About POhWER NHS Complaints Advocacy. This guide will tell you what to expect if you decide to work with POhWER to make a complaint about the NHS

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About POhWER NHS Complaints Advocacy This guide will tell you what to expect if you decide to work with POhWER to make a complaint about the NHS

About POhWER NHS Complaints Advocacy Your Right to Complaints Advocacy By law, people who wish to complain about the care and/or treatment they receive from the NHS in England are entitled to free, independent and confidential advocacy services to help them make their complaint. This service is called the NHS Complaints Advocacy Service. POhWER is completely independent of the NHS and is governed by a Board of Trustees and members who are users of the NHS and other public services. POhWER is the provider of NHS Complaints Advocacy in: Bedford Borough Birmingham Cambridgeshire Central Bedfordshire Coventry Derby City and Derbyshire Dudley Essex Herefordshire Hertfordshire Leicester City and Leicestershire Lincolnshire Luton Milton Keynes Norfolk Nottingham City and Nottinghamshire Peterborough Rutland Sandwell Shropshire Solihull Staffordshire Stoke on Trent Telford and Wrekin Thurrock Waltham Forest Warwickshire If you want to complain about an NHS service outside of these areas we will support you to contact you local NHS Complaints Advocacy provider. Call us on 0300 456 2370 (charged at local rate)

Contents Your Right to Complaints Advocacy 1. Welcome to NHS Complaints Advocacy p4 2. What NHS Complaints Advocacy can and can t do p5 3. How the process works p6 4. When can we help? p7 5. What sort of support can we offer? p8 6. About our staff and our service p9 7. Can we work with everyone, no matter what their needs? p9 8. Giving consent p10 9. How will we treat information you give us? p11 10. Working together p13 11. Service standards p14 12. What if you are not satisfied? p14 13. Feedback p14 14. After your case is closed p15 The POhWER Promises Next Steps Contact Record p16 p17 p18 3

About POhWER NHS Complaints Advocacy 1. Welcome to NHS Complaints Advocacy We hope that this leaflet will help you understand how this works so that you can decide if this is a service that would meet your needs. 4

2. What NHS Complaints Advocacy can and can t do NHS Complaints Advocacy can: Support you to make a complaint about service, care or treatment provided to you or commissioned by the NHS Support you with a complaint that is about health and social care Support you to make a complaint on someone else s behalf, including if someone has died. There are rules about this. You can find out more by reading our leaflet called A step by step guide to making a complaint about the NHS or you can contact us Listen to your concerns Signpost you to the right organisation if we think that someone else can be of more help than we can Answer questions about the NHS complaints procedure and explain your options Provide a step by step guide to the NHS complaints procedure and offer some tips Provide you with a POhWER advocate, an experienced worker who can help you make your complaint and support you through the process Support a young person under 16 if they have capacity to reach their own decisions NHS Complaints Advocacy can t: Work on complaints that fall outside the time periods set in the NHS complaints regulations unless there are special reasons. There is more information in section 4 Help with complaints about services not covered by NHS Complaints Regulations such as privately funded treatment or complaints about council services including social c are, personnel matters such as getting staff disciplined or commercial or contractual matters Give legal advice Help with legal action Investigate complaints Give medical advice Provide counselling Provide a secretarial service Even if we are not able to help with an issue, we may be able to signpost you to someone else who can help. Please do ask us. 5

About POhWER NHS Complaints Advocacy 3. How the process works When you first contact us, one of our information and advice staff will talk to you about your concern, what sort of help you think you require and if you have any particular needs such as large print materials or access to someone who can sign. We will agree an initial plan with you and then we will talk to a local manager to make arrangements for suitable support for you. If we can t help we will try to find someone who can. You will be contacted within 48 hours, or more quickly if the case is urgent. Our staff will run through the plan with you and make any necessary adjustments. Once this is complete we will begin working with you, in line with your plan. We will review the plan with you monthly. If we both agree that the plan needs to change significantly, this will be discussed with the local service manager so that we can be sure that you continue to have the right resources. 6

4. When can NHS Complaints Advocacy help? It can help you at any stage in the NHS complaints process. The key stages are: Resolving a concern informally The NHS complaints procedure is designed to help people to get their concerns and complaints put right as quickly as possible. It encourages people to talk to their healthcare professional and/or to contact the Patient Advice and Liaison Service (PALS) who may be able to get something put right there and then. Your care provider should be able to give you information about local PALS. If not, you can contact us and we will try to help. Making a complaint If you cannot resolve your problem informally, you can make a formal complaint to the service provider. POhWER can help you to make a complaint. Normally you must complain within 12 months of the events that you want to complain about. If there is a good reason why you were not able to complain within the time limits (perhaps, for example, you have been very ill or didn t find out about something in time) it may still be possible for your complaint to be investigated. We can help you find out more about this. Making a complaint to the Health Service Ombudsman If you are dissatisfied with the response provided by the NHS you can take your complaint to the Health Service Ombudsman. POhWER can support you to do this. 7

About POhWER NHS Complaints Advocacy 5. What sort of support can we offer? We can support you with any or all of the following: Finding information relevant to your complaint You may feel that you need a bit of help to find information about your concerns. We may be able to direct you to helpful sources and help you to consider their implications for your case. Talking to NHS staff about current care and/or treatment Perhaps you feel anxious about raising a concern about care and/or treatment that you are receiving now. We can help you with this so that you don t need to complain further and can feel safe and satisfied with the care and treatment being provided. Thinking through your concerns, the complaints process and what you might realistically achieve Complaints are sometimes about matters that are very distressing and the process of complaining can seem very daunting. Sometimes people find it helps to talk through their concerns and the complaints process with someone knowledgeable, empathetic and independent. Accessing your NHS records We can help you to obtain your records. Writing letters A complaint is more likely to be resolved quickly and successfully if it is expressed clearly. We can help you work out what you want to say and to draft letters. Attending meetings Sometimes it is necessary to meet with NHS staff as part of the complaints process. This can feel daunting and sometimes upsetting. We can support you to prepare for and attend meetings with NHS staff so that you can make the most of the opportunity to discuss your case. We will provide the type and level of support that you need, based on our discussions with you. For example you may feel that, because of a disability, ill health, communication or language barriers, trauma, grief or other reasons, you need one to one support from a POhWER advocate throughout the complaints process, who can speak out for you in order to get your complaint heard. Alternatively, once you have talked the complaint through with someone you may feel happy to continue without further support. 8

6. About our staff and our service Our staff All our information and advice staff are fully trained and all our advocates have the National Advocacy Qualification. POhWER also holds the Quality Performance Mark which means that we meet high standards of advocacy. 7. Can we work with everyone, no matter what their needs? We work with people with: Mental health issues Learning difficulties Challenging behaviours Sensory disabilities Little or no English and different cultural backgrounds Bereavement issues or who are in distress Our staff have access to: Medico-legal advice services Secure case management and reporting system Interpreting facilities Assistive technologies Specialist advocates e.g. - Signers - Deaf advocates - Visually impaired advocates Communications kits, and other resources 9

About POhWER NHS Complaints Advocacy 8. Giving consent Before we work with you we will ask you to fill in a form giving your consent. We will also ask you to fill in this form if you are acting on someone else s behalf. This form is enclosed with this booklet and is also on our website We can help you to complete it. 10

9. How will we treat information you give us? All our staff are trained in data protection and treat information as confidential. We won t tell anyone what you tell us unless you want us to. However, we may need to tell other people things about you if we think that you or someone else may be at risk of harm. If we need to talk to other people or organisations to try and get some more information about your case or would like to use information about your case to help train our staff, we will ask you first. We will keep a copy of your information on our secure computer system for 14 months after our last contact with you. If we do not hear from you for 14 months we will remove your information and destroy any paper records we are holding. If at any time you would like to know more about the information we hold about you, please do contact us. 11

About POhWER NHS Complaints Advocacy 12

10. Working together With the help of service users, we have drawn up some ground rules to help ensure that NHS Complaints Advocacy works as well as possible for everyone. Ground rules for working together Please contact POhWER and your advocate through the main office. This helps us make sure that messages are forwarded quickly and helps us to respond to emergencies if your advocate is not available. Contact details are on the back of this booklet We ask that you understand that advocates must work within the rules of the NHS complaints system. They will let you know if you ask them to do something that they cannot do Your advocate will listen to your concerns respectfully and explain your options. We ask that you also treat your advocate with respect Your advocate will agree with you the level of support and contact to be provided to you. If you feel you need to change this, please discuss this with your advocate and a new plan can be made if necessary We ask that you understand that an advocate cannot give you a personal opinion on your complaint Please don t use unpleasant language or make personal comments based on race, gender, sexual orientation or disability at any point in your discussions with our staff If you are dissatisfied with our service, please do use our complaints system and we will do our best to put things right. There is information about this in section 11 Any comments about your experience of POhWER are very welcome and can be made by telephone, by post, by email, or through our website 13

About POhWER NHS Complaints Advocacy 11. Service standards We want our clients to feel confident that we offer a good quality service and we ask external bodies to assess us. POhWER holds the industry standard award for providing high quality advocacy services the QPM. We also hold the Community Legal Services Information and Advice Award and are members of Advice UK and the Telephone Helplines Association. We have the disabilities two ticks award and are recognised by many organisations supporting people who fall into the equality groups. You can find out more by looking at our website. We have set out the key standards that apply to the delivery of our services to clients as the POhWER Promises which can be found on page 16. 12. What if you are not satisfied? You can comment or complain about our service by contacting us using the details on the back of this booklet. If you make a complaint we aim to resolve the issue quickly, fully and at a local level. We will respond to your complaint within two working days and try to resolve the issue immediately. If necessary, we will carry out a formal investigation and keep you updated throughout the process. If you have used POhWER s internal complaints process and you are not satisfied, you can appeal to the commissioning organisation, currently the Department of Health, or to the Charity Commission. For more information and contact details for these organisations, visit our website. 13. Feedback We are always keen to improve our services and after we close your case, we may want to contact you to ask for feedback about our service. 14

14. After your case is closed We will offer you the opportunity to stay in touch with POhWER by getting involved with POhWER in your local area or becoming a member. Sometimes people also feel that they would still like a bit of support, but don t need advocacy. If so, we may be able to link you up with our volunteer service if we have one in your area, ask us. If you do not want us to contact you about feedback or becoming a member, please let us know on 0300 456 2370 or at pohwer@pohwer.net. 15

About POhWER NHS Complaints Advocacy The POhWER Promises When you contact us, we will: Give you accurate information about our services and your options within 48 hours Let you know if we are not the best people to help you and tell you who else might be able to help and how Help you to contact other organisations if you would like us to Give you information in a way that meets your needs for example, Easy Read, large print or in another language Use plain language and no jargon Treat you politely and with respect at all times Make sure we have your consent if you need advocacy When you phone, we will: Answer your call within four rings if we can, and reply to voicemail messages within one working day Give you the name of the person you are speaking to, listen to you and talk through your options Ring you back within two working days if we cannot give you the help you need at once When you email or write a letter to us, we will: Let you know we have received your letter within two working days, either by writing back to you or by calling you on the telephone if you ask us to Explain your options and agree what the next step might be Tell you who your contact is When you are helping someone else get support from POhWER, we will: Tell you about how we can work with you and the person you are helping Explain to you about consent and agree with you who we should contact, how and when If you or your representative needs an advocate to help you, we will: Get back to you within five working days Listen to what you have to say and respect your views, experience and privacy Give you all the options open to you and the information you may need to help you decide what you want to do Keep in touch with you at least once a month Tell you when we are going to close your case and why we are doing that Delete any records we hold about you 14 months after we last hear from you (unless the law says otherwise) If we need to meet you, we will: Get in touch with you to agree a date, time and place that suits us both Wear a POhWER badge so you can easily see who we are 16

Next Steps If you haven t already made contact with us you can call 0300 456 2370 or use the contact details on the back of this booklet. Consent Form If you would like to work with a POhWER advocate or you would like to nominate someone else to act on your behalf, please fill out the Consent Form enclosed with this booklet and return to the address on the back. Contact Record Use this form to keep track of your contact with your POhWER advocate. Advocate name:... Advocate contact number:... 17

About POhWER NHS Complaints Advocacy Contact Record Record appointments, conversations and meetings with your POhWER advocate below: DATE TIME NOTES 18

Having difficulties reading this leaflet? We can provide information in a way that suits you. We can provide information in: Different languages Braille Large print Easy Read Audio format We have advocates who can sign, use communications toolkits and have access to lots of other resources. The different ways to contact us are on the back page. Please let us know what you need and we will do our best to help. 19

Registered Charity Number 1061543 Company Number - 3323040 How to contact us Telephone - 0300 456 2370 (charged at local rate) Minicom - 0300 456 2364 Text - send the word pohwer with your name and number to 81025 Email - pohwer@pohwer.net Skype - pohwer.advocacy (8am to 6pm Monday to Friday) Fax - 0300 456 2365 Post - Write to us at POhWER, PO Box 14043, Birmingham B6 9BL For more information visit our website at Access to information We provide leaflets and information in a variety of languages and formats including Easy Read. We have access to translation and interpreting services. We use communication tool kits, Makaton and other signing techniques.