Innovations in Primary Care Pediatrics: Models of Collaborative Care Between Primary and Subspecialty Providers

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Innovations in Primary Care Pediatrics: Models of Collaborative Care Between Primary and Subspecialty Providers Richard C. Antonelli, MD, MS, FAAP Primary Care Pediatrician Medical Director of Integrated Care Boston Children s Hospital October, 2014

Richard Antonelli has no financial relationships to disclose or conflicts of interest to resolve. There will be no discussion of unapproved or off-label, experimental or investigational use.

Describe the basis for the observation that the Family and Patient-Centered Medical Home is necessary but not sufficient-- to achieve optimal outcomes. Demonstrate how the F/PCMH can implement care integration with specialists.

Chronic Conditions Enhancing F/PCMH performance Enhance Subspecialty Access Collaborative Care Models More timely access to actionable information More timely access to appointments Virtual access to referring providers Virtual access to patients/ families Enhance Patient Self-Management Skills

If a physician make a large incision with an operating knife and cure it, or if he open a tumor (over the eye) with an operating knife, and saves the eye, he shall receive ten shekels in money. Bundled payment If a physician make a large incision with the operating knife, and kill him, or open a tumor with the operating knife, and cut out the eye, his hands shall be cut off. Pay for performance

Common, Chronic Conditions Enhancing F/PCMH performance Enhance Subspecialty Access Collaborative Care Models More timely access to actionable information More timely access to appointments Virtual access to referring providers Virtual access to patients/ families Enhance Patient Self-Management Skills

Measures of Complexity Medical Care Coordination Psychosocial and socioeconomic Proactively Identify patients and families Define locus of accountability for CC Subspecialists PCP s Community Health Workers Others Information available on as needed basis to all care providers Team-based care Multidisciplinary, dynamic care plan follows the patient Transparency to patients and families

Medical Homes will not be successful in achieving optimal value unless there is integration of care across the continuum, from the perspective of the patient and family.

Definition of Integrated Care Integrated care is the seamless provision of health care services, from the perspective of the patient and family, across the entire care continuum. It results from coordinating the efforts of all providers, irrespective of institutional, departmental, or community-based organizational boundaries. Antonelli,Care Integration for Children with Special Health Needs: Improving Outcomes and Managing Costs. National Governors Association Center for Best Practices, 2012

Complex Chronic Healthy, Preventive % of population 0.5% 25% 74.5% % of spend 25% 70% 5%

Children with special needs --Behavioral (ADHD, depression, anxiety, PTSD) -- Constipation, GERD -- Headache -- Concussion Complex Chronic Healthy, Preventive Children with complex needs --Neurodevelopmental (Autism, etc.) --Behavioral/Psychiatric --Oncology Sickle cell Hemophilia --Technology dependent

PCMH largely focuses on support of entire patient populations and only a few of the activities actively start to address the needs of those with highly complex diseases. Complex Chronic Healthy, Preventive 4B: Care Planning and Self-Care Support 5B: Referral Tracking and Follow-up 1A: Patient Centered Appointment Access 2D: The Practice Team 3D: Use Data for Population Management 6D: Implement Continuous Quality Improvement The 2014 NCQA PCMH Must Pass Elements are represented above.

Specialist or PCP comfortable with high risk patients as the medical home. Patient's specialists highly connected and identified patient coordinator supports the patient and/or family. Complex Chronic PCP as the medical home + the patient s specialists. PCP care team support care coordination with the patient and/or family. PCP as the medical home and specialist visits as needed. Most care coordination is conducted by the patient and/or family. Healthy, Preventive

Care Coordination is the set of activities which occurs in the space between Visits, Providers, Hospital stays Care Coordination is Necessary but not Sufficient to Achieve Integration Only way to succeed is to engage all stakeholders including patients and families as participants and partners

States Using/Considering Pediatric Care Coordination Curriculum =states with interest in using Pediatric Care Coordination Curriculum As of May 1, 2014 =states that have used/are currently using the Pediatric Care Coordination Curriculum to develop workforce capacity

Key Elements (1) Needs assessment for care coordination and continuing engagement Family-driven, youth-guided needs assessment, goal setting Use a standard process to assess care coordination needs (differs from clinical needs Engage team, assign clear roles and responsibilities Develop authentic family-provider/care team partnerships; requires family/youth capacity building, professional skill building (2) Care planning and communication Family and care team co-develop care plans Ensure communication among all members of the care team Monitor, follow-up, respond to change, track progress toward goals Workforce training occurs that promotes effective care plan implementation (3) Facilitating care transitions (inpatient, ambulatory) Family engagement to align transition plan with family goals, needs Use Implement components of successful transitions (8 elements of a family-driven/youth guided care transition, including receiving provider acknowledging responsibility) Ensure information needed at transition points is available (4) Connecting with community resources and schools Facilitate connection to MA family-run org or Family Partner Coordinate services with schools, agencies, payers Identify opportunities to reduce duplication of efforts in building knowledge of available community services (5) Transitioning to adult care Implement Ctr for Health Care Transition Improvement s Six Core Elements Teach/model self-care skills, communication skills, self-advocacy Measures Reference Table 1 in the handout Source: MA CHQC CC TF

http://www.childrenshospital.org/care-coordination-curriculum/care-coordination-measurement

And to review slides from this evening s session, please visit: http://www.childrenshospital.org/carecoordination-curriculum/care-coordinationmeasurement For additional questions, please email: richard.antonelli@childrens.harvard.edu 23

Patient- and Family-Centered Care Coordination: A Framework for Integrating Care For Children and Youth Across Multiple Systems. pediatrics.aappublications.org/content/early/2014/04/22/peds.2014-0318.full.pdf+html MA CHIPRA Child Healthcare Quality Coalition Care Coordination Task Force Key Elements Framework www.mhqp.org/emaillinks/chqc%20cc%20key%20elements%20high% 20Level%20Framework.pdf Care Coordination Curriculum Antonelli RC, Browning DM, Hackett Hunter P, McAllister JW, Risko W. Pediatric Care Coordination Curriculum, Children s Hospital Boston, 2014, funded by USMCHB. http://www.childrenshospital.org/care-coordination-curriculum

Antonelli, McAllister, and Popp, Making Care Coordination a Critical Component of the Pediatric Health System, A Multidisciplinary Framework, The Commonwealth Fund, 2009. McDonald, et al, Care Coordination Measures Atlas. AHRQ Publication No. 11-0023-EF, January 2011. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/qual/careatlas/

Antonelli, R, McAllister, J, and Popp, J, Making Care Coordination a Critical Component of the Pediatric Health System: A Multidisciplinary Framework, The Commonwealth Fund, May, 2009. Turchi, R, Berhane, Z, Bethell, C, Pomponio, A, Antonelli, R, Minkovitz, C. Care Coordination for Children with Special Health Care Needs- Associations with Family Provider Relations and Family/Child Outcomes, Pediatrics, in press. Wegner, SE, Antonelli, RC, and Turchi, RM. The medical home-improving quality of primary care for children, Pedatri Clin North Am, 1 Aug 2009 56 (4): p. 953. Antonelli, R, and Turchi, R, Co-eds, Managing Children with Special Health Needs, Pediatr Annals, September, 2009. Wegner SE, Humble CG, Antonelli RC, Looming financial issues for medical homes in healthcare reform. Pediatr Ann. 2009 Sep;38(9):524-8. McAllister J, Presler E, Turchi R, Antonelli RC, Achieving effective care coordination in the medical home. Pediatr Ann. 2009 Sep;38(9):491-7. Antonelli R, Turchi RM, This issue: the family-centered medical home in pediatrics. Pediatr Ann. 2009 Sep;38(9):472, 473-4.

Antonelli, RC, Stille, C, and Antonelli, DM, Care coordination for children and youth with special health care needs: a descriptive, multisite study of activities, personnel costs, and outcomes. Pediatrics. 2008 Jul;122(1):e209-16. Turchi, R, Gatto, M, and Antonelli, R, Children and Youth with Special Health Care Needs: There is No Place Like (a Medical) Home, Curr Opin Pediatr 2007, 19: 503. Connor, D, McLaughlin, T, Jeffers-Terry, M, O Brien, W, Stille, C, Young, L, and Antonelli, R, Targeted Child Psychiatric Primary Clinician-Child Psychiatry Collaborative Care, Clin Pediatr. 2006; 45:423-434. Antonelli, R., Stille, C., Freeman, L.,Enhancing Collaboration: Roles of Primary and Subspecialty Care Physicians in Providing a MH for CYSHCN, MCHB, Georgetown Univ, 2005. Stille, C and Antonelli, R, Coordination of care for children with special health care needs, Curr Opin Pediatr 2004;16:700-705. Antonelli, R and Antonelli, D, Providing a medical home: the cost of care coordination services in a community-based, general pediatric practice, Pediatrics 2004; 113:1522-1528. Sia, CJ, Antonelli, R., Gupta, VB, Buchanan, G., et al, American Academy of Pediatrics, Medical Home Initiatives for Children with Special Needs Project Advisory Committee, The Medical Home Policy Statement, Pediatrics, 2002; 110: 184-186.

http://www.medicalhomeinfo.org American Academy of Pediatrics hosted site that provides many useful tools and resources for families and providers http://www.medicalhomeimprovement.org tools for assessing and improving quality of care delivery, including the Medical Home Index, and Medical Home Family Index MA Child Health Quality Coalition http://www.mhqp.org/collaboration/chqc.asp?nav=06 3700 Care Mapping http://www.childrenshospital.org/care-mapping