Asbestos: An International Public Health Crisis

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2 ADAO 2012 Annual International Asbestos Awareness Conference Agenda Asbestos: An International Public Health Crisis FRIDAY, MARCH 30, :30-5:30 PM Private Gathering for Family, Patients & Caregivers (By Invitation Only) 6:30-8:00 PM Private Speaker, Honoree, and Sponsor Party (By Invitation Only) SATURDAY, MARCH 31, :00-8:30 AM Registration and Continental Breakfast 8:30-8:45 AM Welcome and Opening Remarks: Linda Reinstein, ADAO President/CEO and Co-Founder 8:45-9:00 AM Dr. Lemen, Dr. Frank, Brent Kynoch, and Christine Winter Session I Asbestos: "An International Public Health Crisis" - Chairperson: Arthur Frank, MD, PhD Linda Reinstein, ADAO President/CEO and Co-Founder, Building a Culture of Prevention 9:00-9:15 AM and Collaboration 9:15-9:25 AM Larry Davis, Mesothelioma Patient, Victims Education 9:25-9:40 AM Tony Rich, Asbestos: A Photographic Retrospective 9:40-9:55 AM Dr. Richard Lemen, International Agency for Research on Cancer (IARC) 9:55-10:10 AM Dr. Michael Harbut, Asbestos-Related Diseases: Early Signs, Who's At Risk, and What You Should Tell Your Doctor Dr. Dan Sterman, Novel Treatments for Malignant Pleural Mesothelioma and Other Asbestos- 10:10-10:25 AM Related Cancers 10:25-10:35 AM Ann Samuelson, ADAO Volunteer, Workers' Voices 10:35-10:50 AM Celeste Monforton, Asbestos: Still Legal and in Use in the U.S. 10:50-11:05 AM Paul Zygielbaum, Victims Advocacy: ADAO Product Testing Update 11:05-11:20 AM Andy Oberta, Confronting the International Asbestos-Cement Industry 11:20-11:30 AM Q&A Session I 11:30-11:50 AM Matt Peacock, Keynote Speaker, India s Toxic Trade 11:50-11:55 AM U.S. Representative Steve Cohen (D-TN) - Tribute of Hope Award 11:55 AM - 12:00 PM Actor Steve McQueen - Warren Zevon Keep me in Your Heart Memorial Tribute 12:00-12:05 PM Dr. Arthur Frank -Dr. Irving Selikoff Lifetime Achievement Award 12:05-12:10 PM Dr. Richard Lemen - Dr. Irving Selikoff Lifetime Achievement Award 12:10-12:15 PM Dr. Joel Shufro - Tribute of Inspiration Award 12:15-12:20 PM Associazione Familiari Vittime Amianto (AFEVA) - Tribute of Unity Award 12:20-12:25 PM Debbie Brewer - The Alan Reinstein Award 12:25-12:30 PM Larry Davis - The Alan Reinstein Award 11:50 AM - 12:30 PM Awards 12:30-1:20 PM Lunch Session II Asbestos: "An International Public Health Crisis" - Chairperson: Richard Lemen, PhD, MSPH Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California (310)

3 ADAO 2012 Annual International Asbestos Awareness Conference Agenda Asbestos: An International Public Health Crisis 1:20-1:35 PM Brent Kynoch, What We Need Now is ENFORCEMENT 1:35-1:50 PM Christine Winter, Platforms for Asbestos Education,Training, and Partnership 1:50-2:05 PM Siobhan Doherty, Empowering Asbestos Safety through elearning 2:05-2:20 PM Rich Haffey, Protect Yourself and Those You Love 2:20-2:35 PM Dr.Joel Shufro, Left in the Dust: Ten Years After the Attack on the World Trade Center 2:35-2:50 PM Fernanda Giannasi, Challenges to a Total Ban of Asbestos in Brazil Panel: Bruno Pesce, Nicola Pondrano, Niccolò Bruna, Eric Jonckheere, and Barry 2:50-3:25 PM Castleman, Eternit Criminal Trials 3:25-3:40 PM João Carlos Duarte Paes, Leading by Example - Asbestos Free Cement 3:40-3:55 PM Q&A Session II Session III Asbestos: "An International Public Health Crisis" - Chairperson: Brad Black, MD 3:55-4:05 PM Debbie Brewer, Mesothelioma Patient, Victims' Community Alec Farquhar and Sari Sairanen, A Community and Labour Based Approach to Detecting and 4:05-4:20 PM Preventing Occupational Disease 4:20-4:30 PM Sandy Kinart, Community Support: Hospice 4:30-4:45 PM Mitch Golant, PhD, Cancer Support Community, Community: Cancer Support Groups 4:45-4:55 PM Q&A Session III 4:55-5:00 PM Conclusion SATURDAY, MARCH 31, :30 PM -9:00 PM Saturday Dinner (Entertainment and Silent Auction) SUNDAY, APRIL 1, :30-11:30 AM Unity and Remembrance Brunch-Sunday, April 1st Barbara McQueen, Keynote Speaker Leah Nielsen & Stacy Cattran Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California (310)

4 Dear Registrants, Speakers, Honorees, Sponsors, Volunteers and Guests: On behalf of everyone at the Asbestos Disease Awareness Organization, I welcome you to Manhattan Beach for our 8th annual International Asbestos Awareness Conference. This year s theme is: An International Public Health Crisis, and by participating in the 2012 conference and selflessly giving your time, expertise, and support, you are helping to prove this truth. Together, we have worked to make education, community, and advocacy the three pillars that forge an ever-growing base of global support, and you are a critical part of this grassroots movement. This is an exceptionally exciting time for ADAO, as nine different nations have come together for this year s conference. Looking back at how much has changed since we launched in 2004, I am awe-inspired and increasingly encouraged by the advances we have made together in asbestos disease awareness. It feels great to be back in Manhattan Beach for the first time since 2009, this small town truly knows the meaning of community. There is always someone that will lend a helping hand, and the city council has been a faithful advocate of ADAO, resolutely backing our work. This conference would not be possible without the hard work of so many wonderful people, and I offer my most sincere gratitude to the volunteers, speakers, and honorees here today. Special thanks go out to Executive Assistant Herman Hamilton and our Asbestos Awareness Conference Committee chairs, who have worked for nearly a year to make this event a reality. Brent Kynoch and Tom Laubenthal from Environmental Information Association and Christine and Mark Winters at Independent Asbestos Training Providers have been incredible. Sue Ann Taylor and her Zeel TV team, our ADAO family, rolled up their sleeves to maximize our outreach. Siobhan Doherty has outperformed herself putting together an e-learning module for asbestos safety. Steve McQueen will posthumously receive the Warren Zevon Keep Me In Your Heart award this year; the King of Cool once said, when I believe in something, I fight like hell for it, and ADAO is proud to honor his courage by adding this cause to his many affects. We are also thankful to again welcome our National Spokesman for ADAO, Jordan Zevon as we are incredibly honored and lucky to have Jordan s continued leadership. He brings a true light to ADAO, sharing his compassion and splendid musical talents, and wisdom beyond his years; I feel so blessed to also call him my dear friend. We gather at this time every year because Asbestos Awareness Week offers a beacon of hope for hundreds of thousands of current and future victims of asbestos diseases marks our 8th conference, and the 8th resolution passed unanimously by the United States Senate to recognize the importance of asbestos awareness. This year is monumental because for the first time, we celebrate Global Asbestos Awareness Week, welcoming involvement from numerous countries and participants from across the world. We strongly encourage Congress and leaders worldwide to build on the momentum of this week and this conference by promptly enacting a complete ban on asbestos. That is the only way we can hope to eliminate this inexcusable epidemic. Thank you for joining us today. We are a family and this conference is a strong reaffirmation that together, we can create real change. In unity, Linda Reinstein Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California (310)

5 ADAO Science Advisory Board Science Advisory Board Co-Chairmen Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH Science Advisory Board Members Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 Redondo Beach California (310) United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support

6 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Marilyn Amento is ADAO's State Representative for Pennsylvania and Family Tribute Chair. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his father at one of the several asbestos plants, and playing on asbestos scrap piles in the small borough of Ambler, a Philadelphia suburb. Marilyn has a Master s Degree in Human Services Management from The Heller School of Brandeis University, and is also the mother of two teens, Joe and Julie. She channels her grief and anger with the asbestos industry by working with ADAO, fundraising, and educating the public about asbestos through her strong Facebook presence. Debbie Brewer was born in Plymouth, England in She had her first job as a shop assistant in Since then she went on to get married, twice, and have three children who are her inspiration. In 2006, she lost her beloved dad and was also diagnosed with mesothelioma. This was a shock to the whole family. At the time she was given 6-9 months to live, but was determined to change that. Her daughter, Siobhan, developed a website which allowed Debbie to contact others who were fighting back as well. Through this she met many warriors, and found a research treatment that would stabilize her illness. Debbie continues to support others and works with groups like ADAO to create awareness. Niccolò Bruna, filmmaker and independent producer, was born in Turin, Italy. Niccolò has been experimenting with the expressive tools of documentary filmmaking since he attended the EICTV School in Cuba in For the past 14 years, Niccolò has aimed to create quality film productions with human interest and offer a fresh glance on powerful social issues. His films include, My Nigerian sisters, about the difficult conditions of three African girls trafficked to Europe and forced to work as prostitutes, Verso Casa (Homeward), on the difficult return back home in Albania, Nigeria, and Morocco of a group of migrants deported form Europe, Con la Carne de Mi Puerquito (With the meat of my piggy), about the restrictions on food in Cuba, and Tahormina-Taj Mahal, an ironic trip into the Italian-American community of Brooklyn. Barry Castleman, ScD is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US on the history of asbestos as a public health problem and the reasons for failure to properly control asbestos hazards. Dr. Castleman has spent the past 40 years working on asbestos as a public health problem. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

7 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Stacy Cattran is a former English teacher who taught in Korea, Tonga, and Canada. After marrying her husband, Dave, and having her first child, she became a stay-at-home mom. Four years ago, Stacy's father was diagnosed with mesothelioma and died two months later. With her three children in school, the time seemed ripe last year to throw herself into the world of anti-asbestos activism. She and her sister organized A Walk to Remember Victims of Asbestos, drawing over 500 people on an unseasonably cold day, including ADAO's own Linda Reinstein. Stacy, Leah, and three other women cofounded Canadian Voices of Asbestos Victims. Stacy was most proud of her activism when she helped successfully push for the resignation of an asbestos exporter on the Canadian Red Cross Board of Governors. Larry Davis is a fierce fighter both in the hospital and in Washington DC. Diagnosed in July of 2006, Larry embodies the essence of General Patton s quote, lead me, follow me, or get out of my way. A longtime personal friend and stout ADAO supporter, Larry is a true hero. Both on the hill in DC, and in his home state of Florida, Larry continues to raise awareness, and fund research for a cure. ADAO is truly elated to present the Alan Reinstein Memorial Award to Larry Davis for his commitment to education, advocacy, and support to countless patients and families. Larry also put together the South Florida Miles for Meso Symposium, where friends, physicians, and advocates gather to help spread awareness. He has spent much of his time raising money for mesothelioma research, wanting not only to help himself, but others affected by asbestos-caused ailments. Siobhan Doherty is the Training and Marketing Manager of National Asbestos Training Accreditation Scheme Ltd, a UK based specialist Asbestos Training and consultancy organization that provides services world-wide. Siobhan has worked with the organization for over eight years, and has been actively involved with the Health and Safety Executive, and other stakeholders, in the development of asbestos training standards. Siobhan has been an integral part of the campaign to raise awareness of asbestos on behalf of NATAS, leading the market by way of innovation, namely, NATAS Award winning elearning courses since their inception. She was delighted to receive the coveted British Safety Industry Federation award, for 'Safety Excellence', recognizing major improvements in occupational safety at the Royal Society for the Prevention of Accidents awards. NATAS has developed, along with ADAO and EIA, a free awareness elearning tool. Siobhan has also project managed the development of an elearning module to be delivered to the Education industry commissioned by the UK Department for Education for over 10,000 teachers, along with the first UK HSE Training pledge, where over 4,000 hours of free NATAS elearning was delivered. Alec Farquhar is Managing Director of the Occupational Health Clinics for Ontario Workers. OHCOW is a network of inter-disciplinary clinics in Ontario that focuses on the detection and prevention of occupational injuries and diseases. Alec was formerly Director, Occupational Health and Safety Branch, Ontario Ministry of Labour, responsible for provincial level development of operational health and safety programs, and related partnerships within the prevention system. Prior to that, Alec was Director, Ontario Office of the Worker Adviser (OWA), Ministry of Labour. Alec is a graduate of Princeton Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

8 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership University and the University of Toronto, Faculty of Law. Alec has also worked as a community legal worker and staff lawyer in community legal clinics serving injured workers and as senior policy advisor to the Chair of the Workers Compensation Board. He has chaired or presented at numerous health and safety and workers compensation conferences and learning events. Arthur L. Frank, PhD, MD is co-chair of ADAO's Science Advisory Board and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published a great deal of work on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material. Fernanda Giannasi, ABREA, Civil and Safety and Heath Engineer, has been a Federal Factory Inspector in Brazil since During that time she has become a specialist in issues relating to asbestos, nuclear energy and other toxins and carcinogens such as silica. Having been exiled to Osasco in 1995, Ms. Giannasi became aware of a number of cases of asbestos disease amongst the local population. In collaboration with former workers from the Osasco asbestos-cement factories, whom she came to know during her inspections of Eternit s plant during the 1980s, she began an investigation into the incidence of asbestos-related diseases in the city. She was a founding member of an organization ABREA that was set up in 1995 to act as the voice for Brazil s asbestos victims. For her work on behalf of Brazil s asbestos victims, she has received death threats and been sued by Brazilian asbestos stakeholders. Various groups in Brazil, the U.S., Japan, and Canada have also honored her. Freddi Segal-Gidan, PA, PhD is the director of the Rancho los Amigos/USC California Alzheimer s Disease Center. She is a physician assistant with over three decades of extensive clinical experiences, most of which has been spent caring for older adults with chronic illnesses. She received her doctorate in gerontology as part of the first class of doctorate trained gerontologists in the country from the USC Leonard Davis School of Gerontology. Dr. Segal-Gidan holds appointments as assistant clinical professor in the department of neurology at the USC Keck School of Medicine and at the USC School of Gerontology. She is actively engaged in clinical care, research and training of health professionals, and a strong advocate for geriatric training of all health care providers. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

9 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Mitch Golant, PhD is a health psychologist and Senior VP of Research & Training for the Cancer Support Community (CSC). CSC was formed in 2009 as a merger between The Wellness Community and Gilda s Club, and is now the largest provider of psychological and emotional support for people affected by cancer. He has traveled throughout the world introducing CSC s Patient Active Concept to international thought-leaders and psychosocial oncologists. He has been with CSC for over 28 years, where he supervised and trained CSC s professional clinical staff and has facilitated over 6,000 support groups for people with cancer. He also trained over 400 professionals nationally and internationally in CSC's Patient Active Support Group model. Dr. Golant is widely recognized as a pioneer in the use of information technology in cancer education and support through the delivery of online support groups. He has presented globally on CSC s Patient Active programs and evidence-based research. Currently, he heads CSC s Cancer Survivorship Research & Training Institute, the first community-based survivorship research institute in the United States. He has previously served on the Board of Directors for the American Psychosocial Oncology Society. In October 2011, he received the Los Angeles County Psychological Association s Distinguished Service to the Profession of Psychology Award. Rich Haffey is co-founder and President of Mystic Air Quality Consultants, which is celebrating its 25th year of service to Connecticut and Southern New England. Rich spends most of his business time teaching occupational health and safety classes, predominantly asbestos EPA accredited courses for abatement specialists and consultants. He is recognized by his peers for broadening the scope of these courses to include the most urgent contemporary domestic and international issues and concerns: economics and geopolitics of the asbestos trade, initiatives to ban asbestos, public health imperatives to protect citizens impacted by asbestos use, advocacy for fairness to employers, employee rights, and justice for the asbestos injured and their loved ones. Rich is accredited and licensed in Connecticut as an Asbestos Inspector and Management Planner, Abatement Project Designer and Monitor. Mystic Air s client base includes governmental facilities, colleges, schools, day care programs, health care providers, property management firms, commercial and industrial companies, and contractors. Herman Hamilton is the Executive Assistant with ADAO. After becoming familiar with the medical and legal aspects of Asbestos through his neighbor and longtime friend of 30 years, Dr. Barry Castleman, Herman joined ADAO in January of 2005 as the Veterans Representative. Presently, Herman assists Linda in the day-to-day operations of ADAO and amongst his many duties, he has been a liaison for other like-minded asbestos groups. He also works with Congressional staffers to set up meetings regarding ongoing legislation. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 12 years and counting. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

10 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Michael R. Harbut, MD, MPH, FCCP is Chief of the Center for Occupational and Environmental Medicine: Clinical Assistant Professor, Wayne State University, School of Medicine, Detroit, Michigan. An internationally known expert in the diagnosis and treatment of environmental and workplace diseases, Dr. Harbut has been named co-director of the National Center for Vermiculite and Asbestos Related Cancers. He is the co-author of the American Thoracic Society s 2004 Recommendations for the Diagnosis and Treatment of Non- Malignant Disease Caused by Asbestos Exposure. Dr. Harbut is a past chair of the occupational and environmental health section of the American College of Chest Physicians, and has served on the Board of Directors of the Mesothelioma Applied Research Foundation. Dr. Harbut brings his expertise to address the need for early diagnosis and aggressive treatment of asbestos related diseases. Eric Jonckheere is President of ABEVA, Belgium, and an airline captain. Asbestos became part of my life since I was born. My grandfather Paul, was part of the upper management of Eternit. This multinational corporation is a major asbestos-cement producer in Belgium with factories in many other countries, mainly in Africa and Central America. My father joined Eternit in 1953; he contracted his mesothelioma and died in During his entire career spent at Eternit, he believed he would earn a living and not lose his life. He trusted the ever reassuring messages from management. In 2000, Francoise, my mother, then my brothers Pierre-Paul (2003) and Stephane (2009) all succumbed to mésothéliomas. They never worked at the plant. On Novemnber 28 th, Belgium saw its first court case by an environmental victim of asbestos against Eternit. The victim won! Eternit has appealed. This case was made possible because Francoise refused to give immunity to Eternit by not accepting the silence-money. Sandra Kinart is a wife, mother, and grandmother. As Chair of the Victims of Chemical Valley (VOCV) for the past 2 years, and a member for 8 years, her focus has been victims and their families of Mesothelioma and Asbestos, eliminating the export of Asbestos from Canada and the world, education and advocacy. Sandy is also a board member of the Occupational Health Clinic for Ontario Workers (OCHOW), which advocates for safe work environments. Sandy is also a volunteer at St. Joseph s Hospice in Sarnia, where she facilitates a bereavement group, works with the Complimentary Therapies program, the Caregiver program and helps at the switch board by directing incoming calls and clients. J. Brent Kynoch, Kynoch Environmental Management, Inc. (KEM) was formed in 1996 to provide value engineered consulting services within the asbestos abatement industry. Since 1996, KEM has earned a reputation as one of the leading consultants in asbestos inspection, assessment, abatement design, and management. J. Brent Kynoch has been a leader in the asbestos abatement industry since KEM s licensed Asbestos Inspectors and Management Planners have provided extensive service in support of federal AHERA and NESHAP regulations. Over the years, they have successfully provided asbestos consulting for historic restorations, hospital renovations, and AHERA school abatement Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

11 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership projects. With their experience in asbestos testing and management for the federal agencies, the Department of Defense, and architecture and engineering firms, they have earned a reputation for diversity and dependability. Doug Larkin is the Communications Director and Co-Founder of Asbestos Disease Awareness Organization (ADAO) which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum University, New Concord, Ohio. Doug is the President & CEO of Larkin Communications, a strategic communications and public affairs firm based in Washington, DC. He has worked on numerous successful legislative campaigns on behalf of large technology companies and national trade associations. In addition, he is considered an expert in corporate communications, brand identity, as well as message development and dissemination. Doug has also worked as the press secretary and the communication director for Congressman Kevin Brady (R-08-TX). Rep. Brady is the Republican Deputy Whip and a senior member of the House Ways & Means Committee. Congress and the media respond to compelling stories. It s through your stories and donations to ADAO, that enables us to advocate a strong message for present and future victims of asbestos related disease. Doug has worked tirelessly behind the scenes garnering the attention of the media and advocating for the rights of asbestos victims and their families. Doug s father-inlaw, William D. Shields, was exposed to asbestos, and died from mesothelioma. Richard Lemen, PhD is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years, and has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. He has also testified on behalf of asbestos victims; Dr. Lemen is a world-renowned author, speaker, and lecturer on this topic. Barbara Minty McQueen is the widow of American film star Steve McQueen, and is a former model and photographer. She is also the author of Steve McQueen: The Last Mile, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to McQueen has hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

12 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the George Washington University's School of Public Health and Health Services. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor s Occupational Safety and Health Administration (OSHA, ) and Mine Safety and Health Administration (MSHA, ). Dr. Monforton served on the special panels appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers, and the April 2010 disaster at Massey Energy's Upper Big Branch mine that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association, and she has served in a leadership position with the organization s Occupational Health and Safety Section. Leah Neilson is a caterer/stay-at-home mom/anti-asbestos advocate. After losing her father to mesothelioma, Leah was shocked to learn that asbestos was still being mined in Canada and exported to more than 60 countries. With her sister Stacy, she has been actively working to bring an end to the Canadian asbestos industry. On October 1, 2011, Leah and Stacy organized A Walk to Remember Victims of Asbestos in Sarnia, Ontario. Leah resides in Utah with her husband and two sons who are supportive of Leah's activism even though they have to eat cold sandwiches for supper on busy days. When her youngest asked her how much longer she was going to talk about asbestos, Leah told him until asbestos is banned in Canada. Andrew F. Oberta, MPH, CIH, The Environmental Consultancy, is an internationallyrecognized expert on asbestos control with over thirty years of experience in the field. He provides consultation and training services for managing asbestos-containing materials, and expert witness services for asbestos litigation, as well as asbestos training and information technology products. Mr. Oberta holds the unique combination of Aeronautical Engineering and Master of Public Health degrees. He is certified in Comprehensive Practice by the American Board of Industrial Hygiene and is licensed as an Asbestos Consultant in Texas. He is a Past-President of the Environmental Information Association, serves as Chairman of the ASTM Task Group on Asbestos Management, and is the author of the ASTM Manual on Asbestos Control. João Carlos Duarte Paes was previously Director of Asbestos Mining, from 1972 to 1992, having worked with the Brazilian Government to approve the ILO/162 Convention, and as an observer at UNO, in the preparation of the agenda for Rio 92. He is President of ABRA, Associação Brasileira do Amianto (Brazilian Asbestos Association). Currently, he is President of ABIFibro, having been elected in In 1999, facing the strong evidences, he became conscious of the harmful effects caused by asbestos, supported the prohibition of its use in Brazil, counting on technology and safe alternative fibers in the production of fibrocement, this being the target of ABIFibro. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

13 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Matt Peacock has worked as a journalist for more than 30 years, mostly for the Australian Broadcasting Corporation. He began his career as a current affairs television researcher, before becoming a reporter with the ABC Radio Science Unit, where in 1977 he produced a pioneering series of programs about the dangers of asbestos, later published as a book, Asbestos: Work as a Health Hazard. He has worked for a wide range of ABC radio and TV programs, including as chief political correspondent in Canberra, and has been posted in Washington, New York, and London. He also worked in Australia s Northern Territory specializing in indigenous affairs and co-founding an Aboriginal video production house. Matt is Adjunct Professor of Journalism at Sydney s University of Technology (UTS), and has authored numerous newspaper and magazine articles, as well as the book Killer Company, a history of Australia s largest asbestos manufacturer, which has been dramatized for the TV series Devil s Dust. Bruno Pesce is the asbestos litigation coordinator of AFeVA, and former Secretary of the CGIL Union in Casale Monferrato from 1979 to In the early 1980s he promoted the first actions inside and outside the plant, and networked to unite Trade Unions, environmentalists, Local Authorities and victims relatives in the struggle against asbestos. When Eternit went into receivership in 1986 Pesce opposed any attempt of re-opening the plant employing asbestos, and he started a struggle that led to the first criminal lawsuit against the top management of Casale Eternit in In 1987, Bruno promoted the first epidemiological study in Casale, in 1988 he founded AFeVA and campaigned for what was to become Law 257 that banned asbestos in Italy in He helped plan the decontamination for the city of Casale, and aided in the collection of compensation (about $12 million) for formers Eternit workers. Nicola Pondrano was a worker at the Eternit plant of Casale Monferrato from 1974 to He personally experienced the difficult conditions of the asbestos workers. Soon he became the CGIL union representative for health, safety and the environment. In 1979, he was appointed head of the local INCA, the CGIL's welfare society, thus starting a fruitful cooperation with MDs such as as Dr. Daniela Degiovanni and scientists that fought for the recognition of many cases of asbestos related diseases and deaths among the workers. He promoted the first public conference on the asbestos risks in 1984 in Casale. Nicola is cofounder of AFeVA and campaigner for the Law 257 that banned asbestos throughout Italy (enacted in 1992). He is currently CGIL branch Secretary for Casale Monferrato. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

14 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in She co-founded the Asbestos Disease Awareness Organization in 2004, and now serves as President and CEO. Reinstein has been a strong political voice for justice in every major asbestos-related issue. Reinstein, a highly soughtafter international speaker, has frequently served as a Congressional witness and presented at the Department of Labor (OSHA), British House of Commons, United Nations Congress, American Public Health Association, and to other audiences around the world. Recognized as an expert with more than 35 years of nonprofit experience in building and sustaining grassroots organizations, Reinstein specializes in developing, implementing, and leveraging integrated social media campaigns. Recently, Reinstein was asked to create social media educational materials and facilitate a workshop in Asia. Focused on national and international occupational and environmental disease prevention, Reinstein s proficiency in the powerful advocacy space of online media has greatly increased the effectiveness of ADAO s core mission of education, advocacy, and community support actions. She has won many prestigious awards including the Bruce Vento Hope Builder Award (2011), from the Mesothelioma Applied Research Foundation; the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime (2010); and the Heart and Soul Award in from the Manhattan Beach Women in Business Association (2005). Laurie Rice, the newest member of the Board of Directors, is an associate at the criminal defense law firm of Bird and Bird in Torrance and also volunteers at the Los Angeles County Bar Domestic Violence Project assisting victims in obtaining temporary restraining orders. Born and raised in Los Angeles, she received her B.A. in Art History from UCLA and a M.A. in special education from CSUN. She taught deaf and hard of hearing students for five years before attending Loyola Law School. A former Deputy District Attorney, Laurie met her husband Stuart in the Compton court house as opposing counsel and took a long hiatus from the law while raising their two children and actively volunteering in the community. Tony Rich has served as an industrial hygienist and environmental technician in the consulting field for the past 18 years, specializing in asbestos-related work, including: inspections, abatement monitoring, project management and regulatory compliance, air sample analyses, and worker training. He has also received training from McCrone Research Institute for the microscopical identification of bulk asbestos via polarized-light microscopy (PLM). Through the course of his occupation and personal endeavor, Tony has developed an extensive and compelling collection of asbestos-related photographs, product materials, artifacts, historical books, industry documents, and other associated media. In promotion of asbestos awareness advocacy, Tony has made available many of the asbestos-related digital images, provided asbestos product materials for research and educational purposes, and created asbestos training display aides for various organizations worldwide (including an exhibit in Washington D.C.). Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

15 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Ann Samuelson is from the Oregon Coast. As a daughter of a mesothelioma victim, Ann advocates for those whose lives have been impacted by asbestos-related diseases. Ann has served as a County Commissioner, is current Chair of the NW Regional Education Service District, and is on the Board of Directors of her local Chamber. Ann is a Real Estate Broker in Oregon, and for the past two years Ann has volunteered with ADAO, specifically with the social networking campaigns for education, advocacy, and building community within our networks. This is her first year as a presenter at the ADAO National Conference. Sari Sairanen is National Health and Safety Director at the Canadian Autoworkers Union, responsible for the content of health and safety training programs, submissions for better laws, information on workplace substances, the establishment of programs to eliminate hazardous workplace conditions, and the publication of the Health and Safety & Environment Newsletter. Sari comes to the National union from the Airline division which represents members from coast to coast to coast in Canada. Sari began her union activism as a health & safety representative in a call center where she confronted ergonomic and working condition issues such as computer workstations, task design, stress, electronic monitoring and asbestos exposure. Joel Shufro has been NYCOSH s executive director for most of its 31-year history. Under his leadership, the organization has grown from having a part-time staff of one and no members to an organization with 11 staff workers and a membership of about 200 local unions and 300 individuals. Most individual members are legal and medical professionals, academics, and rank-and-file workers. As part of Joel s work at NYCOSH, he serves on numerous advisory boards, including at the Mt. Sinai-Irving J. Selikoff Center for Occupational and Environmental Medicine; the Bellevue/NYU Occupational and Environmental Medicine Clinic; the World Trade Center Worker and Volunteer Medical Screening and Treatment Program; and the NJ-NY Hazardous Waste Consortium. Joel also serves as a representative of the New York City Council on the New York City Right to Know/Hazardous Substance Advisory Board. Joel has recently been recognized twice by the national EHS Today magazine as one of the 50 most influential figures in health and safety. His other honors include the Stand Up for Justice Award from the Young Korean American Service and Education Center (now the MinKwon Center); the Lorin Kerr Award by the Occupational Health Section of the American Public Health Association; and the Man of the Year Award by the Advisory Board of the Mt. Sinai Occupational and Environmental Health Clinic. Joel has a Ph.D in American History; an M.A. in Occupational Safety and Health; and an M.A.T. in Social Science Education. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

16 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Daniel Sterman, MD is an Associate Professor of Medicine and Associate Professor of Medicine in Surgery and Chief of the Section of Interventional Pulmonology and Thoracic Oncology in the Division of Pulmonary, Allergy & Critical Care Medicine at the University of Pennsylvania Medical Center in Philadelphia, Pennsylvania. He is also the Co-Director and Co-Founder of the PENN Mesothelioma and Pleural Program (PMPP). His clinical interests are related to the treatment of thoracic malignancies, specifically the synergy of advances in molecular medicine and novel technologies in Interventional Pulmonology. His research interests are in the translation of laboratory discoveries from the bench to the bedside: conducting human clinical trials of gene therapy, virotherapy, and other immunebased therapies for lung cancer, mesothelioma, and other pleural malignancies. He was President, of the International Mesothelioma Interest Group (IMIG) from and is President-Elect of the American Association of Bronchology and Interventional Pulmonology (AABIP). He has been a member of the ACCP since the mid-1990 s and a Fellow of the American College of Chest Physicians for over 10 years. He has been a practicing pulmonary and critical care physician in the Commonwealth of Pennsylvania since 1996, and has been active in regional and state-wide meetings and organizations, including several years on the Board of Directors of the Laennec Society of Philadelphia. Ellen Tunkelrott Webmaster, is a Contract and Grant Administrator for the original Think Tank, and resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world renowned Magic Castle in Hollywood, California. Christine Winter is the chairperson of the IATP (Independent Asbestos Training Providers) a nonprofit member organization for UK asbestos training providing companies. The organization s core ethos is the raising of awareness through education and promoting the prevention of asbestos related diseases through its support of global charities and organizations. In 2005, Christine began publicizing and promoting the work carried out by ADAO in UK industry publications, her role encompasses communications and given Christine s qualities and skills in this area she communicates with many organizations from Government to Labour Unions and Corporate Companies, always building a consensus as to the human suffering caused by exposure to asbestos being prevented, not only nationally but globally. Key Quote: Asbestos destroys individuals, families and communities. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

17 2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Jordan Zevon ADAO's tremendous National Spokesperson is a teacher, singer, and songwriter. Jordan was executive producer for his father, Warren Zevon's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. Paul Zygielbaum is a veteran business executive whose career spans the aerospace, electric utility, electronic communications and biomedical device industries. He holds masters degrees in engineering and business administration. Paul has published technical papers, articles and reviews in the fields of aerospace research, energy technology, and medicine. He is a co-founder and chief operating officer of C8 MediSensors, a corporation developing non-invasive medical sensors. An experienced community volunteer, Paul has chaired the Sonoma County Human Services Commission and served on the boards of his local United Way and other organizations. Since his 2004 diagnosis with malignant peritoneal mesothelioma, Paul and his wife, Michelle, have become activists in grass-roots campaigns to ban asbestos, to protect the rights of asbestos-related disease victims and their families, and to improve medical treatment and seek cures. Paul and Michelle have three grown children and four grandchildren. "Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." ~ Margaret Mead Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 Redondo Beach California

18 2012 Emerging Leaders Update Paving the Way for Future Asbestos Awareness Advocacy By Emily Reinstein For most young adults under the age of 30, asbestos and mesothelioma aren t the most pressing thoughts in our everyday lives. However, with the help of ADAO s talented interns and volunteers this past year, our generation is now becoming more aware of the horrors caused from asbestos. Even though none of the ADAO interns have lost a loved one to asbestos, they are all shocked by asbestos s grim affects on the international community. Each one of them has a passion for the work we do as they see the importance of preventing exposure, increasing awareness, and banning asbestos in the United States. ADAO s emerging leaders come from Turkey, India, and the U.S., demonstrating the power of our international reach and connections. We have grown up as tech-savvy young adults, fluent in the language of our generation, consisting of Facebook wall posts, tweets, and text messages. Although we use these communication tools to connect with our friends and share about our lives, ADAO has also helped us learn how to expand our reach through digital technology. The community of passionate victims, widows, and individuals has grown exponentially through social media platforms, as it is now easier to connect and share with people all around the world in an instant. By tapping in to our generation s tools for communication, ADAO has been able to greatly expand within the past four years of using social media by strengthening our network, building a unified online community, and disseminating information to our followers. I believe that my generation is passionate about change, and banning asbestos and preventing exposure are certainly issues that are worthy of our time and effort. I am proud to be a part of such a progressive generation, filled with thinkers, doers, and dreamers. For me personally, my world has been altered by my father s death, but by using the strength and wisdom I ve gained from my experiences with ADAO, I am able to honor his memory by making a positive impact in the lives of others. ADAO has given young volunteers and interns a way to use our passion to influence people to change laws, rethink opinions, and come together to solve problems. I hope that the other leaders in the asbestos awareness community feel the same sense of pride and power that I have felt through my involvement with ADAO, and I am confident that our generation will be able to make a lasting impact on legislation and help raise awareness on a global level.

19 Deepthi Cauligi graduated from University of Southern California in May 2011 with a Bachelor s Degree in Communication. Her experience in the field of Public Relations has helped her contribute to the Asbestos Disease Awareness Organization (ADAO). By working as a Communication and Public Relations Intern, she has assisted in writing blogs, press releases and organizing the social media calendar. I have learned so much about asbestos and the dangers it poses to those near asbestos. As an Indian, I am horrified to learn about the asbestos trade in India. Linda has given me the opportunity to be a part of the national movement where people around the world are uniting to make this world free of asbestos and asbestos-related diseases. John Peter Gudenzi is a recent graduate of the University of Southern California, where he earned his liberal arts degree with a double major in English and Philosophy. John's greatest aim is to become a true Renaissance man, a feat not easily achieved. When he is not writing music, Mr. Gudenzi spends his time writing fiction, writing poetry, drawing, sporting on the athletic field, playing Mario Kart, critically watching films, or reading. John is very interested in the cosmos, especially after finishing Stephen Hawking's thought provoking work, The Theory of Everything. He has been accepted into a graduate program at King's College of London, but the high cost of tuition has hampered his decision making process. ADAO's work has purpose, and John aims to help ban asbestos. He believes we will look back, and wonder how foolish we were to knowingly use a lethal substance for the production of goods. Sinem Delal Kankotan was born in the town of Tunceli, Turkey, where she lived until moving to Istanbul in She is currently a student of Economics and Administrative Sciences zmir. She is hoping to soon enter a Master s program in law, focusing on International Law and Human Rights. Sinem got to know ADAO via the 19th Annual World Congress in stanbul, where she knew as soon as she heard about Linda and ADAO that they were like-minded individuals. Sinem is very interested in social policies and loves to put a smile on people s faces. Meagan Jensen joined ADAO as an intern in June of She received her B.A. in History from UC Santa Barbara and is currently a second year law student at the UC Davis King Hall. Meagan s passions lie in international and environmental social justice issues and she has used her legal education to focus on these concerns while working with ADAO. While with ADAO Meagan was given the opportunity to do everything from speech drafting to blog writing to meeting with asbestos victims in Washington, D.C. Meagan is grateful to ADAO for the education and support it provides around the world, and is proud to have had the chance to have been a part of, and learn so much from, this fantastic organization.

20 Elise Law started with ADAO in December 2010 while attending USC s Marshall School of Business. Since then, Elise has worked weekly as an intern doing marketing, fundraising, strategy, and event coordination. Elise has been extremely proud to work at ADAO. The organization means so much to so many people around the world and, under Linda s leadership, has been able to affect large-scale change with the most limited resources. Elise will be sad to leave ADAO, but will be joining the Brand Marketing team at Taco Bell upon graduation in May. Jessica Like served as the Director of Development at ADAO in She has long been a strong supporter of ADAO s mission and raising awareness of asbestos-related diseases. At ADAO, she had an opportunity to make a national impact and had an opportunity to participate in meetings with some of the nation s most influential political and health leaders. Since that time, Jessica has pursued her MBA at the University of Southern California, Marshall School of Business. In September 2012, she will join Deloitte s Human Capital Management Consulting practice. Catie Olson is the newest addition to ADAO. She started lending her artistic abilities at the beginning of March 2012 by helping out with graphics and typesetting for the new program. She recently moved cross-country to California from a small town on the South Shore of Massachusetts. She attended college at Bridgewater State University where she received her Bachelors of Fine Arts and Graphic Design. She is currently working at a local printing shop and is back in school taking web design courses at CSU Dominguez Hills. Outside of art and design, Catie enjoys concerts, traveling, cooking, or simply relaxing at the beach Emily Reinstein is the daughter of ADAO Co-Founder, Linda Reinstein, and is currently a freshman at the University of Southern California studying International Relations. Since the age of ten, Emily has worked with her mother and other volunteers to expand ADAO. After helping to build ADAO s social media network through Facebook and other platforms, as well as co-founding the Emerging Leaders Program, she has seen the importance of international cooperation and the involvement of the younger generation as we move forward. Spencer Wolgang began working with ADAO in September of He is a recent graduate of Boston University with a B.A. in Political Science with a concentration on International Political Systems. Spencer will be attending law school in the fall where he plans to concentrate his studies on Human Rights and International Law. When not working for ADAO, Spencer is an avid hockey player.