Massachusetts Disability Resources Affordable Care Act (ACA) http://www.hhs.gov/healthcare/facts/bystate/ma.html HHS.gov: How the Health Care Law is Making a Difference for the People of Massachusetts To get coverage under the ACA, go to https://www.healthcare.gov/ to find out more about the Health Insurance Marketplace and the options available in your state. https://www.healthcare.gov/what-is-the-marketplace-in-my-state/#state=massachusetts ARTS and CREATIVITY http://www.vsamass.org http://www.accessexpressed.net VSA arts of Massachusetts 89 South Street, Suite 101 Boston, MA 02111 Phone: 617-350-7713 TTY: 617-350-6836 Fax: 617-482-4298 Email: cjwashburn@vsamass.org ASSISTIVE TECHNOLOGY http://www.massmatch.org/ MassMATCH Massachusetts Rehabilitation Commission 600 Washington St. Boston, MA 02111 Phone: 617-204-3851 Toll free: 866-682-9955 Email: info@massmatch.org Massachusetts Initiative to Maximize Assistive Technology in Consumer s Hands 1
http://www.newenglandada.org New England ADA Center Adaptive Environments Center, Inc. 180-200 Portland St., Suite 1 Boston, MA 02114 Phone: 617-695-1225 Toll Free: 800-949-4232 Fax: 617-482-8099 Email: adainfo@newenglandada.org Massachusetts Assistive Technology Loan Program Easter Seals Massachusetts 484 Main Street Worchester, MA 01608 Phone: 508-751-6431 Email: jluciano@eastersealsma.org CAREGIVERS INFORMATION http://www.caregiver.com/regionalresources/states/ma/support/index.htm Caregiver Support Groups for Massachusetts by County Tel: (954) 893-0550 1-800-829-2734 Fax: (954) 893-1779 Email: info@caregiver.com Well Spouse Association Greater Boston WSA Support Boston Martha Scott Phone: (617) 924-5206 mascott33@rcn.com Northampton WS Support Northampton Mary Beth Averill Phone(413) 584-0631 Mbaverill@sol.com Cape Cod WS Group Sandwich Harry Charlton 2
(508) 563-5457 COMMUNITY-BASED FITNESS PROGRAMS http://www.journey-forward.org/ Journey Forward 755 Dedham Street Canton, MA 02021 Phone: 781-828-3233, 866-680-5636 (Toll-free) Journey Forward is an exercise based program designed to assist those with spinal cord injuries so they too can achieve some of these most basic lifelong functions and benefits. CRIME VICTIM ASSISTANCE Massachusetts Crime Victim Compensation Phone: 617-727-2200 Fax: 617-367-3906 http://www.state.ma.us/mova Massachusetts Crime Victim Assistance 1 Ashburton Place, Suite 1101 Boston, MA 02108 Phone: 617-727-5200 Fax: 617-727-6552 http://ovc.ncjrs.org/findvictimservices/search.asp Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for http://www.safehorizon.org/index/get-help-8/for-additional-resources-47.html Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: 1-800-799-SAFE (7233) National Resource Center on Domestic Violence: 800-537-2238 Statewide Hotline: 877-785-2020 Statewide Spanish Hotline: 800-223-5001 3
www.janedoe.org Jane Doe, Inc. The Massachusetts Coalition Against Sexual Assault and Domestic Violence 14 Beacon Street Suite 507 Boston, MA 02108 Phone: 617-248-0922 TTY: 617-263-2200 Fax: 617-248-0902 http://www.aardvarc.org/dv/states/massdv.shtml Aardvarc s Massachusetts Domestic Violence contact information by City/County EASTER SEALS OFFICES http://www.eastersealsma.org Easter Seals Massachusetts Technology and Training Center 89 South Street Boston, MA 02111 Phone: 617-226-2640 http://www.eastersealsma.org Easter Seals State Headquarters 484 Main Street Worcester, MA 01608-1817 Phone: 508-757-2756 GOVERNMENT OFFICES http://www.mass.gov Massachusetts State Website http://www.mass.gov/mod/ Massachusetts Office on Disability 1 Ashburton Place Room 1305 Boston, MA 02108 Phone: 617-727-7440 800-322-2020 Fax: 617-727-0965 4
http://www.medicare-partd.com/partd-medicare-partd-pdp- Massachusetts.php?st=MA&prodid=240 Massachusetts Medicare Part D http://www.mass.gov/?pageid=eohhs2homepage&l=1&l0=home&sid=eeohhs2 Massachusetts Office of Health and Human Services One Ashburton Place 11 th Floor Boston, MA 02108 Phone: 617-573-1600 The Massachusetts Rehabilitation Commission Administrative Offices Fort Point Place 27 Wormwood Street Boston, MA 02210-1616 Phone: 617 204-3600 800-245-6543 Fax: 617-727-1354 http://www.mass.gov/eohhs/utility/contact-us.html Massachusetts Medicaid Office One Ashburton Place, 11th Floor Boston, MA 02108 Phone: 617-573-1770 http://massresources.org/masshealth.html Massachusetts SCHIP Office (State Children s Health Insurance Program) MassHealth (Medicaid and CHIP) Phone: 888-665-9993 TTY: 888-665-9997 http://www.800ageinfo.com/ Massachusetts SHIP Program (State Health Insurance Program for Seniors) 800AgeInfo Executive Office of Elder Affairs 1 Ashburton Place 5 th Floor (the McCormack Building) Boston, MA 02108 Phone: 800-872-0166 800-AGE-INFO (243-4636) http://www.cms.hhs.gov/medicaidstwaivprogdemopgi/ Home and Community Based Services Waiver (HCBS) 5
http://www.communityfirstgrant.org/index.aspx Community First Grant http://www.mass.gov/doi/ Massachusetts Insurance Commissioner 1000 Washington Street, Suite 810 Boston MA 02118-6200 Phone: (617) 521-7794 Fax: (617) 753-6830 Consumer Line: (617) 521-7794 http://www.mass.gov/dia/ Massachusetts Worker s Compensation Boston Office Department of Industrial Accidents 600 Washington Street 7 th Floor Boston, MA 02111 Phone: 617-727-4900 800-323-3249 Fax: 617-727-6477 Fall River Office Department of Industrial Accidents 30 Third Street Fall River, MA 02720 Phone: 508-676-3406 Fax: 508-677-0655 Lawrence Office Department of Industrial Accidents 160 Winthrop Avenue Lawrence, MA 01843 Phone: 978-683-6420 Fax: 978-683-3137 Springfield Office Department of Industrial Accidents 436 Dwight Street Room 105 Springfield, MA 01103 Phone: 413-784-1133 Fax: 413-784-1138 6
Worcester Office Department of Industrial Accidents 340 Main Street Worcester, MA 01609 Phone: 508-753-2072 TTY: 508-791-3225 Massachusetts Governor s Committee on Employment of People with Disabilities Department of Employment and Training Policy Office 19 Stanford Street 3 rd Floor Boston, MA 02114 Phone: 617-626-5190 Fax: 617-727-0315 http://www.christopherreeve.org/c.ddjfkrnofig/b.4518671/k.6aba/find_your_electe d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. www.mass.gov http://www.mass.gov/elders/service-orgs-advocates/ltc-ombudsman/ltc-ombudsmanoverview.html State LTC Ombudsman Mary McKenna Massachusetts Exec Office of Elder Affairs 1 Ashburton Place 5th Floor Boston, Massachusetts 2108 Phone: (617) 727-7750 Fax: (617) 727-9368 The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING http://www.ilru.org/html/publications/directory/massachusetts.html Massachusetts Independent Living Centers www.fanniemae.com Fannie Mae offices: Northeastern Regional Office 1900 Market Street 7
Suite 800 Philadelphia, PA 19103 Phone: 215-575-1400 Massachusetts Partnership Office 265 Franklin Street 10 th Floor Boston, MA 02110 Phone: 617-345-8040 http://www.hud.gov/local/index.cfm?state=ma Massachusetts Housing and Urban Development (HUD) Office New England Regional Office Thomas P. O Neill, Jr. Federal Building 10 Causeway Street 3 rd Floor Boston, MA 02222-1092 Phone: 617-994-8200 TTY: 617-565-5453 Fax: 617-565-6558 http://www.mass.gov/eohhs/consumer/disability-services/housing-disability/home-modloan/index.html Home Modifications for Persons with Disabilities Loan Program A Collaboration of the Massachusetts Rehabilitation Commission (MRC) and Community Economic Development Assistance Corporation (CEDAC) http://www.massaccesshousingregistry.org/ Mass Access: The Accessible Housing Registry a free program that helps people with disabilities find rental housing in Massachusetts, primarily accessible and barrier-free housing. LIBRARY SERVICES http://mblc.state.ma.us/libraries/braille/index.php Massachusetts Braille and Talking Book Libraries 98 North Washington St., Suite 401 Boston, Massachusetts 02114 Tel: 617-725-1860 800-952-7403 (in state) Fax: 617-725-0140 NeuroRecovery Network (NRN) 8
The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to www.christopherreeve.org/nrn. PROTECTION and ADVOCACY http://www.dlc-ma.org Massachusetts Protection and Advocacy Disability Law Center, Inc. 11 Beacon Street Suite 925 Boston, MA 02108 Phone: 617-723-8455 800-872-9992 TTY: 617-227-9464 800-381-0577 Fax: 617-723-9125 Email: cgriffin@dlc-ma.org http://www.mass.gov/mod/clientassistance.html Massachusetts Client Assistance Program (CAP) Massachusetts Office on Disability 1 Ashburn Place Room 1305 Boston, MA 02108 Phone: 617-727-7440 800-322-2020 Fax: 617-727-0965 Email: Barbara.Lybarger@modi.state.ma.us http://www.gbls.org/ Greater Boston Legal Services 197 Friend Street Boston, MA 02114 Phone: 617-371-1234 800-323-3205 TDD: 617-371-1228 Fax: 617-371-1222 www.state.ma.us/dppc 9
Disabled Persons Protection Commission 300 Granite Street, Suite 404 Braintree, MA 02184 Phone: 617-727-6465 888-822-0350 V/TTY Fax: 617-727-6469 SERVICE DOGS http://www.dogsfordisabled.org/ Tutor Service Dogs & Coast to Coast SAR, Inc. 8595 Pelham Road Suite 400, #141 Greenville, SC 29615 Tel: 864-810-0134 Training Privately-Owned Dogs: 864-810-0607 Email: office@dogsforautism.org National Hearing Dog Center, Inc. 1116 South Main Street Athol, MA 01331 Phone: 978-249-9264 http://www.neads.org National Education for Assistance Dog Services (NEADS) PO Box 213 West Boylston, MA 01583 Phone/TTY: 978-422-9064 Fax: 978-422-3255 SPORTS and RECREATION http://www.accessportamerica.org/ AccesSportAmerica 119 High Street Acton, MA 01720 Tel: 978.264.0985 Toll Free: 866.45.SPORT (77678) Kartwheels in Motion, Inc. 526 North Avenue Weston, MA 02493 10
Phone: 781-893-6516 Email: Jewatt@aol.com http://www.capecoddisability.org/ Cape Cod Disability Access Directory http://www.kidsindisabilitysports.com Kids in Disability Sports P.O. Box 1397 Lowell, MA 01853 Tel: 866-712-7799 Dial: 1 for General Info 2 for Registration Info 3 for Sports Info 4 for Volunteer Info Email: info@kidsinc.us http://www.stride.org/ STRIDE (Sports and Therapeutic Recreation Instruction/Developmental Education) 476 North Greenbush Rd, Suite 9 Rensselaer, NY 12144 Phone: 518-598-1279 Fax: 518-391-2563 Email: info@stride.org Some of their winter programs are in Massachusetts http://www.mass.gov/dcr/rec-act.htm Mass Parks Department of Conservation and Recreation 251 Causeway Street Suite 900 Boston, MA 02114-2104 Phone: 617-626-1250 Fax: 617-626-1351 Email: mass.parks@state.ma.us http://www.mass.gov/dcr/universal_access/index.htm Universal Access Program Department of Conservation and Recreation 251 Causeway Street, Suite 900 Boston, MA 02114-2104 DCR Main Phone: 617-626-1250 DCR Main Fax: 617-626-1351 E-Mail: mass.parks@state.ma.us 11
UNITED WAY OFFICES http://national.unitedway.org/ National United Way Enter postal code for a United Way office in your area United Way National Headquarters 701 North Fairfax Street Alexandria, VA 22314 Phone: 703-836-7112 VETERAN BENEFITS http://www1.va.gov/directory/guide/fac_list_by_state.cfm?state=ma&dnum=all&map=1&flash=1 US Department of Veterans Affairs VA Hospital Locator VA Boston Healthcare System - West Roxbury Division 1400 VFW Parkway West Roxbury, MA 02132 Phone: 617-323-7700 http://www.nepva.org/ New England PVA Chapter 1600 Providence Highway Suite 143 Walpole, MA 02081 Phone: 800-660-1181 Fax: 508-668-9412 Email: info@nepva.org http://www.als-ma.org The ALS Association s Massachusetts Chapter 315 Norwood Park South, 1st Floor Norwood, MA 02062 Phone: 781-326-8884 12
888-CURE-ALS Fax: 781-326-4940 Email: info@als-ma.org Massachusetts ALS Chapter - Wakefield Office 7 Lincoln Street Wakefield, MA 01880 Phone: 800-258-3323 Email: customerservice@als-ma.org http://falmouth.ccals.org/falmouth/default.asp Compassionate Care PO Box 1052 West Falmouth, MA 02574 Phone: 508-444-6775 Muscular Dystrophy Association s ALS Research Centers: MDA/ALS Center at Massachusetts General Hospital Boston (617) 726-5750 E-mail: rbrown@partners.org MDA/ALS Center at the University Of Massachusetts Medical Center Worcester (508) 856-4147 E-mail: ChadD@ummhc.org BRAIN INJURY http://www.biama.org Brain Injury Association of Massachusetts 30 Lyman Street Suite 10 Westborough, MA 01581 Phone: 508-475-0032 508-475-0036 800-242-0030 Fax: 508-475-0040 Email: Mbia@mbia.net http://www.spauldingrehab.org Spaulding/Partners TBI Model System at Harvard Medical School Spaulding Rehabilitation Hospital 125 Nashua Street, 2nd Floor 13
Boston, MA 02114 Phone: 617-573-2456 Gen Info: 617-573-7000 CEREBRAL PALSY http://www.ucpberkshire.org/ UCP of Berkshire County 208 West Street Pittsfield, MA 01201 Phone: 413-442-1562 Fax: 413-499-4077 Email: info@ucpberkshire.org http://www.ucpboston.org UCP of MetroBoston 71 Arsenal Street Watertown, MA 02472 Phone: 617-926-5480 Fax: 617-926-3059 Email: ucpbost@aol.com FRIEDREICH S ATAXIA http://www.ataxia.org/ National Ataxia Foundation 2600 Fernbrook Lane Suite 119 Minneapolis, MN 55447 Phone: 763-553-0020 Fax: 763-553-0167 New England Support Group Donna and Richard Gorzela 45 Juliette St. Andover, MA 01810 (978) 475-8072 Massachusetts Support Groups Contact: Michael Martignetti 14
Phone: 781-862-1979 Contact: Ben Canton Phone: 617-484-7733 GUILLAIN-BARRÉ SYNDROME / CIDP http://gbs-cidp.org/ Guillain-Barré Syndrome / CIDP Foundation International The Holly Building 104 1/2 Forrest Avenue Narberth, PA 19072 Phone: 610-667-0131 Call for information in your area MULTIPLE SCLEROSIS http://www.nationalmssociety.org/chapters/mam/index.aspx National Multiple Sclerosis Society Central New England Chapter 101A First Avenue Suite 6 Waltham, MA 02451-1115 Phone: 781-890-4990 800-493-9255 800-FIGHT-MS Email: communications@mam.nmss.org http://www.msassociation.org/regional/ Multiple Sclerosis Association of America Northeast Regional Office 706 Haddonfield Road Cherry Hill, NJ 08002 Phone: 800-532-7667 ext. 106 856-488-4500 Fax: 856-488-8257 Email: northeast@msaa.com MUSCULAR DYSTROPHY http://www.mdausa.org/ Muscular Dystrophy Association National Headquarters 15
3300 East Sunrise Drive Tucson, AZ 85718 Phone: 800-572-1717 Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. POST-POLIO SYNDROME http://www.post-polio.org Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO 63108-2915 Phone: 314-534-0475 Email: info@post-polio.org http://www.post-polio.org/net/poldir.pdf Directory lists Health Professionals, Clinics, and Support Groups. http://www.spauldingrehab.org/ourlocations/framingham/ircp International Rehabilitation Center for Polio (IRCP) at Spaulding Spaulding-Framingham Outpatient Center Phone: 617-573-7000 SPINA BIFIDA http://www.msbaweb.org Massachusetts Spina Bifida Association 733 Turnpike Street #282 North Andover, MA 01845 Phone: 617-742-2574 888-479-1900 Fax: 978-649-8725 Email: packard44@comcast.net Massachusetts Spina Bifida Clinics: Children s Hospital Myelodysplasia Clinic 300 Longwood Avenue Fegan 3 Boston, MA 02115 Phone: 617-355-7704 16
Massachusetts General Hospital Myelo Clinic Gray 502 Fruit Street Boston, MA 03224 Phone: 617-726-8523 New England Medical Center Myelodysplasia Clinic 750 Washington Street #340 Boston, MA 02111 Phone: 617-636-5452 Massachusetts Hospital School (DPH) 3 Randolph Street Canton, MA 02021 Phone: 781-828-2440 Shriner s Hospital for Children Myelodysplasia Clinic 516 Carew Street Springfield, MA 01104 Phone: 413-787-2064 SPINAL CORD INJURY http://www.sciboston.com/ Greater Boston Chapter of NSCIA Two Rehabilitation Way Woburn, MA 01801 Phone: 781-933-8666 Fax: 781-933-0043 Email: sciboston@aol.com http://www.bmc.org/rehab/nerscicnetwork.htm New England Regional Spinal Cord Injury Center Boston Medical Center One Boston Medical Center Place Boston, MA 02118 Phone: 617.638.6800 TTY: 800.439.2370 17
Boston University Medical Center 88 East Newton Street F-511 Boston, MA 02118 Phone: 617-638-7300 http://carecure.org/forum/index.php? CareCure State Forum Must become an online member to access information Scroll down to New England States STROKE http://www.cdc.gov/dhdsp/programs/nhdsp_program/ma.htm CDC s Massachusetts Cardiovascular Health http://www.strokeassociation.org/ American Stroke Association National Center 7272 Greenville Avenue Dallas, TX 75231 Phone: 1-888-478-7653 Call them for the stroke support group in your area http://www.heart.org/heartorg/localization/choosestate.jsp# Massachusetts American Heart Association offices SYRINGOMYELIA/CHIARI MALFORMATION www.asap.org American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX 75606-1586 Phone: 903-236-7079 800-ASAP-282 Fax: 903-757-7456 Email: info@asap.org 18
TRANSVERSE MYELITIS http://www.myelitis.org/local/ma/index.htm Transverse Myelitis Association Massachusetts Support groups Contact: Leslie Cerio 781-740-8421 lccerio@aol.com http://transmyelitis.meetup.com/ TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES http://www.disabilityresources.org/massachusetts.html Disability Resources.org: Massachusetts http://www.familyvillage.wisc.edu/comm/massachusetts.html Family Village Resources for Massachusetts www.nichcy.org Massachusetts NICHCY: National Dissemination Center for Children with Disabilities http://www.yellowpagesforkids.com/help/ma.htm Massachusetts Yellow Pages for Kids with Disabilities http://justcan.com/state1.html JustCan.com Massachusetts Disability Services http://www.maot.org Massachusetts chapter of the American Occupational Therapy Association 57 Madison Road Waltham, MA 02453-6718 Phone: 781-647-5556 Fax: 781-642-9742 Email: maot@maot.org http://www.aptaofma.org/ Massachusetts Chapter of the American Physical Therapy Association 19
15 North River Rd Tolland, CT 06084 Telephone: 617-532-0344 Fax: 860-656-9069 Email: aptaofma@aptaofma.org http://www.massachusettsapse.org/ Massachusetts Association for Persons in Supported Employment Boston: 781-322-040 Central MA: 617-204-3695 Northeast MA: 978-459-8711 x227 Southeast MA: 508-992-5978 West MA: 413-788-6986 http://www.healthboards.com/boards/index.php Healthboards.com message boards on health related topics. Topics include SCI, CP, Stroke, and more. http://aahd.webchoices.us/page.php?pname=publications/newsletters/2004/fall/stategrant ee1 American Association on Health and Disability s Health and Disability News, Fall 2004 article Massachusetts Mammography Access Project. http://www.pyd.org Partners for Youth with Disabilities 95 Berkeley Street Suite 109 Boston, MA 02116 Phone: 617-556-4075 617-314-2989 Fax: 617-556-4074 www.masslongtermcare.org Mass Long Term Care a consumer-focused website developed for the people who will use or need information about the continuum of senior and long term care services and facilities available across Massachusetts. http://www.mass.gov/cicrf/cicrf.htm Massachusetts Catastrophic Illness in Children Relief Fund 1-800-882-1435 Book: 20
Jackins, Barbara D. Legal Planning for Special Needs in Massachusetts. Brookline, Mass.: DisabilitiesBooks, Inc., 2006. www.thinkfirst.org ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL 60563 Phone: 630-961-1400 800-THINK56 Email: thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 21