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New Jersey Department of Human Services Division of Developmental Disabilities Overview of Services Clarke Bruno Acting Commissioner

Division of Developmental Disabilities The New Jersey Department of Human Services Division of Developmental Disabilities (DDD) arranges and coordinates needed services to eligible state residents who have severe developmental disabilities. DDD s mission is to assist people with developmental disabilities to live as independently as possible. DDD serves over 36,000 individuals, about half of whom live at home with their families. Of the remaining individuals served, over 7,000 people are in living arrangements funded and licensed by the division. These arrangements are operated by either private agencies or by individuals under contract with DDD. Approximately 3,000 individuals live in one of seven developmental centers operated by the division. The Central Office in Trenton oversees all division operations. All services to the division s consumers are coordinated through the Regional Assistant Director s Offices and Community Services Offices, which are listed at the end of this overview. Eligibility Developmental disabilities begin during the developmental years, before age 22, and are lifelong conditions that affect a person s ability to live without some assistance. Developmental disabilities include: mental retardation, cerebral palsy, autism, epilepsy, spina bifida and neurological impairments that are most often due to traumatic brain injuries occurring during the developmental stages. Developmental disabilities substantially limit the individual in at least three of the following areas: self-care, learning, mobility, communication, self-direction, economic self-sufficiency and the ability to live independently. How to apply To apply for services from DDD, an individual must contact the Community Services Office serving the county in which they live. The Intake Office guides applicants through the application process, makes eligibility and service recommendations, and provides information and referrals. Eligibility determinations are made through eight Community Services Offices. Services The availability of services depends upon current resources and the types of available services vary in each county. A division case manager is assigned to each individual to assist in coordinating services and supports. In addition to case management, DDD provides guardianship services to protect an individual s rights and to ensure that care and treatment are appropriate. DDD also assists parents in becoming legal guardians of their adult children. Other services include: family support, residential services, day programs and supported employment services. Most of these services are provided through contracts with private organizations or individual contractors. Individuals who receive residential services may be required to contribute towards the cost from their disability benefits or other personal resources. 1

, the systems change blueprint announced in the fall of 2002, recognizes the need to better assist families caring for members with developmental disabilities at home. Real Life choices represents a system change that provides services and supports, while reassuring families that - should their needs change - the system will provide for those changing needs. Real Life choices is a multi-year plan which was launched in the fall of 2003, working with families to ensure that they have a personalized and responsive service plan. DDD has four goals for implementing this systems change: Establishing equity in the distribution of resources and services Allowing for more Family and Individual decision-making Allocating comparable resources for comparable levels of need Developing individual budgets based on support needs Also, DDD has partnered with The Family Support Center of New Jersey to offer a Real Life choices Resource Database through the Internet. This directory provides families with information about agencies that have been qualified through DDD to provide services and receive payment for those services. You can access the website by going to http://www.fscnj.org via the Internet. If you do not have a computer, then please check with your local library for opportunities to access the Internet. Waiting lists There currently is a Community Services Waiting List for residential programs and a separate Day Program Waiting List for adult day or supported employment programs. Individuals are served in the order in which their names were added to the lists. Community services DDD assists individuals in remaining at home as long as possible by providing support services to individuals and to their families, who are providing care. The division arranges for employment or skill training to support an individual in learning personal or job skills, obtaining a job or becoming involved in the local community. Through what is known as person-centered planning, an Individual Habilitation Plan (IHP) is developed. The plan takes into consideration an individual's needs, abilities and preferences. It is coordinated by an individual s case manager. Family support Family Support is a system of services and supports for persons with developmental disabilities and their families. Services, available from DDD regional offices and/or contracted providers, include in-home and out-of-home respite, cash stipends, assistive devices and recreation. In 1993, New Jersey passed legislation underscoring the role of families in choosing the type of support needed and creating a network of Family Support Planning Councils to identify these needs. Day programs Day Programs are shifting from self-contained programs to programs that offer greater community participation. DDD is committed to creating a network of supports and activities to meet a variety of needs: Adult Training Services provide opportunities for people with developmental disabilities to explore personal interests, develop skills, participate in using community resources and make a contribution to their communities. Extended Employment at Sheltered Workshops, operated by private agencies, are vocational programs that provide contract work such as packaging and assembling products, as well as job counseling and job referral. 2 DDD

DDD Supported Employment Programs Include: working with a job coach to assist the person with a developmental disability on the job. Support continues for as long as it is needed for the worker to remain employed. working with a peer group of persons who need an increased level of support provided by additional staff and working as a member of a team. volunteer work, which enables people with disabilities to gain work experience. job sampling, which provides the opportunity for individuals with disabilities to try working in various jobs allowing them time to determine their personal preferences, strengths, needs and abilities. Residential services When it s no longer possible for someone to remain at home, DDD arranges a new home. Some living options include: living with one to three roommates and receiving 24-hour, in-home support. living in a family setting, with or without roommates, and receiving 24-hour, in-home assistance. If needed, specialized services such as behavior management or health care are available. living with a roommate, but instead of on-site support, 24-hour help is available from staff living in the neighborhood. custom designing and managing a living arrangement, usually by adding DDD funds to personal resources. Examples include renting a house or condo, acquiring a home, or co-owning a home with other families. living without supervision, alone or with roommate, with the security of a 24-hour hotline and assistance on an as-needed basis. buying a home, an option for individuals and/or families with sufficient resources, who qualify to buy a home through a program established by DDD and the state Housing and Mortgage Finance Agency 3

Developmental Centers DDD Residential arrangements are provided in seven state-operated developmental centers, which are institutional settings, where residents live and receive a comprehensive array of services. Each individual has a social worker and an Inter-Disciplinary Team (IDT) of staff to coordinate the appropriate services. Of the following developmental centers, Green Brook Regional Center is dedicated to geriatric care: Budget North Jersey Developmental Center, Totowa Hunterdon Developmental Center, Clinton Woodbridge Developmental Center Vineland Developmental Center DDD Key Statistics Green Brook Regional Center New Lisbon Developmental Center Woodbine Developmental Center DDD FY 2006 Appropriation $1,221,386,000 State $ 707,536,000 Federal $ 475,164,000 Other $ 38,686,000 Community Services Number of individuals living in: Group Homes 4,163 Supervised Apartments 1,043 Supportive Living Programs 511 Skill Development Homes/ 1,414 Family Care Homes Consumers receiving 23,990 support services, living in their own home Other (Nursing Homes, Boarding Homes, etc.) 1,999 Waiting List: People living at home 3614 waiting for Services Developmental Centers Number of 7 Developmental Centers Total number of Developmental Center residents 3,053 4 All DDD statistics are from May 2006

Division of Developmental Disabilities Offices and Staff Gregory Fenton, Acting Director (609) 987-0857 DDD Roger Puente, Assistant Director Office of Quality Management (609) 987-1941 Central Office Carnegie Center, Building 508, Princeton, NJ 08540 Mailing Address - P.O. Box 726, Trenton, NJ 08625-0726 Northern/Upper Central Regions Shawn McInerney, Regional Assistant Director 275 Green Brook Road, Green Brook, NJ 08812 (732) 968-4222 Northern - Community Services Offices, Robert Harbold, Regional Administrator Serving Morris, Sussex and Warren Counties Serving Bergen, Hudson and Passaic Counties 1B Laurel Dr., Flanders, NJ 07836 100 Hamilton Plaza, 7th Floor, Paterson, NJ 07505 (973) 927-2600 (973) 977-4004 Upper Central - Community Services Offices, Patricia A. Fettweis, Regional Administrator Serving Union County & Somerset for Intake Serving Somerset for Case Management 59 Main Street 275 Green Brook Road, 2nd Floor West Orange, NJ 07052 Green Brook, NJ 08812 (973) 324-2000 (732) 968-8100 Serving Essex County 153 Halsey St., 2 nd Floor, PO Box 47013, Newark, NJ 07101 (973) 693-5080 Developmental Centers North Jersey Developmental Center Hunterdon Developmental Center Bruce Werkheiser, Chief Executive Officer William A. Wall, Chief Executive Officer Box 169, Minisink Road PO Box 4003, 40 Pittstown Road Totowa, NJ 07511 Clinton, NJ 08809-4003 (973) 256-1700 (908) 735-4031 Green Brook Regional Center Fred Golub, Chief Executive Officer 275 Green Brook Rd., Green Brook, NJ 08812 (732) 968-6000 5

Lower Central/Southern Regions James Evanochko, Regional Assistant Director Carnegie Center, Building 508, Princeton, NJ 08540 Mailing Address - P.O. Box 726, Trenton, NJ 08625-0726 (609) 987-0927 Lower Central - Community Services Offices, Gail DeJony, Acting Regional Administrator Serving Hunterdon, Mercer and Middlesex Counties Serving Monmouth and Ocean Counties 32 East Hanover Street, PO Box 706 Juniper Plaza, Suite I-J Trenton, NJ 08625-0706 3499 Rt. 9 North, Freehold, NJ 07728 (609) 292-4500 (732) 863-4500 Southern - Community Services Offices, Charlotte O'Neill, Regional Administrator Serving Burlington and Camden Counties Serving Atlantic, Cape May, Cumberland, 2 Echelon Plaza - 221 Laurel Road, Suite 210 Gloucester and Salem Counties Voorhees, NJ 08043 40 North White Horse Pike (856) 770-5900 Hammonton, NJ 08037 (609) 561-5070 Developmental Centers Woodbridge Developmental Center New Lisbon Developmental Center John Dougherty, Chief Executive Officer Jeffrey Schroeder, Chief Executive Officer PO Box 189, 1277 Rahway Avenue PO Box 130, Route 72 Woodbridge, NJ 07095 New Lisbon, NJ 08064 (732) 499-5500 (609) 726-1000 Vineland Developmental Center Woodbine Developmental Center Eloise Hawkins, Chief Executive Officer Robert Armstrong, Chief Executive Officer 1676 East Landis Avenue, PO Box 1513 DeHirsh Avenue Vineland, NJ 08362-1513 Woodbine, NJ 08270 (856) 696-6000 (609) 861-2164 Bureau of Guardianship Services Kimberly R. Friend, Bureau Chief Carnegie Center, Building 508, Princeton, NJ 08540 Mailing Address - P.O. Box 726 Trenton, NJ 08625-0726 (609) 987-0831 Peggy Dervitz, Supervisor, Northern Region DDD Bureau of Guardianship Services 153 Halsey St. PO Box 47009, Newark, NJ 07102 (973) 648-4638 Mary Beth Seiler, Supervisor, Central Region Carnegie Center, Building 508, Princeton, NJ 08540 Mailing Address - P.O. Box 726 Trenton, NJ 08625-0726 (609) 987-0881 Brenda Fields, Supervisor, Southern Region DDD Bureau of Guardianship Services 860 North Orchard Road PO Box 1513 Vineland, NJ 08362-1513 (856) 690-5260 6 9/06

State of New Jersey Jon S. Corzine, Governor Department of Human Services Clarke Bruno, Acting Commissioner Division of Developmental Disabilities Gregory Fenton, Acting Director