Global Approaches for Rare Diseases and Orphan Products
|
|
|
- Clinton Pearson
- 8 years ago
- Views:
Transcription
1 Global Approaches for Rare Diseases and Orphan Products XII. Meeting Patient and Family Needs Across the Lifespan Access to Health Care, Psychological, and Social Support Programs Anders Olauson AGRENSKA, Gothenburg EURORDIS, Paris EPF, Brussels Eesti Agrenska Foundation, Estonia
2
3 When you have a rare disease > 40 contacts Vänner BB BVC Primärvård Specialistvård Hospital Arbetsterapeut Sjukgymnast Nämnd Tjänsteman Anhöriga Grannar Social network Insurance Försäkringskasseläkare LSS Other authorities Work/ School Förskola Särskola Grundskola Bostadanpassning Hjälpmedel Arbetskamrater Skolsköterska Arbetsgivare Arbetsförmedling
4 In order to understand how it is to be a parent to a disabled child you have to be a parent to a disabled child yourself! Åke Martinsson, Sweden
5 The Family Program Needs to; Invite the whole family Have a holistic approach No shorter than 4 days Address one and the same diagnose Be part of the (Re)-hability process Offer a tailor-made program Have 4 parallel program: The child with the diagnose Parents Siblings Family related Professionals Make a documentation afterwards that has focus on the whole family
6 Stress and well-being among parents of children with rare diseases: a prospective intervention study: The Agrenska Family program an habilitation intervension for families with children with rare diseases Lotta Dellve & Lena Samuelsson A Tallborn, L R-M Hallberg, A Fasth, M Gunnarsson, A Josefsson Nordic School of Public Health Ågrenska Sahlgrenska University Hospital Göteborg University
7 A mother told me. Before I came here I felt that I didn t had any influence of my life and situation, but after this program and even still after 6 month I m in charge again Before attending the family program 43 % of the mothers felt disconnected. After the family program the number was less than 7 %!
8 Effects families tell: Parents feel normal for the first time The family feel empowered, by meeting other in the same situation Parents get new knowledge, to take better care of their own life Children with the disorder meet other in the same situation Siblings meet other siblings Professionals meet each other
9 Effects scientific proof: Reduced costs for healthcare Attended family program - consumed medical care for SEK/ year Attended ordinary program consumed for SEK/year
10
11 Agrenska Foundation is working under the patronage of Queen Silvia of Sweden Queen Silvia inaugurates the Queen Silvia Auditorium at Agrenska Academy in 2001.
12 Agrenska programs Family program Adult program Respite and summer service Educations ADHD counselor Family support unit Training program to get a job Staff who has a disability Eesti Agrenska Agrenska Friends AViA
13
14 Comments from ICORD meeting in The ICORD Network. Brussels september 2007 Yes, this is something we want to see developed to pursue items of interest to us all. Patient involvement in this network should build on partnership with professionals, academia and regulators to make progress. We should also provide challenges for governments and industry to improve their policies and actions. It should develop tools for countries and regions to assist their work e.g. guides and templates for best practice, goals, and ideas or models for groups to use. The network should build and maintain good communications among us all. And lead to good involvement of patient/family groups at all levels, including research, health policy, regulatory issues, and a role for us in priority setting. AViA website can be a tool we can use
15
16 The AViA Virtual centre for research Stimulate further and deeper research regarding rare diseases Based upon experiences from Agrenska programs Holistic perspective International cross boarder cooperation's Scientific council
17 Educational consequences People with syndrome diagnoses often represent educational challenges
18 Empowerment
19 Broad observation instrument shows data for groups, variation within groups, differences between groups reliability considered good professor Erland Hjelmquist and docent Bengt Jansson, Göteborg University theoretical validation work remains
20 We want to map motor ability perception social behaviour emotional behaviour ADL language and speech learning strategies writing, reading and mathematics
21 Diagnoses in our database Prader Willi (13) Angelman (12) Asperger (33) Tourette (20) Achondroplasi (12) Cornelia de Lange (6) Silver Russel (6) Fragile X (30) Congenital Dystrophia Myotonica (14) Ehlers Danlos (10) Marfan (11) Turner (10) Charge (5) Möbius (2) Treacher Collins (2) 22q11 deletion/ CATCH 22 (20) PKU/ Phenylketonuria (9) Apert (1) Galactosemia (4) Klinefelter (6) Neurofibromatosis (11) Noonan (10) Osteogenesis imperfecta (2) Rubenstein Taybi (8) Sotos (11) Sturge Weber (4) Tuberos sclerosis (14) William (17) Albinism (9) Becker (7) Crouzon (7) LMBB (9) Cri du chat (10) CDG Congenital Disorders of Glycosylation (7) Hereditary spastic paraplegia (9)
22
A STRONG PATIENTS VOICE TO DRIVE BETTER HEALTH IN EUROPE
A STRONG PATIENTS VOICE TO DRIVE BETTER HEALTH IN EUROPE Evidence in the era of globalization Patients influencing research: Setting the scene right? Anders Olauson Agrenska Eurordis EPF Eesti Agrenska
Speech Pathology Funding Information for Clients
Speech Pathology Funding Information for Clients www.communicatespeech.com.au Private Health Cover - All Ages Children and Adults Speech Pathology Assessment and Therapy sessions can be claimed through
Allied, Therapeutic and Psychology Extender Benefit
Allied, Therapeutic and Psychology Extender Benefit 2013 The Allied, Therapeutic and Psychology Extender Benefit is available on the Enhanced Option only. Overview This document tells you about the Allied,
Allied, Therapeutic and Psychology Extender Benefit
Allied, Therapeutic and Psychology Extender Benefit 2015 Allied, Therapeutic and Psychology Extender Benefit The Allied, Therapeutic and Psychology Extender Benefit is available on the Executive and Comprehensive
ARMENIA. Albert Matevosyan MD,PhD
Albert Matevosyan MD,PhD Neurohereditary Diseases Charity Association Head of Republic Center of Medical Genetic and Department of Medical Genetic Yerevan State Medical University Rome EUROPLAN (Italy)
ADHD and Autism (and everything else in between) Dr Ankit Mathur Consultant Community Paediatrician
ADHD and Autism (and everything else in between) Dr Ankit Mathur Consultant Community Paediatrician Objectives Community Paediatric service pathways Importance of these conditions Case studies Differential
Local Offer: Community Paediatrics (West Lancashire)
Local Offer: Community Paediatrics (West Lancashire) Service Provider Nominated Individual Ormskirk & District General Hospital Southport and Ormskirk NHS Trust Dr Anthony Asakpa Speciality Doctor Community
Rare Diseases: understanding this Public Health Priority
November 2005 Rare Diseases: understanding this Public Health Priority Joachim Rode EURORDIS Plateforme Maladies Rares 102 rue Didot 75014 Paris France Tel + 33 1 56 53 52 10 Fax + 33 1 56 53 52 15 www.eurordis.org
IHMH - Masters in School Psychology Course Information
Be inspired, be ambitious and be prepared for a successful and high-level career and the journey starts here. Overview Purpose of the course Duration of the course Requirement for Admission Learning Highlights
CIRCULAR TO BOARDS OF MANAGEMENT AND PRINCIPAL TEACHERS OF NATIONAL SCHOOLS
Circular SP.ED 08/02 CIRCULAR TO BOARDS OF MANAGEMENT AND PRINCIPAL TEACHERS OF NATIONAL SCHOOLS Applications for full-time or part-time resource teacher support to address the special education needs
MSc Applied Child Psychology
MSc Applied Child Psychology Module list Modules may include: The Child in Context: Understanding Disability This module aims to challenge understandings of child development that have emerged within the
Genetic Testing in Research & Healthcare
We Innovate Healthcare Genetic Testing in Research & Healthcare We Innovate Healthcare Genetic Testing in Research and Healthcare Human genetic testing is a growing science. It is used to study genes
EURORDIS Position Paper on Specialised Services for People Living with Rare Diseases
EURORDIS Position Paper on Specialised Services for People Living with Rare Diseases EURORDIS - the European Organisation for Rare Diseases represents 310 rare disease organisations from 34 different countries,
Faculty of Arts and Educational Sciences
Faculty of Arts and al Sciences Department of Special Study Plan for the Bachelor's Degree in Special 2009/2010 1. Framework for B.A. Degree in Special (132 Credit Hours) Classification Credit Hours Compulsory
Where to find useful information or support with learning disability. Including National and International websites.
Where to find useful information or support with learning disability. Including National and International websites. ACCESSING USEFUL NETWORKS & GROUPS: Networks are an easy way to make contact with experts
School Holiday Social Skills Program July 6 July 9 Mill Park
www.soundsright.com.au info@soundsright.com.au 0435 400 417 School Holiday Social Skills Program July 6 July 9 Mill Park Sounds Right Speech Pathology will be offering an Intensive Social Skills Program
ADHD. & Coexisting Disorders in Children
ADHD & Coexisting Disorders in Children ADHD AND CHILDREN Attention-deficit/hyperactivity disorder (ADHD) is a recognized medical condition that often requires medical intervention. Establishing a diagnosis
Patient Support Guide
Patient Support Guide to genetic testing for hereditary breast and ovarian cancer syndrome Testing for BRCA1 and BRCA2 is available from Quest Diagnostics. Quest Diagnostics Patient Support Guide to Genetic
NFCA/Allsup Family Caregiver Survey
NFCA/Allsup Family Caregiver Survey Insight into the concerns, interests and activities of higher burden family caregivers October 2011 NFCA member/higher burden caregiver profile 2-3 Caregiver and care
«How can patient organisations trigger a EU funded rare disease project»
The European Prader Willi syndrome research project «How can patient organisations trigger a EU funded rare disease project» At first : a daily challenging rare disease A rare disease : Prader- Willi syndrome
ADHD Treatment Home Management and School Accommodations Robin K. Blitz, MD. ADHD DIAGNOSTIC CLINIC Week 3
ADHD Treatment Home Management and School Accommodations Robin K. Blitz, MD ADHD DIAGNOSTIC CLINIC Week 3 ADHD Target symptoms Behavioral / Emotional Improvements in: Self-esteem Behavior in public places
Special Education: Core Knowledge and Applications (0354/5354) Test at a Glance
Test at a Glance Test Name Special Education: Core Knowledge and Applications Test Code 0354 5354 Time 2 hours 2 hours Number of Questions 120 120 Format Multiple choice Multiple choice Test Delivery Paper
Programme Study Plan
Dnr HS 2013/164 Faculty of Arts and Social Sciences Programme Study Plan Master Programme in Psychology: Cognitive Behavioural Therapy (CBT) Programme Code Programme Title: VAKBT Master Programme in Psychology:
ASPERGER S SYNDROME, NONVERBAL LEARNING DISORDER AND OTHER NEUROCOGNITIVE DISORDERS
ASPERGER S SYNDROME, NONVERBAL LEARNING DISORDER AND OTHER NEUROCOGNITIVE DISORDERS APPROPRIATE PROGRAM DEVELOPMENT Orion Academy Kathryn Stewart, Ph.D. GETA 2007 What is a Neurocognitive Disorder? What
Aetna Autism Spectrum Disorders (ASD) Support Program
Quality health plans & benefits Healthier living Financial well-being Intelligent solutions Aetna Autism Spectrum Disorders (ASD) Support Program Aetna Resources For LivingSM 44.02.919.1-ADO (9/12) 2 Autism
Program Specific Information Packet. Department of Human Services and Behavioral Health (HSBH) Building 9, Room 217 (937) 512-2845 (800) 315-3000
Sinclair Community College 444 West Third Street Dayton, Ohio 45402 Program Specific Information Packet Department of Human Services and Behavioral Health (HSBH) Building 9, Room 217 (937) 512-2845 (800)
Form Approved OMB No: 0920-0445 Expiration Date: 11/30/2008 Mental Health and Social Services State Questionnaire School Health Policies and Programs Study 2006 Attn: Beth Reed, Project Manager 126 College
Clinical Practice Guidelines: Attention Deficit/Hyperactivity Disorder
Clinical Practice Guidelines: Attention Deficit/Hyperactivity Disorder AACAP Official Action: OUTLINE OF PRACTICE PARAMETERS FOR THE ASSESSMENT AND TREATMENT OF CHILDREN, ADOLESCENTS, AND ADULTS WITH ADHD
IHMH - PG Diploma in School Psychology
Be inspired, be ambitious and be prepared for a successful and high-level career and the journey starts here. Overview Purpose of the course Duration of the course Requirement for Admission Learning Highlights
Department of Human Services and Behavioral Health (H.S.B.H.) Building 9, Room 217 (937) 512-2845 (800) 315-3000
Sinclair Community College 444 West Third Street Dayton, Ohio 45402 Applicant Information Packet Department of Human Services and Behavioral Health (H.S.B.H.) Building 9, Room 217 (937) 512-2845 (800)
SCHOOL MENTAL HEALTH RESPONSE GUIDELINES
1 SCHOOL MENTAL HEALTH RESPONSE GUIDELINES The School Mental Health Response Staff may consist of a variety of members of the school s SBSLT (School Based Support Learning Team), including but not limited
Irmeli Järventie Current Position Research Interests Academic Education Academic Positions
1 Irmeli Järventie Current Position 1. University Lecturer of Social Psychology, School of Social Sciences and Humanities University of Tampere 2. Docent of Social Psychiatric Research at the Medical Faculty,
Educational Psychology Consultation report
Educational Psychology Consultation report Introduction Since the Autumn of 2006, the Parent Carer Council have been involved in an ongoing piece of parent participation work with the Educational Psychologists
Psychology (MA) Program Requirements 36 credits are required for the Master's Degree in Psychology as follows:
Psychology (MA) ACADEMIC DIRECTOR: Carla Marquez-Lewis CUNY School of Professional Studies 101 West 31 st Street, 7 th Floor New York, NY 10001 Email Contact: Carla Marquez-Lewis, carla.marquez-lewis@cuny.edu
Overview and Methodology
Counseling Program Survey 2013 1 Overview and Methodology The 2013 Counseling Program Survey was conducted during the fall 2013 academic term. The survey sought to understand program perspectives from
Author: ADPH, SLOUGH June 2014 adapted from RBWM template 1
CHILD AND ADOLESCENT MENTAL HEALTH SERVICES, Tier 1, 2, 3 & 4, available to SLOUGH Children, Young People Schools. Areas of Need* Tier 1 Tier1/2 Tier 2 Tier3/4** *Taken from: Guidance for commissioners
DEVELOPMENTAL SPEECH AND LANGUAGE HISTORY
DEVELOPMENTAL SPEECH AND LANGUAGE HISTORY Parents: This history may appear to be quite long. However, a number of the questions require checking off responses, which can be done quickly. This information
UNDERSTANDING MIND AND BRAIN RESEARCH MASTER S PROGRAMME IN COGNITIVE NEUROPSYCHOLOGY
UNDERSTANDING MIND AND BRAIN RESEARCH MASTER S PROGRAMME IN COGNITIVE NEUROPSYCHOLOGY YOUR PROGRAMME IN A NUTSHELL The Research Master s in Cognitive Neuropsychology is about relating normal and abnormal
Dr.Fatima Kamran. Assistant Professor/ Clinical Psychologist
Dr.Fatima Kamran 650-G, Phase 5, D.H.A, Lahore, Pakistan Home: 00-92-42-35734006 Cell: 00-44-7941095704 f.kamran@surrey.ac.uk, fatimakamran24@yahoo.com Assistant Professor/ Clinical Psychologist University
Palliative Care for Children. Support for the Whole Family When Your Child Is Living with a Serious Illness
Palliative Care for Children Support for the Whole Family When Your Child Is Living with a Serious Illness Palliative care provides comfort and support to your child and family. When a child is seriously
PSYC PSYCHOLOGY. 2011-2012 Calendar Proof
PSYC PSYCHOLOGY PSYC1003 is a prerequisite for PSYC1004 and PSYC1004 is a prerequisite for all remaining Psychology courses. Note: See beginning of Section F for abbreviations, course numbers and coding.
Family nursing intervention: Useful way to assist families with children and adolescents with diabetes type 1
Family nursing intervention: Useful way to assist families with children and adolescents with diabetes type 1 Elísabet Konráðsdóttir, MS, Clinical Nurse Specialist Pediatric outpatient clinic, Childrens
Traumatic Brain Injury
Traumatic Brain Injury NICHCY Disability Fact Sheet #18 Updated, July 2014 Susan s Story Susan was 7 years old when she was hit by a car while riding her bike. She broke her arm and leg. She also hit her
What you need to know about. Occupational Therapy
What you need to know about Occupational Therapy What you need to know about Occupational Therapy, 2014 The Swedish Association of Occupational Therapists (FSA) Translation: Michael Eyre Layout: Gelinda
Making the Connections District 75 NYCDOE
Medical Syndromes and Their Effect on Learning Making the Connections District 75 NYCDOE Cerebral Palsy The most frequent medical condition in 12:1:4 classes Associated with other disabilities including
Subject: Health; health insurance; autism spectrum disorders. Statement of purpose: This bill proposes to require health insurers6
2010 Page 1 1 2 3 4 5 S.262 Introduced by Senators Carris and Campbell Referred to Committee on Finance Date: Janaury 5, 2010 Subject: Health; health insurance; autism spectrum disorders Statement of purpose:
Georgia Department of Human Resources BACKGROUND INFORMATION FOR NON-STATE AGENCY CHILD
Georgia Department of Human Resources BACKGROUND INFORMATION FOR NON-STATE AGENCY CHILD Responsible Party Telephone Number Date Name of Child Date of Birth Time of Birth Sex Resident County Placement County
ow centres of expertise should interface with social services The French experience : state of the art and current challenges
ow centres of expertise should interface with social services The French experience : state of the art and current challenges Christel Nourissier EURORDIS EUROPLAN Advisor 2 strategic Plans for rare diseases
Is There a Difference Between Asperger's Syndrome and High Functioning Autism? Dr Tony Attwood
Is There a Difference Between Asperger's Syndrome and High Functioning Autism? Dr Tony Attwood We have been exploring the nature of autism, as described by Leo Kanner, for nearly 60 years. He described
APPLICATION CHECKLIST REVIEW
APPLICATION CHECKLIST REVIEW COMPLETED AND SIGNED CHILD LIFE PRACTICUM APPLICATION PROFESSIONAL RESUME DOCUMENTED PROOF OF HOSPITAL/ HEALTHCARE EXPERIENCE DOCUMENTED PROOF OF EXPERIENCE WITH HEALTHY CHILDREN
COMMUNICATION SCIENCES AND DISORDERS 2015-2016 COURSE OFFERINGS Version: 2015-08-10
COMMUNICATION SCIENCES AND DISORDERS 2015-2016 COURSE OFFERINGS Version: 2015-08-10 COURSE TITLE FALL WINTER SPRING SUMMER GEN CMN 108-0 Communication Disorders X CSD 112-0 Scientific Exploration of Comm.
Health Education as a stand-alone School Subject to improve Health Literacy of Future Generations: Lessons to learn from Finland
Health Education as a stand-alone School Subject to improve Health Literacy of Future Generations: Lessons to learn from Finland Lasse Kannas, Professor of Health Education University of Jyväskylä, Finland
EMU Psychology Clinic 611 W. Cross Street Ypsilanti, MI 48197 (734) 487-4987. Client Application Child
A. Identification 1. Child s name EMU Psychology Clinic 611 W. Cross Street Ypsilanti, MI 48197 (734) 487-4987 Client Application Child Birthdate Age Grade: Person(s) completing this form Today s date
General foster parent history and experience
2011 FOSTER PARENT RECRUITMENT AND RETENTION SURVEY Agency Name: The Center for Support of Families (CSF) Title of Program: Diligent Recruitment Grant Ask to speak to the foster parent listed. Hello. My
Integrated Delivery of Rehabilitation Services:
Integrated Delivery of Rehabilitation Services: Guidelines SPECIAL for NEEDS Children s STRATEGY Community Agencies, Health Guidelines Service for Providers Local Implementation and District School of
EUCERD JOINT ACTION GUIDING PRINCIPLES ON TRAINING FOR SOCIAL SERVICES PROVIDERS EXAMPLES OF TRAINING PROGRAMMES
EUCERD JOINT ACTION GUIDING PRINCIPLES ON TRAINING FOR SOCIAL SERVICES PROVIDERS EXAMPLES OF TRAINING PROGRAMMES June 2014 INTRODUCTION This document was elaborated in the scope of the EUCERD Joint Action
PNAE Paediatric Nursing Associations of Europe
PNAE Paediatric Nursing Associations of Europe Paediatric Nurse Education in Europe A Position Statement by the Paediatric Nursing Associations of Europe (PNAE) Introduction The PNAE network carried out
Each Amendment must be moved and seconded for discussion and subsequent vote.
Amendments to General Education Proposal Each Amendment must be moved and seconded for discussion and subsequent vote. Because of the number of amendments, discussion will be limited according to restrictions
Traumatic Brain Injury
Traumatic Brain Injury NICHCY Disability Fact Sheet #18 Resources updated, March 2011 Susan s Story Susan was 7 years old when she was hit by a car while riding her bike. She broke her arm and leg. She
Mellen Center for Multiple Sclerosis
Mellen Center Cleveland Clinic Marie Namey, RN, MSN, MSCN Mellen Center Cleveland Clinic Cleveland, OH Home of. Mellen Center for Multiple Sclerosis Mellen Center Mission The Mellen Center remains committed
Accreditation APAC & AHRI 23/06/2014. Psychology and Human Resource Management
Bachelor of Psychological Science / Bachelor of Business (Human Resource Management) combined degree Professor Phyllis Tharenou Executive Dean, Faculty of Social and Behavioural Sciences Psychology and
Student Mental Health and Wellbeing
Student Mental Health and Wellbeing 2 Student Mental Health and Wellbeing DECS Commitment to Student Mental Health and Wellbeing The Department of Education and Children s Services (DECS) recognises that
Autism West Program Term 4 2014
Bb Autism West Program 2014 Welcome to Autism West, we have a variety of groups on offer which vary from term to term. The groups cater for the ages 7 years to Adults and range from therapy focused, to
Witness. The Music Therapist. www.visionproject.org. an online magazine. Photographs by Richard Falco. Text by Dr. Tina Brescia
Witness an online magazine The Music Therapist Photographs by Richard Falco Text by Dr. Tina Brescia www.visionproject.org THE MUSIC THERAPIST Text by Dr. Tina Brescia / Photography by Richard Falco In
Smart Isn t Everything: The Importance of Neuropsychological Evaluation for Students and Individuals on the Autism Spectrum
Smart Isn t Everything: The Importance of Neuropsychological Evaluation for Students and Individuals on the Autism Spectrum Ilene Solomon, Ph.D., Spectrum Services The decision to have a child or adolescent
CHILD AND FAMILY STUDIES
CHILD AND FAMILY STUDIES Spencer K. Thompson, Ph.D. Associate Professor of Psychology Dr. Thompson came to UT Permian Basin from the doctoral program at UCLA and services coordinator of the psychology
Georgia Department of Education Grade 3 Career Development Activity Human Services Estimated Time: 45 Minutes
Goal Students will identify careers as a Georgia career cluster Objectives define a career cluster as a grouping of occupations with common skills and knowledge identify sample occupations aligned with
offers many fascinating study opportunities
31 JuniorTukkie November 2015 Humanities: Psychology You have a passion for people. Human behaviour and what causes people to react the way they do is something that fascinates you. You are considering
Undergraduate Psychology
Undergraduate Psychology University of Macau 2010 Prospectus Welcome from the Head of the Department Dear Potential Psychology Students, Psychology is one of the most popular majors in the world. The reason
CYCLING TO SUPPORT CHILDREN WITH CANCER. Join Team Rynkeby s professional network www.team-rynkeby.com www.facebook.
CYCLING TO SUPPORT CHILDREN WITH CANCER Join Team Rynkeby s professional network www.team-rynkeby.com www.facebook.com/teamrynkeby TEAM RYNKEBY an international charity success Team Rynkeby is an international
Form Approved OMB No: 0920-0445 Expiration Date: 11/30/2008 Mental Health and Social Services School Questionnaire Mental Health and Social Services School Questionnaire Public Use Version Mental Health
2015-2016 Academic Catalog
2015-2016 Academic Catalog Autism Behavioral Studies Professors: Kuykendall, Rowe, Director Assistant Professors: Fetherston, Mitchell, Sharma, Sullivan Bachelor of Science in Autism Behavioral Studies
Supporting Information
Supporting Information Yin et al. 10.1073/pnas.1518151112 Fig. S1. Characteristic Z scores of a section of DNA encompassing a deletion in sample 14,945 at (A) varying concentrations of abnormal DNA at
Psychopathology. Stages of research. Interventions
Psychopathology Change in the way look at problems. Similar to change in biology. Also look over life cycle. Look at how they adapt to change. 1 Burden Stages of research Diagnosable symptomatology Positive
Department of Psychology
Colorado State University 1 Department of Psychology Office in Behavioral Sciences Building, Room 201 (970) 491-3799 colostate.edu/depts/psychology (http://www.colostate.edu/depts/ Psychology) Professor
Research on Adoption and Post-Adoption Services and Supports (PASS)
Research on Adoption and Post-Adoption Services and Supports (PASS) Based on presentations and publications by Richard P. Barth, Ph.D. Frank A. Daniels Professor UNC School of Social Work Research to Teaching
ASD and Employment. Presented by: Sarah Duhaime, MSW, RSW. Employment and Life Skills Coach. The Redpath Centre
ASD and Employment Presented by: Sarah Duhaime, MSW, RSW Employment and Life Skills Coach The Redpath Centre What do these people have in common?? Disability and Work A business perspective on why it is
Patient Information. for Childhood
Patient Information Genetic Testing for Childhood Hearing Loss Introduction This document describes the most common genetic cause of childhood hearing loss and explains the role of genetic testing. Childhood
Life with MS: Mastering Relationships with Family and Friends
Life with MS: Mastering Relationships with Family and Friends Getting the Support You Need The bonds we have with friends and family are linked to our happiness and well-being. They bring us joy during
Care of the Elderly with Dementia and the Need for Group Homes from Middle and Upper Class Families in Korea*
Care of the Elderly with Dementia and the Need for Group Homes from Middle and Upper Class Families in Korea* Jung Shin Choi*, Dae Nyun Kim**, Oh-jung Kwon*** Professor, Major in Consumer and Housing,
Services for Children and Young People with Special Educational Needs and Disabilities. Lancashire s Local Offer. Lancashire s Health Services
Services for Children and Young People with Special Educational Needs and Disabilities Lancashire s Local Offer Lancashire s Health Services 1. Name of the service and what the service provides Lancashire
HIGHLAND COUNCIL PSYCHOLOGICAL SERVICE
HIGHLAND COUNCIL PSYCHOLOGICAL SERVICE EDUCATIONAL PSYCHOLOGY INVOLVEMENT WITH LOOKED AFTER CHILDREN, AT HOME, AWAY FROM HOME, IN KINSHIP CARE OR IN OUT-OF-AREA AUTHORITY PLACEMENTS Date of Issue: March
Documentation Requirements ADHD
Documentation Requirements ADHD Attention Deficit Hyperactivity Disorder (ADHD) is considered a neurobiological disability that interferes with a person s ability to sustain attention, focus on a task
Children s Health and Nursing:
Children s Health and Nursing: A Summary of the Issues What s the issue? The foundation for healthy growth and development in later years is established to a large degree in the first six years of life.
CASE A: Caroline. You are an 18 year old woman coming in for a check-up prior to starting college. Your mother is in the waiting room.
Adolescent Role Part 1 You are an 18 year old woman coming in for a check-up prior to starting college. Your mother is in the waiting room. If your PCP screens you for substance use in the past year: You
State and Federal Programs for Children and Youth with Special Health Care Needs
State and Federal Programs for Children and Youth with Special Health Care Needs Rishi Agrawal, MD, MPH Conflict of Interest Disclosures for Rishi Agrawal, MD, MPH Grant/Research Support Consultant Speakers
Interview Questions for Psychology Students
Interview Questions for Psychology Students Sample Practicum Interview Questions General Questions 1. Tell me about yourself. 2. Why do you want to work here? Why do you feel this site would be a good
Student Learning Outcomes Report Counseling and Psychological Services
Student Learning Outcomes Report Counseling and Psychological Services Through a campus-wide media campaign, students were invited to participate in an online mental health screening program that was accessed
Depression, anxiety and long term conditions. Linda Gask Professor of Primary Care Psychiatry University of Manchester
Depression, anxiety and long term conditions Linda Gask Professor of Primary Care Psychiatry University of Manchester Depression and LTCs People with LTCs are twice as likely than other adults to suffer
DISABILITY-RELATED DEFINITIONS
DISABILITY-RELATED DEFINITIONS 1. The Americans with Disabilities Act (ADA) of 1990 is a civil rights law, which makes it unlawful to discriminate on the basis of disability. It covers employment in the
The National Survey of Children s Health 2011-2012 The Child
The National Survey of Children s 11-12 The Child The National Survey of Children s measures children s health status, their health care, and their activities in and outside of school. Taken together,
The NeurOmics team at a recent project meeting
Introduction Welcome to the NeurOmics project newsletter. This is the second edition and comes after the project has been underway for just over a year. This means that whilst we still have lots of work
LD-CAMHS in Norfolk Community Health and Care. Philosophy of Care THE STAR FISH TEAMS. Dr Pippa Humphreys. Lead Clinical Psychologist.
LD-CAMHS in Norfolk Community Health and Care Dr Pippa Humphreys Clinical Psychologist Gill Jinkerson Clinical Lead/Systemic Psychotherapist Philosophy of Care Quality of life, and our ability to manage
Health Authority Abu Dhabi
Health Authority Abu Dhabi Document Title: Policy Scope of Practice for Registered Nurses Document Ref. Number: PPR/HC/EX/P0004/07 - A Version 0.9 Approval Date: May 2007 Effective Date: May 2007 Last
San Diego State University Consent to Act as a Research Subject
San Diego State University Consent to Act as a Research Subject You are being asked to participate in a research study. Before you give your consent to be a part of the study, carefully read the following
State and National Call Centers
State and National Call Centers Listed Alphabetical by Name Acadia Hospital Access Dept. 1-800-640-1211 AIDS 1-800-851-2437 AIDS Clinical Trials Information Service 1-800-874-2572 AIDS Hotline 1-800-851-2437
Chapter 4: Eligibility Categories
23 Chapter 4: Eligibility Categories In this chapter you will: learn the different special education categories 24 IDEA lists different disability categories under which children may be eligible for services.
An overview of Intellectual Developmental Disability Functioning levels of Mental Retardation/Intellectual Disability Autism
An overview of Intellectual Developmental Disability Functioning levels of Mental Retardation/Intellectual Disability Autism Intellectual/Developmental Disability (IDD) - indicates an overall intellectual