Patient derived follow-up data (PREMs, PROMs and Work) (to be collected at 3 months)

Save this PDF as:
 WORD  PNG  TXT  JPG

Size: px
Start display at page:

Download "Patient derived follow-up data (PREMs, PROMs and Work) (to be collected at 3 months)"

Transcription

1 1 Date (day/month/year) 2 Rheumatology Centre ID (to be completed by clinician) 3 Patient ID (NHS number - to be completed by clinician) Patient derived follow-up data (PREMs, PROMs and Work) (to be collected at 3 months) 4 Patient Reported Experience Measures (PREMs) (please tick clearly inside one box (for each statement) Section Statement Strongly Agree 4.1 Your needs and preferences 4.2 Co-ordination of care and communication Care across departments Whenever I attended a clinic, I feel that I was treated respectfully as an individual I was involved as much as I wanted to be in decisions about my treatment and care My personal circumstances (see note 1 below) and preferences were taken into account when planning and deciding on my treatment and care I was given information in a way that I could understand I was given enough information to help me make decisions about my treatment I was made aware that there is a team of health professionals (see note 2 below) looking after me When I needed help I was able to access different members of my health team easily and promptly There is a member of my health team who can help me to see other specialists in the team if I need to Agree Neither agree nor disagree Disagree Strongly Disagree Not applicable HQIP Data collection form Patient at 3 months V10 Page 1 of 5

2 4.2.4 I feel that the people I see at the clinic are fully up to date with my current situation 4.3 Information, I feel that I was given information at the time I education and self-care needed it I feel that I have a good understanding of the treatments I am on or being offered I have been told about patient organisations or groups that can help me I have been offered an opportunity to attend a 4.4 Daily living and physical comfort self-management programme suitable to my needs I feel that my arthritis is being controlled enough to let me get on with my daily life & usual activities If I have had a flare (when my symptoms get much worse), I have been able to get help quickly 4.5 Emotional support I feel able to approach a member of my health team to discuss any worries about my condition and my treatment or their effect on my life I feel able to discuss personal or intimate issues about relationships with my health team if I want to 4.6 Family and friends I feel able to take members of my family to outpatient appointments to become involved in decisions about my care if I want to 4.7 Access to care At appointments, I feel that I have enough time with the healthcare professional to cover everything I want to discuss I have had clinic appointments cancelled: (please tick one) Frequently Rarely Never If this has happened to you, how long have you had to wait for a new appointment? (please tick one) < 5 working days HQIP Data collection form Patient at 3 months V10 Page 2 of 5

3 5-15 working days > 15 working days N/A as appointments not cancelled If you have needed extra treatment or a change of treatment, how long did it take for this to happen? (please tick one) < 5 working days 5-15 working days > 15 working days N/A - no extra treatment required 4.8 Overall experience Overall in the past 3 months, I have had a good of care experience of care for my arthritis Note 1: Examples of personal circumstances could be whether you work or have carer responsibilities. Note 2: The type of health professionals in the team will vary from region to region but should include a consultant, a nurse specialist, an occupational therapist and a physiotherapist, as well as access to a podiatrist. 5 Inflammatory Arthritis Impact of Disease score 5.1 Pain (please tick the number that best describes the pain you felt due to your inflammatory arthritis during the last week): None Extreme 5.2 Functional disability assessment (please tick the number that best describes the difficulty you had in doing daily physical activities due to your inflammatory arthritis during the last week): No difficulty Extreme difficulty 5.3 Fatigue (please tick the number that best describes how much fatigue you felt due to your inflammatory arthritis during the last week): No fatigue Totally exhausted 5.4 Sleep (please tick the number that best describes the sleep difficulties (i.e., resting at night) you felt due to your inflammatory arthritis during the last week): No difficulty Extreme difficulty HQIP Data collection form Patient at 3 months V10 Page 3 of 5

4 5.5 Physical well-being (considering your arthritis overall, how would you rate your level of physical well-being during the past week? Please tick the number that best describes your level of physical well-being): Very good Very bad 5.6 Emotional well-being (considering your arthritis overall, how would you rate your level of emotional well-being during the past week? Please tick the number that best describes your level of emotional well-being: Very good Very bad 5.7 Coping (considering your arthritis overall, how well did you cope (manage, deal, make do) with your disease during the last week? please tick the number that best describes how well you coped: Very well Very poorly 6 Work Inflammatory arthritis can have a major impact on people s ability to work. The British Society for Rheumatology and Department of Health would like to understand what help, if any, is currently being offered to people with these conditions to remain at work. 6.1 Which one of the following statements best describes your current situation? (please tick one) I am not working in paid employment, but this is not because of my arthritis I am not working in paid employment I work in paid employment, but frequently need to take time off I work in paid employment, but occasionally need to take time off I work in paid employment and rarely, if ever, need to take time off I am no longer volunteering, but this is not HQIP Data collection form Patient at 3 months V10 Page 4 of 5

5 6.1.7 I am volunteering, but may need to take time off because of my arthritis 6.2 If working in paid employment please indicate how many days you have not been able to perform this role, due to your arthritis, in the last 3 months (please tick one) None working days working days working days >10 working days 6.3 Has your Rheumatology team ever asked about your ability to work? (please tick one) Yes No Not applicable Can t recall 6.4 Since your diagnosis have you had any support to remain in paid employment? (please tick all that apply) Not applicable No Yes, from my GP Yes, from members of my Rheumatology team Yes, from my employer/occupational health department Yes, from a patient organisation or charity 6.5 If you have received advice about work please indicate how useful you have found this? (please tick one) Very useful Of some use Of no use at all Advice not received HQIP Data collection form Patient at 3 months V10 Page 5 of 5

A patient and public guide to the National Clinical Audit for Rheumatoid and Early Inflammatory Arthritis

A patient and public guide to the National Clinical Audit for Rheumatoid and Early Inflammatory Arthritis A patient and public guide to the National Clinical Audit for Rheumatoid and Early Inflammatory Arthritis 1st Annual Report 2015 (Data collection: 1 February 2014 30 April 2015) 2 Contents Background Who

More information

National clinical audit for rheumatoid and early inflammatory arthritis. Key findings from the 1 st year

National clinical audit for rheumatoid and early inflammatory arthritis. Key findings from the 1 st year National clinical audit for rheumatoid and early inflammatory arthritis Key findings from the 1 st year The context Rheumatoid arthritis (RA) is a serious and progressive disorder which affects 1% of the

More information

Patient Survey. If you have any queries about the questionnaire, please call the FREEPHONE helpline number on

Patient Survey. If you have any queries about the questionnaire, please call the FREEPHONE helpline number on Patient Survey This questionnaire is about your care and treatment for cancer. Its purpose is to provide information which can help the NHS monitor and improve the quality of health services for future

More information

How to get the best out of your rheumatology appointment Information for patients

How to get the best out of your rheumatology appointment Information for patients Oxford University Hospitals NHS Trust How to get the best out of your rheumatology appointment Information for patients There are two reasons why coming to your Rheumatology appointment is important. Firstly,

More information

People with Parkinson s may find that they have problems with

People with Parkinson s may find that they have problems with Treatments and therapies Physiotherapy and Parkinson s People with Parkinson s may find that they have problems with everyday movements such as walking, or getting in and out of a chair or bed. This information

More information

Pain management programme. Information for patients Pain Management Service

Pain management programme. Information for patients Pain Management Service Pain management programme Information for patients Pain Management Service page 2 of 8 What is a Pain Management Programme? Pain Management Programmes are group-based courses that usually run over nine

More information

Doncaster Community Health Team for Learning Disabilities. Information for families and carers. RDaSH. Learning Disability Services

Doncaster Community Health Team for Learning Disabilities. Information for families and carers. RDaSH. Learning Disability Services Doncaster Community Health Team for Learning Disabilities. Information for families and carers RDaSH Learning Disability Services Useful contact numbers General enquiries: 01302 796467 Duty nurse number:

More information

Fatigue Beyond Tiredness

Fatigue Beyond Tiredness Fatigue Beyond Tiredness The development and printing of this booklet was sponsored by Roche Products Ltd and Chugai Pharma UK Ltd. Editorial control remains with NRAS. Have you ever: Got all dressed up

More information

St Gemma s Hospice Therapy Team

St Gemma s Hospice Therapy Team St Gemma s Hospice Therapy Team Occupational Therapists Physiotherapists Dietitian Complementary Therapists Creative Arts Worker 0113 218 5500 www.st-gemma.co.uk St Gemma s Therapy Team The therapy team

More information

Chronic Fatigue Syndrome Service Specialist help for ME

Chronic Fatigue Syndrome Service Specialist help for ME Chronic Fatigue Syndrome Service Specialist help for ME Exceptional healthcare, personally delivered You have been referred by your GP or specialist to the Chronic Fatigue Syndrome (CFS)/ME service at

More information

Welcome to. My plan for my life with

Welcome to. My plan for my life with Welcome to My plan for my life with My details This book belongs to: If this book is found, please return it to: My diagnosis is: I also live with these medically diagnosed conditions: My NHS number is:

More information

Developing a National Audit for Rheumatoid and Early Inflammatory Arthritis Ian Rowe

Developing a National Audit for Rheumatoid and Early Inflammatory Arthritis Ian Rowe Developing a National Audit for Rheumatoid and Early Inflammatory Arthritis Ian Rowe Chair Clinical Affairs Committee, BSR Outline The British Society for Rheumatology Challenges in improving patient outcomes

More information

Discectomy. Information for patients Orthopaedics - Spinal Physiotherapy

Discectomy. Information for patients Orthopaedics - Spinal Physiotherapy Discectomy Information for patients Orthopaedics - Spinal Physiotherapy Introduction We have written this booklet to explain how you can prepare for your operation and to give you advice on your recovery

More information

The Specialist Chronic Fatigue Syndrome/ ME Service

The Specialist Chronic Fatigue Syndrome/ ME Service The Specialist Chronic Fatigue Syndrome/ ME Service Other formats For Exeter, East, Mid and North Devon If you need this information in another format such as audio tape or computer disk, Braille, large

More information

Information about pain management services

Information about pain management services Information about pain management services Introduction You have been referred to the pain management service at Guy s and St Thomas NHS Foundation Trust. This leaflet aims to give you an overview of our

More information

Lambeth and Southwark Action on Malnutrition Project (LAMP) Dr Liz Weekes Project Lead Guy s & St Thomas NHS Foundation Trust

Lambeth and Southwark Action on Malnutrition Project (LAMP) Dr Liz Weekes Project Lead Guy s & St Thomas NHS Foundation Trust Lambeth and Southwark Action on Malnutrition Project (LAMP) Dr Liz Weekes Project Lead Guy s & St Thomas NHS Foundation Trust Page 0 What is the problem? Page 1 3 million (5 % population) at risk of malnutrition

More information

Quality summary report: Injury Prevention for Carers

Quality summary report: Injury Prevention for Carers Quality summary report: Injury Prevention for Carers CLCH Quality Report Jan Dec 2011 Service exact name Injury Prevention for Carers Based at 215 Lisson Grove NW8 and 64 Victoria Address line 1 Street

More information

Discharge Information Information for patients This leaflet is intended to help you, your carer, relatives and friends understand and prepare for

Discharge Information Information for patients This leaflet is intended to help you, your carer, relatives and friends understand and prepare for Discharge Information Information for patients This leaflet is intended to help you, your carer, relatives and friends understand and prepare for your discharge or transfer from hospital. Healthcare professionals

More information

The treatment of depression in children and young people. Issue date: September 2005

The treatment of depression in children and young people. Issue date: September 2005 Issue date: September 2005 The treatment of depression in children and Understanding NICE guidance information for children and young with depression, their families and carers, and the public Information

More information

Some of my colleagues are saying you can only back date the fit note for a maximum of one

Some of my colleagues are saying you can only back date the fit note for a maximum of one Frequently asked Questions about the fit note Written by Prof Sayeed Khan and Dr Debbie Cohen Some of my colleagues are saying you can only back date the fit note for a maximum of one month, is that true?

More information

Palliative Care for Children. Support for the Whole Family When Your Child Is Living with a Serious Illness

Palliative Care for Children. Support for the Whole Family When Your Child Is Living with a Serious Illness Palliative Care for Children Support for the Whole Family When Your Child Is Living with a Serious Illness Palliative care provides comfort and support to your child and family. When a child is seriously

More information

Ankylosing Spondylitis

Ankylosing Spondylitis Ankylosing Spondylitis www.arthritis.org.nz Did you know? Arthritis affects one in six New Zealanders over the age of 15 years AS is a type of arthritis AS affects more men than women Onset is often in

More information

Cancer Pain. Relief from PALLIATIVE CARE

Cancer Pain. Relief from PALLIATIVE CARE PALLIATIVE CARE Relief from Cancer Pain National Clinical Programme for Palliative Care For more information on the National Clinical Programme for Palliative Care, go to www.hse.ie/palliativecareprogramme

More information

Rheumatoid arthritis inadults

Rheumatoid arthritis inadults Understanding NICE guidance Information for people who use NHS services Rheumatoid arthritis inadults NICE clinical guidelines advise the NHS on caring for people with specific conditions or diseases and

More information

Lupus Progress Diary

Lupus Progress Diary Lupus Progress Diary Introduction This progress diary is to help you keep an ongoing record of your condition and to allow your doctor and/or nurse to monitor your health between appointments. The diary

More information

Eye screening for people with diabetes - the facts

Eye screening for people with diabetes - the facts Eye screening for people with diabetes - the facts This leaflet sets out to answer some of your questions about screening for diabetic retinopathy. You might also want to discuss this information with

More information

Going home from hospital

Going home from hospital This information is an extract from the booklet Going home from hospital. You may find the full booklet helpful. We can send you a free copy see page 13. Contents What type of support am I likely to need?

More information

The Rotherham NHS Foundation Trust Secondary Breast Cancer Pledge

The Rotherham NHS Foundation Trust Secondary Breast Cancer Pledge The Rotherham The Rotherham NHS Foundation Trust Secondary Breast Cancer Pledge The standards of care and support you can expect and how to have your say Working together to improve secondary breast cancer

More information

The Clatterbridge Cancer Centre. NHS Foundation Trust. Hospital discharge. Rehabilitation and Support. A guide for patients and carers

The Clatterbridge Cancer Centre. NHS Foundation Trust. Hospital discharge. Rehabilitation and Support. A guide for patients and carers The Clatterbridge Cancer Centre NHS Foundation Trust Hospital discharge Rehabilitation and Support A guide for patients and carers Contents Planning to leave hospital...1 Who co-ordinates your discharge...2

More information

Health and Care Experience Survey 2013/14 Results for Arran Medical Group- Arran

Health and Care Experience Survey 2013/14 Results for Arran Medical Group- Arran Results for Arran Medical Group The Medical Centre Lamlash Isle of Arran KA27 8NS This report gives a summary of the results of the for. The survey was sent to 329 people registered with the practice.

More information

Improving healthcare for people with long-term conditions

Improving healthcare for people with long-term conditions Improving healthcare for people with long-term conditions UWe-book: Number Two 1 Health and Well-being At UWE our research and development is real and dynamic, identifying problems and providing solutions

More information

Germ cell / testicular cancer team

Germ cell / testicular cancer team Germ cell / testicular cancer team The multi-disciplinary team (MDT) explained Information for patients page 2 of 8 This leaflet has been developed to provide you with information about the Germ Cell /

More information

Borderline personality disorder

Borderline personality disorder Understanding NICE guidance Information for people who use NHS services Borderline personality disorder NICE clinical guidelines advise the NHS on caring for people with specific conditions or diseases

More information

Quality summary report: Tuberculosis Nursing Service

Quality summary report: Tuberculosis Nursing Service Quality summary report: Tuberculosis Nursing Service CLCH Quality Report Jan Dec 2011 Service exact name Tuberculosis Nursing Service Address line 1 Address line 2 Town/city County Postcode No. beds Website

More information

Planning your care and support Having a holistic needs assessment

Planning your care and support Having a holistic needs assessment Planning your care and support Having a holistic needs assessment This information is from the booklet Planning your care and support Having a holistic needs assessment. We can send you a free copy see

More information

Care Planning and Goal setting in Diabetes management

Care Planning and Goal setting in Diabetes management Care Planning and Goal setting in Diabetes management How can we provide self-management support to people with chronic conditions? Professor Malcolm Battersby Flinders University Flinders Human Behaviour

More information

Life after treatment for Lung Cancer

Life after treatment for Lung Cancer Oxford University Hospitals NHS Trust Life after treatment for Lung Cancer A guide for patients and their carers Introduction Treatment for Lung Cancer can be very varied depending on the stage and type

More information

RHEUMATOID ARTHRITIS. Dr Bruce Kirkham Rheumatology Clinical Lead

RHEUMATOID ARTHRITIS. Dr Bruce Kirkham Rheumatology Clinical Lead RHEUMATOID ARTHRITIS Dr Bruce Kirkham Rheumatology Clinical Lead RHEUMATOID ARTHRITIS (RA) RA is a common disease: 0.8 per cent of the population RA more common in females: female to male ratio 3:1 RA

More information

PATIENT INFORMATION. Living Well. The wellbeing programme for people with long term health conditions

PATIENT INFORMATION. Living Well. The wellbeing programme for people with long term health conditions Southport & Ormskirk Hospital NHS Trust providing safe, clean and friendly care PATIENT INFORMATION Living Well The wellbeing programme for people with long term health conditions What is Living Well?

More information

Project Initiation Document

Project Initiation Document REPORT Project Initiation Document October 2013 Healthcare Quality Improvement Partnership (HQIP) has commissioned an audit into the treatment of patients diagnosed with Rheumatoid Arthritis. As main supplier

More information

Hand & Plastics Physiotherapy Department Cubital Tunnel Syndrome Information for patients

Hand & Plastics Physiotherapy Department Cubital Tunnel Syndrome Information for patients Oxford University Hospitals NHS Trust Hand & Plastics Physiotherapy Department Cubital Tunnel Syndrome Information for patients This leaflet has been developed to answer any questions you may have regarding

More information

This information explains the advice about diagnosing autism in children and young people that is set out in NICE clinical guideline 128.

This information explains the advice about diagnosing autism in children and young people that is set out in NICE clinical guideline 128. Information for the public Published: 1 September 2011 nice.org.uk About this information NICEclinicalguidelinesadvisetheNHSoncaringforpeoplewithspecificcconditionsordiseasesandthetreatmentstreatments

More information

Current evidence suggests that Parkinson s tends to develop

Current evidence suggests that Parkinson s tends to develop About Parkinson's Diagnosing Parkinson s Current evidence suggests that Parkinson s tends to develop gradually and it may be many months, even years, before the symptoms become obvious enough for you to

More information

PALLIATIVE CARE SERVICES AND RESOURCES. A guide for patients and their loved ones. Living well with serious illness

PALLIATIVE CARE SERVICES AND RESOURCES. A guide for patients and their loved ones. Living well with serious illness PALLIATIVE CARE SERVICES AND RESOURCES A guide for patients and their loved ones Living well with serious illness A patient and family centered approach to living with serious illness Palliative care addresses

More information

Often, patients with cancer do not raise issues important to them with their doctors or nurses.

Often, patients with cancer do not raise issues important to them with their doctors or nurses. p.0 Name: Often, patients with cancer do not raise issues important to them with their doctors or nurses. These issues might include: Difficulty with relationships It may be about the relationships you

More information

Bowel cancer: a vision for 2020

Bowel cancer: a vision for 2020 Bowel cancer: a vision for 2020 beatingbowelcancer.org 02 beatingbowelcancer.org A vision for 2020 To produce Bowel cancer: a vision for 2020 we listened to the people that matter most: people with bowel

More information

Case study: Pennine MSK Partnership

Case study: Pennine MSK Partnership Case study: Pennine MSK Partnership Dr Alan Nye is a GP in Oldham, GPSI in Rheumatology, Director of Pennine MSK Partnership, Associate Medical Director of NHS Direct and Associate Medical Director of

More information

PARKINSON S DISEASE Patient Checklist

PARKINSON S DISEASE Patient Checklist PARKINSON S DISEASE Patient Checklist Developed in cooperation with Nederlandse Vereniging voor Neurologie (Dutch Neurology Association) Nederlandse Vereniging voor Neuro Verpleegkundigen (Dutch Association

More information

Cornhill Macmillan Centre

Cornhill Macmillan Centre Cornhill Macmillan Centre A service for people with cancer and other life limiting illnesses Information leaflet for patients and carers Perth and Kinross Specialist Palliative Care Services Cornhill Macmillan

More information

How do I give feedback or make a complaint about an NHS service?

How do I give feedback or make a complaint about an NHS service? How do I give feedback or make a complaint about an NHS service? I m not happy about something I d just like to say How do I? Most NHS care and treatment goes well but sometimes things can go wrong. If

More information

The Oncology and Haematology Departments

The Oncology and Haematology Departments DPS ref: 03740-16(RP) File: Oncology Sheet 1 of 3 The Oncology and Haematology Departments The following information is for all patients and their relatives attending the Oncology (cancer) and Haematology

More information

Survey to Doctors in England End of Life Care Report prepared for The National Audit Office

Survey to Doctors in England End of Life Care Report prepared for The National Audit Office Survey to Doctors in England End of Life Care Report prepared for The National Audit Office 1 2008, medeconnect Table of Contents 1 SUMMARY OF FINDINGS... 3 2 INTRODUCTION... 5 3 RESEARCH OBJECTIVES AND

More information

Lost in the system IPF: the patient experience in England

Lost in the system IPF: the patient experience in England Lost in the system IPF: the patient experience in England www.blf.org.uk www.blf.org.uk 1 About the British Lung Foundation One person in five in the UK is affected by lung disease. We offer hope and support

More information

Sandwell Community Respiratory Service

Sandwell Community Respiratory Service Contents Page Community Respiratory Service 2 Service times and locations 3 Oxygen Service 4 Pulmonary Rehabilitation 5 Maintenance Programme 6 Occupational Therapy 7 Dietary support and advice 7 Weatherwise

More information

MY CROHN S AND COLITIS CARE YOUR GUIDE

MY CROHN S AND COLITIS CARE YOUR GUIDE MY CROHN S AND COLITIS CARE YOUR GUIDE Sometimes living with IBD is frustrating but having the right information and support has helped me to feel more in control of my life. Melissa, 44 Diagnosed with

More information

Consultation Response. Individual Funding Request

Consultation Response. Individual Funding Request Consultation Response Individual Funding Request May 2015 Individual Funding Request Response from Cancer Focus Northern Ireland Contact Details Roisin Foster Chief Executive Cancer Focus Northern Ireland

More information

Improving the Emotional Wellbeing of Children in Care. Policy and Guidance on the Strengths and Difficulties Questionnaire for Looked After Children.

Improving the Emotional Wellbeing of Children in Care. Policy and Guidance on the Strengths and Difficulties Questionnaire for Looked After Children. Improving the Emotional Wellbeing of Children in Care Policy and Guidance on the Strengths and Difficulties Questionnaire for Looked After Children. DOCUMENT CONTROL: Version: 1 Ratified by: Clinical Assurance

More information

Recognise, Respond, Relieve, Rheumatoid Arthritis

Recognise, Respond, Relieve, Rheumatoid Arthritis Recognise, Respond, Relieve, Rheumatoid Arthritis Anybody can develop rheumatoid arthritis. It can develop at any age in adults but is more common in people in their 40s and 50s. It is two to three times

More information

Family Caregiver s Guide to Hospice and Palliative Care

Family Caregiver s Guide to Hospice and Palliative Care Family Caregiver Guide Family Caregiver s Guide to Hospice and Palliative Care Even though you have been through transitions before, this one may be harder. If you have been a family caregiver for a while,

More information

Information for Patients and Carers Cancer Services

Information for Patients and Carers Cancer Services NHS Foundation Trust Information for Patients and Carers Cancer Services This leaflet provides general information to help to support you during your treatment and specific information about the cancer

More information

Self-management plan for COPD

Self-management plan for COPD Sheffield Clinical Commissioning Group Sheffield Teaching Hospitals NHS Foundation Trust Self-management plan for COPD This is your personal management plan The aim of the plan is to help you have better

More information

Oxford Centre for Enablement Continuing Disability Management Service Day Hospital Information

Oxford Centre for Enablement Continuing Disability Management Service Day Hospital Information Oxford University Hospitals NHS Trust Oxford Centre for Enablement Continuing Disability Management Service Day Hospital Information Contents About the Oxford Centre for Enablement What does the service

More information

What is the Surrey Stroke Services Review? Stroke services in Surrey

What is the Surrey Stroke Services Review? Stroke services in Surrey What is the Surrey Stroke Services Review? Stroke services in Surrey A stroke is caused when the blood supply to the brain is interrupted, usually because a blood vessel bursts or is blocked by a clot.

More information

Helping you manage your pain

Helping you manage your pain Helping you manage your pain This booklet contains confidential personal information. If found, please mail to the address below. Personal details Name Address Telephone My health care team (please tick)

More information

Early Diagnosis Campaign Anna Dowrick Campaigns Officer

Early Diagnosis Campaign Anna Dowrick Campaigns Officer Early Diagnosis Campaign Anna Dowrick Campaigns Officer Early Diagnosis Campaign Background Current activity Future plans Alzheimer s Society We are the UK s leading charity for people with dementia and

More information

Your experience of stroke treatment, care and support

Your experience of stroke treatment, care and support Stroke Helpline 0303 3033 100 stroke.org.uk Your experience of stroke treatment, care and support Your experiences and stories are vital to the Stroke Association as they enable us to tell the government

More information

Shared care protocol for the management of patients with Rheumatoid Arthritis treated with disease modifying antirheumatic drugs (DMARDs)

Shared care protocol for the management of patients with Rheumatoid Arthritis treated with disease modifying antirheumatic drugs (DMARDs) Tameside Hospital NHS Foundation Trust and NHS Tameside and Glossop Shared care protocol for the management of patients with Rheumatoid Arthritis treated with disease modifying antirheumatic drugs (DMARDs)

More information

Circle of Life: Cancer Education and Wellness for American Indian and Alaska Native Communities. Group Discussion True False Not Sure

Circle of Life: Cancer Education and Wellness for American Indian and Alaska Native Communities. Group Discussion True False Not Sure Hospice Care Group Discussion True False Not Sure 1. There is no difference between palliative care and hospice care. Palliative care is different from hospice care. Both palliative and hospice care share

More information

Occupational therapy Helping people to live life their way. Occupational therapy and DEPRESSION

Occupational therapy Helping people to live life their way. Occupational therapy and DEPRESSION Occupational therapy Occupational therapy and DEPRESSION Depression how occupational therapy can help Introduction If you are living with depression, an occupational therapist can support and guide you

More information

DOCTOR DISCUSSION GUIDE FOR RHEUMATOID ARTHRITIS

DOCTOR DISCUSSION GUIDE FOR RHEUMATOID ARTHRITIS DOCTOR DISCUSSION GUIDE FOR RHEUMATOID ARTHRITIS Talking your Doctor About Rheumatoid Arthritis Preparing for your Doctor s Appointment Early and aggressive treatment can help you forestall the joint damage

More information

Diagnosing autism in children and young people

Diagnosing autism in children and young people Understanding NICE guidance Information for people who use NHS services Diagnosing autism in children and young people NICE clinical guidelines advise the NHS on caring for people with specific conditions

More information

STEP BY STEP. Watch & Wait. Information for patients when treatment is not necessary

STEP BY STEP. Watch & Wait. Information for patients when treatment is not necessary STEP BY STEP Watch & Wait Information for patients when treatment is not necessary Introduction Some blood cancers progress rapidly and therefore require treatment straightaway. Others progress slowly

More information

Manage cancer related fatigue:

Manage cancer related fatigue: Manage cancer related fatigue: For People Affected by Cancer In this pamphlet: What can I do to manage fatigue? What is cancer related fatigue? What causes cancer related fatigue? How can my health care

More information

Improving the emotional and mental health of children and young people in Wales

Improving the emotional and mental health of children and young people in Wales Improving the emotional and mental health of children and young people in Wales Making sure you get the help you need, when you need it Newsletter #1 for Children & Young People May 2016 1 What is the

More information

Advance care planning planning for your future care

Advance care planning planning for your future care Advance care planning planning for your future care No decision about me, without me Department of Health, 2010 preparing for the future Helping with practical arrangements Allowing the right care to be

More information

The Effectiveness of an Outpatient Interdisciplinary Team in Reducing Distress with Lung Cancer Patients

The Effectiveness of an Outpatient Interdisciplinary Team in Reducing Distress with Lung Cancer Patients The Effectiveness of an Outpatient Interdisciplinary Team in Reducing Distress with Lung Cancer Patients Shirley Witko Senior Social Worker Sir Charles Gairdner Hospital, Perth Delivering a Healthy WA

More information

Pain Clinic Psychological Service. Information for patients Department of Psychological Services

Pain Clinic Psychological Service. Information for patients Department of Psychological Services Pain Clinic Psychological Service Information for patients Department of Psychological Services page 2 of 8 You have been referred to the Pain Clinic Psychological Service at the Northern General Hospital.

More information

Young Person s Guide to CFS/ME

Young Person s Guide to CFS/ME Young Person s Guide to CFS/ME The Royal College of Paediatrics and Child Health This leaflet has been developed as part of the Evidence based guideline for management of CFS/ME (Chronic Fatigue Syndrome

More information

Community Multiple Sclerosis Team Patient Information Leaflet

Community Multiple Sclerosis Team Patient Information Leaflet Community Multiple Sclerosis Team Patient Information Leaflet Shining a light on the future Introduction We hope this leaflet will provide you with information that you will find useful when attending

More information

Information for patients

Information for patients Pain management programmes for adults Information for patients Prepared on behalf of the British Pain Society April 2007 To be reviewed April 2010 Copyright: The British Pain Society 2007 Published by:

More information

Care Programme Approach (CPA)

Care Programme Approach (CPA) Care Programme Approach (CPA) The Care Programme Approach (CPA) is the system that is used to organise many people s care from 'secondary mental health services'. This factsheet explains what you should

More information

Measuring quality along care pathways

Measuring quality along care pathways Measuring quality along care pathways Sarah Jonas, Clinical Fellow, The King s Fund Veena Raleigh, Senior Fellow, The King s Fund Catherine Foot, Senior Fellow, The King s Fund James Mountford, Director

More information

Making good care better. National practice statements for general palliative care in adult care homes in Scotland

Making good care better. National practice statements for general palliative care in adult care homes in Scotland Making good care better National practice statements for general palliative care in adult care homes in Scotland 2 Making good care better National practice statements for general palliative care in adult

More information

1 How to talk to your GP about your mental health

1 How to talk to your GP about your mental health 1 How to talk to your GP about your mental health How to talk to your GP about your mental health Contents Foreword: Dr Jonty Heaversedge Do you need to see a GP? How to prepare for an appointment During

More information

What to expect from your GP

What to expect from your GP What to expect from your GP Whilst breast cancer in young people is thankfully rare, your GP is trained to know the signs and symptoms of what is and what isn t breast cancer. Did you know, there are many

More information

Mellen Center for Multiple Sclerosis

Mellen Center for Multiple Sclerosis Mellen Center Cleveland Clinic Marie Namey, RN, MSN, MSCN Mellen Center Cleveland Clinic Cleveland, OH Home of. Mellen Center for Multiple Sclerosis Mellen Center Mission The Mellen Center remains committed

More information

Trinity's. Inpatient Centre. Helping you get the most from your stay

Trinity's. Inpatient Centre. Helping you get the most from your stay Trinity's Inpatient Centre Helping you get the most from your stay 1 Welcome to Trinity's Inpatient Centre We hope you will treat Trinity s Inpatient Centre as you would your own home. Your family and

More information

Care Programme Approach (CPA)

Care Programme Approach (CPA) Care Programme Approach (CPA) The Care Programme Approach (CPA) is used to plan many people s mental health care. This factsheet explains what it is, when you should get and when it might stop. The Care

More information

NHS England & Monitor Outpatient Appointment Referrals

NHS England & Monitor Outpatient Appointment Referrals _ Populus Summary NHS England & Monitor Outpatient Appointment Referrals July 2015 Populus was commissioned by Monitor and NHS England to carry out this research on their behalf. _ Populus interviewed

More information

2. Reporting The national clinical audit is on the list of mandatory national audits for inclusion in Trust s Quality Accounts.

2. Reporting The national clinical audit is on the list of mandatory national audits for inclusion in Trust s Quality Accounts. National clinical audit of rheumatoid and early inflammatory arthritis Information for Caldicott Guardians 1. Overview The national clinical audit of rheumatoid and early inflammatory arthritis is part

More information

WELCOME TO THE APPROACH National Care Home Survey and opportunity to win PRIZE of 100 M&S vouchers.

WELCOME TO THE APPROACH National Care Home Survey and opportunity to win PRIZE of 100 M&S vouchers. WELCOME TO THE APPROACH National Care Home Survey and opportunity to win PRIZE of 100 M&S vouchers. We are inviting you to participate in this study by completing an on-line questionnaire, which should

More information

Northumbria Healthcare NHS Foundation Trust. Bronchiectasis. Issued by Respiratory Medicine

Northumbria Healthcare NHS Foundation Trust. Bronchiectasis. Issued by Respiratory Medicine Northumbria Healthcare NHS Foundation Trust Bronchiectasis Issued by Respiratory Medicine The aim of this booklet is to help you manage your bronchiectasis. It contains information which you should find

More information

Patient satisfaction survey

Patient satisfaction survey Please answer the questions by ticking the box next to your answer. Section A: The triage system 1. Are you aware of the triage system? (If no, please move onto Section B) Yes No 2. What do you feel is

More information

Commissioning Policy Individual Funding Request

Commissioning Policy Individual Funding Request Commissioning Policy Individual Funding Request Chronic Fatigue Syndrome / ME Referral for Adults Criteria Based Access Policy Date Adopted: 16 th September 2016 Version: 1617.1 Individual Funding Request

More information

Understanding personal health budgets

Understanding personal health budgets Understanding personal health budgets Understanding personal health budgets This leaflet will tell you about personal health budgets what they are, how they could make NHS care better, and how to get more

More information

Short-Term Memory Loss and Cancer

Short-Term Memory Loss and Cancer Side Effects Short-Term Memory Loss and Cancer Short-Term Memory Loss and Cancer The information in this factsheet will help you understand more about shortterm memory loss and cancer. We hope it answers

More information

ar gyfer pobl gydag afiechyd meddwl difrifol A USER S GUIDE

ar gyfer pobl gydag afiechyd meddwl difrifol A USER S GUIDE CPA ar gyfer pobl gydag afiechyd meddwl difrifol produced by hafalfor people with severe mental illness A USER S GUIDE What people with a mental illness in Wales need to know about the Care Programme Approach

More information

Guidance Notes for Managers: Referral & Process Flow Chart

Guidance Notes for Managers: Referral & Process Flow Chart Guidance Notes for Managers: Referral & Process Flow Chart Advice provided by Occupational Health (OH) in the referral process is primarily designed to support the referring manager in their decision making

More information