Irish Qualitative Data Archive

Transcription

1 Irish Qualitative Data Archive Dr. Jane Gray Irish Qualitative Data Archive, National Institute for Regional and Spatial Analysis NUI Maynooth Children s Research Network Masterclass, January 26th, 2012

2 Who We Are Established in 2008 as part of the Irish Social Science Platform under PRTLI4 Housed in the National Institute for Regional and Spatial Analysis at NUI Maynooth Aims: To be the central access point for all qualitative social science data generated in Ireland Promote best practice in data management Participant in consortium to develop the Digital Repository of Ireland under PRTLI5

3 Qualitative Data What kinds of data do we archive? Interviews (audio, video, transcripts) Focus groups Diaries and documents Field notes Photographs Why re-use archived qualitative data? Ask new questions Comparative studies Learn by looking at the work of others Reduce burden on respondents Add value for funders

4 Growing Up in Ireland R ok. So what about again if you think into the future, is there anything that you think that you would be worried about? C getting a job R ok. Why do you think that s a worry, do you think that might be hard? C yeah R what do you think makes that hard? C that other people apply and they could just get it R so before you. Is there any job in particular that you think you might like to do? Apart from soccer player, you'll probably earn loads of money from that so you won t need a job! But if you had to get a job is there anything? C maybe to have R ok. What would you sell? C plants and carpets, bowls and plates, cups and toys Qualitative module Interviews with children Interviews with parents Time capsules Field notes First wave of interviews with sample of 120 families from the 9 year cohort

5 Protestants and Irishness in Independent Ireland We walked from here we had a protestant school.. They d have to go into their own school further in the town. And we connected in the morning and, in. out.. We visited, we kicked football, we were always pals oh,we d have a slagging match coming out the road, all right Catholic, Catholic, quack,quack, quack, Go to the divvil, and never come back. Protestant, Protestant, - they had some other rhyme! That s all. And go away laughing.. Meant nothing Oral history comprising more than one hundred interviews

6 Irish Catholics in Scotland! As soon as the school closed we went across. My father would be working and then he would come across for a fortnight for the Fair. So as soon as we went over there the first thing we would do was throw off our shoes and socks and that would be us more or less for the holiday, apart from Sundays, running about in our bare feet...! That was the whole idea to get away from city life. I remember thinking some of the days we would be coming back and you would be saying to yourself just think tomorrow we'll be in Glasgow and it was really a sad occasion and when the mini bus came to pick us up, there would be a dozen of us going back and one person would start crying and that started us all, and my oldest brother would go around saying cheerio to the hens and the cows and it was terrible. It is still a wrench leaving the place and coming back but in those days you knew that was it for another year.

7 Life Histories and Social Change in 20 th Century Ireland Retrospective qualitative interviews with more than 100 respondents (three birth cohorts) who took part in all eight waves of the Living in Ireland study "My mother used to make a ball and we used to play ball, she used to make a hurl out of a bit of a board and make the handle a bit thin and you could catch it, no shape or make it only a bit of a board. And she used to make a ball out of a soft set of turf and put an old sock around it"

8 Suburban Affiliations Four suburban localities in Greater Dublin Area Mixed methods Includes: Focus groups with sixth class children Essays on The Place Where I Live 8

9 Best Practice in Data Management: the RACcER Project Demonstrator project co-funded by IRCHSS and Tallaght West Childhood Development Initiative Best Practice Handbook Archive of CDI internal documents Minutes and agendas from Board, Management Team, Communities of Practice

10 Ethical Framework est practice in qualitative data archiving requires attention to the following six terrelated processes: Consent Anonymisation Depositor and end-user licenses and legal agreements Access and user restrictions his handbook reviews each process in turn.

11 Data management for deposit Seek informed consent to archiving Prepare data in suitable format Develop an anonymisation plan Develop an archiving strategy for sensitive data Prepare a user guide Sign licensing agreement 11

12 without having to give an explanation. Sample consent Yes No form 5. I agree to the interview being audiotaped and to its contents being used for research purposes. Below, are sets of statements that give you, the interviewee, a series of options about how you wish your interview to be used. Please answer each statement. 6. I agree to being identified in this interview and in any Yes No subsequent publications or use. 7. I do not agree to being identified in this interview and in any subsequent publications or use. Where used my name must be removed and my comments made unattributable. Sample Yes No See Note 1: 8. I do not agree to being identified in this interview and in any subsequent publications or use. Where used my name must be removed and my comments made unattributable. At my request, other information that may identify me must be removed. I understand that I must make this request within one month of receiving a copy of my transcript. Yes No 9. I agree to the transcripts (in line with the conditions outlined above) being archived and used by other bona fide researchers. Yes No 10. I agree to my audiotapes (in line with the conditions outlined above) being archived and used by other bona fide researchers. Yes No 12

13 Appendix 2: Archiving Formats Data formats Text Formats: Preferred * Rich Text Format (.rtf) * Plain text data, ASCII (.txt) * extensible Markup Language (XML) marked-up text according to an appropriate Document Type Definition (DTD) or schema Accepted * Hypertext Markup Language (HTML) * widely-used proprietary formats e.g. Microsoft Word (.doc/.docx) * Proprietary/software-specific formats such as NUD*IST, NVivo and ATLAS.ti Audio Formats: Preferred: * Free Lossless Audio Codec (FLAC) (.flac) * WAV file (.wav) Accepted: Thursday 26 January * MPEG-1 12 Audio Layer 3 (MP3) 13

14 Anonymisation General approach Remove major identifying data and all identifying details Replace with descriptions that reflect significance of original text in context Create a changes file to record actions and alerts Use a clear and consistent identifier Consider using a semi-automated anonymisation tool Remove sensitive text 14

15 Thursday 26 January! 12 Create a robust back up procedure to protect data from the threat of! Is there a risk that the text will be harmful to the research participant? For example, might the text expose the participant to ridicule or have other adverse consequences for them? Dealing with sensitive data By examining these two parameters is possible to make an overall assessment of the risk level of the data (see Table 1). Table 1: Assessing Sensitivity Level of the Data to dealing with sensitive data include removal of sensitive text segments Risk of Identification Risk Of Harm Sensitivity Level or placing a time embargo on dissemination of the archived document. Little Low Low Where text has been excised, it is essential that this is noted either in Some Low Medium the archived documents, or in the user guide. An example of such a Any High High strategy is shown in Table 2. Once the level of risk has been identified, an archiving strategy can be Table 2: Developing an Archiving Strategy Appropriate to the Level of Sensitivity developed that is appropriate to that level of risk. Common approaches Sensitivity Participant Anonymised Access Remove Embargo 30 Year Level Consent Sensitive (Anonymised Embargo (See 6 Text Sensitive Text (Sensitive _ Table 1) Removed) Text Not Removed) Low Yes Yes Restricted N/A No No Medium Yes Yes Restricted No No No High Yes Yes Restricted Yes No Yes Implementation of the strategy will ensure that the sensitivity levels of the archived documents are reduced following data preparation and processing. 15

16 Deposit data Depositor Agreement Dataset Title: Conditions of archiving and re-use: With this agreement and completed online catalogue entry, I/We submit the above mentioned dataset with its supplementary documents to be archived at the Irish Qualitative Data Archive (IQDA). Unless otherwise stated in this agreement, the depositor or the depositing body will retain the ownership and copyright to the dataset and related material. The depositor affirms that the dataset has been prepared in such manner as to protect the confidentiality of individuals and bodies whose details appear in the data, in compliance with professional norms. The depositor undertakes that the dataset does not contravene any laws including but not limited to those relating to defamation or obscenity. IQDA may revise and validitate the deposited dataset, and distribute it for 16

17 Accessing data Normally available to bona fide researchers only Complete data access request form and sign agreement on conditions of use Data transferred electronically in encrypted format Agreement on Conditions of Use This agreement covers the use of data files and all related material (hereafter data ) supplied by the Irish Qualitative Data Archive (IQDA). A signed copy of this agreement must be submitted by all users named on the Data Access Request form. 1. Users of the data LEAD USER is defined as the person who has made an application and been approved to use the data specified in the Data Access Request Form. OTHER USER is a person named as other user in the Data Access Request Form who has access to the data in addition to the LEAD USER, but under the control of the LEAD USER. LEAD USER and OTHER USERS are collectively defined as the USERS and both have responsibilities under this agreement. 2. Purpose of use and disposal of data USER undertakes to use the data only for the purposes stated in the Data Access Request Form, after which the data will be disposed of. If USER wishes to use the data for other research or teaching purposes, USER will send a new access application to the Archive. Use of the data, and/or results obtained from use of the data, for any purpose other than research or teaching is prohibited. 3. Data security LEAD USER undertakes that no-one but the USERS will have access to the material. LEAD USER shall be responsible for compliance with the terms and conditions of this agreement and for controlling access to the data. One copy of the data may be held centrally on the LEAD USER s computer systems. Apart from a single copy made by the LEAD USER for the purpose of back-up, no other copy of the data shall be made by any USER. The data may not be copied to local workstations or computers, whether standalone or linked to the LEAD USER s computer system. Security arrangements on the LEAD USER s computer facilities will be established to ensure that access to the data stored centrally is limited to those persons who are permitted under this agreement to access the data. 4. Data protection USER will ensure that while storing or using the data, and publishing information based on it, the confidentiality of individuals and bodies whose details appear in the data are protected. USER will not attempt to identify, or claim to identify, any individuals or participating bodies in a manner that would breach privacy or data protection laws. USER will not attempt to match, or claim to have matched data relating to individuals or participating bodies to any other data. If, in the course of research, USER recognizes, or suspects he/she might recognize a study participant, USER will immediately inform the IQDA staff and USER will not use or retain a copy of that participant s data. USER will ensure that full compliance with all data protection laws is observed when results obtained from the data are published or presented in a public forum. USER allows IQDA to enter personal data submitted by USER in the 17

18 Exploring the IQDA website Home page Qualicat Accessing data Depositing data Other features Map search Anonymisation tool Audio samples