USA ALL STATES THE MULTIPLE SYSTEM ATROPHY (MSA) COALITION (formerly the Shy-Drager/MSA Support Group) 8311 Brier Creek Parkway, Suite 105-434 Raleigh, NC 27617 USA www.multiplesystematrophy.org Toll free: 1-866-737-4999 or 1-866-737-5999 United to Defeat MULTIPLE SYTEM ATROPHY The Multiple System Atrophy (MSA) Coalition TM is a 501(c)3 charitable organization (EIN: 74-2926378) devoted to a four pillar mission: Supporting patients and caregivers affected by multiple system atrophy Educating patients, caregivers and healthcare professionals Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA Advocating for issues important to the MSA community, including creating greater awareness Information: We offer two toll free support lines staffed by former MSA caregivers. Contact: Vera James (CA USA) 1-866-737-5999 vjames@msacoalition.org Judy Biedenharn RN (OH USA) 1-866-737-4999 jbiedenharn@msacoalition.org Meeting Time(s): We host an annual conference for MSA patients and families in a different US city each year, usually September or October timeframe. Please watch for announcements on our website www.multiplesystematrophy.org DVD s of past conferences are available to order Other contacts: Carol Langer (MA USA) clanger@msacoalition.org Don Crouse (NC USA) dcrouse@msacoalition.org Pam Bower (NS CANADA) pbower@msacoalition.org Larry Kellerman (IA USA) lkellerman@msacoalition.org Phil Fortier (MI USA) pfortier@msacoalition.org Tom Looney (NC USA) tlooney@msacoalition.org Cynthia Roemer (NJ USA) croemer@msacoalition.org Sharon Sutton (TX USA) ssuton@msacoalition.org Page 1 of 22
Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA CHICKASAW Contact: Janiece Naber Martindale 251-300-1196 janiecenjim@gmail.com ARKANSAS LITTLE ROCK Information: For anyone affected by PSP<CBD or MSA Location: Alzheimer s Arkansas 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021 Meeting Time: 4 th Thursday of every months from 1:00pm-2:30pm Facilitator: Randi Haley 870-703-6417 randirhaley@yahoo.com ARIZONA TEMPE Contact: Jean Suico 480-839-3794 Suicoaz@aol.com GILBERT Information: No Meeting Contact: Tandy King Facebook: www.facebook.com/kingchtata Page 2 of 22
CALIFORNIA FREMONT Information: Non-profit for MSA Cure MSA Kathy Shih Memorial Foundation P.O. Box 15088 Fremont, CA 94539 USA www.curemsa.org Contact: Lily Shih (Executive Director) 510-226-0453 lily@curemsa.org BURLINGAME Contact: Candy Welsh 650-375-0229 cortez1us@yahoo.com FOUNTAIN VALLEY Information: For family members and caregivers dealing with Atypical PD+ Disorders Location: Orange coast Memorial Medical Center, Classroom C, 9920 Talbert Ave Fountain Valley, CA 92708 Facilitator: Justin Aquines 714-907-0074 atypicalpdgroup@gmail.com FREMONT Contact: Sandy Bierman 510-656-6897 sandybierman@yahoo.com Lily Shih 510-226-0453 liyshih1@comcast.net GOLETA after 11am EST Contact: George Relles 805-683-4829 grelles@cox.net LIVERMORE Contact: Carol Dutcher 925-998-3656 califalck@gmail.com Page 3 of 22
CALIFORNIA (continued) LOS ANGELES Information: Parkinsonian Disorders Support Group MSA,PSP, CBD, OPCA, SND, SDS, PD Location: Ronald Reagan UCLA Medical Center. 757 Westwood Plaza, Los Angeles, CA 90095, Conference Room 3102 Meeting Time(s): 1st Friday of every month from 2:00pm - 4:00pm (for directions only: 310-825-9111) Sponsors: Dr. Yvette Bordelon, UCLA Movement Disorder Department Facilitator: Loretta Mazorra RN,MN,MA, Nurse Practiioner anlom@sbcglobal.net Contact: Dolly West 310-430-6678 or 310 206-2154 MODESTO Information: No Meeting Contact: Janeice Partridge elipartridge@att.net NORTHERN/SAN MATEO Information: Neurodegenerative movement disorder group (MSA PSP, CBD, etc.) caregivers only. Contact facilitator for more info. Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404 Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm Facilitator: Robin Riddle 650-814-0848 robin.riddle@brainsupportnetwork.org SAN DIEGO Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like MSA, PSP, CBD, OPCA, SND, SDS Location: UCSD Thornton Hospital, 9300 Campus Point Drive, La Jolla, CA 92037, SDG&E Room (3 rd floor) Meeting Time(s): 3rd Thursday of every month from 1:00pm -3:00pm (for directions only: 858-657-7000) Sponsors: Dr. Stephanie Lessig, UCSD & VA Movement Disorder Department Facilitator: John Jenkins 619-787-2760 jenkins356@sbcglobal.net SAN DIEGO Information: For ONLY caregivers dealing with Atypical Parkinson Disorders (MSA, PSP, CBD, OPCA) Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123 Meeting Time(s): Every other month from 11:00am - 1:00pm Facilitator: Patricia Hagan 619-223-1645 pkhagan@cox.net Page 4 of 22
CALIFORNIA (continued) SANTA BARBARA Contact: Suzanne Grimmesey-Kirk 805-692-4010 suzkirk@co.santa-barbara.ca.us THOUSAND OAKS Information: For patients/caregivers dealing with Atypical Parkinsonian + Disorders like MSA,PSP,CBD,OPCA,SND & SDS Location: 672 Rosario Drive, Thousand Oaks, CA 91362 Meeting Times: One Saturday every quarter from 1:00pm-4:00pm Call or email for meeting date. Facilitator: Kathy Schwaiger 805-496-7018 ksquig2@yahoo.com Ceri Williams medianet@earthlink.net COLORADO DENVER/ENGLEWOOD Information: Neurodegenerative movement disorder group (MSA, PSP, CBD) Location: Johnson Adult Day Center, 3444 South Emerson St., Englewood, CO 80113 Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm for Patients/Caregivers 4 th Friday of each month from 10:00am-12:00pm for Caregivers only Facilitator: Helenn Franzgrote 303-789-9900 jhfranzgrote@comcast.net JOHNSTOWN/LOVELAND Information: MSA,PSP,CBD Location: Northern Colorado Rehabilitation Hospital 4401 Union Street Johnstown/Loveland, CO 80528 Meeting Time: 1 st Friday of each month from 1:00pm - 3:00pm (No Dec/Jan meeting) Facilitator: Ruth Fletcher-Carter 970-532-2681 chantillylace3@usa.net Page 5 of 22
FLORIDA BRADENTON Contact: Dan Stone 678-581-9237 djsinvista@yahoo.com.hk Contact: Connie Ferguson 941-778-5294 conokazee@aol.com HOLMES BEACH Contact: Connie Ferguson 941-778-5294 conokazee@aol.com PORT ORANGE Contact: Jim Grant 386-334-2691 jimboindc@yahoo.com SOUTHEAST/DEERFIELD BEACH Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for directions only: 954-941-8300) Meeting Time(s): Contact Facilitator for more info Facilitator: Paul Freeman 305-970-0805 freemanph@aol.com SOUTHWEST/NAPLES Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113 Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm Facilitator: Cindy MacDonald 239-353-3960/239-404-4429 hotrdh@hotmail.com Page 6 of 22
GEORGIA ATLANTA Information: For patients/caregivers living with Atypical Parkinsonism s, PSP and CBD Location: Wesley Woods Health Center, 1841 Clifton Rd, Atlanta, GA 30329, 3rd Floor Conference Room Meeting Time(s): 2nd Saturday of each month (except May) from 10:00am 11:30am Facilitator: Lynn Ross 404-728-6300 slross@emory.edu ELLIJAY Contact: Paula Davis 706-669-1978 jimandpaula@ellijay.com INDIANA INDIANAPOLIS Contact: Gary Huddleston 317-501-4899 garylovesjoyce@yahoo.com KOKOMO Information: For MSA Patients/caregivers Contact: Renate Sharp 765-453-5351 rsbreslau@yahoo.com Chris Markiewicz 765-513-5219 atacrew@aol.com Francie Hutton 765-453-9020 huttondf20@aol.com WARSAW Contact: Terry Shepherd 574-267-1566 tellmenolies2004@yahoo.com ILLINOIS ORLAND PARK Contact: Arthur (Ed) Wall 708-478-1236 aepwall@gmail.com Page 7 of 22
CHICAGO AREA Information: MSA Support Meeting for Patients/Caregivers Meeting information: Quarterly meetings. Time and place announced on Facebook NE Central USA Page or Contact Facilitator. Facilitator: John Standley 815-403-2221 johnstandley@verizon.net NORTHWESTERN AREA Information: For those with PD and other movement disorders Location: Northwestern Memorial Hospital 251 East Huron, Feinberg Pavilion, 3 rd Floor Room A (free parking at Huron/St. Clair) Meeting Time : 4 th Thursday of every month from 1:00-2:00 pm Facilitator: Pamela Palmentera 312-503-4397 ppalment@nmff.org IOWA WESTERN IOWA AREA Contact: Keryn Paul 402-813-7315 kmpaul@cox.net NEW LONDON Information: No Meeting Contact: Larry Kellerman rurlfolk1@yahoo.com KENTUCKY LOUISVILLE Information: Atypical Parkinsonian Disorders (MSA,PSP, CBD) Location: PSCKY Office, Middletown 315 Townepark Circle, Suite 100 Meeting Time: 2 nd Tuesday of every month 12:00pm-1:00pm Facilitator: Dan Heins 502-216-4563 danheins@gmail.com Page 8 of 22
LOUISANA NEW ORLEANS Information: Patients/families/caregivers with PSP/CBD/MSA & related diseases Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123 Meeting Time(s): 3rd Thursday of each month from 7:00pm - 8:00pm Facilitator: Shiela Grose 504-737-2614 groseshiela@bellsouth.net CLINTON Information: No Meeting Contact: Gloria Chaney gcathome@hughes.net MAINE MARYLAND FALMOUTH Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: Maine Parkinson s I&R Center, 5 Bucknam Road, Falmouth, ME Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm. Contact Facilitator for info. Facilitator: Janet Edmunson 207-799-4963 janet@janetedmunson.com Barbi Johnson 207-633-0881 ANNE ARUNDEL COUNTY Information: For patients/caregivers affected by PSP, CBD & other neurodegenerative diseases Location: Kris Leigh Assisted Living Facility, 831 Ritchie Highway, Severna Park, MD Meeting Time(s):3 rd Saturday of every month from 1:00pm 3:00pm Facilitator: IIeen Watson 410-271-1818 ileenw@verizon.net BALTIMORE Information: For caregivers affect by Neurodegenerative diseases Location: Govans Presbyterian Church 5828 York Road, Baltimore, MD 21212. Peace Center Library. Meeting Time 4 th Thursday of every month Facilitator: Becky Dunlop,RN 410-955-8795 rdunlop@jhmi.edu BEL AIR Information: For caregiver affected by MSA,PSP,CBD & other neurodegenerative diseases Location: William McFaul Activities Center 525 West McPhail Road, Bel Air,MD 21014 Page 9 of 22
Meeting Times: 4 th Thursday of every month from 2pm-4pm Facilitatior: Becky Dunlop, RN 410-955-8795 rdunlop@jhmi.edu ELDERSBURG Contact: Shirley Snyder 410-259-1354 Gramme835@gmail.com PRINCE FREDERICK Contact: James Taylor 410-535-0780 jtaylor@guam.net MASSACHUSETTS MICHIGAN BOSTON Information: For MSA Patients/Caregivers Location: Boston University Medical Center; 88 East Newton Street, 2 nd floor, Conf Rm C, Boston, MA Meeting Time: quarterly Facilitator: Melissa Diggin 339-927-5468 m_diggin@hotmail.com Or contact: Carol Langer 617-93603053 carollanger@comcast.net GARDNER Information: For MSA patients/caregivers Location: Heywood Hospital in Gardner, MA Meeting Time: last Wednesday of each month at 2 PM Facilitator: Marybeth Kumph 978-630-643 Carl Billington 987-632-9682 DETROIT Information: Non Profit for MSA Joseph G Fortier Foundation for MSA P.O. Box 80778 St. Clair Shores, MI 48080 USA jgf.foundation.msa@gmail.com www.movingtodayformsa.org www.facebook.com/jgffoundationformsa Page 10 of 22
We move today, in service of tomorrow! Contact: Philip M Fortier (Co-Director) 586 246-1475 (cell/vm) fortiepm@udmercy.edu ALMA Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center (below chapel) Meeting Time(s): 4th Wednesday of every month Facilitators: Robbie and Keith Virgo 989-681-6321 robbie@daytimesleeper.com DELTON Information: For patients, caregivers and families with PSP, CBD, MSA and other atypical parkinsonian location: 1137 Floria Drive, Delton, MI 49046 (park in church parking lot) Meeting Time : 2nd Saturday of each month from 2:00pm-3:30 pm beginning April 12, 2014 Facilitator : Mary Meagher 269-267-3117 mmeagher@mei.net MINNESOLA MINNEAPOLIS Information: For patients and families dealing with PSP, CBD, MSA Location : Struther's Parkinson's Center 6701 Country Club Drive, Golden Valley, MN 55427 Meeting Time: 2nd Wednesday of every month from 1:00pm -2:30pm Facilitator: Joan Hlas 952-993-6650 MONTANA NEBRASKA KALISPELL Contact: Gary Cuthbertson 406-257-4392 Grandmamt@centurytel.net OMAHA Contact: Keryn Paul 402-813-7315 kmpaul@cox.net Page 11 of 22
NEVADA LINCOLN Information: For caregiver and families dealing with PSP, CBD, MSA and others Atypical PD Location: 5901 N. 27th Street, Lincoln, NE Meeting Time: 4th Tuesday of every month from 6:30pm-8:30pm (beginning Jan 28, 2014) Facilitator: Susie Luxford 402-525-7367 susie.luxford@homerealestate.com LAS VEGAS Contact: Marty Koppel 702-914-8041 please leave message if no answer NEW HAMPSHIRE NEW JERSEY CONCORD Information: No Meeting Contact: Gayle Gardner ggcpteach@comcast.net TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer contact@msanj.org CAPE MAY Information: For caregiver dealing with Atypical Parkinson+ disorders Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center) Meeting Time: 1 st Tuesday of every month 1:00pm -3:00 pm Facilitator: Bonnie Kratzer 609-463-4043 jkratzer@caperegional.com MOORESTOWN (5 minutes from Philly and 30 from Trenton) Contact: Rachel Zambrano 856-316-6742 Rachelzambrano@comcast.net Page 12 of 22
NEW MEXICO ALBUQUERQUE Information: For patients, caregivers and families affected by PSP, CBD, MSA and Atypical PD Location: The Flying Star 10700 Corrales Road, Albuquerque, NM Meeting Time : 1st Wednesday of each month from 6:30pm-8:00pm until Sept. Note : Starting Sept meeting will change to the first Tuesday of each month at same time Facilitator: Roxi Padrid 312-485-485-9342 NEW YORK TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer contact@msanj.org BUFFALO Contact: Maureen Conley 716-627-7344 moe@moeconley.com NEW YORK CITY Information: For MSA patients/caregivers Location: Contact Michael DeMarsico for location Meeting Time: 3 rd Saturday of each month from 2:00pm-4:30pm Contact: Michael DeMarsico mickpub@hotmail.com NEW YORK CITY METRO AREA Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: North Shore University Hospital, Tower Conference Rooms, First Floor, 300 Community Drive, Manhasset, NY 11030 Meeting Time(s): 3rd Saturday Quarterly from 1:30pm - 3:30pm Facilitators: Kara Holisher 516-932-1696 kbhx2@optonline.net Harriet Feiner 718-224-4654 hfeiner@nyc.rr.com Page 13 of 22
SYRACUSE/CHITTENANGO Information: For Anyone with Parkinson or SDS/MSA Location: Jim Marshall Farm Foundations Facility North Chittenango Directions to the farm can be found at http://www.jmffinc.org/services Meeting times: 4 th Tuesday of each month from 12:30PM-2:30PM Contact: Wayne Hamilton 315-687-9014 NORTH CAROLINA CHARLOTTE Contact: Robert Lee 704-552-9198 sparrowln@carolina.rr.com RALEIGH Contact: Joe Turner 919-971-3512 Jpturner2011@gmail.com Melissa Turner 919-741-9668 mrsmelissajturner@gmail.com ADVANCE Contact: Tammy Hunt Hauser 336-998-2942 hausertammy@hotmail.com OHIO BEREA Information: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+ Lewy Bodies Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement level) Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital. Facilitator: Pat Beekman 440-234-0007 mombeekman@yahoo.com CINCINNATI Contact: Kathy Griffin 513-208-6621 kgriffin4412@msn.com Page 14 of 22
KETTERING Information: For MSA patients/caregivers Meeting Time(s): A get together is arranged in this area a couple times a year Contact: Susan Cervone 937-369-9531 FrankunSusan@aol.com WESTERVILLE Information: For MSA caregivers Meeting Time(s): Occasional meetings are now being held Contact: Cathy Rapenport 614-403-1440 cathyrap83@gmail.com OKLAHOMA GROVE Contact: Paul Nandico 918-786-4949 OREGON PORTLAND Information: For MSA Patients /Caregivers Location: Marquis Care Center, 319 NE Russet ST, Portland, OR Meeting Time: 3rd Saturday of each month 10 am to noon Facilitator: Vicki Blacken 503-651-3633 vblacken@web-ster.com PORTLAND Information: For families & caregivers of people with PSP & CBD also welcomes MSA Locations: OHSU River side building Room 12181 3303 SW Bond St. Portland, OR 97239 Meeting Time: 1st Thursday of each month at 5:30pm Facilitator: Tod Lundy 503-281-4123 talktotod@gmail.com BEND Contact: Nena Close 541-419-6408(cell) 541-383-0302(work) nena.close@gmail.com Page 15 of 22
PENNSYLVANIA TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer contact@msanj.org N.VERSAILLES Contact: Carole Barber 412-678-8948 barber.carole@juno.com PHILADELPHIA Information: No Meeting Contact: Liz Martin elizabetmartin2200@comcast.net PHILADELPHIA Information: For persons with movement disorders Location: Pennsylvania Hospital Movement Disorder Center, 330 S. 9 th Street, 2 nd floor conference room. Philadelphia, PA 19107 Meeting Time: 3 th Saturday of each month from 1:00pm to 2pm Facilitator: Christin Salemno 215-829-2347 christin.salemno@uphs.upenn.edu YORK Contact: Thomas Fitzgerald 717-840-3830 PUERTO RICO Information: No Meeting Contact: Alexis Brewer alexis_brewer_200@yahoo.com Page 16 of 22
RHODE ISLAND CRANSTON Information: No Meeting Contact: Jan Gillis jan2343@aol.com SOUTH DAKOTA SIOUX FALLS Contact: Dawn Koenig 605-759-6740 dawn@ameri-star.com TENNESSEE TULLAHOMA Contact: Marilyn Morris 913-455-3108 mgm12@lighttube.net TEXAS FAIRFIELD GLADE Information: PD & Movement Brian disorder Support Group (PD,MSA, ET,PSP,CBD) Location: Christ Luthern Church Fellowship Hall 481 Snead Dr. Fairfield Glade, TN Meeting Time: 1 st Tuesday of each month at 2:30 pm Facilitator: Gary & Sally Dixner 931-484-0193 ARLINGTON Contact: Barbara Selleck 817-469-6044 barbaraselleck@sbcglobal.net HOUSTON Information: For patients/families with PSP, CBD, MSA, LBD Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building II Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm Facilitator: Karen Kennemer 281-358-2282 kmk1224@aol.com Page 17 of 22
VERMONT VIRGINIA DALLAS Information: For PSP/CBD/MSA patients and caregivers Location: Texas Health Resources University (THRU) building, Room 111 Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30am Facilitator: Kathryn MacDonell 214-908-4793 kathmac@linkrd.com SEYMOUR Information: For patients & caregivers affected by MSA,PSP,CBD & Atypical PD+ Location: Baylor Country Extension Building 500 N. Main Street Seymour,TX 76380 Meeting Time: 3 rd Monday of each month from 4:00pm-5:30pm Facilitator: Sis Hammack 940-889-6638 Bradnsis@swbell.net SAN ANTONIO Contact: Sharon Sutton 210-296-4619 saksutton@aol.com Candice Valenta 210-912-4530 cleo0308@yahoo.com BURLINGTON Information: For caregivers of Parkinson's with mild cognitive impairment and Parkinson's Plus syndromes Location: Varies; contact facilitator for info Meeting Time(s): Varies; contact facilitator for info Facilitator: Janice Clements 802-862-7464 janclem25@gmail.com AMISSVILLE Information: Will meet with people if they want to travel to Amissville or will meet at other s home if accessible and can arrange a time and date to have a meeting Contact: Bill Werre 540-937-6092 rwwerre@comcast.net ANNANDALE Information: For patients, caregiver, and families dealing PSP,CBD, MSA and Atypical PD Location: George Mason Regional Library, 7001 Little River Turnpike, Annandale, VA 22003 Meeting time: 2 nd Thursday of every month from 7:00pm -9:00pm Facilitator: Kristin Washington, 709-256-3800 krwashin@gmail.com Page 18 of 22
VIRGINIA BEACH Contact: James (Jim) Alvaro 757-430-2237 jimalvaro@verizon.net WASHINGTON SPOKANE Information: For patients/caregivers with PSP/CBD but supports other neurodegenerative diseases Location: Contact facilitator for info Meeting Time(s): Contact facilitator for info Facilitator: Mary Anne Memminger 509-921-6645 Jim Barron 509-332-6053 jimcbarron@yahoo.com SEATTLE Information: For Patients/Caregivers with MSA Location: Virginia Mason Medical Center 1201 Terry, Seattle, WA Change location starting January 2014 to Exeter House 720 Seneca St. Seattle,WA Meeting Time: 4 th Monday of each month at 11:00 am Contact: Carin Mack 206-230-0166 socialwkr@earthlink.net WEST VIRGINIA BECKLEY Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Offices of Dr. Rhonda Guy, 424 Stanaford Road, Beckley, West Virginia Meeting Time(s): 3rd Saturday of every month from 1:00pm - 3:00pm Facilitator: Jean Johnson 304-573-3284 grammy44@suddenlink.net Page 19 of 22
MARTINSBURG Contact: Shelli Hannon Kuhn 717-830-6199 shelli.kuhn@jetsndt.com WISCONSIN MILWAUKEE Information: Phone Support, but looking for interest for a support group. Location: Milwaukee or the surrounding areas Contact: Aaron Kittson 715-470-2007 kittsoan@uwec.edu WYOMING JOHNSTOWN/LOVELAND (COLORADO) Information: Neurodegenerative disorder (MSA,PSP,CBD) Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528 Meeting Time: 1st Friday of each month from 1:00 pm - 3:00pm Facilitators: Ruth Fletcher-Carter 970-532-2681 chantillylace3@usa.net CANADA ALL PROVINCES Page 20 of 22
Information: No Meeting Email and Website for MSA information only Multiple System Atrophy Awareness Website: www.msaawareness.org Spreading awareness worldwide Contact: Pam Bower pam.bower@msaawareness.org or pbower@accesscable.net ALBERTA FORT MCMURRAY - Contact for the northern region of Alberta Contact: Iris Kirschner 780-792-7732 ikirschner@shaw.ca BRITISH COLUMBIA SIDNEY Contact: Ann Jeffrey 250-656-9799 island.view@shaw.ca NOVA SCOTIA HALIFAX Information: No Meeting Email and Website for MSA information only Contact: Pam Bower pam.bower@msaawareness.org or pbower@accesscable.net Website: www.msaawareness.org ONTARIO HAMILTON Contact: Bonnie Llewellyn 905-979-8254 llegs369@live.ca Page 21 of 22
BURLINGTON Information: For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON Meeting Time(s): 1st Thursday of every month from 6:30pm - 8:30pm (beginning October 3, 2013) Facilitator: Kimberley Adrovez 905-296-1095 kimberleyadrovez@yahoo.com KINGSTON Information: For patients and families affected by PSP, CBD and MSA Location: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and handicap accessible) Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm beginning August 1, 2013 Facilitator: MJ Overby 613-531-2685 hopematterspspkingston@gmail.com TORONTO Information: For care partners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario Location: 4211 Yonge Street, Suite 321, Toronto, ON Meeting Time(s): 3rd Wednesday of every month from 6:15pm 8:00pm Facilitator: Robert TerSteege 416-227-3372/ 1-800-565-3000 x3372 robert.tersteege@parkinson.ca Page 22 of 22