Sustaining universalism? Changing roles for the state, family and market in Nordic eldercare Keynote at ESPAnet Oslo September 5 2014



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Sustaining universalism? Changing roles for the state, family and market in Nordic eldercare Keynote at ESPAnet Oslo September 5 2014 Marta Szebehely Stockholm University Department of Social Work marta.szebehely@socarb.su.se

Point of departure Eldercare as social infrastructure - important for the society as a whole, not only for those using care services here and now Eldercare policies deal with risks related to needing as well as giving care three parties involved persons in need of care their families paid care workers These three groups majority women live the consequences of changing public policies Policies should be evaluated from an equality perspective regarding all three groups

What is universalism? Anttonen, Häikiö & Stefánsson, eds. Welfare State, Universalism and Diversity (2012). Universalism a contested theoretical principle and social policy concept varieties of universalism Used in different ways, often contrasted to other principles but seldom defined An ideal type beyond reach matter of degree rather than a dichotomy

Criteria of universalism Goul Andersen (2012) 1. Clearly defined rights of eligibility 2. Applying to all citizens/residents 3. Benefits/services financed (mainly) by taxes 4. Same benefits (almost) for all citizens; no meanstesting 5. Benefits are adequate Movements towards or away from these criteria universalisation vs de-universalisation

Nordic eldercare in relation to these criteria 1. Clearly defined rights of eligibility? Yes but relatively weak social legislation; according to need assessed by gate keepers 2. Applying to all citizens/residents? Yes but differences between municipalities ( post code lottery ; welfare municipality ) 3. Benefits/services financed (mainly) by taxes? Yes generous public funding but income related user fees 4. Same benefits (almost) for all citizens? 5. Benefits are adequate? Two last points crucial can eldercare be the same and adequate?

My understanding of universalism as an ideal in Nordic eldercare Discussed in Vabø & Szebehely (2012) High quality services directed to and used by all social groups improving the quality for all the sharp elbows of the middle class Cf. Titmuss (1968): services for poor people have always tended to be poor quality services Formal eligibility not enough: services have to be accessible, affordable and attractive to keep the support of the middle class Universalism uniformity (sameness); one-size-fits-allservices cannot be adequate Universal services need to be individually adapted!

Nordic eldercare: weak universalism but becoming weaker or stronger? The rest of the talk: Trends in Nordic eldercare Declining service coverage Re-familialisation, privatisation and marketisation Consequences for older people in need of care, their families and care workers from an equality perspective Universalisation or De-universalisation? Is universalism in eldercare worth preserving and is it sustainable?

Who pays? Shifting boundaries of care in the Nordic countries since 1990 (model inspired by Jane Jenson 1997) Who provides? Unpaid Family State Market Nonprofit Re-familialisation Publicly financed Privately financed Marketisation Privatisation

Reduced service coverage: Sweden and Finland Sweden: Eldercare services in pop. 65+ 1980-2012 (%) Finland: Eldercare services in pop. 65+ 1990-2011 (%) 30 Home care 30 25 20 15 10 16 11 9 Home care <2.5 hours/week Home care 2.5-12 hrs/week Home care 12 hrs/week+ 25 20 15 10 19 12 11 10 11 Home care Residential care 5 0 8 8 8 6 5 1980 1990 1998 2005 2012 Residential care 5 0 6 5 5 5 5 1990 1995 2000 2005 2011

Decline also in Denmark and Norway but later Norway: Eldercare services in pop 67+ 1992-2013 (%) Denmark: Eldercare services in pop 65+ 2008-2013 (%) 30 30 25 25 Home care <2 hrs/w 20 15 19 18 20 19 18 16 Home based care Residential care 20 15 18 18 16 Home care 2-12 hrs/w Home care 12 hrs+/w 10 10 12 Home care 5 5 0 7 7 7 6 6 6 1992 1996 2000 2005 2009 2013 0 5 5 5 5 4 4 2008 2009 2010 2011 2012 2013 Residential care

1980 1990 1998 2005 2012 1990 1995 2000 2005 2011 1992 1996 2000 2005 2009 2013 2008 2009 2010 2011 2012 2013 30 Sweden Finland Norway Denmark 30 30 30 25 25 25 25 20 20 20 20 15 16 11 15 19 15 19 18 20 19 18 16 15 18 18 16 10 10 12 11 10 11 10 10 5 0 8 8 8 6 5 5 0 6 5 5 5 5 5 0 7 7 7 6 6 6 5 0 5 5 5 5 4 4 Despite difficulty of comparison: similar trends of declining coverage also among the oldest old

Consequence of declining coverage: Re-familialisation and privatisation Re-familialisation: Clear trend in Sweden but indications of increase also in Finland and Norway Mainly affecting those with fewer resources Privatisation: Supported by tax rebates except for Norway Clear trend in Sweden but indications of increase also in Finland and Denmark less so in Norway Mainly affecting those with more resources

Sweden: Re-familialisation Older people (75+) in need of help living at home: % receiving help from non-residing kin/friends 1988-2010 70% 60% 50% 40% 30% 20% 10% 0% 40% 52% 57% 65% 1988-89 2002-03 2004-05 2010 Szebehely, Ulmanen & Sand 2014 Coerced re-familialisation - older people prefer formal care Signs of Familialism by default (Saraceno 2010)

Sweden: Privatisation % of 65 yrs+ using tax rebate for domestic services/care by annual income in Sweden 2007-2012 30 25 20 15 10 5 2012 2011 2010 2009 2008 2007 0 Tax rebate introduced in 2007: 50% of cost (up to 11,400 per year) for domestic services or care Meagher & Szebehely 2013

Marketisatisation of publicly funded eldercare in the Nordic countries (2012): Proportion forprofit (FP) and non-profit (NP) provision and trends % Sweden Finland Denmark Norway FP NP FP NP FP NP FP NP 19 3 18 16 5-6? 3-4 4-5 No for-profit eldercare before 1990; increase only of for-profit Large municipal variation Opening up for competitive tendering and outsourcing to forprofit providers in 1990s and for choice models in 2000s Finland and Sweden more affected than Denmark and Norway Meagher & Szebehely 2013

Structure of the private market Sweden and Finland highly concentrated market (residential care) Two largest corporations (Attendo and Carema/Vardaga each with 15,000 employees in the Nordic countries), owned by private equity, run half of private residential care in Sweden 10% of all residential care. But also highly fragmented market (home care) e.g. more than 100 home care companies in each district of Stockholm (1/3 disappear within a two year period) Finland and Sweden: A paradise for international capital? Generous funding little regulation (but increasing) Meagher & Szebehely 2013

Interaction between tax rebates and choice models of home care Combination of income related user fees and tax rebates makes privately purchased services cheaper than needs assessed home care for those with higher income Topping-up of services: private providers of needs assessed home care can offer extra services incentive for high income groups to choose private providers of tax-funded home care Risk of leaving public services to those with fewer resources?

What do these changes mean for older people with care needs, their families and care workers those who live the consequences of changing public policies?

Consequences of marketisation Competition has not driven up care quality Care research: Time, continuity and flexibility crucial for users and workers Lower staffing and fewer permanently employed in forprofit lowest in private equity owned corporations affect time and continuity High turnover of small providers affect continuity Increasing demands for stricter regulation & control affect flexibility Consequences for equality? Winners and losers in choice models? Brennan et al 2012; Lewis & West 2014; Meagher & Szebehely 2013

Consequences of declining service coverage De-institutionalisation increasingly frail users in home care increasing fragmentation in an attempt to replicate twenty-four hour care without actually providing it (Ungerson 2000) shifting the cost of caring to care workers and families Home care increasingly predefined, standardised and fragmented: reduced discretion for workers affecting quality of work and care Families: have to fill the gap Compensate for home care for those with smaller needs Complement home care for those with larger needs

Re-familialisation a cost for both the individual and the society Recent Swedish survey 2013 (Szebehely, Ulmanen & Sand 2014) 3,430 women and men 45-66 yrs old (response rate 61%) 29% help an old, frail or disabled family member or friend once a week or more often slightly more common among women than among men. Women provide help 7 hours per week on average; men 5. 8 out of 10 care for an older person typically a parent

Caring responsibilities affect work life Of those 29% of population 45-66 yrs old who provide care at least weekly: 1 in 5 of both women and men have taken unpaid days off to care 1 in 6 men and 1 in 3 women report difficulties focusing on their work due to caring More than half of women and 1 of 3 men find caring mentally demanding 10% of men and 17% of women have reduced their working hours, stopped working or retired earlier than planned for due to caring 13% of men and 20% of women report loss of income due to caring

The better care services, the lower cost of caring Swedish carers often don t care alone: 45% of the carers have experience of home care and 19% of residential care 32% of carers find the quality of home care absolutely good; 44% find the quality of residential care absolutely good High quality services matter for the cost of caring: Home care Residential care Positive experience Not so positive experience Positive experience Not so positive experience Reduced hours or stopped working (%) 7.3 15.9 * 9.5 22.6 * Loss of income (%) 10.7 19.3 * 10.3 37.5 ***

Labour force participation women 55-64 yrs /%) The more formal care services the higher labour force participation among middle aged women 80 70 60 50 40 30 Estonia Finland Germany Spain Czech Rep. Slovak Rep. Italy Belgium Austria Greece Slovenia NL UK France Switzerland Luxembourg R² = 0,4336 Sweden Norway Denmark 20 10 0 0 5 10 15 20 Formally employed care workers / 65+ in population (%) Eldercare not only an expense also a precondition for middle aged women and men to work (and pay tax) Calculated from Rodrigues, Huber & Lamura 2012 + OECD 2013

Threats to Nordic universalism? A trust-based system services have to be accessible, affordable and attractive for all social groups Care workers must have decent employment and working conditions Underfunding of services, Taylorisation, NPM resulting in reduced quality of care and of work a threat Declining coverage re-familialisation and privatisation a threat Increasing income inequalities probably a threat Increasingly diverse societies not necessarily a threat as long services are individually adapted Population ageing not really a threat

Marketisation a threat Large actors have strong voices can affect public policy Change of discourse: eldercare as a commodity, not a public good Increased regulation costly and negatively affects quality Choice + topping-up risk for dual care systems Risk that quality of care declines if the sharp elbows of the middle class disappear Rebecca Blank (2000): The more one cares about enforcing universalism in the provision of services, the stronger the argument for government provision

To sum up A universal model at the crossroads signs of creeping selectivity and reduced de-familialising potential More or less strong trends of re-familialisation, privatisation and marketisation Trends of de-universalisation in all the Nordic countries but important differences (FI & SE vs. NO and DK) Yet strong public support for publicly funded, publicly provided services + willingness to pay tax + a passion for equality (including the care workers?) Universalism sustainable if citizens find it worth preserving and can affect the politics!

Thanks for listening!

References Anttonen, Häikiö & Stefánsson, eds. (2012) Welfare State, Universalism and Diversity, Edward Elgar. Blank (2000) When can public policy makers rely on private markets? The Economic Journal, 110: C34-49. Brandt, Haberkern & Szydlik (2009) Intergenerational help and care in Europe, Eur Sociological Review, 25: 585 601. Brennan, Cass, Himmelweit & Szebehely (2012) The marketisation of care, J of Eur. Soc. Pol.22:377-391 Goul Andersen (2012) Universalization and de-universalization of unemployment protection in Denmark and Sweden. In: Anttonen et al, eds. Jenson (1997) Who cares? Gender and welfare regimes, Social Politics, 4, 182-187. Lewis & West (2014) Re-shaping social care services for older people in England, Jnl. Soc. Pol. 43,1-18 Meagher & Szebehely (2013) Marketisation in Nordic eldercare, Stockholm University. OECD (2013) Employment outlook 2013. Rodrigues, Huber & Lamura (2012) Facts and figures on healthy ageing and long-term care, European Centre. Saraceno (2010) Social inequalities in facing old-age dependency: a bi-generational perspective, J of Eur. Soc. Pol., 20: 32 Szebehely, Ulmanen & Sand (2014) Att ge omsorg mitt i livet: hur påverkar det arbete och försörjning? Stockholm University Titmuss (1968) Commitment to Welfare. Allen & Unwin. Ungerson (2000) Thinking about the production and consumption of long-term care in Britain: Does gender still matter? Jnl. Soc. Pol. 29(4), 623-643. Vabø & Szebehely (2012) A caring state for all older people? In: Anttonen et al, eds.