Nicole Guffey Wiseman, MPA Assistant Director Friend for Life Cancer Support Network
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1 Nicole Guffey Wiseman, MPA Assistant Director Friend for Life Cancer Support Network
2 Sandra Fleeks
3 Objectives Upon completion of this activity, participants will be able to: Describe the mission of Friend for Life Cancer Support Network. Determine how Friend for Life can be of assistance to fulfilling Commission On Cancer guidelines for psychosocial support in your particular program. Develop a process for referring patients and family members to Friend for Life for support or to volunteer.
4 Friend for Life s Peer Navigators Helps formulate list of questions to ask doctor Speaks about possible side effects of a particular chemo drug Alleviates some fear around upcoming surgery Able to connect with a ride to treatment or place to stay during treatment Available nights and weekends Available via phone or Available in the comfort of your own home Support available to caregiver as well as patient
5 Friend for Life Beginnings Chuck Sandman (left) & Phil Bramblette (right) met over a cup of coffee at Hardee s after being introduced via their oncology nurse. This was the first match.
6 Friend for Life Cancer Support Network s Mission To help persons recently diagnosed with cancer and their loved ones navigate the path through diagnosis, treatment and recovery by pairing them with a trained survivor of a similar experience so they can face cancer with someone who's been there.
7 Who We Are: Staff Judy Kasey Houlette, MA Executive Director Nicole Guffey Wiseman, MPA Assistant Director Eileen Krueger, Graduate Intern, Spalding School of Social Work
8 Who We Are: Volunteers 242 Cancer Survivor & Caregiver Peer Navigator Volunteers Current Age: 23 to 91 Age at Diagnosis: 16 to 75 Over 50 different types of cancer DCIS, Stage I-IV Living in Alabama, California, Florida, Georgia, Illinois, Indiana, Maryland, Michigan, New York, Ohio, Pennsylvania, South Carolina, Texas, Wyoming and of course, Kentucky Counties In Kentucky: Boyle, Bullitt, Fayette, Hardin, Henry, Jefferson, Madison, Marshall, Meade, Montgomery, Oldham, Shelby, Spencer
9
10 Who We Are: Support Seekers 56 yr old male with salivary gland tumor, no other support 28 yr old female with small children living with stage IV cancer 71 yr old male on feeding tube for extended period of time for esophageal cancer 39 yr old female caring for husband with stage III thyroid cancer Deciding between lumpectomy & mastectomy Uncertain about particular chemo drug side effects Homeless Caring for disabled spouse
11 Who We Are Not: Friend for Life is Not A support group Support is provided 1:1 model rather than in a group setting Providing medical advice Peer navigators speak from their experience and do no give suggestions on course of treatment their support seeker should take. Dependent upon location Support seekers are usually matched with a peer navigator based on diagnosis details rather than location
12 What We Do Receive support request from support seeker referral from medical professional/other nonprofit organization directly from support seeker by Phone Website (online form) Walk in to office Complete intake form Search database of volunteer peer navigators for match Unable to find close match, contact other 1:1 for match Give peer navigator contact info of support seeker Peer navigator contacts support seeker
13 Word of Mouth Speakers Bureau Print/Online Resource List Social Media Brochure at MD Office/Cancer Resource Center Web Search MD Refers Nurse Navigator Refers Other Cancer Support Organization Refers Directly from Patient Receive support request from support seeker Phone Submit Form on Website Fax Walk In Facebook /Twitter
14 How Does Support Work? Initial contact made ideally within 24 hours Peer navigators stay in touch throughout treatment Generally weekly/bi-weekly Most support over phone (though some in person if distance not an issue; also support via , Skype, mailed cards)
15 How Do We Know Support Is Working? /Mailed letter sent within one week of match made Ensure PN in touch with support seeker Feedback form ed/mailed within 3-6 months of contact To support seeker to ensure good support, additional resources needed, etc. If treatment completed, asked if interested in volunteering To peer navigators to ensure needs met as volunteers Continuing education opportunities available Invited to yearly training of volunteers Informal feedback and check in calls from staff/office volunteers
16 Volunteer Training Live 8-hour training (annually/semi-annually) Provided by mental health professional Focuses on boundaries, how to provide quality support, getting in touch and staying in touch with support seeker, where to go for resources, etc. Online training modules available NOW
17 Process to Become Peer Navigator Detailed application Attend training (live and/or online) Interviewed by staff Reference letters from medical professional & someone who knows person well
18 Med/Nursing School Outreach Beginning in 2007 Friend for Life volunteers began participating in conversations with first-year medical students at University of Louisville Similar project in fall 2009 at Galen College of Nursing Now: UL Medical, Nursing & Social Work, Galen College of Nursing Purpose? An effort to improve communication and understanding of patient and caregiver perspectives by future healthcare practitioners.
19 Rural Outreach Received American Psychological Association s Socioeconomic Cancer Related Disparities (SESRCD) grant in summer 2013 Focuses on counties in Buffalo Trace & Big Sandy areas Ads in area newspapers Visited sites and met with persons in oncology field across area Handed out brochures Enhanced by connections already made through Kentucky Cancer Consortium Goal: increase awareness of support offered as well as network with existing programs to fill gaps
20 How We Can Help You FFL s Peer Navigators can provide support to your patients Can help fulfill COC Guidelines surrounding Psychosocial Support Be a resource for you, your patients and their families
21 Commission on Cancer (COC) Guidelines E10 Psychosocial Services: A policy or procedure is in place to ensure patient access to psychosocial services either on-site or by referral. STANDARD 3.2 Psychosocial Distress Screening (2015) Cancer committee develops and implements a process to assess and address the psychosocial distress of patients with cancer. Source: Commission On Cancer, Cancer Program Standards 2012: Ensuring Patient-Centered Care v1.2.1
22 E10: Psychosocial Services Psychosocial services are essential components of comprehensive cancer care and are provided to patients with cancer and their caregivers throughout the continuum of care. These services address physical, psychological, social, spiritual, and financial support needs that result from a cancer diagnosis and help ensure the best possible outcome. Services are available on-site or by referral, a process is in place to make patients aware of them, and their use is monitored. The program provides a copy of the facility-wide or cancer program policy or procedure that ensures access to psychosocial services and identifies the psychosocial services provided either on-site or by referral. Annually, the program identifies in the Survey Application Record (SAR) the psychosocial services that are available either on-site or by referral. An NCIdesignated Comprehensive Care Center Program (NCIP) facility has the option to complete this section of the SAR to display information about available psychosocial services in the CoC Hospital Locator. Source: Commission On Cancer, Cancer Program Standards 2012: Ensuring Patient-Centered Care v1.2.1
23 Standard 3.2 Psychosocial Distress Screening Assessment and Referral: As recommended in the 2007 Institute of Medicine (IOM) report, if there is clinical evidence of moderate or severe distress, the patient s oncology team (oncologist, nurse, social worker, and/or psychologist) is to identify and examine the psychological, behavioral and social problems of patients that interfere with their ability to participate fully in their health care and manage their illness and its consequences. This evaluation will confirm the presence of physical, psychological, social, spiritual, and financial support needs and indicate the need to link patients with psychosocial services offered on-site or by referral. Source: Commission On Cancer, Cancer Program Standards 2012: Ensuring Patient-Centered Care v1.2.1
24 Information We Collect Basic contact information Phone, , mailing address Demographic information Age, gender Diagnosis details Cancer type, stage, treatments completed/planned Other support system info Marital status, children, employed, support groups, faith/spiritual Anything else important to the support seeker Particular chemo drug, single mother with young children, Spanish speaking, other health conditions, etc.
25 How to Refer Directly via faxed/ ed intake sheet after consent from patient Directly via phone Give patient brochure where they can: Call Fill out online form
26 How You Can Help Us Refer cancer patients & their family members to FFL for support Refer cancer survivors & caregivers of persons who have survived cancer to FFL to volunteer Help us identify additional funding streams to keep up with the increased intakes FFL has received a 142% increase in requests for support and information over the past 5 years
27 Objectives Upon completion of this activity, participants will be able to: Describe the mission of Friend for Life Cancer Support Network. Determine how Friend for Life can be of assistance to fulfilling Commission On Cancer guidelines for psychosocial support in your particular program. Develop a process for referring patients and family members to Friend for Life for support or to volunteer.
28 Questions?
29 "I want to thank you for your program. I have been in that horrid time period between lumpectomy and starting chemo. My mind has been a house of horrors. Then this past week I spoke to one of your volunteers and that is when I turned a corner. I have more peace now. There is real healing power in your organization's mission. Thank you. - Suzanne"
30 Please stay in touch! Search: Friend for Life Cancer Support
31 Please stay in touch! (502) (866) FRIEND 4 (866) Kresge Way, Suite 100 Louisville, KY 40207
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