Managing the symptoms of secondary cancer in the bone

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Managing the symptoms of secondary cancer in the bone This information is an extract from the booklet Understanding secondary cancer in the bone. You may find the full booklet helpful. We can send you a free copy see page 5. Pain Contents Pain Spinal cord compression Raised blood calcium level (hypercalcaemia) Effects on the bone marrow Pain is the most common symptom of secondary bone cancer. There are different types of pain and they may need different treatments. There are many painkillers available to treat different types and levels of pain. They are usually very effective. Painkillers may be given alone or alongside other treatments. Your doctor or specialist nurse will discuss your pain with you. It s important to let them know if it s not controlled. There s a video of an oncologist talking about how pain is managed in advanced cancer on our website. Visit macmillan.org.uk/advancedcancerpain You may need to try a few different painkillers before you find one that works well for you. Sometimes, you may need to take a combination of painkillers to control the pain well. Questions about cancer? Ask Macmillan 0808 808 00 00 www.macmillan.org.uk Page 1 of 5

You may have other treatments to help relieve pain. These include: radiotherapy (use of high energy rays to treat cancer) bisphosphonates (drugs that strengthen the bones, relieve bone pain and reduce the risk of getting a broken bone) surgery If your pain is stopping you from sleeping, your doctor may prescribe a mild sleeping tablet for you. Other ways of relaxing and helping to reduce your pain include: listening to relaxation CDs a long soak in a warm bath having a massage to an area of the body that isn t painful, such as a head, hand or foot massage. Let your doctor or specialist nurse know as soon as possible if your pain isn t controlled. You can ask your doctor to refer you to a palliative care nurse. They are specialists in advising on pain and symptom control, and giving emotional support. They can visit you at home. You may find it helpful to read our booklets Controlling cancer pain and Controlling the symptoms of cancer. Spinal cord compression A common place for a secondary bone cancer is the spine. This often causes back or neck pain. If this affects you, your doctors will make sure you have painkillers to relieve any discomfort. Less often, the cancer can cause pressure on the nerves in the spine, known as spinal cord compression. Symptoms of spinal cord compression include: back or neck pain, which may be mild at first but becomes severe Page 2 of 5 Questions about cancer? Ask Macmillan 0808 808 00 00 www.macmillan.org.uk

weakness in the arms and/or legs numbness or strange sensations in your legs, hands or around your bottom and genitals problems controlling or passing urine constipation or problems controlling your bowels. If you develop any of these symptoms, it s very important to let your doctor or specialist nurse know straight away. If you have spinal cord compression, you will need treatment as soon as possible to relieve the pressure and prevent permanent damage to the nerves, which could cause paralysis. You will be given high doses of steroids to reduce the swelling and pressure around the spine. This is often followed by radiotherapy to shrink the cancer and reduce the pressure. Some people may have surgery to relieve pain and strengthen the spine. The dose of steroids will be gradually reduced after radiotherapy or surgery. We can send you information about steroids and their possible side effects. We also have more information on spinal cord compression. Raised blood calcium level (hypercalcaemia) Secondary cancer cells in the bone can cause calcium to be released from the bones into the blood. High levels of calcium in the blood (hypercalcaemia) can make you feel: sick (nauseous) thirsty drowsy confused and unwell. It can also cause constipation. You may need to spend a few days in hospital having treatment to reduce your calcium levels. Questions about cancer? Ask Macmillan 0808 808 00 00 www.macmillan.org.uk Page 3 of 5

Your doctor or nurse may ask you to drink lots of liquids. You are also likely to have a drip (intravenous infusion) of fluids into a vein in your arm. This will increase the amount of fluid in your blood, and help your kidneys to get rid of the calcium in your urine. Your doctor may give you bisphosphonates through a drip to reduce the level of calcium in the bloodstream. You can have this treatment more than once if the calcium levels rise again. You should feel much better within a couple of days. Effects on the bone marrow The bone marrow is the spongy material in the centre of some of our bones. It produces our blood cells. If you have secondary cancer in the bone, this may affect how the bone marrow works and may lower the number of cells in your blood. If you have a low level of red blood cells (anaemia), you may be breathless and get tired more easily. Your doctor may suggest that you have a blood transfusion. You can have further blood transfusions if it s helpful. Low levels of white blood cells may make you more likely to get an infection. Your doctor can prescribe antibiotics if you do. A low platelet count will increase your risk of bruising and bleeding. Occasionally, if your platelet count is very low, you may need a platelet transfusion. We can send you more information about blood and platelet transfusions, and avoiding infection. Page 4 of 5 Questions about cancer? Ask Macmillan 0808 808 00 00 www.macmillan.org.uk

More information and support More than one in three of us will get cancer. For most of us it will be the toughest fight we ever face. And the feelings of isolation and loneliness that so many people experience make it even harder. But you don t have to go through it alone. The Macmillan team is with you every step of the way. To order a copy of Understanding secondary cancer in the bone, or any other cancer information, visit be.macmillan.org.uk or call 0808 808 00 00. We make every effort to ensure that the information we provide is accurate and up to date but it should not be relied upon as a substitute for specialist professional advice tailored to your situation. So far as is permitted by law, Macmillan does not accept liability in relation to the use of any information contained in this publication, or thirdparty information or websites included or referred to in it. Macmillan Cancer Support 2013. Registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Registered office 89 Albert Embankment, London, SE1 7UQ REVISED IN JULY 2015 Planned review in 2018 Questions about cancer? Ask Macmillan 0808 808 00 00 www.macmillan.org.uk Page 5 of 5