Questions to Ask to Make Informed Treatment Decisions Wednesday, March 12, 2014

Transcription

1 Questions to Ask to Make Informed Treatment Decisions Wednesday, March 12, :00 PM to 2:00 PM Eastern 12:00 PM to 1:00 PM Central 11:00 AM to 12:00 PM Mountain 10:00 AM to 11:00 AM Pacific Dear Registrant: On behalf of The Leukemia & Lymphoma Society, thank you for registering for the upcoming free web education program, Questions to Ask to Make Informed Treatment Decisions, with featured speaker Gail J. Roboz, MD. We are pleased you will join us for this program, supported by a grant from Millennium: The Takeda Oncology Company. To join this free program, log-in to the following link 15 minutes prior to the start time. Included in this PDF you will find: 1. Program Agenda 2. Dr. Roboz's Biography 3. Program Evaluation: for patients and caregivers ( 4. Continuing Education Activity Evaluation: for nurses and social workers only ( 5. Flyer: Booklets & Fact Sheets and Supporting You and Your Loved Ones 6. Flyer: LLS Information Specialists/Clinical Trials and Advocacy Brochure* 7. Flyer: Telephone and Web Education Programs and Online Chats 8. Flyer: Web Education Videos 9. Flyer: Questions to Ask Your Healthcare Provider About Treatment Options 10. Flyer: Here to Help* 11. Brochure: Patti Robinson Kaufmann First Connection Program 12. LLS Education Publications Catalog *Available in English and Spanish Presentation slides will be available the day of the program by visiting (Under the program listing, please click read more to view the slides.) If you have any questions about the PDF materials, please call toll-free (866) , ext To download or order the free education materials, please visit For additional information on this or other programs and services offered by The Leukemia & Lymphoma Society, please call an LLS Information Specialist toll-free at (800) LLS is staffed with master s level social workers, nurses and health educators to assist you. We look forward to your participation in this program. Sincerely, Lauren Berger, MPH Senior Director, Patient & Professional Education The Leukemia & Lymphoma Society TL

2 Questions to Ask to Make Informed Treatment Decisions Wednesday, March 12, :00 PM to 2:00 PM Eastern 12:00 PM to 1:00 PM Central 11:00 AM to 12:00 PM Mountain 10:00 AM to 11:00 AM Pacific AGENDA 12:45 PM 1:00 PM ET Registrants join the program: Log in: 1:00 PM 1:05 PM ET Welcome and Introductions Lauren Berger, MPH Senior Director, Patient & Professional Education The Leukemia & Lymphoma Society 1:05 PM 1:35 PM ET Presentation Gail J. Roboz, MD Director, Leukemia Program Associate Professor of Medicine Weill Medical College of Cornell University NewYork-Presbyterian Hospital New York, NY 1:35 PM 1:58 PM ET Question and Answer Session 1:58 PM 2:00 PM ET Summary and Conclusion Lauren Berger, MPH Information you need to make informed treatment decisions Understanding goals of treatment for your diagnosis What to consider when reviewing options for standard treatment and clinical trials The importance of open communication with your healthcare team TL

3 Gail J. Roboz, MD Director, Leukemia Program Associate Professor of Medicine Weill Medical College of Cornell University NewYork-Presbyterian Hospital New York, NY Gail J. Roboz, MD, is Associate Professor of Medicine and Director of the Leukemia Program at the Weill Medical College of Cornell University and the NewYork-Presbyterian Hospital in New York City. Dr. Roboz graduated summa cum laude from Yale University and received her medical degree from The Mount Sinai School of Medicine in New York, where she was elected to the Alpha Omega Alpha Honor Medical Society and achieved the highest academic standing in the graduating class. She completed an Internship in internal medicine at The Beth Israel Hospital in Boston and Residency in internal medicine at the NewYork-Presbyterian Hospital. Dr. Roboz was a Fellow in hematology and medical oncology at NewYork-Presbyterian Hospital and is board-certified in both specialties. She is a member of the American Society of Hematology and the American Society of Clinical Oncology, for which she serves on the scientific and abstract review committees. Her research interests are in developmental therapeutics for acute leukemia, myelodysplastic syndromes and myeloproliferative disorders. Dr. Roboz is the principal investigator on investigator-initiated and industry-sponsored clinical trials in these areas and has authored or coauthored many manuscripts and abstracts. She sits on the editorial boards of and acts as a reviewer for several journals, including the Journal of Clinical Oncology, and has played an active role as a speaker and panelist at numerous regional, national and international conferences. Dr. Roboz also serves on the Medical Advisory Board of the Aplastic Anemia & MDS International Foundation, Inc.

4 PROGRAM EVALUATION Questions to Ask to Make Informed Treatment Decisions Wednesday, March 12, 2014 Win a $25 Gift Card Please help us to plan future education programs. Complete this form or complete it online at to be entered to win a $25 gift card. (See end of form to complete your entry.) Thank you. 1) Are you a cancer patient/survivor? q Yes q No If you are not a cancer patient/survivor, what is your relationship? q Parent q Spouse q Sibling q Other relative q Partner q Friend q Healthcare professional q Other (please describe) 2) What is your ZIP/Postal code? 3) As a result of participating in this program, to what extent do you agree with the following statements? Completely Disagree Somewhat Disagree Somewhat Agree I am knowledgeable about information needed to make informed treatment decisions I know the goal of treatment for my diagnosis I know what to consider when reviewing options for standard treatment and clinical trials I feel prepared to communicate with my healthcare team Completely Agree 4) I will discuss the following topics presented in this program with my healthcare team: (check all that apply) q Diagnosis q Treatment q Clinical Trials q Side Effects Management q Prognosis q Long-term Effects q Other q None (please explain) 5) Please describe any information you expected to get from this program and did not receive: (Continued on back)

5 6) What is the patient s/survivor s age? q Under 19 q q q q q q 71 or older 7) What is your age, if you are not the patient/survivor? q Under 19 q q q q q q 71 or older 8) What is your gender? q Male q Female 9) How long has it been since the patient/survivor was diagnosed? q Less than 30 days q 1-3 months q 4-7 months q 8-11 months q 1-3 years q 4-7 years q 8-10 years q years q More than 20 years q N/A 10) What treatments have you/the patient had? (check all that apply) q Combination drug therapy (Chemotherapy) q Single drug therapy (IV or oral medication) q Allogeneic stem cell transplant q Autologous stem cell transplant q Reduced-intensity allogeneic stem cell transplantation q Other (please specify) q Surgery q Blood transfusion q Radiation therapy q Erythropoietin q Watch and wait q N/A 11) Are you/the patient enrolled in, currently considering, or a past participant in a clinical trial? q Enrolled in a clinical trial q Considering participation in a clinical trial q Have been a participant in a clinical trial q N/A q Have not considered participation in a clinical trial (please comment): 12) The following materials included in my Registration packet were helpful: (check all that apply) q Program Agenda q Physician s Biography q Program Evaluation q LLS Publications Catalog q Patti Robinson Kaufmann First Connection Brochure q Flyers describing LLS Offerings Comments: 13) Please give us any additional feedback about this program: Complete this section to be entered to win a gift card. Your information will be used for this purpose only. First Name: Last Name: Address: or complete mailing address including ZIP code: If you have additional questions following this program, please contact an LLS Information Specialist toll-free at (800) or infocenter@lls.org. Please return the completed evaluation in the self-addressed stamped envelope provided, or send to: RMEI, LLC, Laurel Office Plaza, Suite 200, 101 Laurel Road, Voorhees, NJ TL

6 Questions to Ask to Make Informed Treatment Decisions Wednesday, March 12, 2014 CE Activity Evaluation For Nurses and Social Workers Only Contact Hours: 1.0 Program Code: (will be provided at the end of the program and is mandatory to earn credit) Please evaluate the activity to receive continuing education credit. Respond to all questions and sign at the end of the form. A certificate of completion will be issued to you via or US mail within 30 days of receipt. Please visit us at to complete this evaluation online OR Return completed form to: LLS, c/o RMEI, LLC, Laurel Office Plaza, Suite 200, 101 Laurel Road, Voorhees, NJ Name and Credentials (Please print clearly): Nurse Social Worker Other: (certificate of completion will be ed): Mailing Address (if is not provided, certificate of completion will be mailed): City: State/Province: ZIP/Postal code: Phone (with area code): Fax (with area code): RN License Number and State*: SW License Number and State*: (*required to receive CE credit) EVALUATION (Please circle the appropriate number) Completely Disagree Somewhat Disagree Somewhat Agree Completely Agree Dr. Roboz was knowledgeable, effective and clear in presenting the material Overall presentation was effective Content was accurate and timely Information was appropriate to my education, experience and licensure level Information presented was relevant to my daily practice Materials were suitable and useful to the session topic Information presented was free from commercial bias Presenter utilized appropriate technology to support participant learning Instructions for asking questions/getting more information were provided Presenter was responsive to participants Location and/or technology and administration of the activity was appropriate to support participant learning Instructions for requesting accommodations for disability were provided on program promotional materials Technology was appropriate to support participant learning Technology was user friendly Technology was responsive Format/course technology was effective overall Questions or problems were addressed timely and effectively

7 After participating in this program, to what extent do you agree with the following statements? Completely Disagree Somewhat Disagree Somewhat Agree Completely Agree I am able to identify the information patients need to make informed treatment decisions I am able to describe to patients how their diagnosis dictates the goals of treatment I am able to explain to patients what to take into consideration when reviewing options for standard treatment and clinical trials I am able to explain the importance of patient-provider communication I plan to educate patients/caregivers about questions they need to ask healthcare professionals regarding blood cancer treatment N/A I plan to discuss clinical trials with patients and caregivers N/A Was there information you hoped to get from this program that you did not receive? o No o Yes (please describe) How long have you been in practice? o Less than 2 years o 2 5 years o 6 10 years o years o More than 20 years What is your primary work setting/responsibility? o Inpatient o Outpatient o Administration/Management o Research/Clinical trials o Other Approximately what percentage of your patient population is being treated for cancer? o 0% 25% o 26% 50% o 51% 75% o 76% 100% Please give us any additional feedback about this program: If you have additional questions following this activity, please contact an LLS Information Specialist toll-free at (800) or infocenter@lls.org. I hereby verify that I participated in this educational activity in its entirety, including this evaluation. Please send me a CE certificate of completion. Participant s Signature (required) Date TL

8 BOOKLETS & FACT SHEETS The Leukemia & Lymphoma Society provides patients, caregivers and healthcare professionals with booklets and fact sheets that cover a variety of blood cancer topics. To order these free publications, please call an LLS Information Specialist at (800) or infocenter@lls.org. You can also download them at La Sociedad de Lucha contra la Leucemia y el Linfoma ofrece a los pacientes, cuidadores y profesionales médicos libritos y hojas de información que abarcan una amplia variedad de temas sobre el cáncer de la sangre. Para pedir publicaciones gratuitas, por favor llame a un especialista en información de La Sociedad de Lucha contra la Leucemia y el Linfoma llamando al (800) , por correo electrónico a infocenter@lls.org, o puede descargarlos de nuestro sitio Web de LLS a TL

9 SUPPORTING YOU AND YOUR LOVED ONES Booklets & Fact Sheets in English and Spanish If you would like to order these or any other free booklets or fact sheets, please call an LLS Information Specialist at (800) or You can also download or order them at TL

10 REACH OUT TO OUR Caregivers Chat Coming Soon!! INFORMATION SPECIALISTS The Leukemia & Lymphoma Society s (LLS) Information Specialists provide patients, families and healthcare professionals with the latest information leukemia,society lymphoma myeloma. The Leukemiaon & Lymphoma Onlineand Chats are free, password-protected, twoour team consists of master s level social workers, hour live sessions for non-hodgkin lymphoma (NHL), chronic myeloid leukemia (CML), myeloma andhealth youngeducators adult survivors. chat is heldbyweekly and is moderated by an nurses and whoeach are available oncology social worker. phone Monday through Friday, 9 am to 6 pm (ET). Online Chats The chats bring survivors together to share experiences and offer mutual support. The moderator's role is determined by the wants and needs of the participants in each group. To register, or for more information, please visit For a complete directory of our patient services programs, contact us at www. LLS.org Sponsored by The Leukemia & Lymphoma Society. CML Chat supported by a grant from Bristol-Myers Squibb. Myeloma and Caregivers Chats supported by grants from ormillennium: The Takeda Oncology Company. (Callers may request a language interpreter.) TrialCheck A Clinical Trial Search Service The Leukemia & Lymphoma Society (LLS) is pleased to offer TrialCheck, a clinical trial search tool*. After answering a few short questions, healthcare professionals, patients and caregivers can immediately access listings of clinical trials for leukemia, lymphoma, myeloma and other blood cancers. Search results show clinical trials targeted to a patient s diagnosis, disease type and stage, and zip code preference. The service is accessed through the LLS website or by calling an LLS Information Specialist at (800) *A cancer clinical clinical trial trial is is aacarefully carefullycontrolled controlledresearch researchstudy studyconducted conducted by doctors to improve the care care and and treatment treatmentof ofcancer cancerpatients. patients. Supported by The The Leukemia Leukemia&&Lymphoma LymphomaSociety Societywith withsponsorship sponsorshipfrom fromcelgene CelgeneCorporation, CorporationMillennium: and The Takeda Oncology Company andcompany. Sanofi US.TrialCheck TrialCheck powered poweredby byeviti eviti Clinical ClinicalTrials. Trials. Millennium: The Takeda Oncology TL1

11 LLS Advocacy! The LLS Office of Public Policy is dedicated to removing barriers to quality, affordable, coordinated care for blood cancer patients. We work to shape and drive policies speeding research and ensuring access to clinical trials and life-saving treatments. Together we can improve the lives of individuals with blood cancers. Join us today. Visit If you would like to order this brochure or any other free publications, please call an LLS Information Specialist at (800) or You can also download them at Para pedir estos u otros libritos gratis, por favor llame a un especialista en información de La Sociedad de Lucha contra la Leucemia y el Linfoma llamando al (800) , por correo electrónico a infocenter@lls.org, o puede descargarlos de nuestro sitio Web de LLS a

12 Telephone and Web Education Programs Upcoming and ongoing programs Myeloma- Update on Treatment and Side Effects Management VIRTUAL LECTURE 1.5 CE Thursday, April 3, :00-2:00PM ET Mantle Cell Lymphoma- Update on Treatment Registration will be available in March. Speaker: Brad Khal, MD LIVE TELEPHONE/WEB 1.0 CE If you missed one of our education programs, you can participate online. Visit to access the programs listed below and more. Living with Myeloma Treatment and Side Effects Management VIRTUAL LECTURE 1.5 CE Living with Slow-Growing Lymphoma Update on CLL VIRTUAL LECTURE 1.5 CE VIRTUAL LECTURE 1.0 CE CML- Living with a Chronic Disease MDS - Diagnosis and Treatment Updates VIRTUAL LECTURE 1.0 CE VIRTUAL LECTURE 1.0 CE Acute Lymphoblastic Leukemia- Understanding Diagnosis & Treatment for Adults VIRTUAL LECTURE 1.5 CE Update: Autologous Stem Cell Transplantation for Lymphoma and Myeloma VIRTUAL LECTURE 1.0 CE 1.5 CE For continuing education programs, visit For programs available in Spanish, visit The following and additional videos are available at Cancer and Your Finances Advances in Blood Cancers: Making NHL & CLL Treatment Decisions Advances in Blood Cancers: Update on CML Advances in Blood Cancers: Update on Treatment for Myelofibrosis Advances in Blood Cancers: Update on Treatment for MDS Paths to Recovery - Stories from Two Blood Cancer Survivors

13 Online Chats The Leukemia & Lymphoma Society Online Chats are free, password-protected, twohour live sessions for chronic myeloid leukemia (CML), non-hodgkin lymphoma (NHL), myeloma, caregivers, and young adult patients/survivors. Each chat is held weekly and is moderated by an oncology social worker. The chats provide a forum for those impacted by cancer to share experiences and offer mutual support. The moderator s role is determined by the wants and needs of the participants in each group. To register, or for more information, please visit Living with NHL Monday & Wednesday from 8:00 PM 10:00 PM Eastern Time Caregivers Tuesday from 8:00 PM 10:00 PM Eastern Time Living with Myeloma Tuesday from 8:00 PM 10:00 PM Eastern Time Living with CML Tuesday & Thursday from 8:00 PM 10:00 PM Eastern Time YAconnect: Young Adults Living with Leukemia, Lymphoma & Myeloma Tuesday from 8:30 PM 10:30 PM Eastern Time CML Chat supported by a grant from Myeloma and Caregivers Chats supported by a grant from TL

14 FREE WEB EDUCATION VIDEOS Learn about managing fatigue, anxiety, depression, and pain through the experiences of Laura and Todd and their healthcare professionals. Visit to view these programs. Visit or to access upcoming and past free telephone and web education programs. Nurses and social workers can earn CE credit for many of the programs. For additional information on this or other education programs and services offered by The Leukemia & Lymphoma Society, please call an LLS Information Specialist toll-free at (800) or TL

15 Questions to Ask Your Healthcare Provider About Treatment Options Asking your healthcare provider questions at any phase of your treatment will help you take an active role in managing your (or your child s) care. If you do not understand any part of the information your healthcare provider gives you, ask him or her to explain it in another way. Doctor s name Date of appointment or call 1. What are my (my child s) treatment options? What is the goal of the treatment? 5. If I (my child) enrolls in a clinical trial, who will be in charge of my (my child s) treatment? 2. What are the FDA-approved treatments, and are there treatments being studied in clinical trials (study treatments), for my (my child s) diagnosis?* 3. What are the benefits and risks of the treatment(s) available to me (my child)? What are the expected side effects? 4. Is there one treatment option (FDA-approved or study treatment) that you recommend over the others? Please explain. 6. When do you think I (my child) will need to begin treatment? 7. How long will I (my child) be treated and how many treatments will be needed? 8. Will I (my child) need to be hospitalized for all or part of the treatment? * For definitions of an FDA-approved treatment and a clinical trial (study treatment), visit or contact an Information Specialist. 5/12 Page 1 of 2

16 Questions to Ask Your Healthcare Provider About Treatment Options What kind of testing will be done to monitor my (my child s) disease and treatment? How often will testing be needed? 14. If I do not have insurance coverage, how can the healthcare team help me (my child) get treatment? Is there someone I need to speak to for assistance? 10. If I am treated at an out-patient clinic or at the doctor s office, will I be able to drive/get myself home after treatments or will I need someone to assist me? 15. If I m (my child is) getting a study treatment, will I be responsible for paying any treatment-related costs, such as tests, travel or the clinical trial drug(s)? 11. What are the risks if I don t (my child doesn t) get treatment? 12. How will I know if the treatment is effective? What options are available if the treatment is not effective? 13. How do I find out if my insurance will cover the costs of my (my child s) treatment or the study treatment? Who can help answer any medical questions my insurance company or health plan asks? 16. Will the healthcare team continue to check on me (my child) after the treatment is over? If so, for what period of time? 17. I (My child) would like to continue some type of lifelong follow-up care in order to be monitored for long-term and late effects of treatment. Can I (my child) follow up with you? To print additional copies of this question guide, or to print copies of question guides on other topics, go to You may also request that copies be sent to you by contacting an Information Specialist at (800) /12 Page 2 of 2

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19 For additional information about becoming a Patti Robinson Kaufmann First Connection Program peer volunteer or to receive a First Connection match through one of the LLS chapters across the United States and Canada, you can { Contact your LLS chapter. To find your LLS chapter, enter your ZIP Code in the Chapter Finder at { Speak with an Information Specialist at Monday through Friday from 9 am to 6 pm ET. The Leukemia & Lymphoma Society does not provide medical care, medical treatment or medical advice. Patti Robinson Kaufmann First Connection Program For more information, please contact: or: National Office 1311 Mamaroneck Avenue, Suite 310 White Plains, NY Contact our Information Specialists (Language interpreters available upon request) Our Mission: Cure leukemia, lymphoma, Hodgkin s disease and myeloma, and improve the quality of life of patients and their families. LLS is a nonprofit organization that relies on the generosity of individual, foundation and corporate contributions to advance its mission. PS86 50M 11/13 PATTI ROBINSON KAUFMANN

20 Patti Robinson Kaufmann First Connection Program Patti Robinson Kaufmann First Connection Program is a free service of The Leukemia & Lymphoma Society (LLS) that enables patients and their loved ones to connect with a trained peer volunteer who has gone through a similar experience. The program makes an average of 6,000 first connections each year. Before her death from lymphoma in 2008, Patti Robinson Kaufmann was an ardent LLS volunteer, organizer and fundraiser. Connecting patients and families to resources For nearly 10 years, Patti s commitment as a volunteer inspired others to get involved, raised awareness of blood cancers and provided much-needed support for research, patient services and advocacy. Patti was diagnosed with lymphoma in 1997, before LLS launched First Connection. Now that her name has been given to the program, the compassion and comfort Patti extended to others touched by blood cancer continues. LLS First Connection peer volunteers are in a unique position to provide support and community resource information to others facing a similar cancer diagnosis. Patients and their family members are matched with peer volunteers. The match is based on diagnosis, age, gender and other factors that might create a mutual understanding and ease of communication between participants and volunteers. Special understanding from a person who has walked in your shoes If you are a blood cancer patient or a family member of a patient and wish to speak with someone who has been treated for a similar diagnosis, you can request a First Connection match at or you can contact your LLS chapter. Your peer volunteer will then arrange for one or two phone calls or meetings with you at a mutually convenient time and place. The information shared between a trained peer volunteer and a patient or family member is strictly confidential. Support and recognition for LLS volunteers Peer volunteers are needed at every LLS chapter to carry on the important work of First Connection. To become a peer volunteer, you need to { Be a blood cancer survivor (or a family member of a blood cancer survivor) with an interest in, and a commitment to, helping others { Be screened by your LLS chapter for the program { Participate in all First Connection training sessions provided by your LLS chapter { Make a one-year commitment to the program and meet periodically to receive continuing education and training at your LLS chapter. I became a First Connection volunteer to give back and encourage other survivors to have hope. I have spoken with survivors by telephone all over the United States, giving hope, sharing knowledge and learning much at the same time. Wayne Woolever First Connection Volunteer For more information

21 Education Publications Catalog February 15, 2014 The Leukemia & Lymphoma Society (LLS) provides free materials about leukemia, Hodgkin and non- Hodgkin lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative neoplasms to patients, caregivers and healthcare professionals. All materials are reviewed by medical experts. Listings and Index Detailed and easy-to-read materials are arranged by disease, treatment and support topics. An alphabetical index at the end of the catalog lists English- and Spanish-language publications. The catalog is updated semi-monthly. Free Shipping Maximum Order Quantities Materials are shipped free of charge in the United States, its territories and Canada, and in limited quantities to other countries. Healthcare providers may order up to a maximum of 50 copies monthly for redistribution of most booklets and a single copy of each DVD, video or fact sheet. Fact sheets may be duplicated as needed. Four Ways to Order Visit Free Education Materials at PDFs for most publications are on the site. us at infocenter@lls.org Return by mail to Information Resource Center The Leukemia & Lymphoma Society 1311 Mamaroneck Ave White Plains, NY Return by fax (914) Date Name Title/Department Organization Street and PO Box City/State/Zip Phone Number With Area Code ( ) Address

22 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. 1. GENERAL INFORMATION P Annual Report 2013 An overview of LLS programs with an in-depth financial statement. 40 pages QUANTITY Date: 12/13 P Advocacy Brochure Units of 25 Brochure P410RC The role of LLS Public Policy and LLS advocacy network volunteers QUANTITY (1 unit = 25 copies) Date: 9/ Advocacy Brochure - Singles QUANTITY (single copies) Date: 9/13 PS54 Blood Cells/Lymphatic System Chart Chart QUANTITY Date: 02/12 Brochure PS55 Células sanguíneas/el sistema linfático Chart SPANISH QUANTITY Date: 09/12 PS80 Facts pages QUANTITY Date: 09/13 PS13 Blood Cancer Facts 2013 Flyer 2-sided card QUANTITY Date: 08/13 PS28 Información sobre el cáncer de la sangre sided card SPANISH QUANTITY Date: 08/13 PS70 Understanding Leukemia 2. ABOUT LEUKEMIA Describes the four main types of leukemia, symptoms, diagnosis, treatment, and research. 28 pages QUANTITY Date: 08/12 PS77 La leucemia SPANISH PS33 QUANTITY Date: 08/12 28 pages Acute Lymphoblastic Leukemia Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. QUANTITY Date: 02/14 48 pages PS37 Leucemia linfoblástica aguda SPANISH PS62 QUANTITY Date: 04/11 52 pages The ALL Guide: Information for Patients and Caregivers Basics about symptoms, diagnosis, treatment, side effects of treatment, research, resources. 40 pages QUANTITY Date: 02/11 PS84 La guía sobre la ALL: Información para pacientes y cuidadores SPANISH PS32 QUANTITY Date: 04/11 40 pages Acute Myeloid Leukemia Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. QUANTITY Date: 12/11 52 pages PS68 Leucemia mieloide aguda SPANISH QUANTITY Date: 01/12 52 pages - 1 -

23 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. PS66 The AML Guide: Information For Patients And Caregivers Basics about symptoms, diagnosis, treatment, side effects of treatment, research, resources. 35 pages QUANTITY Date: 03/12 PS69 La guía sobre la AML: Informacion para pacientes y cuidadores SPANISH PS34 QUANTITY Date: 03/12 35 pages Chronic Lymphocytic Leukemia Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. 41 pages QUANTITY Date: 12/11 PS24 Leucemia linfocitica cronica SPANISH PS48 QUANTITY Date: 03/12 44 pages The CLL Guide. Information for Patients and Caregivers Basics about symptoms, diagnosis, treatment, side effects of treatment, research, resources. 31 pages QUANTITY Date: 02/12 PS25 La guia sobre la CLL. Informacion para pacientes y cuidadores SPANISH PS31 QUANTITY Date: 04/12 31 pages Chronic Myeloid Leukemia Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. 44 pages QUANTITY Date: 5/12 PS75 Leucemia mieloide cronica SPANISH PS72 QUANTITY Date: 07/12 44 pages The CML Guide. Information for Patients and Caregivers Basics about symptoms, diagnosis, treatment, side effects of treatment, research, resources. 35 pages QUANTITY Date: 05/12 PS73 La guía sobre la CML. Información para pacientes y cuidadores SPANISH PS71A QUANTITY Date: 07/12 35 pages CML Tracker Pages Tool to help patients keep track of appointments, questions for your doctor, medications, side effects, test results and notes. QUANTITY Date: 01/08 FACT SHEETS LEUKEMIA Detailed disease descriptions, symptoms, diagnosis, treatments, research and resources. FS16 Hairy Cell Leukemia Facts Date: 10/13 5 pages FS16S Leucemia de celulas peludas Date: 12/13 5 pages SPANISH FS17 Chronic Myelomonocytic Leukemia (CMML) and Juvenile Myelomonocytic 11 pages Leukemia (JMML) Date: 12/08 FS17S Leucemia mielomonocitica cronica (CMML) y leucemia mielomonocitica juvenil 11 pages SPANISH (JMML) Date: 12/08 Insert FACT SHEETS - MYELOPROLIFERATIVE NEOPLASMS Detailed disease descriptions, symptoms, diagnosis, treatments, research and resources. FS12 Essential Thrombocythemia Facts Date: 06/12 6 pages FS12S Trombocitemia esencial or primaria Date: 06/12 8 pages SPANISH FS14 Myelofibrosis Facts Date: 04/12 8 pages FS14S Información sobre la mielofibrosis Date: 07/12 8 pages SPANISH - 2 -

24 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. FS13 Polycythemia Vera Facts Date: 06/12 6 pages FS13S Información sobre la policitemia vera Date: 08/12 6 pages SPANISH 3. ABOUT LYMPHOMA PS57 Hodgkin Lymphoma Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. 40 pages QUANTITY Date: 12/13 PS59 Linfoma de Hodgkin SPANISH QUANTITY Date: 06/11 47 pages PS56 Know Your NHL Subtype Brochure to help patients make the connection between knowing their specific NHL subtype Brochure and getting the best available treatment. QUANTITY Date: 11/12 PS52 Conozca el subtipo de NHL que tiene SPANISH QUANTITY Date: 11/12 Brochure PS58 Non-Hodgkin Lymphoma Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. 52 pages QUANTITY Date: 12/13 PS61 Linfoma no Hodgkin SPANISH QUANTITY Date: 02/14 52 pages PS50 The Lymphoma Guide. Information for Patients and Caregivers Basics about symptoms, diagnosis, treatment, side effects of treatment, research, 44 pages resources. QUANTITY Date: 12/13 PS63 La guía sobre el linfoma. Informacion para pacientes y cuidadores SPANISH QUANTITY Date: 02/14 44 pages FACT SHEETS LYMPHOMAS Detailed disease descriptions, symptoms, diagnosis, treatments, research and resources. FS5 Cutaneous T-Cell Lymphoma Facts Date: 10/11 9 pages FS5S Información sobre el linfoma cutáneo de células T Date: 11/11 9 pages SPANISH FS4 Mantle Cell Lymphoma Facts Date: 07/12 8 pages FS4S Información sobre el linfoma de células del manto Date: 09/12 8 pages SPANISH FS25 Peripheral T-Cell Lymphoma Facts Date 03/12 7 pages FS25S Información sobre el linfoma periféricode células T Date 11/10 10 pages SPANISH FS20 Waldenström Macroglobulinemia Facts Date: 1/12 11 pages FS20S Información sobre la macroglobulinemia de Waldenström Date: 03/12 10 pages SPANISH 4. ABOUT MYELOMA PS39 PS29 Myeloma Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. 44 pages QUANTITY Date: 05/13 Mieloma QUANTITY Date: 08/13 44 pages SPANISH - 3 -

25 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. PS49 The Myeloma Guide. Information for Patients and Caregivers Basics about symptoms, diagnosis, treatment, side effects of treatment, research, resources. 31 pages QUANTITY Date: 06/13 PS42 La guía sobre el mieloma. Información para pacientes y cuidadores SPANISH QUANTITY Date: 08/13 31 pages 5. ABOUT MYELODYSPLASTIC SYNDROMES (MDS) PS22 Myelodysplastic Syndromes Details about symptoms, subtypes, diagnosis, treatment, side effects, research, resources. 41 pages QUANTITY Date: 06/11 PS23 Sindromes mielodisplasicos SPANISH QUANTITY Date: 07/11 41 pages 6. ABOUT TREATMENT PS40 Blood and Marrow Stem Cell Transplantation Details about stem cell transplants, donor matching, treatment of potential complications. 52 pages PS65 QUANTITY Date: 01/13 Trasplante de celulas madre sanguineas y de medula osea SPANISH QUANTITY Date: 05/13 52 pages PS44 Blood Transfusion Information on blood cells, safety issues, potential complications and blood donation. 20 pages QUANTITY Date: 07/11 PS21 Knowing All Your Treatment Options. Facts for Patients and Caregivers 13 pages BILINGUAL Conozca todas susopciones de tratamiento. Información para pacientes y cuidadores PS12 English-Spanish booklet with information to help you talk with your doctor about all of your treatment options. QUANTITY Date: 10/10 Understanding Clinical Trials for Blood Cancers How clinical trials are planned, organized and monitored, study types, safety, eligibility. 20 pages QUANTITY Date: 02/12 PS11 Los ensayos clínicos para el cáncer de la sangre 21 Pages SPANISH QUANTITY Date: 10/12 PS43 Understanding Side Effects of Drug Therapy Questions to ask your healthcare team and common side effects and their management.. QUANTITY Date: 01/13 44 pages PS76 Efectos secundarios de la farmacoterapia SPANISH QUANTITY Date: 05/13 44 pages PS41 Understanding Lab and Imaging Tests Information about blood cell counts, diagnostic and prognostic tests, questions to ask. 43 pages QUANTITY Date: 12/12 PS53 Informacion sobre las pruebas de laboratorio y de imagenes SPANISH QUANTITY Date: 4/13 43 pages - 4 -

26 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. FACT SHEETS TREATMENT FS10 Angiogenesis Date: 01/03 10 pages Information on the role of angiogenesis in cancer, and research into drugs that inhibit it. FS6 Choosing a Blood Cancer Specialist or Treatment Center Date: 04/10 10 pages Questions to ask, factors to consider when choosing a specialist or treatment center. FS6S Seleccion de un especialista en cancer de la sangre o de un centro de tratamiento 10 pages SPANISH Date: 02/09 FS2 Cord Blood Stem Cell Transplantation Date: 08/07 9 pages Collection, storage and usage; pros and cons; research; and resources. FS2S Trasplante de celulas madre de la sangre del cordon umbilical Date: 08/07 9 pages SPANISH FS3 Cancer-Related Fatigue Facts Date: 07/09 11 pages Understanding cancer treatment-related fatigue, its causes and management. FS3S Informacion sobre la fatiga relacionada con el cancer Date: 07/09 11 pages SPANISH FS23 Fertility Date: 10/07 11 pages Family planning; options for children & adults before, during & after cancer treatment. FS23S Fertilidad Date: 10/07 11 pages SPANISH FS24 Food and Nutrition Facts Date: 10/13 6 pages Special food and nutrition topics for during and after cancer treatment. FS24S Información sobre los alimentos y la nutrición Date: 12/13 6 pages SPANISH FS9 Immunotherapy Date: 10/09 10 pages The role of immunotherapies for treating blood cancers. FS9S Información sobre la inmunoterapia Date: 10/09 10 pages SPANISH FS8 Integrative Medicine & CAM Therapies Date: 10/09 13 pages How IM/CAM may help to manage symptoms & side effects; selected study results. FS8S Medicina integrativa y terapias complementarias y alternatives Date: 10/09 13 Pages SPANISH FS15 Long-Term/Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts 8 pages Potential effects, quality of life issues, follow-up guidance and resources. Date: 10/12 FS15S Información sobre los efectos a largo plazo y tardíos del tratamiento para la leucemia o el linfoma en los niños Date: 02/13 8 pages SPANISH FS22 Long-Term and Late Effects of Treatment in Adults Facts 6 pages Potential effects, quality of life issues, follow-up guidance and resources. Date: 11/12 FS22S Información sobre los efectos a largo plazo y tardíos del tratamiento en adultos 6 pages SPANISH Date: 02/13 FS19 Pain Management Facts Date: 05/13 10 pages Understanding and managing different types of pain. FS19S Información sobre el manejo del dolor Date: 07/13 10 pages SPANISH FS11 Sexuality and Intimacy Date: 08/09 7 pages Effects of cancer and cancer treatment on sexuality, intimacy and quality of life. FS11S La sexualidad y la intimidad Date: 08/09 7 pages SPANISH - 5 -

27 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. 7. SUPPORT TOPICS PS89 Co-Pay Assistance Program/ Programa de asistencia para copagos BI-LINGUAL PS67 This two-sided bilingual card includes information about LLS' Co-Pay Assistance Program and how to apply. QUANTITY Date: 06/12 Each New Day: Ideas for Coping with Blood Cancers Basic information for coping with the disease and with treatment in daily life. QUANTITY Date: 04/12 2-sided card 31 pages PS27 Cada Dia Nuevo: Consejos para sobrellevar el cancer de la sangre SPANISH PS79 QUANTITY Date: 10/12 31 pages Financial Health Matters Information on private and public health coverage and applying for financial aid. QUANTITY Date: 06/11 29 pages PS81 Asuntos economicos de la atencion medica SPANISH QUANTITY Date: 09/11 29 pages PS504 Here to Help/Aquí Para Ayudar BI-LINGUAL Two-sided bilingual card which includes information about how to reach our Information 2-sided card Specialists and how to find resources on our website. QUANTITY Date: 03/12 PS86 Patti Robinson Kaufmann First Connection Program Brochure This program enables patients and their loved ones to connect with a trained peer volunteer who has gone through a similar experience. QUANTITY Date: 11/13 PS87 Patti Robinson Kaufmann Programa Primera Conexión Brochure SPANISH QUANTITY Date: 11/13 PS45 Service & Support Programs offered by The Leukemia & Lymphoma Society Brochure QUANTITY Date: 06/12 PS38 Servicio y apoyo Brochure SPANISH QUANTITY Date: 06/12 PS85 PS14 8. FOR & ABOUT CHILDREN Back to School Resources Brochure about LLS programs and materials to help manage children s return to school. QUANTITY Date: 12/12 Coping With Childhood Leukemia and Lymphoma Support and guidance for talking to children; explores issues facing families. QUANTITY Date: 04/12 Brochure 24 pages PS15 Como enfrentarse a la leucemia y el linfoma en los ninos SPANISH QUANTITY Date: 10/12 24 pages - 6 -

28 Check the fact sheets and enter the booklet quantities for your order. Visit and click on Free Education Materials to preview booklets and fact sheets. SY781 Kids with cancer are counting on you! (School & Youth Palm Card) Flyer PS36 PS26 PS74 PS51 Features facts on childhood leukemia and lymphoma and describes LLS school and youth programs QUANTITY Date: 08/10 Learning & Living With Cancer: Advocating for your child s educational needs Explains the challenges of school re-entry and laws that protect children s education. 16 pages QUANTITY Date: 2/14 Aprender y vivir con cancer: En defensa de las necesidades educativas de su hijo QUANTITY Date: 02/14 16 pages Pictures of My Journey Activities for kids with cancer Depicts some experiences of children. Includes coloring, games, puzzles, and jokes. QUANTITY Date: 06/07 The Stem Cell Transplant Coloring Book For children undergoing a stem cell transplant. Postcards & door hanger. QUANTITY Date: 10/07 24 pages 20 pages SPANISH SY064 VIDEOS Why Charlie Brown, Why? DVD Charles Schultz s characters help children learn how a recovering child feels. QUANTITY Run Time: 23 minutes SY782 Por que Charlie Brown, por que? DVD SPANISH QUANTITY Run Time: 23 minutes SY065 Why Charlie Brown, Why? VHS QUANTITY Run Time: 23 minutes SY765 Por que Charlie Brown, por que? VHS SPANISH QUANTITY Run Time: 23 minutes - 7 -

29 Visit and click on Free Education Materials to preview booklets and fact sheets. Index English Language Section Date 2013 Annual Report 1. General Information 12/ Advocacy Brochure 1. General Information 09/13 Acute Lymphoblastic Leukemia 2. About Leukemia 02/14 Acute Myeloid Leukemia 2. About Leukemia 12/11 The ALL Guide: Information for Patients and Caregivers 2. About Leukemia 02/11 The AML Guide: Information For Patients And Caregivers 2. About Leukemia 03/12 Angiogenesis fact sheet 6. About Treatment 01/03 Back to School Resources Brochure 8. For & About Children 12/12 Blood and Marrow Stem Cell Transplantation 6. About Treatment 01/13 Blood Cancer Facts 2013 Flyer 1. General Information 08/13 Blood Cells/Lymphatic System Chart 1. General Information 02/12 Blood Transfusion 6. About Treatment 07/11 Cancer-Related Fatigue Facts 6. About Treatment 07/09 Choosing a Blood Cancer Specialist or Treatment Center 6. About Treatment 04/10 Chronic Lymphocytic Leukemia 2. About Leukemia 12/11 Chronic Myeloid Leukemia 2. About Leukemia 05/12 Chronic Myelomonocytic Leukemia (CMML) and Juvenile Myelomonocytic Leukemia (JMML) 2. About Leukemia 12/08 The CLL Guide. Information for Patients and Caregivers 2. About Leukemia 02/12 The CML Guide. Information for Patients and Caregivers 2. About Leukemia 05/12 CML Tracker Pages 2. About Leukemia 01/08 Co-Pay Assistance Program Brochure/ Programa de asistencia para copagos 7. Support Topics 06/12 Coping With Childhood Leukemia and Lymphoma 8. For & About Children 04/12 Cord Blood Stem Cell Transplantation Facts 6. About Treatment 08/07 Cutaneous T-Cell Lymphoma Facts 3. About Lymphoma 10/11 Each New Day: Ideas for Coping with Blood Cancers 7. Support Topics 04/12 Essential Thrombocythemia Facts 2. About Leukemia 06/12 Facts General Information 09/13 Fertility Facts 6. About Treatment 10/07 Food and Nutrition Facts 6. About Treatment 10/13 Financial Health Matters 7. Support Topics 06/11 Hairy Cell Leukemia Facts 2. About Leukemia 10/13 Here to Help/Aquí Para Ayudar 7. Support Topics 03/12-8-

30 Visit and click on Free Education Materials to preview booklets and fact sheets. English Language Section Date Hodgkin Lymphoma 3. About Lymphoma 12/13 Immunotherapy Facts 6. About Treatment 10/09 Integrative Medicine & CAM Therapies 6. About Treatment 10/09 Kids with cancer are counting on you! (School & Youth Palm Card) 8. For & About Children 08/10 Know Your NHL Subtype 3. About Lymphoma 11/12 Knowing All Your Treatment Options. Facts for Patients and Caregivers 6. About Treatment 10/10 Learning & Living with Cancer 8. For & About Children 11/13 Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts 6. About Treatment 10/12 Long-Term and Late Effects of Treatment in Adults Facts 6. About Treatment 11/12 The Lymphoma Guide. Information for Patients and Caregivers 3. About Lymphoma 12/13 Mantle Cell Lymphoma Facts 3. About Lymphoma 07/12 Myelodysplastic Syndromes 5. About MDS 06/11 Myelofibrosis Facts 2. About Leukemia 04/12 Myeloma 4. About Myeloma 05/13 The Myeloma Guide. Information for Patients and Caregivers 4. About Myeloma 06/13 Non-Hodgkin Lymphoma 3. About Lymphoma 12/13 Pain Management Facts 6. About Treatment 05/13 Patti Robinson Kaufmann First Connection Program 7. Support Topics 11/13 Peripheral T-Cell Lymphoma Facts 3. About Lymphoma 03/12 Pictures of my Journey Activities for Kids with Cancer 8. For & About Children 06/07 Polycythemia Vera Facts 2. About Leukemia 06/12 Service & Support Brochure 7. Support Topics 06/12 Sexuality and Intimacy 6. About Treatment 08/09 The Stem Cell Transplant Coloring Book 8. For & About Children 10/07 Understanding Clinical Trials for Blood Cancers 6. About Treatment 02/12 Understanding Lab and Imaging Tests 6. About Treatment 12/12 Understanding Leukemia 2. About Leukemia 08/12 Understanding Side Effects of Drug Therapy 6. About Treatment 01/13 Waldenstrom Macroglobulinemia Facts 3. About Lymphoma 1/12 Why Charlie Brown, Why? (DVD) Why Charlie Brown, Why? (VHS) 8. For & About Children 8. For & About Children - 9 -

31 Visit and click on Free Education Materials to preview booklets and fact sheets. Spanish Language Section Date Aprender y vivir con cancer: En defensa necesidades educativas de su hijo (Learning & Living With Cancer ) Aquí Para Ayudar (Here to Help) Asuntos economicos de la atencion medica (Financial Health Matters) Cada Dia Nuevo: Consejos para sobrellevar el cancer de la sangre (Each New Day: Ideas for Coping with Blood Cancers) Células sanguíneas/el sistema linfático (Blood Cells/Lymphatic System Chart) Como enfrentarse a la leucemia y el linfoma en los ninos (Coping With Childhood Leukemia and Lymphoma) Conozca el subtipo de NHL que tiene (Know Your NHL Subtype) Conozca todas susopciones de tratamiento. Información para pacientes y cuidadores (Knowing All Your Treatment Options. Facts for Patients and Caregivers) Efectos secundarios de la farmacoterapia (Understanding Side Effects of Drug Therapy) Fertilidad (Fertility) Información sobre el cáncer de la sangre 2013 (Blood Cancer Facts 2013 Flyer) Información sobre el linfoma cutáneo de células T (Cutaneous T-Cell Lymphoma) Información sobre el linfoma de células del manto (Mantle Cell Lymphoma Facts) Información sobre el linfoma periféricode células T (Peripheral T-Cell Lymphoma Facts) Informacion sobre la fatiga relacionada con el cancer (Cancer-Related Fatigue Facts) Información sobre la inmunoterapia (Immunotherapy Facts) Información sobre la macroglobulinemia de Waldenström (Waldenström Macroglobulinemia Facts) Información sobre la mielofibrosis (Myelofibrosis Facts) Informacion sobre las pruebas de laboratorio y de imagenes (Understanding Lab and Imaging Tests) Información sobre los alimentos y la nutrición (Food and Nutrition Facts) Información sobre los efectos a largo plazo y tardíos del tratamiento en adultos (Long-Term and Late Effects of Treatment in Adults) Información sobre los efectos a largo plazo y tardíos del tratamiento para la leucemia o el linfoma en los niños (Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma) La guía sobre el linfoma. Información para pacientes y cuidadores (The Lymphoma Guide, Information for Patients and Caregivers) La guía sobre el mieloma. Información para pacientes y cuidadores (The Myeloma Guide. Information for Patients and Caregivers) La guía sobre la ALL: Información para pacientes y cuidadores (The ALL Guide: Information for Patients and Caregivers) La guía sobre la AML: Informacion para pacientes y cuidadores (The AML Guide: Information For Patients And Caregivers) 8. For & About Children 02/14 7. Support Topics 03/12 7. Support Topics 09/11 7. Support Topics 10/12 1. General Information 09/12 8. For & About Children 10/12 3. About Lymphoma 11/12 6. About Treatment 10/10 6. About Treatment 05/13 6. About Treatment 10/07 1. General Information 08/13 3. About Lymphoma 11/11 3. About Lymphoma 09/12 3. About Lymphoma 11/10 6. About Treatment 07/09 6. About Treatment 10/09 3. About Lymphoma 03/12 2. About Leukemia 07/12 6. About Treatment 4/13 6. About Treatment 12/13 6. About Treatment 02/13 6. About Treatment 02/13 3. About Lymphoma 02/14 4. About Myeloma 08/13 2. About Leukemia 04/11 2. About Leukemia 03/