Living well with dementia

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1 Living well with dementia alzheimers.org.uk Pauline Meakins, Information Worker Alzheimer s Society

2 Dementia prevalence and cost to the economy 850,000 people with dementia in the UK by 2015 Soaring to over 2 million by ,000 people with dementia under the age of 65

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7 Dementia still remains a national and international challenge. Improvements made in some areas, but not yet the transformational change that people with dementia deserve. Overall a mixed picture of progress.

8 Dementia 2015: What did people with dementia say? said they felt anxious or depressed recently said they were not involved in decisions about their care and support said they were not living well with dementia, or they did not know if they were living well with dementia

9 Diagnosis and post-diagnosis support Diagnosis up from 42% in 2012 to 61.6% in March weeks - average waiting time to memory clinic. ACTION: A new national ambition of 75% by 2017.

10 What does the Alzheimers Society do? Alzheimer s Society is not just about Alzheimer s disease, we offer support for any form of dementia through: quality care services and advise professionals fundraise and fund research campaign for improved health and social care offer emotional and practical support through own local services signposting/referring to other external services

11 Advice and Information National Alzheimer s Society website National Dementia Helpline Talking Point online forum Alzheimer s Society e-newsletters and publications 200+ factsheets The dementia guide Social media Lasting Power of Attorney Digital Assistance Service

12 What is dementia? Dementia is an umbrella term describing a set of symptoms such as: a loss of memory mood changes problems communicating etc If you have met one person with dementia, you ve met one person with dementia

13 Types of dementia 95% diagnosed will have one of four main types Alzheimer s Disease Vascular dementia Dementia with Lewy bodies Frontotemporal dementia (inc Picks)

14 Why get a diagnosis? Check for other conditions Possible causes of confusion Get advice, information and support Plan for the future

15 Dementia and risk No cure for dementia Drugs improve symptoms and slow progression Therapies reminiscence, cognitive stimulation Risks Age Genes Health Lifestyle

16 Living well with dementia a positive outlook coping with memory loss keeping safe at home being active staying healthy

17 Our work in Cambridgeshire Is funded through contracts under Uniting Care Partnership An NHS Partnership providing older people s healthcare and adult community services across Cambridgeshire and Peterborough Cambridgeshire County Council We also raise funds through fundraising activities, donations and legacies

18 Local support Cambridge, Huntingdon and Ely Fenland Peterborough Dementia Resource Centre Between April March 2014, we supported 2,820 people in Cambridgeshire Current statistics indicate over 10,000 people with dementia in Cambridgeshire

19 Referrals - Alzheimers Society Primary Care Worker Memory Clinic Referrals are via Dementia Adviser Dementia Support Worker Statutory services eg GP /social worker Self referrals Relatives, carers or any other person in close contact Any other organisation working with the person

20 Dementia Support Services Support groups Activity groups Singing for the Brain Dementia cafés Carer s Information & Support Programme Individual support for carers

21 Dementia Friends A major public campaign to increase awareness and understanding of dementia create dementia friendly communities transform the way the nation thinks, acts and talks about dementia 1.3. million people are now Dementia Friends

22 Thank you Pauline Meakins, Alzheimer s Society alzheimers.org.uk

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