2 A NOTE TO PARENTS AND GUARDIANS OF CHILDREN WITH HYDROCEPHALUS This coloring book is printed by Integra as a service to the medical community. It was designed to help children with hydrocephalus (and their parents, brothers and sisters) better understand this condition. This coloring book was designed to be read along with an adult who has first reviewed basic information on hydrocephalus. Integra appreciates the efforts of the neurosurgeons, nurses and educators who reviewed the material prior to publication. Their suggestions, comments and criticism are gratefully acknowledged. We have tried to incorporate as many of their suggestions as possible. Comments and suggestions for improving this coloring book will be greatly appreciated.
3 WHAT IS HYDROCEPHALUS AND HOW IS IT TREATED?
4 1 «We ll be going to Dr. Owl tomorrow for your check-up» said Mama Beagle as she helped Barney get ready for bed. «Doctor?» said Barney Beagle. «Again? I m not stick. I feel fine». Mama Beagle said, «There s nothing to worry about. It s just your regular visit».
5 2 The next morning after breakfast, the entire family climbed into the car and were on their way to the doctor. «Be sure to fasten your seat belts», said Mama. «Do you get check-ups, Mama?» asked Barbara Beagle, Barney s sister. «Yes, I do», answered Mama. «However, Barney s check-ups are special».
6 3 «When Barney was born, he was just like any other little puppy, except He had a problem». «Doctors found that in Barney s brain there was a condition called hydrocephalus (hi-dro-sef-a-lus)» said Mama. I m a girl my Name is Cindy I m a boy my Name is Barney
7 4 «The brain is the part of your body that helps you to think and move and feel. It runs the other parts of your body», explained Papa. «Everyone s brain makes a water-like special fluid every day. not too much! not too little! just the right amount!». «The brain keeps making this fluid all the time. Extra fluid goes to other parts of the body where it is used up. Normally, the amount that is made new each day is the amount that is drained away each day».
8 5 «Barney s brain did not drain enough «special fluid». This extra water would push against Barney s brain if the problem had not been corrected», said Mama. Barbara seemed puzzled so Papa gave an example: «This is similar to everyday happenings around the house: When filling a sink, if more water flows in than drains out, the extra water spills over the edge. But inside the skull (the bony part of the head) there is no other «edge» for the extra water to spill over. So, it would stay in the head». «What would happen if the extra water stayed in Barney s head? «asked Barbara.
9 6 «The extra fluid would push against the brain and could cause: headaches vomiting learning problems enlarged head. Of course, these symptoms may have other causes too, but doctors showed that Barney had hydrocephalus» explained Papa.
10 7 «Did Barney do something wrong to cause the problem?» asked Barbara. «Oh, no!» said Mama, «He was born with the condition». «Others may develop hydrocephalus after an accident or infection or as the result of a tumor (a growth that is not formal). Fortunately, doctors can do things to help puppies like Barney», said Papa.
11 8 When Barney was born, his parents loved him very much. They wanted Barney to be happy and healthy like his sister Barbara. So. they asked Dr. Olga Owl to see Barney. Dr. Owl is a neurosurgeon (that s a doctor who treats people who have problems of the brain and nerves).
12 9 The doctor told Barney s parents «I can help your son.» She had taken care of many other cases like Barney s. «In all cases, the treatment is the same: a shunt (or hydrocephalus valve) system is implanted. A shunt is a long, thin tube that looks like a straw» explained Dr. Owl.
13 10 The doctor asked Ms. Deborah Duck, a nurse at the hospital, to explain more about what would happen and to answer any additional questions. «The procedure is called a shunt operation», said Ms. Duck.
14 11 «Here s what will happen: A doctor or nurse will help Barney go to sleep so that it won t hurt. This is not ordinary sleep. It is a special type of sleep. While asleep, a tiny hole is made in the skull. A path, or tunnel, is made under the skin from the head to the area near the tummy or heart. One end of the tube is placed in the water-filled pocket (ventricle) in the center of the brain. The tube is passed through the brain in a region known as the «silent area». The other end is placed in the tummy or heart. The extra water flows through the tube. It flows away from the head to the tummy or heart. A valve between the two ends of the tube makes sure that just the right amount of fluid is drained.»
15 12 «Two or maybe 3 tiny openings are made in the skin. When the doctor has finished, the tiny openings are closed with a special kind of thread, then they are covered with bandages. In a very short time, the tiny openings heal. Since the entire system is placed under the skin, it is hard to tell that it is there. Barney will probably be able to participate in regular activities.»
16 13 «A few days later, the procedure was done and Barney did very well», Mama remembered. «About a week later, Barney was ready to leave the hospital with Dad and me», said Mama. «You came with us, Barbara, when we took Barney home», said Mama. «Do you remember?» «Yes,» replied Barbara. «I remember how tiny Barney was and look how big he s grown.»
17 A VISIT TO THE DOCTOR
18 14 The doctor s waiting room was a very busy place. There were books and magazines to look at and puzzles to do. Barbara started working on a puzzle. Other children were coming in. Children of all ages were there to see Dr. Owl.
19 15 «Next!» called Dr. Owl. «I think you re next, Barney Beagle.» «How are you, Dr. Owl? I m fine!» said Barney. «I m fine, too. It s good to see you Barney» said Dr. Owl. «Please join us, Mrs. Beagle. There are some questions I would like you to answer.»
20 16 Dr. Owl was friendly, but started the examination quickly. She had a lot of puppies to take care of and there was no time to waste. Dr. Owl tested the shunt through the skin by gently pressing the shunt tubing. She looked for signs of increased pressure. She checked the fontanelle or soft spot on the top of Barney s head. It did not bulge. «That s fine», said Dr. Owl. She looked in Barney s eyes. «Fine!» exclaimed the doctor.
21 17 Dr. Owl measured Barney s head. «That s fine,» said the doctor Dr. Owl asked Mrs. Beagle whether Barney had shown any signs of irritability, listlessness or drowsiness lately. «No!» said Mrs. Beagle. «How is Barney doing in scholl?» asked Dr. Owl. «Fine!» replied Mrs. Beagle.
22 18 «As Barney continues to grow, it may be necessary to adjust the system during another operation», said Dr. Owl, «But that may not be for a long time».
23 19 Nurse Duck entered the examining room. Dr. Owl had finished the exam and left to see another patient. «Take care, Mrs. Beagle. Barney is fine.» said Dr. Owl. «Bye, Barney,» said Dr. Owl. «See you in a few months.»
24 20 «Another check-up will be needed in a few months», said the nurse. «Look at the skin over Barney s shunt once in a while to make sure that it isn t red or sore» cautioned Nurse Duck. «If redness or soreness is noted, contact Dr. Owl immediately for instructions. Headaches, irritability, bulging of the soft spot on top of the head may, among other things, be signs of a shunt problem. If you see any of these, you must contact the doctor right away,» said the nurse. «We ll make an appointment for Barney to come back in 3 months.»
25 21 Barney went home with his parents and sister. He continued to grow bigger and stronger. Every few months he visited Dr. Owl and Nurse Duck for check-ups. As he grew, he played with all his friends.
26 22 He went to scholl and got very good marks in some subjects like spelling. He didn t do so well in other subjects, like arithmetic!
27 23 Barney s parents and the doctors and nurses made sure that he got the best possible care. Barney s shunt allowed him to get along as well as possible.
28 24 Just like any other little beagle.
30 For more information or to place an order, please contact: Integra 311 Enterprise Drive, Plainsboro, NJ USA outside USA fax integralife.com Integra and the Integra logo are trademarks of Integra LifeSciences Corporation Integra LifeSciences Corporation. All rights reserved. Printed in the USA NS539 11/04
When Jeremy Jones Stomach Stopped Working A Story for Children With G-Tubes Written by Anne E. Reckling, PsyD Illustrated by Tim O Halloran A Note to Parents and Professionals: When Jeremy Jones Stomach
159 CHAPTER11 Taking Out a Tooth Not every painful tooth needs to come out. You must decide how serious the problem is, and then decide if you can treat and save the tooth. Some problems such as root canal
Clinical Trials: What You Need to Know Clinical trials are studies in which people volunteer to test new drugs or devices. Doctors use clinical trials to learn whether a new treatment works and is safe
Protect Your Family TB and Friends from TUBERCULOSIS The TB Contact Investigation What s Inside: Read this brochure today to learn how to protect your family and friends from TB. Then share it with people
When a parent has cancer: how to talk to your kids A guide for parents with cancer, their families and friends Acknowledgements Cancer Council Western Australia gratefully acknowledges Cancer Council NSW
It s My Choice... Minnesota Governor s Council on Developmental Disabilities It s My Choice by William T. Allen, Ph.D. William T. Allen Allen, Shea & Associates 1780 Third Street Napa, CA 94559 707. 258.1326
B2 There is much growth and change that must occur in your baby s body. For babies born full-term (37-40 weeks), this growth and change occurred within the warm, dark, watery womb. For the premature baby,
A guide for parents and family members about talking to children of any age Telling Grace was one of the worst things I had to do how do you explain cancer to an eight-year-old? I think she was glad we
PARTNERING WITH YOUR DOCTOR: A Guide for Persons with Memory Problems and Their Care Partners Alzheimer s Association Table of Contents PARTNERING WITH YOUR DOCTOR: When is Memory Loss a Problem? 2 What
Alabama Cooperative Extension System, Alabama A&M and Auburn Universities HE-687 PRINCIPL E S OF Something Better Than Punishment When we think of discipline, we may think of threats and punishment. They
MIGRAINE ADVICE FOR 7 TO 12 YEAR OLDS You are not alone seven out of every ten children in your school will probably have had a headache at some time What is your headache like? If you are reading this
How to Study Mathematics Written by Paul Dawkins Before I get into the tips for how to study math let me first say that everyone studies differently and there is no one right way to study for a math class.
S E R V I N G C A N A D I A N S What happens next? information for kids about separation and divorce This booklet has been prepared by the Department of Justice, Government of Canada for general purposes
When a parent has cancer: how to talk to your kids A guide for parents with cancer, their families and friends. When a parent has cancer: how to talk to your kids A guide for parents with cancer, their
Questions and Answers About Tuberculosis 2014 Questions and Answers About Tuberculosis 2014 Questions and Answers About Tuberculosis ( TB) was written to provide information on the diagnosis and treatment
Affirming Life what is a palliative approach? a guide for family and friends with loved ones in aged care 1 Acknowledgements Many people and organisations have collaboratively contributed to the development
p T w o T h a n k s g i v i n g D a y G e n t l e m e n THERE IS ONE DAY THAT IS OURS. THERE IS ONE day when all Americans go back to the old home and eat a big dinner. Bless the day. The President gives