Support Groups. Rheumatoid Arthritis
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- Leslie Joseph
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1 Support Groups Greater NY, Dutchess, Orange, Putnam, Richmond, Rockland, Sullivan, Ulster & Greater NY, Dutchess, Orange, Putnam, Richmond, Rockland, Sullivan, Ulster Westchester Counties Westchester Counties General Arthritis American Chronic Pain Association Support Group Phone: Contact: American Chronic Pain Association Location: Bronx County: Bronx Arthritis Support Group Contact: Karen Ager Location: NY,NY Additional Info: Meets every two months Chronic Pain Telephone Support Group Contact: Chronic Pain Outreach Center Phone: Additional Info: Can register via phone for Afternoon or Evening calls that are led by a Licensed Social Worker. There is no charge for participating, but standard long distance rates apply to the call. Arthritis Support Group Contact: Joyce Lemon Phone: Location: 324 East 23 rd Street Between 1 st and 2 nd Ave Additional Info: Educational Series held every 3 rd Thursday of the month. People Living with Chronic Physical Illness Contact: David B. Younger Phone: david@dbyounger.com Location: 1225 Park Avenue, Suite 1S Early RA Patient Education and Support Contact: Joan Westreich Phone: westreichj@hss.edu Rheumatoid Arthritis Living with RA: Lecture, Lunch and Conversation Contact: Adena Batterman Phone: battermana@hss.edu
2 Richard L. Menschel Education Center, 2 nd Floor Additional Info: Participants meet for a free, 4 session series which presents essential information about RA and RA treatment. Following each lecture, discussion with others also coping with a new RA diagnosis is facilitated by the social work coordinator and a rheumatology nurse. Registration is required. 2 nd Floor Conference Center, 2 nd Floor Additional Info: This monthly group program provides education and support for people with moderate to severe rheumatoid arthritis and their family members and friends. Lectures by rheumatoid arthritis care experts are followed by discussion facilitated by a clinical social worker and rheumatology nurse Osteoporosis Support Group Contact: Robyn Wiesel Phone: NY,NY Additional Info: Please call in advance to ensure entry into the support group. This program meets the first Thursday of each month. Osteoporosis Awareness Group Contact: Susan Phone: Location: Burke Rehabilitation Center Billings Building #4 785 Mamaroneck Avenue White Plains, NY County: Westchester Additional Info: First Monday of even months from 7-9pm. Free with guest speakers. Osteoporosis Osteoporosis Club Contact: New York State Osteoporosis Prevention and Education Program Phone: Address: Noyes Conference Center North Route 9W West Haverstraw, NY County: Rockland Additional Info: Meetings are usually held on the fourth Tuesday of each month in the Noyes Conference Center from 10:00-11:00 am Lupus Chat Group for Teens and Parents Contact: Lilian Mendez Phone: East 79 th Street Lupus Lupus Cooperative of New York, Day and Evening Groups- Bronx Contact: Yasmin Santiago Phone: BxLupusCoop@lupusny.org Location: Urban Health Plan, Inc Southern Boulevard, 1st Floor
3 Additional Info: This is a monthly in-person chat group for teens (14 to 18) who have lupus and their parents. Both groups meet the third Thursday of each month from 6pm to 8pm at alternating hospital sites in New York City. Lupus Cooperative of New York Group, Day and Evening Groups- Brooklyn Contact: Tayumika Zurita Phone: BklynLupusCoop@lupusny.org Location: (Day groups) Long Island University 9 Hanover Place, 2nd Floor Brooklyn, NY Location: (Evening Groups) LIU Wellness & Recreation Center 161 Ashland Place Lower Level Conference Room Brooklyn, NY County: Brooklyn Additional Info: Day- Tuesdays once a month. Evening- Tuesdays once a month. Lupus Alliance Contact: Paula Goldstein Phone: Location: Queens and Long Island (East Meadow and Hauppauge) County: Queens, Suffolk and Nassau Additional Info: Need to belong to Lupus Alliance. Held once a month on Tuesday evenings from 7:30pm 9:00pm. Charla de Lupus (Lupus Chat) Contact: Lillian Mendez Phone: mendezl@hss.edu Richard Menschel Conference Center 535 East 70th Street Helpline: Additional Info: National peer health education program staffed by trained volunteers who are Bronx, NY County: Bronx Additional Info: Day- Thursdays once a month. Evening- Wednesdays once a month S.L.E Lupus Foundation, Day and Evening Groups- Manhattan Contact: Jessica Rowshandel Phone: ext jrowshandel@lupusny.org Location: 330 Seventh Avenue, Suite 1701 New York, NY Between West 28th and West 29 th Street Additional Info: Required RSVP. Days vary. S.L.E. Workshop Contact: Roberta Horton Phone: hortonr@hss.edu Richard Menschel Conference Center Additional Info: Meets from September to April on the fourth Thursday of every month from 12-2pm. LupusLine Contact: Jillian Rose Phone: rosej@hss.edu Helpline: , outside NYC (toll-free) Additional Info: A national telephone peer counseling service staffed by trained volunteers who are lupus veterans, or family members. Callers are screened and matched by the program coordinator for the convenience of those wanting one-to-one support by telephone appointment from home.
4 lupus veterans. Services are provided in person at area hospitals or via helpline which is open 9-am- 5pm, EST weekdays. S.L.E. Lupus Foundation, Evening group- Harlem Contact: Jessica Rowshandel Phone: ext Location: Minisink Townhouse 646 Malcolm X Blvd Harlem, NY LANtern (Lupus Asian Network) Contact: My-Lan Tran Phone: (212) or (866) tranm@hss.edu Location: County: Manhattan Additional Info: Provide lupus peer support and education for the Asian American Community. Offers culturally relevant bilingual resources developed by the program. Pediatric Lupus Support Group Contact: Corinna Bowser or Jack Moallem Phone: or Location: SUNY Downstate Medical Center 450 Clarkson Avenue, Room B4-462 (Pediatric Library, 4th floor) Brooklyn, NY County: Brooklyn Additional Info: This support group for patients 11 to 21 years old (adults welcome as well) meets the 4th Wednesday of every month, from 5 p.m. to 6 p.m. New York City Living & Coping with Lupus Support Group 17thstgroup@gmail.com Location: NYU Hospital for Joint Diseases 301 East 17th Street at 2nd Avenue 14th Floor Board Room County: Manhattan Additional Info: Meets monthly on Wednesdays at 7:00-8:30 PM. Living A Healthier Lifestyle Fibromyalgia/Chronic Pain Physical Therapy at Briarcliff Contact: Meryle Richman Phone: (914) x meryle@ptrehab.com Location:584 North State Road Briarcliff Manor, New York Upper Conference Room County: Westchester Additional Info: Meets the 1st Tuesday of each month 5:30 6:30 PM Fibromyalgia Autoimmune Support Group Contact: Mary McQuillan Phone: mzalgae@aol.com Location: Goshen Acupuncture & Massage 26 Scotchtown Avenue Goshen, NY County: Orange Additional Info: First Tues of Month. 1-2pm Scleroderma Support Group Contact: Scleroderma Foundation Phone: Scleroderma
5 Additional Info: Meets the first Wednesday of each month Myositis Support Group Contact: Suzan Fischbein Phone: nd Floor Conference Center, Room A Additional Info: This groups mission is to enhance coping, reduce isolation, and increase understanding of the inflammatory myopathies by creating a community for mutual support an education. Meetings are held on the 2 nd Wednesday of every month, 6-8 pm. Other Español Brooklyn Contactar: Taimaka Zurita (718) Bronx Contactar: Yasmin Santiago (718) o ehlupuscoop@aol.com Lupus Manhattan (Washington Heights) Contactar: Jessica Rowshandel (212) ext. 32 o jrowshandel@lupusny.org. (Upper East Side ) Contactar: Robert Horton (212) Contactar: Lillian Mendez (212) *By providing this list, the Arthritis Foundation does not imply an endorsement of these services
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