Macmillan Oldham Community Specialist Palliative Care Team. An information guide
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1 TO PROVIDE THE VERY BEST CARE FOR EACH PATIENT ON EVERY OCCASION Macmillan Oldham Community Specialist Palliative Care Team An information guide
2 Macmillan Oldham Community Specialist Palliative Care Team This leaflet aims to help you and provide details of how you can contact us. What is specialist palliative care? Specialist palliative care helps patients and families to live as well as possible by providing high quality pain and symptom control, as well as practical and psychological support. We support patients with cancer as well as those with other long term conditions (eg heart failure, chronic chest disease and neurological conditions). Who is the specialist palliative care team? The team consists of: Macmillan palliative care nurses and palliative care nurses Macmillan physiotherapists, dietitian and occupational therapist Macmillan secretaries Consultant in palliative medicine Palliative social workers We form the Oldham multi-disciplinary team (MDT) for palliative care, together with other health care professionals. We meet every Thursday, where we discuss and plan the care of those referred to the service. If you have any questions about this please ask a member of the team. We work with you and your carers. We also work with your GP, alongside district nurses, hospital doctors and nurses. Our aim is to support you and those closest to you. 2
3 We could meet you either at home or a suitable place of your choice. Our consultant in palliative medicine also holds a weekly clinic at Dr Kershaw s hospice for symptom control. The Oldham Cancer Support Centre is situated at Failsworth Health Centre and is contactable for advice Monday to Friday on How can the Macmillan palliative care nurses help me? We work alongside GPs, doctors and nurses involved in your care, to provide advice and support around difficult symptoms and complex problems. These symptoms may include pain, nausea, psychological or spiritual distress. The Macmillan service is also keen to: provide important information on facing cancer and any other progressive life threatening illness link closely with all other services e.g. social work, benefit advisors and any other professionals involved in your care. How to contact us We are happy for you to contact us at anytime and talk about any worries or concerns you may have. Alternatively, a health care professional may contact us on your behalf with your permission. We are available Monday Friday 8.00 am pm (excluding bank holidays). We may not always be in the office when you telephone, but please leave a message on the answer machine, and we will contact you as soon as we are able. Telephone Number:
4 Patients are usually discharged from our service when their issues and problems are resolved. Patients or carers can be re-referred at anytime, either by themselves or a health care professional. Key Worker A member of the palliative care team will be your named contact and will help co-ordinate care for you and your family, whilst you are under our care. They will be known as your key worker. Depending on your needs other members of the team may be involved in your care. Your palliative care key worker is How can the Macmillan occupational therapist (OT) help me? I will work with you to help you continue the important everyday activities. I am not involved in your medical treatment, but may be able to help you cope with your symptoms in some of the following ways: daily living activities - e.g. getting washed, cooking, working and hobbies. Sometimes, there are physical or psychological problems that prevent you from doing these activities lifestyle and fatigue management - I will work with you to help you use your limited energy to do what is most important to you stress and anxiety management - I will identify the sources of stress and anxiety, and develop coping strategies with you. This may involve learning relaxation skills or looking at dealing with negative thoughts breathlessness management - I can help you with relaxation techniques, planning and pacing activities and how best to save your energy coping with body image issues - if this stops you from doing important activities, I will work with you to try to overcome these barriers 4
5 pain management by learning about your activities and relaxation may help me to help you manage your pain better. How can the Macmillan dietitian help me? I aim to help with any nutritional problems you are experiencing. This includes advice on: reduced appetite, weight loss and fullness on eating mouth problems dryness, sore or ulcers and taste changes food consistency issues supplements and ways to take them tube feeding alternative diets advice on the safety of nutritional products, vitamins and minerals coping with the side effects of treatment affecting your dietary intake. How can the Macmillan physiotherapist help me? I aim to help you with any physical or respiratory symptoms you are experiencing. This includes advice on: mobility problems moving & handling issues breathlessness chest infection fatigue general weakness pain control managing anxiety. How to contact us The Macmillan occupational therapist, dietitian and physiotherapist can be contacted weekdays on (there is an answer machine). 5
6 How do I get referred to the Macmillan dietitian, physiotherapist or occupational therapist? If you want advise from any of these professionals then please ask your consultant, GP, specialist nurse, district nurse or other health professional, to refer you. How can a social worker help me? a palliative care social worker will visit you to carry out an assessment of your personal and social care needs help you to devise a support plan to meet those needs offer you a listening ear and help you resolve any problems you may have offer practical and emotional support to your family following a carers assessment. To refer to a social worker, contact the duty and initial assessment team on Someone else can ring on your behalf, with your permission. Other useful contact numbers Christie Hospital Royal Oldham Hospital Dr Kershaw's Hospice Go to Doc Oldham Bereavement Out-of-hours district nurses /3526 Macmillan citizens advice bureau welfare benifits 6
7 Summary of first visit 7
8 If English is not your frst language and you need help, please contact the Ethnic Health Team on Jeżeli angielski nie jest twoim pierwszym językiem i potrzebujesz pomocy proszę skontaktować się z załogą Ethnic Health pod numerem telefonu For general enquiries please contact the Patient Advice and Liaison Service (PALS) on For enquiries regarding clinic appointments, clinical care and treatment please contact and the Switchboard Operator will put you through to the correct department / service Date of publication: June 2005 Date of review: February 2014 Date of next review: February 2017 Ref: PI_M-O_146 The Pennine Acute Hospitals NHS Trust Wood pulp sourced from sustainable forests
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