1 Pediatric Cardiac Rehabilitation Program Lynne Telfer, RN
2 Introduction Congenital heart disease is the number 1 birth defect in the world. Heart disease is second only to asthma as the leading cause of illness in children Every year in Saskatchewan there are about 140 children who are diagnosed with heart disease and approximately 70 children go out of province for cardiac surgery Due to medical and surgical advances there are now more adults than children living in Canada with Congenital Heart disease
3 My Inspiration
4 What is a Pediatric Cardiac Rehab Program? Similar to Adult Cardiac Rehabilitation Program For children ages 6 18 with Congenital or Acquired Heart Disease Participation is voluntary with Pediatric Cardiologist approval
5 Components of the Program Program will provide: Fun exercise programs Nutrition information Family involvement Emotional support Education
6 Multidisciplinary Team Multidisciplinary involvement in program development and implementation Exercise physiologist Dietician Psychologist Registered nurse Patient and family
7 Benefits of Cardiac Rehabilitation Psychological Ability to confidently manage physical activity Increased sense of well being Support system Physiological Increased cardiac function Increase exercise capacity and energy Education Knowledge of their specific cardiac issues
8 Boston Pediatric Cardiac Rehab Study A 12 week pediatric cardiac rehab study was done in 2005 by Dr. Jonathan Rhodes at the Children s Hospital in Boston At the 7 month follow up testing they found significant, sustained improvements in exercise function in the participants who continued to exercise The participants also showed improvement in their behavior, self esteem and emotional state
9 Where do we go from here? Parent and patient survey Pilot study Western Canadian Children s Heart Network Saskatchewan Union of Nurses Coronary Artery Rehabilitation Group
10 12 KEY Patient and Family Centered Practices Patients and families are seen as essential members of the health care team in all settings across the continuum of care. Staff and clinicians introduce themselves to patients and their family members in all encounters. Patients and families are supported in collaborative selfmanagement in ambulatory settings. Families are no longer viewed as visitors. Patients and families are partners with staff and clinicians in enhancing patient safety.
11 Patients and families are encouraged and supported to participate in nurse change of shift report and rounds. Patients and families have timely, useful information about medications. Patients and families have access to a Rapid Response Team. Patients and families according to patient preference, have easy access to their clinical information, medical record, and the daily recording of care.
12 Patients and families are encouraged and supported in participating in the planning for discharge and other transitions. Education and support are provided to front line nursing and allied health staff, physicians, unit leaders, and trainees for how to introduce themselves and how to collaborate with patients and families. Patients and families participate in meaningful sustained ways in policy and program development, implementation, and evaluation; in quality improvement and safety initiatives; in facility design planning; and in professional education. Institute for Patient and Family Centered Care Bethesda, Maryland (www.ipfcc.org)
13 Thank You Saskatchewan Union of Nurses Western Canadian Children s Heart Network Pediatric Cardiology Coronary Artery Rehabilitation Group Health Council of Canada Little Hearts Family Group Inc. Sean and Joanne Telfer
14 Appropriate educational and psychological support for the children and their families is the next challenge for all of us in the field of paediatrics. How ironic it would be to have invested so much in early survival, only to allow the child to fail in life itself. Dr. Derek G. Human Medical Director, Cardiac Sciences Program, BC Children s Hospital Head of the Division of Cardiology, University of British Columbia
15 References Human, DG (2009) Living with complex congenital heart disease. Paediatric Child Health, 14(3): Kendall et. al. (2003). The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease. Cardiol Young, 13 (1), Rhodes et. al. (2006). Sustained Effects of Cardiac Rehabilitation in Children with Serious Congenital Heart Disease. Pediatrics, 118(3), Statistics Canada.
16 References Samorriba, G. et.al.(2008) Exercise Rehabilitation in Pediatric Cardiomyopathy. Pediatric Cardiology, 25(1): Norozi, K. et. al. (2005) Normality of Cardiopulmonary Capacity in Children Operated on to Correct Congenital Heart Defects. Archives Pediatric Adolescent Medicine;159: Rhodes,T. et.al.(2005) Impact of Cardiac Rehabilitation on the Exercise Function of Children With Serious Congenital Heart Disease. Pediatrics;116; The Heart and Stroke Foundation of Canada.
A Provincial Framework for End-of-Life Care Ministry of Health May 2006 Letter from the Minister British Columbia continues to develop a health care system that encourages choice and dignity, along with
Palliative and End of Life Care Strategy for Northern Ireland Consultation Document December 2009 Contents Page Foreword 4 Executive Summary including Recommendations 6 Vision for Quality Palliative and
Evidence: Helping people help themselves A review of the evidence considering whether it is worthwhile to support self-management May 2011 Identify Innovate Demonstrate Encourage Author Dr Debra de Silva
Alberta Provincial Framework 2014 Alberta Health Services Palliative and End-of-life Care Provincial Framework Table of Contents 1. Executive Summary... 3 2. Introduction... 6 3. Vision... 7 4. Values,
Quality End-of-Life Care Coalition of Canada La Coalition pour des soins de fin de vie de qualité de Canada Introduction Over the past 10 years, the 30 national organizations that are members of the Quality
TRIM: 93267 National Consensus Statement: Essential Elements for Safe and High-Quality End-of-Life Care in Acute Hospitals Consultation draft January 2014 Commonwealth of Australia 2014 This work is copyright.
Making Every Young Person with Diabetes Matter Report of the Children and Young People with Diabetes Working Group DH INFORMATION READER BOX Policy HR/Workforce Management Planning Clinical Document purpose
Actions for End of Life Care: 2014-16 NHS England INFORMATION READER BOX Directorate Medical Commissioning Operations Patients and Information Nursing Trans. & Corp. Ops. Commissioning Strategy Finance
Investing in emotional and psychological wellbeing for patients with long-term conditions A guide to service design and productivity improvement for commissioners, clinicians and managers in primary care,
Delivering high quality, effective, compassionate care: Developing the right people with the right skills and the right values A mandate from the Government to Health Education England: April 2014 to March
DRAFT Child and Youth Mental Health Service Framework September, 2013 DRAFT CHILD AND YOUTH MENTAL HEALTH SERVICE FRAMEWORK Table of Contents SECTION 1: CONTEXT... 4 CHILD AND YOUTH MENTAL HEALTH SERVICES...
Navigating self-management A practical approach to implementation for Australian health care agencies The Chronic Care Model Changing clinical practice Implementing self-management Leading change Evaluating
UHN-TORONTO REHAB INTEGRATION REPORT #2 DEMONSTRATING VALUE AND ENHANCING QUALITY OUTCOMES Report to the Toronto Central LHIN July 31, 2012 Contents Introduction 3 Highlights 4 Breathing Easy: how a new
Improving General Practice PHASE 1 REPORT March 2014 IMPROVING GENERAL PRACTICE: A CALL TO ACTION PHASE ONE REPORT NHS England INFORMATION READER BOX Directorate Medical Operations Patients and Information
2013 Quality and Social Responsibility Report Creating Solutions in Post-Acute Care Through Patient-Centered Care Management CONTINUE THE CARE Providing Care Management and Improving Outcomes Across the
Clinical Practice Guidelines for Quality Palliative Care SECOND EDITION Clinical Practice Guidelines for Quality Palliative Care SECOND EDITION Publisher National Consensus Project for Quality Palliative
Northern Territory Core functions of primary health care: a framework for the Northern Territory Prepared for the NTAHF by Edward Tilton (Edward Tilton Consulting) and David Thomas (the Lowitja Institute)
hat orks KPMG GlOBAL HEALTHCARE Creating new value with patients, carers and communities KPMG International kpmg.com/healthcare 2 Creating new value with patients, carers and communities Introduction Over
HOW CAN WE IMPROVE THE QUALITY OF NHS CARE? HOW CAN WE MEET EVERYONE S HEALTHCARE NEEDS? HOW CAN WE MAINTAIN FINANCIAL SUSTAINABILITY? WHAT MUST WE DO TO BUILD AN EXCELLENT NHS NOW & FOR FUTURE GENERATIONS?
Foothills Academy: A Program Ranking And Comparative Analysis of Residential Treatment Programs William Aaron University of Kentucky Martin School of Public Policy and Administration Capstone Spring 2010
Amputation Rehabilitation Center AT MossRehab Since 1959, MossRehab has provided our patients with a breadth of clinical expertise unrivaled in the region. Within our extensive system you ll find: Experienced
Prevention Research Centers MANAGING EPILEPSY WELL NETWORK PUTTING COLLECTIVE WISDOM TO WORK FOR PEOPLE WITH EPILEPSY CS242973 National Center for Chronic Disease Prevention and Health Promotion Division
Standards for Providing Quality Palliative Care for all Australians ISBN 0-9752295-4-0 Palliative Care Australia May 2005 Design: DesignEdge 02 6248 0636 This work is copyright. Apart from any use permitted
FOR RELATIVES OF PEOPLE WHO HAVE HAD A BRAIN INJURY INFORMATION SUPPORT CONTACTING SERVICES CONTENTS Page Support: the relative s view 3 Information Physiotherapy 4 Psychology 5 Speech & Language Therapy