: What s New in Medical Informatics at the AAD Mark R. Pittelkow, M.D. Department of Dermatology Mayo Clinic Rochester MN pittelkow.mark@mayo.edu

2 MEDICAL INFORMATICS "Medical informatics is the application of computer technology to all fields of medicine - medical care, medical teaching, and medical research. " Morris F. Collen, 1977 "Medical informatics is the scientific field that deals with the storage, retrieval, and optimal use of biomedical information, data, and knowledge for problem solving and decision making." M.S. Blois and Edward H. Shortliffe, 1990

3 MEDICAL INFORMATICS Deals with all aspects of understanding di and promoting the effective organization, analysis, management, and use of information in health care American Medical Informatics Association website Improve and optimize use of health care information to improve decision making

4 MEDICAL INFORMATICS AAD Medical Informatics Committee (MIC) created in 2007 The Academy's MIC is responsible for promoting and advancing the medical informatics agenda for dermatology, including the provision of expert advice in support of clinical decision support systems, health terminology and classification systems (i.e., a dermatology lexicon, DermLex TM ), electronic medical records, teledermatology, patient registries and digital libraries.

5 Google search: AAD informatics

6 DERMATOLOGY LEXICON PROJECT Dlp developed under NIAMS contract PIs: Drs. Art Papier and Lowell Goldsmith, University of Rochester Term database, dictionary and morphology components AAD assumed management of dlp in 2006 Online soon and soliciting active review and updates from membership

7 DERMATOLOGY LEXICON PROJECT

8 DermLex TM

9 DermLex TM Collaborative, expert-reviewed collection of terms organized in hierarchal categories with extensive coverage of dermatology Maintained and updated by AAD Creation of formal definitions and relationships with other reference terminologies-esp SNOMED-CT (IHTSDO) Many applications: more accurate documentation, improved national data collection and reporting, decision support, reimbursement, etc

10 DermLex TM

11 SNOMED-CT Integument

12 DermLex TM Community effort by AAD membership and other external experts to develop a comprehensive and continually maintained, up-to-date reference terminology Potential for further coordination and integration with other terminologies, including BAD-Index, ICD-9, ICD-11, IHTSDO-SNOMED-CT, etc Foundation-wide expertise and knowledge base of the AAD to provide content and knowledge for dermatology specialty reference terminology

13 Patient Registry Data Clearinghouse

14 Patient Registry Data Clearinghouse Coalition i of Skin Disease- 20 organizations i Valuable legacy resource to be preserved and archived in secured environment for future epidemiologic, clinical trials and outcomes research Coordination, infrastructure and data resources for bringing together clinicians, investigators, industry and funding organizations to enhance patient care and improve clinical practice. Catalyze translational studies (CTSAs, etc)

15 DERMbase

16 DermBase TM

17 DermBase TM

18 Medical Informatics-AAD Teledermatology EMR software system vendors- standards d for dermatology and the industry National healthcare h standards d Certification Commission for Health Information Technology (CCHIT) Well positioned for future government, industry and AAD informatics applications

19 Medical Informatics-AAD Summary The AAD is committed to support the technology, resources and expertise that leverages state of the art informatics advances for dermatology in the 21st century The MIC and AAD encourage the membership to become active users and contributors t to these projects and other informatics innovations AAD staff: Naomi Levinthal nlevinthal@aad.org

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