Hereditary ovarian cancer: what women should know

Save this PDF as:
 WORD  PNG  TXT  JPG

Size: px
Start display at page:

Download "Hereditary ovarian cancer: what women should know"

Transcription

1 Hereditary ovarian cancer: what women should know Registered charity no Approved by

2 This information has been developed for women who may be concerned about the incidence of hereditary ovarian cancer. Ovarian cancer is much easier to treat successfully when diagnosed early, so it is important to be aware not only of symptoms of the disease, but also whether or not you may be at a greater than average risk. Facts about ovarian cancer Sue Slater Ovarian cancer is the fifth most common cancer in women, with around 6,700 cases each year in the UK. It is also the fourth most deadly cancer in women after breast, lung and bowel, with around 4,400 deaths each year. This means around 85 women die from ovarian cancer each week. The ovaries are buried deep in the pelvis, and are responsible for production of hormones such as oestrogen, and the source of a woman s lifetime supply of eggs, which are released each month. It is unclear what causes ovarian cancer, but it is thought to be a combination of genetic, lifestyle and inherited factors. The single biggest risk factor for the disease is age, with eight out of every ten cases occurring in women over the age of 50. Facts about hereditary ovarian cancer 5-10% of ovarian cancer cases are caused by an inherited faulty gene that can be passed down family lines, through both women and men. A carrier of a faulty gene has a 50% chance (one in two) of passing the gene on to each of their children. In particular there are two faulty genes that have been identified as causes of ovarian cancer named BRCA1 and BRCA2 (pronounced BRACCA); these same genes are responsible for hereditary breast cancer. Consequently, there are families where a number of relatives may develop ovarian, breast or both breast and ovarian cancer. Carrying a BRCA1 or BRCA2 gene fault can mean that a woman has up to a 80% lifetime risk of developing breast cancer, and between a 15 and 45 % lifetime risk of developing ovarian cancer. It can also increase the risk of prostate cancer in men. Could I be at risk? If you are not aware that a close blood relative carries either the BRCA or HNPCC genes, you could assess your risk by finding out more about your family history. There are three broad categories of risk: 1. Population (normal) risk Having a population or normal risk means you have the same risk as the general population of developing ovarian cancer (1 in 50 women), and do not have any close relatives (parents, children, siblings) with the disease. 2. Slightly increased risk Moderate family history This is where you have just one relative with ovarian cancer. This only very slightly increases your chance of inheriting the BRCA1 or BRCA 2 mutations, or other faulty genes associated with the disease. 3. Higher risk Strong family history This is when you have two or more relatives with ovarian cancer, both on one side of your family (your mother s or your father s), including someone who is a first degree relative (see below). You may also be in this group if you have a close relative with ovarian cancer and also a family history of breast cancer, bowel cancer and womb cancer (again on the same side), especially if diagnosed under the age of 50. Generally the cases of ovarian cancer need to occur in first and second degree relatives. First degree relatives: Your mother, sister, daughter, father, son, brother and Second degree relatives: Grandparents, grandchildren, aunts, uncles, nieces, nephews. These categories will help you and your GP decide if you may be at increased risk, and if so, discuss with you what options you might like to consider. These include referral to a specialist genetic clinic. It should be noted that having a high risk of developing breast or ovarian cancer does not necessarily mean that you will develop the disease. The BRCA mutations are found in the general population. However Ashkenazi Jewish, Icelandic, Norwegian, Dutch and Pakistani descendants have been shown through research to have more BRCA 1 and BRCA 2 gene faults. This is why it is important for people with this inheritance to know the facts about ovarian cancer and genetic predisposition. For more information on Ashkenazi hereditary ovarian cancer, you can request a copy of the Ashkenazi Inheritance: what you need to know about ovarian cancer by calling Hereditary Non-Polyposis Colorectal Cancer (HNPCC), another genetic condition, slightly increases the risk of a woman developing ovarian cancer. A female HNPCC carrier has a 10% lifetime risk of developing the disease. HNPCC is also associated with bowel, womb stomach, pancreas, biliary and bladder cancer. Sisters Jas Mayer and Manveer Malhi If you are concerned about your own family history, you should discuss this with your GP. They will want to know what cases of cancer (of any kind) have occurred, and at what age, in your first or second degree relatives. Your GP will discuss with you what options you might like to consider. These include referral to specialist genetic clinics, where you can find out more about genetic testing and discuss whether this is appropriate or acceptable to you, find out ways of being monitored, and ways of potentially reducing your risk of developing ovarian cancer. 2 funding research raising awareness giving a voice To find out more about Ovarian Cancer Action, visit 3

3 Genetic testing Advantages of taking such tests include: Genetic testing can pinpoint some of the mutations in inherited BRCA1, BRCA2 and HNPCC genes, and give an indication of whether a person has inherited a specific mutation from a parent. Genetic testing should generally only be done after talking to a genetics professional who can go through some of the complex issues, and how they might affect your decision. Types of genetic testing 1. Mutation searching This is where the gene is examined in its entirety to identify where the mutation occurs. This usually is best done using a blood sample from someone who has either breast or ovarian cancer, and who is thought to have a hereditary form of the disease. The mutation can occur in many hundreds of places within the gene, so without the position being identified in an affected relative, it is not possible to do an accurate test with other relations who have not developed the disease. 2. Predictive searching Once the position of the mutation within the gene is identified then other family members can be tested for that specific mutation which may or may not have been inherited. Finding out whether you have an inherited risk factor for the disease. Helping you or family members make decisions about what to do. Ensuring access, under the NICE (National Institute for Health and Clinical Excellence) guidance for familial breast cancer, to an enhanced programme of breast screening from an earlier age (screening normally starts once you are over 50 if you don t have an inherited form of breast cancer). Knowing the genetic reason why you have this disease may mean you can participate in future clinical trials, and if they prove successful, be able to receive targeted treatment. Disadvantages include: Many results are inconclusive, as opposed to negative. An inconclusive test does not lower your risk of developing the disease, and so may leave you with unanswered questions and concerns. Access to genetic testing Angela Walker Genetic testing is only appropriate and helpful in certain families with a history of ovarian cancer or breast cancer. If you would like to discuss genetic testing you should contact your GP who can provide information on local genetics services and refer you to a specialist genetic clinic if appropriate. Referrals to genetic clinics can only be made by your GP or hospital doctor. If you wish to find out details of your nearest specialist genetic clinic, look at the directory of UK genetics centres, available on the British Society for Human Genetics website: _centres.htm Genetic testing can also be obtained privately, and as with the NHS you should always seek genetic counselling, both before deciding to undertake the tests and after the results are available. Although there is a current ban on using genetic information for setting insurance premiums, it is not yet certain whether or not they could be used when insurance premiums are set in the future. It is important to recognise that other members of your family may have quite different views about being tested. It is not an easy or clear cut decision. Ovarian Cancer Voices Ovarian Cancer Voices 4 funding research raising awareness giving a voice To find out more about Ovarian Cancer Action, visit 5

4 Risk management and reduction For women identified as having a faulty gene, or those who have a strong family history of ovarian cancer, there are possible courses of action which research has shown to reduce the risk of developing the disease. It is important to discuss these with a specialist, to understand the issues, benefits and risks involved. They include: Gurbachan Johal The removal of the ovaries (known as an oophorectomy) which would bring on what is known as a surgically induced menopause. This can reduce the risk of developing the disease by around 90% if undertaken before the natural menopause. Use of oral contraceptive pill. This has been shown in studies to reduce the risk by up to 50%. The use of the oral contraceptive pill should be discussed with your GP, as it has been shown to increase the risk of breast cancer. Other factors which are thought to help protect against ovarian cancer (but to a lesser extent than the above measures) include maintaining a healthy weight, breast feeding children, and having several pregnancies. Screening for ovarian cancer As yet, there is no evidence to show that current screening tools are effective in improving survival rates, even in high risk families. A number of trials are underway which will provide evidence as to the effectiveness of such a screening programme. Symptom diary Our website includes useful information about how you can communicate effectively with your doctor. Download our symptom diary which will help you discuss your symptoms and will provide tips about how to get the best out of your doctor s appointment. symptom _diary.pdf Kate Willis Every woman should be aware of ovarian cancer. Recent research shows the importance of monitoring persistent and frequent symptoms to improve the chances of detecting the disease. Any woman experiencing any of the following symptoms on most days should ask their doctor to consider ovarian cancer. Persistent pelvic / stomach pain Increased stomach size Persistent bloating Difficulty eating Feeling full quickly Other less common symptoms include: urinary symptoms, change in bowel habits, excessive tiredness, and back pain. Full information can be found on our website and in our symptoms awareness leaflet. Call or to request a copy. Useful sources of information Ovarian Cancer Action Website: Ovarian cancer symptoms awareness leaflet Ovarian Cancer Action symptom diary ( The Ashkenazi Inheritance: what you need to know about ovarian cancer Further copies of this leaflet Info line T: Breakthrough Breast Cancer Website: Leaflet Understanding a family history of breast cancer Info line T: funding research raising awareness giving a voice To find out more about Ovarian Cancer Action, visit 7

5 Ovarian Cancer Voices Ovarian Cancer Action in action: We have established the UK s first dedicated ovarian cancer research centre, led by Professor Hani Gabra at Hammersmith Imperial College, in collaboration with The Royal Marsden Hospital and the Institute of Cancer Research. We need your help to raise funds so that the Ovarian Cancer Action Research Centre can continue to expand. We are also currently funding research at University College London and Barts and the London Hospital. Over the past five years, we have played the leading role in raising awareness of the symptoms of ovarian cancer, based on peer-reviewed research. In February 2007, we were awarded the first ever government funding for a symptoms awareness campaign in GP surgeries in England, and appointed the first ever Healthcare Project Manager in the field, working to reduce delays in diagnosis and improve the patient pathway. Our Remember the Symptoms campaign featuring the actress Emilia Fox has won the support of the Royal College of GPs and the Royal College of Nursing. In October 2009 we launched Ovarian Cancer Voices. By working with women and families who have been affected by ovarian cancer, the charity can ensure that their voices are heard at national level. Ovarian Cancer Voices offers individuals the opportunity to; tell their story, raise awareness in their local community and comment on issues relating to diagnosis and treatment. for more information. If you would like further information visit our website or contact us on (Standard rate charges apply). Registered charity no Issue: February 2011 Design: 8 funding research raising awareness giving a voice

Advice about familial aspects of breast cancer and epithelial ovarian cancer a guide for health professionals DECEMBER 2010

Advice about familial aspects of breast cancer and epithelial ovarian cancer a guide for health professionals DECEMBER 2010 Advice about familial aspects of breast cancer and epithelial ovarian cancer a guide for health professionals DECEMBER 2010 This guide has three parts: 1. Information for health professionals 2. Tables

More information

Patient Support Guide

Patient Support Guide Patient Support Guide to genetic testing for hereditary breast and ovarian cancer syndrome Testing for BRCA1 and BRCA2 is available from Quest Diagnostics. Quest Diagnostics Patient Support Guide to Genetic

More information

BRCA Genes and Inherited Breast and Ovarian Cancer. Patient information leaflet

BRCA Genes and Inherited Breast and Ovarian Cancer. Patient information leaflet BRCA Genes and Inherited Breast and Ovarian Cancer Patient information leaflet This booklet has been written for people who have a personal or family history of breast and/or ovarian cancer that could

More information

Breast cancer in families. This booklet explains what a family history of breast cancer is, and what this may mean for you or your family.

Breast cancer in families. This booklet explains what a family history of breast cancer is, and what this may mean for you or your family. Breast cancer in families This booklet explains what a family history of breast cancer is, and what this may mean for you or your family. Worried Lorem about ipsum breast dolore cancer estes Contents

More information

Hereditary Breast and Ovarian Cancer (HBOC)

Hereditary Breast and Ovarian Cancer (HBOC) Oxford University Hospitals NHS Trust Oxford Regional Genetic Department Hereditary Breast and Ovarian Cancer (HBOC) Information for women with an increased lifetime risk of breast and ovarian cancer What

More information

patient education Fact Sheet PFS007: BRCA1 and BRCA2 Mutations MARCH 2015

patient education Fact Sheet PFS007: BRCA1 and BRCA2 Mutations MARCH 2015 patient education Fact Sheet PFS007: BRCA1 and BRCA2 Mutations MARCH 2015 BRCA1 and BRCA2 Mutations Cancer is a complex disease thought to be caused by several different factors. A few types of cancer

More information

Breast Cancer s Link to Ovarian Cancer: It s in Your Genes. foundationforwomenscancer.org

Breast Cancer s Link to Ovarian Cancer: It s in Your Genes. foundationforwomenscancer.org Breast Cancer s Link to Ovarian Cancer: It s in Your Genes foundationforwomenscancer.org There are now more than 2.6 million women in America who have been diagnosed with breast cancer. A very small fraction

More information

BRCA1 and BRCA2 for men

BRCA1 and BRCA2 for men Oxford University Hospitals NHS Trust Oxford Regional Genetic Department BRCA1 and BRCA2 for men Information for men from families with a known alteration in the BRCA1/2 gene Introduction BRCA1 and BRCA2

More information

HEREDITARY BRCA1. Faulty gene INFORMATION LEAFLET. How Do I Reduce My Risk?

HEREDITARY BRCA1. Faulty gene INFORMATION LEAFLET. How Do I Reduce My Risk? HEREDITARY BREAST CANCER BRCA1 Faulty gene INFORMATION LEAFLET How Do I Reduce My Risk? Page 1 CONTENTS Part A 1 What is BRCA1 2 How does BRCA1 affect a person s risk of cancer? 3Testing for BRCA1 4Benefits

More information

Frequently Asked Questions About Ovarian Cancer

Frequently Asked Questions About Ovarian Cancer Media Contact: Gerri Gomez Howard Cell: 303-748-3933 gerri@gomezhowardgroup.com Frequently Asked Questions About Ovarian Cancer What is ovarian cancer? Ovarian cancer is a cancer that forms in tissues

More information

Breast cancer and genetics

Breast cancer and genetics Breast cancer and genetics Cancer and genes Our bodies are made up of millions of cells. Each cell contains a complete set of genes. We have thousands of genes. We each inherit two copies of most genes,

More information

if your family has a history

if your family has a history if your family has a history OF CANCER. put it to the test. Learn about your risk for hereditary and ovarian and how you can reduce it. do you have a family history of Breast or Ovarian Cancer? what does

More information

Genetic conditions and insurance. What you need to know and what you need to tell

Genetic conditions and insurance. What you need to know and what you need to tell Genetic conditions and insurance What you need to know and what you need to tell About this booklet This information booklet has been produced to provide accessible and impartial information for people

More information

Understanding Hereditary Breast and Ovarian Cancer. Maritime Hereditary Cancer Service

Understanding Hereditary Breast and Ovarian Cancer. Maritime Hereditary Cancer Service Understanding Hereditary Breast and Ovarian Cancer Maritime Hereditary Cancer Service General Information Cancer is very common. About one in three (33%) people are diagnosed with some form of cancer during

More information

Ovarian Cancer Genetic Testing: Why, When, How?

Ovarian Cancer Genetic Testing: Why, When, How? Ovarian Cancer Genetic Testing: Why, When, How? Jeffrey Dungan, MD Associate Professor Division of Clinical Genetics Department of Obstetrics & Gynecology Northwestern University Feinberg School of Medicine

More information

patient guide BRCA1 and BRCA2 Genetic Testing for Hereditary Breast and Ovarian Cancer

patient guide BRCA1 and BRCA2 Genetic Testing for Hereditary Breast and Ovarian Cancer patient guide BRCA1 and BRCA2 Genetic Testing for Hereditary Breast and Ovarian Cancer What is hereditary cancer? Cancer affects many people in the U.S.: breast cancer affects 1 in 8 women and ovarian

More information

A survey conducted by Ovarian Cancer Australia: A report summarising findings on a family history and genetic testing survey

A survey conducted by Ovarian Cancer Australia: A report summarising findings on a family history and genetic testing survey 1 P a g e A survey conducted by Ovarian Cancer Australia: A report summarising findings on a family history and genetic testing survey Executive Summary Introduction Ovarian Cancer Australia (OCA) surveyed

More information

Genomics and Family History Survey Questions Updated March 2007 Compiled by the University of Washington Center for Genomics & Public Health

Genomics and Family History Survey Questions Updated March 2007 Compiled by the University of Washington Center for Genomics & Public Health Genomics and Survey Questions Updated March 2007 Compiled by the University of Washington Center for Genomics & Public Health This publication is distributed free of charge and supported by CDC Grant #U10/CCU025038-2.

More information

Familial Breast Cancer Referrals and Risk Management

Familial Breast Cancer Referrals and Risk Management Familial Breast Cancer Referrals and Risk Management Presented by: Helen Mountain Genetic Counsellor Genetic Services of WA Perth (KEMH and PMH) Joondalup Rockingham Bunbury Geraldton Kalgoorlie Albany

More information

PROVIDER POLICIES & PROCEDURES

PROVIDER POLICIES & PROCEDURES PROVIDER POLICIES & PROCEDURES BRCA GENETIC TESTING The purpose of this document is to provide guidance to providers enrolled in the Connecticut Medical Assistance Program (CMAP) on the requirements for

More information

Office of Population Health Genomics

Office of Population Health Genomics Office of Population Health Genomics Policy: Protocol for the management of female BRCA mutation carriers in Western Australia Purpose: Best Practice guidelines for the management of female BRCA mutation

More information

Hereditary Breast Cancer Panels. High Risk Hereditary Breast Cancer Panel Hereditary Breast/Ovarian/Endometrial Cancer Panel

Hereditary Breast Cancer Panels. High Risk Hereditary Breast Cancer Panel Hereditary Breast/Ovarian/Endometrial Cancer Panel P A T I E N T G U I D E Hereditary Breast Cancer Panels High Risk Hereditary Breast Cancer Panel Hereditary Breast/Ovarian/Endometrial Cancer Panel B a y l o r M i r a c a G e n e t i c s L a b o r a t

More information

Ovarian cancer. Patient information from the BMJ Group. What is ovarian cancer? What are the symptoms?

Ovarian cancer. Patient information from the BMJ Group. What is ovarian cancer? What are the symptoms? Patient information from the BMJ Group Ovarian cancer Ovarian cancer is a serious disease. If it s diagnosed at an early stage, ovarian cancer can usually be cured. But even cancers that are more advanced

More information

Ovarian Cancer. Understanding your diagnosis

Ovarian Cancer. Understanding your diagnosis Ovarian Cancer Understanding your diagnosis Ovarian Cancer Understanding your diagnosis When you first hear that you have cancer, you may feel alone and afraid. You may be overwhelmed by the large amount

More information

Genetics and Breast Cancer. Elly Lynch, Senior Genetic Counsellor Manager, Austin Health Clinical Genetics Service

Genetics and Breast Cancer. Elly Lynch, Senior Genetic Counsellor Manager, Austin Health Clinical Genetics Service Genetics and Breast Cancer Elly Lynch, Senior Genetic Counsellor Manager, Austin Health Clinical Genetics Service Overview Background/Our Team What is the difference between sporadic/familial cancer? How

More information

Understanding Lynch Syndrome

Understanding Lynch Syndrome ESSENTIALS Lynch Syndrome Understanding Lynch Syndrome Certain cancers can run in families. Sometimes this happens because of harmful changes (called mutations) in our genes that are passed from one generation

More information

What s In Your Genes: How changes in the BRCA1/BRCA2 genes

What s In Your Genes: How changes in the BRCA1/BRCA2 genes ESSENTIALS BRCA1/BRCA2 Mutations What s In Your Genes: How changes in the BRCA1/BRCA2 genes might affect you and your family Our genes contain the codes for producing the proteins that are the building

More information

OVARIAN CANCER TREATMENT

OVARIAN CANCER TREATMENT OVARIAN CANCER TREATMENT Cancer Care Pathways Directorate Tailored Information in Cancer Care (TICC) Sir Anthony Mamo Oncology Centre National Cancer Plan May 2015 Contents About this booklet 1 The Ovaries

More information

About breast cancer i

About breast cancer i About breast cancer i About us Breast Cancer Network Australia (BCNA) is the peak organisation for all people affected by breast cancer in Australia. We provide a range of free resources, including the

More information

THINGS TO BE AWARE OF ABOUT PROSTATE AND LUNG CANCER. Lawrence Lackey Jr., M.D. Internal Medicine 6001 W. Outer Dr. Ste 114

THINGS TO BE AWARE OF ABOUT PROSTATE AND LUNG CANCER. Lawrence Lackey Jr., M.D. Internal Medicine 6001 W. Outer Dr. Ste 114 THINGS TO BE AWARE OF ABOUT PROSTATE AND LUNG CANCER Lawrence Lackey Jr., M.D. Internal Medicine 6001 W. Outer Dr. Ste 114 WHAT IS CANCER? The body is made up of hundreds of millions of living cells. Normal

More information

Over-the-counter Genetic Susceptibility Tests

Over-the-counter Genetic Susceptibility Tests Over-the-counter Genetic Susceptibility Tests Information for individuals, families and non-specialist health professionals Over-the-counter Genetic Susceptibility Tests In recent years, there has been

More information

Get the Facts About Gynecologic Cancer

Get the Facts About Gynecologic Cancer Get the Facts About Gynecologic Cancer Cervical Ovarian Uterine Vaginal Vulvar Get the Facts About Gynecologic Cancer U.S. Department of Health and Human Services Centers for Disease Control and Prevention

More information

Life Insurance. What you need to know about. Mucopolysaccharide and related diseases including Fabry disease

Life Insurance. What you need to know about. Mucopolysaccharide and related diseases including Fabry disease Society for Mucopolysaccharide Diseases MPS House, Repton Place White Lion Road, Amersham Buckinghamshire, HP7 9LP, UK 0345 389 9901 mps@mpssociety.org.uk www.mpssociety.org.uk Mucopolysaccharide and related

More information

Guide to Understanding Breast Cancer

Guide to Understanding Breast Cancer An estimated 220,000 women in the United States are diagnosed with breast cancer each year, and one in eight will be diagnosed during their lifetime. While breast cancer is a serious disease, most patients

More information

So you think you might be pregnant?

So you think you might be pregnant? So you think you might be pregnant? British Pregnancy Advisory Service British Pregnancy Advisory Service Contents What are the signs of pregnancy? 4 Where can I get a pregnancy test? 6 Who can I talk

More information

INFORMATION FOR PATIENTS AND THEIR FAMILIES. You can live a healthy life, if you get treatment early

INFORMATION FOR PATIENTS AND THEIR FAMILIES. You can live a healthy life, if you get treatment early INFORMATION FOR PATIENTS AND THEIR FAMILIES Hemochromatosis AN IRON OVERLOAD DISEASE You can live a healthy life, if you get treatment early Department of Health and Human Services Centers for Disease

More information

Patient Information. for Childhood

Patient Information. for Childhood Patient Information Genetic Testing for Childhood Hearing Loss Introduction This document describes the most common genetic cause of childhood hearing loss and explains the role of genetic testing. Childhood

More information

Your Jewish Genes. Hereditary Breast Cancer and Ovarian Cancer

Your Jewish Genes. Hereditary Breast Cancer and Ovarian Cancer E D U C A T I O N A L B O O K L E T S E R I E S Your Jewish Genes Hereditary Breast Cancer and Ovarian Cancer 2011 Sharsheret, Inc. All rights reserved. 07/11 3000 Your Jewish Genes Hereditary Breast Cancer

More information

Parker Adventist Hospital Genetic Counseling Family History Questionnaire

Parker Adventist Hospital Genetic Counseling Family History Questionnaire PATIENT NAME: To be completed by Questionnaire received: Genetic Counseling Clinic: Parker Adventist Hospital Genetic Counseling History Questionnaire Appointment: You have been referred to Genetic Counseling

More information

ScreenWise. Breast, Cervical, and Hereditary Cancer Screenings OCTOBER 28, 2015

ScreenWise. Breast, Cervical, and Hereditary Cancer Screenings OCTOBER 28, 2015 ScreenWise Breast, Cervical, and Hereditary Cancer Screenings OCTOBER 28, 2015 ScreenWise Three programs working together to bring quality screening services to Oregon residents Why we all do this work

More information

Cancer Genetic Counseling

Cancer Genetic Counseling Cancer Genetic Counseling Guest Expert: Ellen, MS Director of the Yale Cancer Center Cancer Genetic Counseling Program www.wnpr.org www.yalecancercenter.org I am Bruce Barber and this is Yale Cancer Center

More information

Ovarian Cancer. in Georgia, 1999-2003. Georgia Department of Human Resources Division of Public Health

Ovarian Cancer. in Georgia, 1999-2003. Georgia Department of Human Resources Division of Public Health Ovarian Cancer in Georgia, 1999-23 Georgia Department of Human Resources Division of Public Health Acknowledgments Georgia Department of Human Resources......B. J. Walker, Commissioner Division of Public

More information

Six Month Pilot Analysis: Improving Rehabilitation for Men with Prostate Cancer in North East London

Six Month Pilot Analysis: Improving Rehabilitation for Men with Prostate Cancer in North East London Six Month Pilot Analysis: Improving Rehabilitation for Men with Prostate Cancer in North East London June 2015 Helen Whitney (Physiotherapist and Prostate Cancer Project Lead) Thufayel Islam (Prostate

More information

The Department of Vermont Health Access Medical Policy

The Department of Vermont Health Access Medical Policy State of Vermont Department of Vermont Health Access 312 Hurricane Lane, Suite 201 [Phone] 802-879-5903 Williston, VT 05495-2807 [Fax] 802-879-5963 www.dvha.vermont.gov Agency of Human Services The Department

More information

Surgical History (Please provide Month/Year for all that apply):

Surgical History (Please provide Month/Year for all that apply): DATE: Name: First MI Last Maiden Date of Birth: Reason for Visit: Primary Care Provider: Personal Medical History (PLEASE CHECK ALL THAT APPLY): Diabetes, Type 1 Seizures High Blood Pressure Migraine/Headaches

More information

The Genetics of Early- Onset Breast Cancer. Cecelia Bellcross, Ph.D., M.S.,C.G.C. Department of Human Genetics Emory University School of Medicine

The Genetics of Early- Onset Breast Cancer. Cecelia Bellcross, Ph.D., M.S.,C.G.C. Department of Human Genetics Emory University School of Medicine The Genetics of Early- Onset Breast Cancer Cecelia Bellcross, Ph.D., M.S.,C.G.C. Department of Human Genetics Emory University School of Medicine All cancers are genetic BUT Not all cancers are hereditary

More information

Marrying a relative. Is there an increased chance that a child will have genetic problems if its parents are related to each other?

Marrying a relative. Is there an increased chance that a child will have genetic problems if its parents are related to each other? Marrying a relative Is there an increased chance that a child will have genetic problems if its parents are related to each other? The simple answer to this question is Yes, there is an increased chance.

More information

LAPAROSCOPIC OVARIAN CYSTECTOMY

LAPAROSCOPIC OVARIAN CYSTECTOMY LAPAROSCOPIC OVARIAN CYSTECTOMY Information Leaflet Your Health. Our Priority. Page 2 of 5 About this information This leaflet is for you if you have a cyst on one or both ovaries and are considering surgery.

More information

breast cancer awareness

breast cancer awareness breast cancer awareness Wendy with Matthew Gough Wendy Gough s son Matthew died of Testicular Cancer at just 19, having ignored signs of cancer for 6-7 weeks, before going to see his doctor. He was angry

More information

What is cancer? Teacher notes. Key stage 4/4 TH LEVEL Science lesson plan with links to PSHE

What is cancer? Teacher notes. Key stage 4/4 TH LEVEL Science lesson plan with links to PSHE What is cancer? Teacher notes Key stage 4/4 TH LEVEL Science lesson plan with links to PSHE Overview Subjects England: Science (with links to PSHE) Wales: Science (with links to PSE) Scotland: Sciences

More information

The ovaries are part of a woman s reproductive system. There are two ovaries, the size and shape of almonds, one on either side of the womb.

The ovaries are part of a woman s reproductive system. There are two ovaries, the size and shape of almonds, one on either side of the womb. Surgery for Suspicious Ovarian Cysts Patient Information sheet The Ovaries The ovaries are part of a woman s reproductive system. There are two ovaries, the size and shape of almonds, one on either side

More information

If you are still in your fertility years If you are past your fertility years and need surgery for a mass or for pain and have normal ovaries

If you are still in your fertility years If you are past your fertility years and need surgery for a mass or for pain and have normal ovaries If you are still in your fertility years, an ovary should be removed only if there is a large, complex or persistent mass on it or if you have intolerable pain from endometriosis. There should be an attempt

More information

The Menopause and Subtotal Hysterectomy

The Menopause and Subtotal Hysterectomy Oxford University Hospitals NHS Trust Women s Health The Menopause and Subtotal Hysterectomy Information for patients The menopause At the menopause the ovaries stop working. This means that the female

More information

Prostate cancer screening. It s YOUR decision!

Prostate cancer screening. It s YOUR decision! Prostate cancer screening It s YOUR decision! For many years now, a test has been available to screen for. The test is called the prostate-specific antigen blood test (or PSA test). It is used in combination

More information

Lesson Plan: Genetic Testing and Hereditary Cancer

Lesson Plan: Genetic Testing and Hereditary Cancer Lesson Plan: Genetic Testing and Hereditary Cancer OVERVIEW This lesson plan is designed to be used with the film In the Family, which explores issues related to genetic testing and the difficult decisions

More information

So you think you might be pregnant?

So you think you might be pregnant? So you think you might be pregnant? About this booklet If you ve had sex in the last 5 days you may be able to use an emergency contraception method. See pages 22-25 for more information regarding emergency

More information

Ovarian cancer. A guide for journalists on ovarian cancer and its treatment

Ovarian cancer. A guide for journalists on ovarian cancer and its treatment Ovarian cancer A guide for journalists on ovarian cancer and its treatment Contents Contents 2 3 Section 1: Ovarian Cancer 4 i. Types of ovarian cancer 4 ii. Causes and risk factors 5 iii. Symptoms and

More information

These are the telephonic interactive voice response system (IVRS) scripts used to collect family history of cancer, heart disease, and diabetes,

These are the telephonic interactive voice response system (IVRS) scripts used to collect family history of cancer, heart disease, and diabetes, These are the telephonic interactive voice response system (IVRS) scripts used to collect family history of cancer, heart disease, and diabetes, before and after a clinical visit. PREP Intervention: Interactive

More information

Carrier detection tests and prenatal diagnosis

Carrier detection tests and prenatal diagnosis Carrier detection tests and prenatal diagnosis There are several types of muscular dystrophy and about 50 neuromuscular conditions, all of which fall under the umbrella of the Muscular Dystrophy Campaign.

More information

GENETIC TESTING FOR INHERITED MUTATIONS OR SUSCEPTIBILITY TO CANCER OR OTHER CONDITIONS MED207.110

GENETIC TESTING FOR INHERITED MUTATIONS OR SUSCEPTIBILITY TO CANCER OR OTHER CONDITIONS MED207.110 GENETIC TESTING FOR INHERITED MUTATIONS OR SUSCEPTIBILITY TO CANCER OR OTHER CONDITIONS MED207.110 COVERAGE: Pre- and post-genetic test counseling may be eligible for coverage in addition to the genetic

More information

BREAST CANCER AWARENESS FOR WOMEN AND MEN by Samar Ali A. Kader. Two years ago, I was working as a bedside nurse. One of my colleagues felt

BREAST CANCER AWARENESS FOR WOMEN AND MEN by Samar Ali A. Kader. Two years ago, I was working as a bedside nurse. One of my colleagues felt Ali A. Kader, S. (2010). Breast cancer awareness for women and men. UCQ Nursing Journal of Academic Writing, Winter 2010, 70 76. BREAST CANCER AWARENESS FOR WOMEN AND MEN by Samar Ali A. Kader Two years

More information

Fertility and breast cancer treatment

Fertility and breast cancer treatment Fertility and breast cancer treatment This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman s fertility and possible ways

More information

1in3 WHAT WE DO. Our vision is to bring forward the day when all cancers are cured.

1in3 WHAT WE DO. Our vision is to bring forward the day when all cancers are cured. cruk.org WHAT WE DO Our vision is to bring forward the day when all cancers are cured. Thousands of people are alive today thanks to research. Animal studies have played an important part in this progress.

More information

JESSE HUANG ( 黄 建 始 ),MD,MHPE,MPH,MBA Professor of Epidemiology Assistant President

JESSE HUANG ( 黄 建 始 ),MD,MHPE,MPH,MBA Professor of Epidemiology Assistant President Breast Cancer Epidemiology i in China JESSE HUANG ( 黄 建 始 ),MD,MHPE,MPH,MBA Professor of Epidemiology Assistant President Chinese Academy of Medical Sciences Peking Union Medical College Medical Center

More information

Do I really need critical illness cover? A guide to protect against the financial impact of a critical illness

Do I really need critical illness cover? A guide to protect against the financial impact of a critical illness Do I really need critical illness cover? A guide to protect against the financial impact of a critical illness What's inside 2 Cancer survival rates 5 Survival rates are improving 6 Coping with a critical

More information

Hysterectomy for womb cancer

Hysterectomy for womb cancer Gynaecology Oncology Service Hysterectomy for womb cancer April 2014 Great Staff Great Care Great Future INTRODUCTION This leaflet has been produced to provide you with general information about your operation.

More information

A guide to prostate cancer clinical trials

A guide to prostate cancer clinical trials 1 A guide to prostate cancer clinical trials In this fact sheet: What is a clinical trial? Why are trials done? What are trials looking into at the moment? How are clinical trials done? Should I take part

More information

There are many different types of cancer and sometimes cancer is diagnosed when in fact you are not suffering from the disease at all.

There are many different types of cancer and sometimes cancer is diagnosed when in fact you are not suffering from the disease at all. About Cancer Cancer is a disease where there is a disturbance in the normal pattern of cell replacement. The cells mutate and become abnormal or grow uncontrollably. Not all tumours are cancerous (i.e.

More information

PSA Testing for Prostate Cancer An information sheet for men considering a PSA Test

PSA Testing for Prostate Cancer An information sheet for men considering a PSA Test PSA Testing for Prostate Cancer An information sheet for men considering a PSA Test What is the aim of this leaflet? Prostate cancer is a serious condition. The PSA test, which can give an early indication

More information

abortion your questions answered

abortion your questions answered abortion your questions answered About Marie Stopes International Marie Stopes International is a specialist reproductive healthcare organisation and a registered charity working in both the UK and overseas.

More information

IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. your guide to

IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. your guide to your guide to Helping you choose the method of contraception that is best for you IUD he the the the 2 3 The intrauterine device (IUD) An IUD is a small plastic and copper device that is put into your

More information

Testing for Prostate Cancer. Should I be tested? Is it the right choice for me?

Testing for Prostate Cancer. Should I be tested? Is it the right choice for me? Testing for Prostate Cancer Should I be tested? Is it the right choice for me? Prostate cancer affects many men. There are tests to find it early. There may be benefits and risks with testing. Research

More information

The Hereditary Colorectal Cancer Website has been sponsored by the Robert Rauschenberg Foundation

The Hereditary Colorectal Cancer Website has been sponsored by the Robert Rauschenberg Foundation Introduction The Hereditary Colorectal Cancer Website has been sponsored by the Robert Rauschenberg Foundation Hereditary nonpolyposis colorectal cancer (HNPCC) syndrome was first described over 100 years

More information

1. Study title Is the title self explanatory to a layperson? If not, a simplified title should be included.

1. Study title Is the title self explanatory to a layperson? If not, a simplified title should be included. These guidelines apply to all research projects where human subjects are involved in the study GUIDELINES FOR RESEARCHERS PATIENT INFORMATION SHEET & CONSENT FORM The guidance, which follows, applies primarily

More information

Section 8» Incidence, Mortality, Survival and Prevalence

Section 8» Incidence, Mortality, Survival and Prevalence Section 8» Incidence, Mortality, Survival and Prevalence 8.1. Description of Statistics Reported This section focuses on the regional distribution of cancer with data derived from the BC Cancer Registry

More information

Ovarian Cystectomy / Oophorectomy

Ovarian Cystectomy / Oophorectomy Cystectomy and Ovarian Cysts Ovarian cysts are sacs filled with fluids or pockets located on or in an ovary. In some cases, these cysts need to be removed surgically. Types of Cysts Ovarian cysts are quite

More information

Prostate Cancer Screening. A Decision Guide

Prostate Cancer Screening. A Decision Guide Prostate Cancer Screening A Decision Guide This booklet was developed by the U.S. Department of Health and Human Services, Centers for Disease Control and Prevention (CDC). Is screening right for you?

More information

Deciding whether to become a parent

Deciding whether to become a parent Deciding whether to become a parent This information is an extract from the booklet, Relationships, sex and fertility for young people affected by cancer. You may find the full booklet helpful. We can

More information

BRCA in Men. Mary B. Daly,M.D.,Ph.D. June 25, 2010

BRCA in Men. Mary B. Daly,M.D.,Ph.D. June 25, 2010 BRCA in Men Mary B. Daly,M.D.,Ph.D. June 25, 2010 BRCA in Men Inheritance patterns of BRCA1/2 Cancer Risks for men with BRCA1/2 mutations Risk management recommendations for men with BRCA1/2 mutations

More information

Number. Source: Vital Records, M CDPH

Number. Source: Vital Records, M CDPH Epidemiology of Cancer in Department of Public Health Revised April 212 Introduction The general public is very concerned about cancer in the community. Many residents believe that cancer rates are high

More information

IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD the IUD. the IUD. the the IUD. the IUD. the IUD. the IUD. the IUD. the IUD.

IUD. the IUD. the IUD. the IUD. the IUD. the IUD. the IUD the IUD. the IUD. the the IUD. the IUD. the IUD. the IUD. the IUD. the IUD. your guide to Helping you choose the method of contraception that is best for you I the IUD 2 3 The intrauterine device (IUD) An IUD is a small plastic and copper device that is put into your uterus (womb).

More information

UNDERSTANDING OVARIAN CANCER DVD INSIDE. featuring. Shannon Miller. Olympic Gold Medalist and Cancer Survivor SGO

UNDERSTANDING OVARIAN CANCER DVD INSIDE. featuring. Shannon Miller. Olympic Gold Medalist and Cancer Survivor SGO UNDERSTANDING OVARIAN CANCER featuring Shannon Miller Olympic Gold Medalist and Cancer Survivor DVD INSIDE SGO Contents 3 Introduction 4 About Ovarian Cancer 6 Risk Factors for Ovarian Cancer 9 Symptoms

More information

Follow-up care plan after treatment for breast cancer. A guide for General Practitioners

Follow-up care plan after treatment for breast cancer. A guide for General Practitioners Follow-up care plan after treatment for breast cancer A guide for General Practitioners This leaflet provides information for GPs on the follow-up care required by women who had breast cancer. It is for

More information

PEC 101. (c) PT&A HEALTH September, 2012 1

PEC 101. (c) PT&A HEALTH September, 2012 1 PEC 101 (c) PT&A HEALTH September, 2012 1 Why do we need to be concerned about PECs? The legislation (and contracts) concerned with general insurance requires people to disclose if there are any circumstances

More information

The RADICALS trial Radiotherapy Timing Randomisation (RADICALS-RT) Clinical trial of treatment after surgery for prostate cancer

The RADICALS trial Radiotherapy Timing Randomisation (RADICALS-RT) Clinical trial of treatment after surgery for prostate cancer Stoke Mandeville Hospital Mandeville Road Aylesbury Buckinghamshire HP21 8AL Tel: 01296 315 908 www.buckshealthcare.nhs.uk The RADICALS trial Radiotherapy Timing Randomisation (RADICALS-RT) Clinical trial

More information

Cancer research in the Midland Region the prostate and bowel cancer projects

Cancer research in the Midland Region the prostate and bowel cancer projects Cancer research in the Midland Region the prostate and bowel cancer projects Ross Lawrenson Waikato Clinical School University of Auckland MoH/HRC Cancer Research agenda Lung cancer Palliative care Prostate

More information

Heavy menstrual bleeding and what you can do about it!

Heavy menstrual bleeding and what you can do about it! Heavy menstrual bleeding and what you can do about it! The intrauterine system as an alternative to hysterectomy. What is heavy menstrual bleeding? Do I have it? A woman s menstrual periods are considered

More information

PSA Screening for Prostate Cancer Information for Care Providers

PSA Screening for Prostate Cancer Information for Care Providers All men should know they are having a PSA test and be informed of the implications prior to testing. This booklet was created to help primary care providers offer men information about the risks and benefits

More information

Breast Cancer. CSC Cancer Experience Registry Member, breast cancer

Breast Cancer. CSC Cancer Experience Registry Member, breast cancer ESSENTIALS Breast Cancer Take things one step at a time. Try not to be overwhelmed by the tidal wave of technical information coming your way. Finally you know your body best; you have to be your own advocate.

More information

co-sponsored by the Health & Physical Education Department, the Health Services Office, and the Student Development Center

co-sponsored by the Health & Physical Education Department, the Health Services Office, and the Student Development Center Cancer is a group of more than 100 related diseases. Normally, cells grow and divide to produce more cells to keep the body healthy. Sometimes, this process goes wrong. New cells form when the body doesn

More information

The menopausal transition usually has three parts:

The menopausal transition usually has three parts: The menopausal transition usually has three parts: Perimenopause begins several years before a woman s last menstrual period, when the ovaries gradually produce less estrogen. In the last 1-2 years of

More information

Duchenne muscular dystrophy (DMD)

Duchenne muscular dystrophy (DMD) Duchenne muscular dystrophy (DMD) What is Duchenne muscular dystrophy or DMD? Muscular Dystrophy is a group of inherited muscle disorders, in which muscles weaken over time. Duchenne muscular dystrophy

More information

Department of Gynaecology Early medically induced termination of pregnancy. Information for patients

Department of Gynaecology Early medically induced termination of pregnancy. Information for patients Department of Gynaecology Early medically induced termination of pregnancy Information for patients Medically induced termination of pregnancy In this procedure the termination of pregnancy is brought

More information

Expansion of the Ontario Breast Screening Program (OBSP) to Include Women Aged 30 to 69 at High Risk for Breast Cancer

Expansion of the Ontario Breast Screening Program (OBSP) to Include Women Aged 30 to 69 at High Risk for Breast Cancer To: Physicians, Nurse Practitioners, Genetics Clinics, Hospitals and LHINs Published By: Implementation Branch Date Issued: June 27, 2011 Bulletin #: 10016 Re: Expansion of the Ontario Breast Screening

More information

Genetic Testing for Hereditary Breast and Ovarian Cancer - BRCA1/2 ANALYSIS -

Genetic Testing for Hereditary Breast and Ovarian Cancer - BRCA1/2 ANALYSIS - Genetic Testing for Hereditary Breast and Ovarian Cancer - BRCA1/2 ANALYSIS - January 2005 SCIENTIFIC BACKGROUND Breast cancer is considered to be one of the most prevalent cancer in women. The overall

More information

Ask about your medicines for primary (early) breast cancer

Ask about your medicines for primary (early) breast cancer Ask about your medicines for primary (early) breast cancer Questions to help you get the best from your drug treatments Ask about your medicines for primary (early) breast cancer This guide is to help

More information

Risk stratification for colorectal cancer especially: the difference between sporadic disease and polyposis syndromes. Dr. med. Henrik Csaba Horváth

Risk stratification for colorectal cancer especially: the difference between sporadic disease and polyposis syndromes. Dr. med. Henrik Csaba Horváth Risk stratification for colorectal cancer especially: the difference between sporadic disease and polyposis syndromes Dr. med. Henrik Csaba Horváth Why is risk stratification for colorectal cancer (CRC)

More information

Prevention Checklist for Women

Prevention Checklist for Women Page 1 of 8 Prevention Checklist for Women Great progress has been made in cancer research, but we still don t understand exactly what causes most cancers. We do know that many factors put us at higher

More information

Alcohol and the Liver

Alcohol and the Liver The facts about... Alcohol and the Liver Five key things you need to know This is a part of your body that regularly works overtime. The liver is our largest organ and it has 500 different roles. One of

More information