Eating problems and cancer

Transcription

1 This information is an extract from the booklet Eating problems and cancer. You may find the full booklet helpful. We can send you a copy free see page 13. Contents Eating problems Specialist diets Dietitians Diagnosis Treatments Sore mouth Dry mouth Taste changes Difficulty chewing or swallowing Too tired to cook or eat Constipation Diarrhoea Wind Feeling sick (nausea) Poor appetite Big appetite due to medicines Your feelings about eating problems Caring for someone with eating problems Eating problems During and after treatment for cancer, many people can experience eating problems. There are lots of reasons for this: it can be related to the cancer itself, or the side effects of different treatments. This information highlights some common eating difficulties and why they happen, and suggests some practical ways to manage them. Questions about cancer? Ask Macmillan Page 1 of 13

2 Specialist diets Some people with cancer may have particular eating problems that are not covered here. For example: people with diabetes people who have a colostomy or ileostomy people who have had all or part of their stomach or bowel removed people who have had radiotherapy to their mouth or jaw. These people may need to follow a special diet designed for them. You can get advice about these diets from your doctor, specialist nurse or dietitian. Dietitians If you have any problems with your diet you can ask your doctor at the hospital to refer you to a dietitian. If you re not in hospital, your GP may refer you to a community dietitian. Qualified dietitians are experts in assessing the food needs of people who are ill. They can review your diet and take into account any specialist dietary requirements you may have. They can advise you on which foods are best for you, and also whether any food supplements would be helpful. Diagnosis Everyone s nutritional needs will be different when diagnosed with cancer. Some people will feel well and be able to eat normally. For others, weight loss or a poor appetite may have been symptoms that led to their diagnosis. If you had eating problems before you were diagnosed, you may need some support from your doctor or dietitian to improve your food intake before starting treatment. Some eating problems may be related to the cancer itself. Depending on where the tumour is in your body, it can cause you to feel sick (nausea), be sick (vomit), or can cause pain or poor digestion. The tumour may also change the way your body uses the food you do eat, so that you don t get all the nutrients you should. Page 2 of 13 Questions about cancer? Ask Macmillan

3 Treatments Some cancer treatments can cause eating problems. These can be temporary and improve when you finish treatment. Other problems may last longer. Surgery in the short-term, surgery can slow down your digestion. If you have surgery to the mouth, throat, stomach or intestine, it can take some time for you to return to a more regular eating pattern. Radiotherapy if you ve had radiotherapy to the head, neck or chest area you may experience eating problems such as taste changes, swallowing difficulties, a dry mouth and a very sore mouth and throat. Radiotherapy to the tummy (abdomen) or pelvic areas can make you feel sick (nauseous), or be sick (vomit), or it can cause diarrhoea. Chemotherapy common side effects of some chemotherapy treatments can include loss of appetite, taste changes, constipation, diarrhoea, feeling sick or being sick and a sore mouth. Biological therapy this can affect your appetite or your ability to eat. Problems might include taste changes, a dry or sore mouth and feeling sick. Sore mouth Soreness and ulceration of the lining of the mouth or throat is known as mucositis and can be very painful. It can be caused by chemotherapy, biological therapies, and radiotherapy to the head and neck. Damage to the cells lining the mouth or throat is usually temporary and most side effects will go when treatment ends. Here are some helpful tips to keep your mouth healthy during treatment: Drink plenty of fluids. If you find that fresh fruit juices sting your mouth, try less acidic juices instead, such as apple juice, peach or pear nectar, and blackcurrant or rosehip syrup. Some pre-prepared drinks that taste like fruit juice may also be helpful. These are available from health food shops and some supermarkets. Questions about cancer? Ask Macmillan Page 3 of 13

4 Cold foods and drinks can be soothing to a sore mouth. Try adding crushed ice to drinks and eating ice cream or soft milk jellies. Some people find that sucking on ice can be soothing. Very hot or cold drinks may irritate your sore mouth so try having drinks that are lukewarm or at room temperature. Try drinking through a straw. Avoid salty or spicy food that may sting. Avoid rough-textured food like toast or raw vegetables as they can scrape at sore areas. Keep your food moist with sauces and gravies. Tell your doctor if you have a sore mouth. They can prescribe soothing or antiseptic lotions or sprays for you. You may also need painkillers before mealtimes to help you with swallowing. Mouthwashes can be very soothing, but many available in chemists or shops may be too strong for you. Evidence shows that salt-water mouthwashes are just as effective at reducing soreness, or your doctor can prescribe an anaesthetic gel or mouthwash instead. Many hospitals have their own mouthcare guidelines for chemotherapy patients and your doctor or specialist nurse will be able to advise you. See your dentist for support during treatment. They may recommend a high-fluoride or non-foaming toothpaste to help reduce soreness. Use a children s soft toothbrush to clean your teeth gently. Avoid toothpicks when cleaning your teeth. If you wear dentures, soak them in a denture-cleaning solution overnight and leave them out for as long as you can during the day to prevent them rubbing your gums. If you re having radiotherapy to the jaw area, you may be advised to keep your dentures in as much as possible during the day to help maintain the shape of your gums. However, if your mouth is sore, it may be more comfortable to leave your dentures out. Page 4 of 13 Questions about cancer? Ask Macmillan

5 Dry mouth Chemotherapy or radiotherapy to the head and neck area can damage the saliva glands, and this may lead to a dry mouth (xerostomia). If you find you re affected by a dry mouth, these suggestions may help you: If your tongue is coated it may make your food taste unpleasant and might put you off eating. You can clean your tongue with a bicarbonate of soda solution: use one teaspoon of bicarbonate of soda (available from your chemist) dissolved in a pint (570mls) of warm water. Clean your tongue with a soft toothbrush, foamstick or gauze, dipped in the solution. Check with your clinical nurse specialist for further advice. Frequent drinks, even if you just take a few sips at a time, can help keep your mouth moist. You may find fizzy drinks the most refreshing. Keep a glass of water by your bedside and carry water with you whenever you go out. Try sucking ice cubes or lollies. You can make lollies by freezing fresh fruit juice in ice-cube trays or in special lolly containers with sticks. Keep your food moist with sauces and gravies. Avoid chocolate and pastry as they can stick to the roof of your mouth. Chewing gum can sometimes stimulate your saliva. Tell your doctor about your dry mouth. They can prescribe mouthwashes, lozenges, artificial saliva sprays or gels, if you think they will help. Use lip balm or Vaseline for dry lips, but do not use any balm on your lips during radiotherapy treatment speak to your clinical nurse specialist or radiotherapy team about this. Taste changes Some people with cancer find that their taste changes, although this is usually temporary. They may no longer enjoy certain foods, find that all foods taste the same, or notice a metallic taste in their mouth. Occasionally, they can t taste anything at all. Questions about cancer? Ask Macmillan Page 5 of 13

6 If your taste changes, here are some tips for making your food more enjoyable: Eat foods that you enjoy and ignore those that don t appeal to you, but try them again after a few weeks as your sense of taste may change again. Use seasonings, spices and herbs like pepper, cumin or rosemary to flavour your cooking. However, if your mouth is sore you may find that some spices and seasonings make it worse. Try marinating meat in fruit juices or wine, or cook it in strong sauces like curry or sweet and sour. Cold meats may taste better served with pickle or chutney. Sharp-tasting foods like fresh fruit, fruit juices and bitter boiled sweets can be refreshing and leave a pleasant taste in the mouth. If you go off the taste of tea or coffee, try lemon tea or green tea instead, or perhaps an ice-cold fizzy drink like lemonade. Some people find that cold foods taste better than hot foods. If your sense of taste or smell has changed it can sometimes help to serve food at room temperature. Serve fish, chicken and egg dishes with sauces. Use plastic cutlery if you notice a metallic taste in your mouth. Difficulty chewing or swallowing Chemotherapy, and radiotherapy treatments for a head or neck cancer, can affect the cells in the healthy lining of the throat, which can make it painful to chew or swallow. Let your doctor or dietitian know if you re having difficulties swallowing. You may find that taking painkillers before mealtimes can help you chew and swallow more easily. Your doctor or nurse can advise you about this. Soft diets can become boring if you rely on soup and ice cream. But with a little imagination, a soft diet can be appetising and nutritious. Keep eating your favourite foods where possible, but make changes to soften them. For example, cover foods in interesting sauces and gravies; finely chop meat Page 6 of 13 Questions about cancer? Ask Macmillan

7 and vegetables then casserole or stew them; and cut the crusts off bread for softer sandwiches. If you have a blender you could liquidise cooked foods. There are several balanced food supplements that you may find helpful, for example Build up or Complan drinks. You can buy these products in your chemist or supermarket. Your doctor may give you a prescription for some of them. Too tired to cook or eat You may find you re struggling to cook your meals and are even too tired to eat. These suggestions may help you: This is the time to use quick convenience foods such as frozen meals, tinned foods, ready meals and takeaways. Remember though, to defrost frozen foods thoroughly and to cook all foods properly to avoid any risk of food poisoning. Read cooking instructions carefully and stick to them. If you know in advance when you re likely to feel tired, for example after radiotherapy treatment, try to plan ahead to help you through these times. If you have a freezer, prepare food while you are feeling active and freeze it for when you re more tired. You could stock up on convenience foods. This is also a good opportunity to give family and friends the chance to help by doing some shopping or cooking for you. If you really can t face eating, try a nourishing drink. You can make a smoothie by blending bananas, peaches, strawberries or other soft fruit (fresh or frozen) with fortified milk, fruit juice, ice cream or yoghurt in a liquidiser or blender. You can make fortified milk by adding 2 4 tablespoons of dried milk powder to a pint (570ml) of full-fat milk. Your doctor, nurse or dietitian can prescribe or recommend supplement drinks and puddings for you. If you feel you need more help at home with your cooking or eating, tell your GP or contact the dietitian at your hospital. They may be able to arrange meals on wheels or a home helper for you. Questions about cancer? Ask Macmillan Page 7 of 13

8 Constipation Constipation means that you re not able to open your bowels routinely and it can become difficult or painful for you to pass bowel motions. Here are some suggestions to help prevent or ease this: Make sure you have plenty of fibre (roughage) in your diet. Good sources of fibre include: wholewheat breakfast cereals like Weetabix, Shredded Wheat or muesli; wholemeal bread and flour; brown rice; wholemeal pasta; and fresh fruit and vegetables. Popular natural remedies for constipation are prune juice, prunes and syrup of figs. Make sure you drink plenty of fluids both hot and cold drinks will help. Aim to drink at least two litres (3.5 pints) a day. Gentle exercise, such as walking, will help keep your bowels moving. If the constipation is due to medicines that you re taking (such as painkillers or anti-sickness drugs), you will need to take laxatives. Your doctor can prescribe these for you. If you have cancer of the bowel, or you think that your bowel may be affected by your cancer treatment, always ask your doctor or specialist nurse for advice on dealing with constipation. A diet with lots of fibre in it may make your symptoms worse. Diarrhoea Diarrhoea usually means that you need to pass more bowel motions in a day than is normal for you, and the stools you pass are looser than normal. Diarrhoea can be caused by chemotherapy, radiotherapy, biological therapies and surgery. The treatments can affect the healthy cells that line the digestive tract, which causes diarrhoea. Sometimes medications or an infection can also cause diarrhoea. This can be a temporary, mild side effect but for some people it can be severe and they will need to see a doctor to help manage it. Page 8 of 13 Questions about cancer? Ask Macmillan

9 Tell your doctor if you have diarrhoea. They can investigate the cause, and prescribe some anti-diarrhoea medicines. Make sure you drink plenty of fluids to replace the water lost with the diarrhoea, but avoid alcohol and coffee. Acidophilus or other bacteria found in live yoghurt or live yoghurt drinks may help to ease diarrhoea caused by antibiotics. Antibiotics can kill off the healthy bacteria normally found in the bowel, but the bacteria found in live yoghurt may replace them. However, you should avoid live yoghurt while you re having chemotherapy or if your immunity is low. Eat small, frequent meals made from light foods such as dairy produce, white fish, poultry, well-cooked eggs, white bread, pasta or rice. Avoid highly spiced or fatty foods and eat your meals slowly. Avoid foods and drinks that make the diarrhoea worse. This includes greasy, fatty foods such as chips and beefburgers, cooked dried beans, apple juice, raw fruits and vegetables, and spicy foods like chilli peppers. If your diarrhoea is caused by radiotherapy or chemotherapy, changing your diet is unlikely to help. It s important that you take the anti-diarrhoea medicines prescribed by your doctor. If you have diarrhoea after surgery for bowel cancer, discuss it with your doctor or specialist nurse before changing your diet. Wind Here are some helpful tips for coping with wind: Eat and drink slowly. Take small mouthfuls and chew your food well. Avoid food that you think gives you wind, such as beans, pickles and fizzy drinks. A popular natural remedy is to drink two teaspoons of peppermint water dissolved in a small cup of hot water. This can be sweetened with sugar. Your GP can prescribe peppermint oil capsules that may help. You could try taking charcoal tablets, which you can buy in the chemist. Questions about cancer? Ask Macmillan Page 9 of 13

10 Gentle exercise, especially walking, can bring some relief. Try to ensure your bowels are opening regularly wind can be a sign of constipation. If passing wind becomes painful, tell your doctor. Feeling sick (nausea) If feeling sick is putting you off your food, these tips may help you: Try eating some dry food, such as toast or crackers, first thing in the morning before you get up. If the smell of cooking makes you feel sick, eat cold meals or food from the freezer that only needs heating up. However, remember to defrost it thoroughly before cooking, and to make sure it s properly cooked. If possible, let someone else do the cooking. Avoid greasy, fatty or fried foods. Try sitting by an open window so there s plenty of fresh air in the room while you eat. Sit at a table in an upright position when eating, and remain sitting for a short time after the meal. When you feel sick, start by eating light foods such as thin soups or egg custards. Gradually introduce small portions of your favourite foods, slowly building up to a more varied diet. Food or drink containing ginger can help reduce feelings of sickness. You could try crystallised ginger, ginger tea or ginger biscuits. Sipping a fizzy drink is a popular remedy for feeling sick. Try mineral water, ginger ale, lemonade or soda water, and sip it slowly through a straw. Try having drinks between meals rather than with your food. If your cancer treatment is making you feel sick, discuss this with your doctor or specialist nurse. There may be medicines like anti-sickness (anti-emetic) tablets that could help. You could try wearing sea bands (available from chemists) around your wrists they use acupressure to help relieve nausea. Page 10 of 13 Questions about cancer? Ask Macmillan

11 Try to make sure you have regular bowel movements constipation can make you feel sick. Poor appetite If you find you have a poor appetite, these suggestions may help you: If you can t face big meals, eat little amounts as often as possible. Try to have a small portion of food every two hours during the day. Try to make your food look as attractive as possible. Put small portions on your plate and garnish the food with lemon, tomato or parsley. An aperitif such as sherry or brandy half an hour before a meal can be a good way of stimulating your appetite. Some people find a glass of wine with their meals helps their digestion. Check with your doctor that you can have alcohol. Keep snacks handy to eat whenever you can. Bags of nuts or crisps, dried fruit or a bowl of grated cheese are quite light and tasty. If these are hard for you to swallow, a yoghurt or fromage frais may be easier. If you ve recently had surgery or radiotherapy for bowel cancer you may need advice about the best foods for you. Discuss this with your specialist nurse, doctor or a dietitian. Sweet or savoury nourishing drinks can be used to replace small meals and can be sipped slowly through the day. Eat your meals slowly, chew the food well and relax for a little while after each meal. Sometimes the smell of cooking can be appetising, but occasionally it can put you off eating. If cooking smells spoil your appetite, keep away from the kitchen and ask your family or friends to cook. Or try to eat cold foods that are attractively presented instead. Everyone s appetite changes and you may have good and bad days. Make the most of the good days by eating well and treating yourself to your favourite foods. Try to eat your meals in a room where you feel relaxed and where there aren t any distractions. Questions about cancer? Ask Macmillan Page 11 of 13

12 It may be possible to stimulate your appetite using medicines such as a low dose of steroids or the hormone medroxyprogesterone. Your doctor may prescribe these for you. Big appetite due to medicines Some medicines, such as steroids, may give you a big appetite and might make you want to eat much more than usual. It s important to try to eat healthy foods such as fruit and vegetables instead of sweets and crisps so you don t put on too much weight. Your feelings about eating problems You may worry that the change in your eating pattern will affect your relationships with your partner, family and friends. You may be anxious about what people think of you or about being rejected. Or you may feel self-conscious about eating at home or out with family or friends. Many people find that if they talk about their concerns to those close to them, their fears are unfounded. If you find it difficult to talk about your feelings with your family, you could speak to your doctor or specialist nurse. You may not always feel well enough to be able to cook food for yourself and the family, if you have one. If you are the person who usually prepares the meals, it may feel strange to let someone else take charge. Try not to feel guilty about letting someone else do the things you usually do. When you feel better you can take up your responsibility for cooking again. If you live on your own and need help with cooking or shopping, contact your GP, district nurse or social worker, so that they can arrange for a home helper, meals on wheels or a local organisation to help you with cooking or shopping. Page 12 of 13 Questions about cancer? Ask Macmillan

13 Caring for someone with eating problems If you re the main carer for someone with cancer, it can be upsetting and difficult to know how to deal with the eating problems their cancer or treatments have caused. Here are some suggestions for carers about coping with food preparation and mealtimes: Don t be surprised if the person you re caring for finds their tastes change from day to day throughout their treatments. Try to be flexible about when mealtimes might be, rather than trying to keep to an old routine. As you know when their appetite is at its best, you can treat them to their favourite foods at those times. If someone s sense of taste or smell has changed it can sometimes help to serve food cold or at room temperature. Use plastic cutlery if the person affected by cancer notices a metallic taste in their mouth. If the person you re caring for finds that certain cooking smells make them feel sick, prepare food in a different room if possible. Serve food in a well-ventilated room. Be aware of how energy supplements can be used to add energy to everyday meals and drinks, for example you could try adding fortified milk to tea or coffee. More information and support Cancer is the toughest fight most of us will ever face. But you don t have to go through it alone. The Macmillan team is with you every step of the way, from the nurses and therapists helping you through treatment to the campaigners improving cancer care. We are Macmillan Cancer Support. To order a copy of Eating problems and cancer, visit be.macmillan.org.uk or call We make every effort to ensure that the information we provide is accurate but it should not be relied upon to reflect the current state of medical research, which is constantly changing. If you are concerned about your health, you should consult your doctor. Macmillan cannot accept liability for any loss or damage resulting from any inaccuracy in this information or third party information such as information on websites to which we link. Macmillan Cancer Support Registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Registered office 89 Albert Embankment, London, SE1 7UQ REVISED IN MAY 2012 Planned review in 2014 Questions about cancer? Ask Macmillan Page 13 of 13