Applying Standards in Cross-sector Communication for an Integrated Health Environment



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Applying Standards in Cross-sector Communication for an Integrated Health Environment Hans Demski Helmholtz Zentrum München - German Research Center for Environmental Health Working Group MEDIS Institute for Biological and Medical Imaging Med-E-Tel - Luxembourg, April 2010

Outline ICT in German Health Care Project ByMedConnect Introduction of Standards CCR (Continuity of Care Record) ISO/CEN 13606 (EHR Communication) Actual Developments

ICT Situation in German Health Care Heterogenous information systems (>200 POS systems) Concurring solutions for online communication (e.g. D2D, efa, vita-x) Health Telematics Platform (egk) is just being introduced and not available yet Status Quo: No common infrastructure for online exchange of data between the service partners involved in health care

Actual Status at the GO IN Health Network On-site meetings with various participants of GO IN IT-department of Hospital Ingolstadt Specialists (1 Dermatologist, 1 Radiologist) General Practitioners (3 Practices) Workshop with practising physicians

Actual Status Documentation and Communicaton Computer-based systems for accounting, letter writing and patient administration Relevant medical information is registered electronically Paper-based administration of medical data Doctor s letters and reports on findings are collected in a paper- based patient record All GPs visited use online connections (dial-in) to get laboratory results Many practices are not connected to the Internet ~ 60 % coverage in DE according to a study run in 2008

Actual Status - Summary Electronic data exchange is generally only used for renumeration, lab-data and radiological images transfer Data registered by routine systems is available for (re-)use by ByMedConnect The heterogenous landscape of practice administration systems poses a challenge A safe network for electronic exchange of health data is needed until the German Health Telematics Platform is in place -> The doctors will profit from an electronic communication

Outline ICT in German Health Care Project ByMedConnect Introduction of Standards CCR (Continuity of Care Record) ISO/CEN 13606 (EHR Communication) Actual Developments

ByMedConnect Improving Communication by Linking Domains thus Fostering Integrated Healthcare in Bavaria A project of Helmholtz Zentrum München in cooperation with the GO IN Health Network Ingolstadt July 2009 July 2012 sponsored by the Bavarian State Ministry of the Environment and Public Health Goals Communication of relevant patient information Improvement of continuity of care across institutional boundaries Application and evaluation of standards for medical record communication Integration of legacy systems

Communication in ByMedConnect

ByMedConnect - Communication Network Secured network Transmission of standardised data packages according to EN 13606 Separation of meta and patient data Communication module in each institution Visualization of data Interaction (Selection, Edition) Data Exchange Integration of legacy systems

Outline ICT in German Health Care Project ByMedConnect Introduction of Standards CCR (Continuity of Care Record) ISO/CEN 13606 (EHR Communication) Actual Developments

CCR (Continuity of Care Record) as Basis for Dataset Development A lean and application-oriented dataset Summary on the relevant data of a health record Comprehensive dataset that is able to represent a doctor s letter Health professionals were heavily involved in its development Already being used in a lot of applications in the USA (Google Health, Microsoft Health Vault, Keas) -> Trigger the definition of the medical content to be transferred in ByMedConnect Adaptation of the dataset to the special requirements of the regional health network More info at: www.ccrstandard.com

CEN 13606 Electronic Health Record Communication The European standard specifies an information architecture to deal with the heterogenous medical data world Reference model defines generic structures that form the building-blocks of a medical record Archetype model is used for the design of information patterns (medical concepts) that add knowledge and thus enable semantic interoperability -> Dual-model approach allows to separate systems engineering and content definition More info at: www.en13606.org

ISO 13606: LEGO analogy Knowledge Data structures The LEGO Group

Benefits of using CEN/ISO 13606 Archetypes empower the medical professionals to define the semantics of their own information systems Archetypes are a formal model of real clinical concepts that are standarised and can be reused The definition of archetypes is an important step towards semantic interoperable EHRs that are ( boundaries portable (via institutional / regional ( binding precise (e.g. terminology ( support accessible (individual queries + decision durable (life-long health record)

Outline ICT in German Health Care Project ByMedConnect Introduction of Standards CCR (Continuity of Care Record) ISO/CEN 13606 (EHR Communication) Actual Developments

Actual Developments of ByMedConnect EHRflex a generic archetype based medical record system Import of archetypes Data capturing and storage Open source project at SourceForge Archetype Definition Enabling the use of the CCR within ISO 13606 based systems Usage of LinkEHR a tool developed by Institute IBMI at Universidad Politécnica de Valencia Survey on communication needs within GO IN Health Network

EHRflex - View Patient Record

EHRflex Add New Entry

Future Tasks of ByMedConnect Mapping of legacy data Metadata of archetypes allow for a precise mapping that obeys the semantics of data LinkEHR will be used Development of a transformation module Import of legacy data Conversion to standardised format Setting up a pilot implementation within the GO IN Health Network in Ingolstadt

Contact Details Internet: www.bymedconnect.de Email: Demski@Helmholtz-Muenchen.de