Informatics Domain Task Force (idtf) CTSA PI Meeting 02/04/2015
|
|
|
- Eunice Williamson
- 8 years ago
- Views:
Transcription
1 Informatics Domain Task Force (idtf) CTSA PI Meeting 02/04/2015
2 Informatics Domain Task Force (idtf) Lead Team Paul Harris, Vanderbilt University Medical Center, (co-chair) Steven Reis, University of Pittsburgh (SC appointee, co-chair) Philip Payne, The Ohio State University Justin Starren, Northwestern University Peter Tarczy-Hornoch, University of Washington Olga Brahznik (NCATS/DCI representative) Group Goals: Support the CTSA program in meeting program objectives Develop plans for projects that fill identified gaps in advancing translational science through innovation
3 Institute of Medicine Report:
4 Engage in Substantive Collaborations to Spur Innovation Engage and work as a Network to Solve Compelling Biomedical Problems
5 Informatics Domain Task Force (idtf) CTSA informatics community has a proven track record as a collaborative & productive group.
6 Informatics Domain Task Force (idtf) IMMEDIATE #1 Organize the idtf group #2 Formulate a set of Success Stories #3 Formulate a set of Big Ideas (gap analysis) #4 PI meeting #5 Cross-Collaboration Projects, Working Groups
7 Submission Criteria: Map to >= 1 of 10 NCATS CTSA thematic areas Resonate with IOM report and NCATS goals Rapid Collection 39 Stories Filtered by idtf Lead Team Advance C&T research across many sites Informatics Centric Collaborations
8 Informatics Community : Collective Achievements Four Exemplar Success Stories
9 an open source, semantic-web tool for finding people and the research they do. From: Site (Cornell)-developed, informatics-centric tool To: Non-profit collaborative, Duraspace, hosted international development community From 1 Site to more than 100 entities in > 30 countries CTSA RN Profiles Early NIH funding VIVO extended + added platform/standards credibility Consortium-supported recommendation for VIVO data standard accelerated CTSA site adoption, laid groundwork for data sharing 37/62 CTSA sites producing VIVO compatible data through VIVO or Incremental Progress Actuates Large Leaps: VIVO software and ontology publicly available - supporting development efforts Tools developed for VIVO Data from Success Story suggestions: Research Portal: Currently more than 300 researchers use this to share data on common projects with internal and external
10 an open source, semantic-web tool for finding people and the research they do. From: Site (Cornell)-developed, informatics-centric tool To: Non-profit collaborative, Duraspace, hosted international development community From 1 Site to more than 100 entities in > 30 countries CTSA RN Profiles Early NIH funding VIVO extended + added platform/standards credibility Consortium-supported recommendation for VIVO data standard accelerated CTSA site adoption, laid groundwork for data sharing 37/62 CTSA sites producing VIVO compatible data through VIVO or Incremental Progress Actuates Large Leaps: VIVO software and ontology publicly available - supporting development efforts Tools developed for VIVO Data from Success Story suggestions: Research Portal: Currently more than 300 researchers use this to share data on common projects with internal and external
11 an open source, semantic-web tool for finding people and the research they do. From: Site (Cornell)-developed, informatics-centric tool To: Non-profit collaborative, Duraspace, hosted international development community From 1 Site to more than 100 entities in > 30 countries CTSA RN Profiles Early NIH funding VIVO extended + added platform/standards credibility Consortium-supported recommendation for VIVO data standard accelerated CTSA site adoption, laid groundwork for data sharing 37/62 CTSA sites producing VIVO compatible data through VIVO or From Rapid Collection 39 Stories Incremental Progress Actuates Large Leaps: VIVO software and ontology publicly available - supporting development efforts Tools developed for VIVO Data from Success Story suggestions: Research Portal: Currently more than 300 researchers use this to share data on common projects with internal and external
12 an open source, semantic-web tool for finding people and the research they do. From: Site (Cornell)-developed, informatics-centric tool To: Non-profit collaborative, Duraspace, hosted international development community From 1 Site to more than 100 entities in > 30 countries CTSA RN Profiles Early NIH funding VIVO extended + added platform/standards credibility Data Standards + Consortium-supported recommendation for VIVO data standard accelerated CTSA site Innovators adoption, laid groundwork for data sharing 37/62 CTSA sites producing VIVO compatible data through VIVO or = IMPACT Incremental Progress Actuates Large Leaps: VIVO software and ontology publicly available - supporting development efforts Tools developed for VIVO Data from Success Story suggestions: Research Portal: Currently more than 300 researchers use this to share data on common projects with internal and external
13 Incremental Progress Accentuates Large Leaps:: i2b2 data export directly into REDCap REDCap Electronic Data Importer - uses REDCap API to auto-populate case report forms for trials with clinical data Cryptographic hash function widget enabling linking of datasets using PHI without releasing PHI. REDCap Sync: custom architecture to allow "off-line" use of REDCap An open access data management platform freely distributed + supported for academic, government and non-profit institutions From: Site (Vanderbilt)-developed, informatics tool To: International community of academic, non-profit and government partners From 1 Site to > 1,300 partners in 88 countries Early NIH funding Accelerated development timeline + added platform credibility CTSA researchers needed data management solutions to support diverse science CTSA informatics community created support and training models REDCap evolves based on informatics community and researcher feedback
14 Incremental Progress Accentuates Large Leaps:: i2b2 data export directly into REDCap REDCap Electronic Data Importer - uses REDCap API to auto-populate case report forms for trials with clinical data Cryptographic hash function widget enabling linking of datasets using PHI without releasing PHI. REDCap Sync: custom architecture to allow "off-line" use of REDCap An open access data management platform freely distributed + supported for academic, government and non-profit institutions From: Site (Vanderbilt)-developed, informatics tool To: International community of academic, non-profit and government partners From 1 Site to > 1,300 partners in 88 countries Early NIH funding Accelerated development timeline + added platform credibility CTSA researchers needed data management solutions to support diverse science CTSA informatics community created support and training models REDCap evolves based on informatics community and researcher feedback
15 An open access data management platform freely distributed + supported for academic, government and non-profit institutions From: Site (Vanderbilt)-developed, informatics tool To: International community of academic, non-profit and government partners From 1 Site to > 1,300 partners in 88 countries Early NIH funding Accelerated development timeline + added platform credibility CTSA researchers needed data management solutions to support diverse science CTSA informatics community created support and training models REDCap evolves based on informatics community and researcher feedback Incremental Progress Accentuates Large Leaps:: i2b2 data export directly into REDCap REDCap Electronic Data Importer - uses REDCap API to From Rapid Collection 39 Stories auto-populate case report forms for trials with clinical data Cryptographic hash function widget enabling linking of datasets using PHI without releasing PHI. REDCap Sync: custom architecture to allow "off-line" use of REDCap
16 An open access data management platform freely distributed + supported for academic, government and non-profit institutions From: Site (Vanderbilt)-developed, informatics tool To: International community of academic, non-profit and government partners From 1 Site to > 1,300 partners in 88 countries Early NIH funding Accelerated development timeline + added platform credibility CTSA researchers needed Solid data management Tools + solutions to support diverse science CTSA informatics community Innovators created support and training models REDCap evolves based on informatics community and researcher feedback = IMPACT Incremental Progress Accentuates Large Leaps:: i2b2 data export directly into REDCap REDCap Electronic Data Importer - uses REDCap API to auto-populate case report forms for trials with clinical data Cryptographic hash function widget enabling linking of datasets using PHI without releasing PHI. REDCap Sync: custom architecture to allow "off-line" use of REDCap
17 An open-minded CTSA/VA initiative designed to facilitate research in the VA programs (CTSA tools + VA researcher support) Developed a new model for efficient research with VA partners Shared CTSA-developed, VA sponsored data management tools Available to VA researchers with IRB Approved research protocols and all VA Quality Enhancement Research Initiative (QUERI) Investigators Jan, 2015: 540 users; 209 projects Grew from the CTSA TSIG beginning in 2013 CTSA & VA Collaborators: CTSA: University of Illinois at Chicago, Colorado, Vanderbilt, Cincinnati VA Information Resource Center (VIReC) VA Informatics and Computing Infrastructure (VINCI) REDCAP National Consortium Incremental Progress Accentuates Large Leaps: Demonstrated Usefulness: expanded C&T research enterprise to include the VA Dissemination: enhanced the availability of commonly used informatics tools supporting C&T research
18 An open-minded CTSA/VA initiative designed to facilitate research in the VA programs (CTSA tools + VA researcher support) Developed a new model for efficient research with VA partners Shared CTSA-developed, VA sponsored data management tools Available to VA researchers with IRB Approved research protocols and all VA Quality Enhancement Research Initiative (QUERI) Investigators Jan, 2015: 540 users; 209 projects Grew from the CTSA TSIG beginning in 2013 CTSA & VA Collaborators: CTSA: University of Illinois at Chicago, Colorado, Vanderbilt, Cincinnati VA Information Resource Center (VIReC) VA Informatics and Computing Infrastructure (VINCI) REDCAP National Consortium Incremental Progress Accentuates Large Leaps: Demonstrated Usefulness: expanded C&T research enterprise to include the VA Dissemination: enhanced the availability of commonly used informatics tools supporting C&T research
19 An open-minded CTSA/VA initiative designed to facilitate research in the VA programs (CTSA tools + VA researcher support) From Rapid Collection 39 Stories Developed a new model for efficient research with VA partners Shared CTSA-developed, VA sponsored data management tools Available to VA researchers with IRB Approved research protocols and all VA Quality Enhancement Research Initiative (QUERI) Investigators Jan, 2015: 540 users; 209 projects Grew from the CTSA TSIG beginning in 2013 CTSA & VA Collaborators: CTSA: University of Illinois at Chicago, Colorado, Vanderbilt, Cincinnati VA Information Resource Center (VIReC) VA Informatics and Computing Infrastructure (VINCI) REDCAP National Consortium Incremental Progress Accentuates Large Leaps: Demonstrated Usefulness: expanded C&T research enterprise to include the VA Dissemination: enhanced the availability of commonly used informatics tools supporting C&T research
20 An open-minded CTSA/VA initiative designed to facilitate research in the VA programs (CTSA tools + VA researcher support) Developed a new model for efficient research with VA partners Shared CTSA-developed, VA sponsored data management tools Available to VA researchers with IRB Approved research protocols and all VA Quality Enhancement Research Initiative (QUERI) Investigators Jan, 2015: 540 users; 209 projects Network Leaders + Driving Problem Grew from the CTSA TSIG beginning in 2013 CTSA & VA Collaborators: = IMPACT CTSA: University of Illinois at Chicago, Colorado, Vanderbilt, Cincinnati VA Information Resource Center (VIReC) VA Informatics and Computing Infrastructure (VINCI) REDCAP National Consortium Incremental Progress Accentuates Large Leaps: Demonstrated Usefulness: expanded C&T research enterprise to include the VA Dissemination: enhanced the availability of commonly used informatics tools supporting C&T research
21 A LOCAL SITE Success that could become a Future Network Success Story Ideal complement to i2b2 for research $1 million / year improved reimbursement Used for over 700 research studies Referenced in 74 publications Site-developed tool (University of Michigan) A version is used at Michigan VA Could other sites use this tool? Can Network and idtf facilitate sharing Incremental Progress Accentuates Large Leaps: Incremental improvement to i2b2 functionality, yet Increases Network capacity for cross-institutional EHR phenotyping for cohort identification
22 A Site Success that could become a Future Network Success Story Ideal complement to i2b2 for research $1 million / year improved reimbursement Used for over 700 research studies Referenced in 74 publications Site-developed tool (University of Michigan) A version is used at Michigan VA Could other sites use this tool? Can Network and idtf facilitate sharing Methods Development + Driving Problem + Network Uptake Incremental Progress Accentuates Large Leaps: Incremental improvement to i2b2 functionality, yet Increases Network capacity for cross-institutional EHR phenotyping for cohort identification
23 Rapid Collection > 50 Ideas Submission Criteria: Map to >= 1 of 10 NCATS CTSA thematic areas idtf Lead Team Resonate with IOM report and NCATS goals Advance C&T research across many sites Informatics Centric Collaborations Crowd Sourced Gap Analysis
24 Big Ideas Organized in Project-Themed Clusters Clinical Trials 1. Last Mile of Recruitment Final Mile (physician to patient) recruitment solutions Patient Portals and Telehealth to Enhance Recruitment Consortium-wide clinical trials alerts in the EHR to facilitate recruitment Improve Diversity, Recruitment, and Implementation through EHR data re-use Workforce Development 2. Informaticscentric Researcher Training Network-wide training series (e.g. coordinated MOOCs) Develop biomedical & health informatics competencies, a la REDCap Certificate pgm. Expand informatics competencies to a wider group Data-driven training program for new C&T clinician scientists Multivariate statistics and scripting language competency development Bioinformatics Workshop Series Address clinical data quality as it relates to research and educate around this Efficiency / Quality 3. Software Interoperability & Extended Functionality Informatics system interoperability for CTSA's best-of-breeds. REDCap API for R or other stats analysis pkg Clinical Trial in a Box" solution on the REDCap platform Mobile device solutions for study data collection Ontologize REDCap Engage with the HL7 - FHIR and the Argonaut project Mobile apps for Clinical Decision Support SMART Apps for point of care EHR APIs for integration of patient-derived non-clinical data (from sensor devices,
25 Big Ideas Organized in Project-Themed Clusters Clinical Trials + 4. EHR Phenotyping and Clinical Data Reuse Shared NLP and Phenotyping Resources Computational phenotype library for cohort identification Network-wide adoption of Clinical Data Free text search (EMERSE) Cross-site methods for extracting discrete data from text documents Unstructured notes deidentification tools and natural language processing Adopt a common shared data model for phenotyping Big Data + 5. Central or Federated Data Repositories CTSA consortium-wide data sharing repository Common Platform and/or Cross-Site assistance with Creation of Data Repositories Data Commons to democratize the use of biomedical research data Secure Research Workspace to improve data security Shared de-identification tools and policies to enhance data sharing Genomic Data Stewardship - Policy development and Implementation of Best Practices Open data from CTSA clinical trials. Adopt a common shared data model for phenotyping Computational phenotype library for cohort identification Semantic data framework for interoperability Comprehensive semantic data dictionary Learning Health Care System Development Address clinical data quality as it relates to research and educate around this Create an EDW
26 Leaps Forward Consortium-Wide Clinical Trials Learning Health Care System E-Research Moving Beyond Traditional RCTs Gaps
27 #1 Organize the idtf group #2 Formulate a set of Success Stories #3 Formulate a set of Big Ideas (gap analysis) #4 PI meeting #5 Cross-Collaboration Projects, Working Groups Ready for CTSA 2.0 Informatics Domain Task Force (idtf) Next
EHR Recruitment Process and Methods Workgroup. John Buse, UNC-CH On behalf of Marie Rape, Chunhua Weng and Peter Embi
EHR Recruitment Process and Methods Workgroup John Buse, UNC-CH On behalf of Marie Rape, Chunhua Weng and Peter Embi REDCap Survey INTRODUCTION The Methods and Process Domain Task Force has established
Medical Informatics: A Fishing Story
Medical Informatics: A Fishing Story Russ Waitman, PhD Director of Medical Informatics, Associate Professor, Department of Biostatistics Director, Frontiers Biomedical Informatics Assistant Vice Chancellor,
8/27/2014. Office of Research Informatics(ORI) CORI. Introduction- The Office of Research Informatics (ORI)?
Office of Research Informatics(ORI) Project Updates and New Initiatives Research Wednesday August 27th, 2014 Cory Ennis Julie Eckstrand Eric Hall Tony Leiro Introduction- The (ORI)? Product Updates- CTMS
The CTSA Program: Collaborative Innovation for Translational Research
The CTSA Program: Collaborative Innovation for Translational Research Petra Kaufmann, MD, MSc Director, Division of Clinical Innovation NCATS ADVISORY COUNCIL MEETING JUNE 18, 2015 Transforming the CTSA
What the Indiana CTSI HUB is Trying to Accomplish
What the Indiana CTSI HUB is Trying to Accomplish Bill Barnett Director, Information Infrastructures, Indiana CTSI IU School of Medicine and Indiana University Information Technology Services barnettw@iu.edu
METHODS AND PROCESSES DOMAIN TASK FORCE. February 4, 2015
METHODS AND PROCESSES DOMAIN TASK FORCE February 4, 2015 Overview DTF Lead Team Goals Examples of potential projects Seeking broader input Next steps DTF Lead Team William Trochim, Weill Cornell Medical
Clinical and Translational Science: a role for libraries
Clinical and Translational Science: a role for libraries Presented at the Science Translational Medicine Luncheon Special Libraries Association 2010 Annual Conference New Orleans, LA, on 15 June 2010.
UPDATE ON THE CLINICAL AND TRANSLATIONAL SCIENCE AWARD (CTSA) PROGRAM
UPDATE ON THE CLINICAL AND TRANSLATIONAL SCIENCE AWARD (CTSA) PROGRAM Todd Wilson, D.O. Medical Officer Division of Clinical Innovation National Center for Advancing Translational Sciences Clinical and
From Fishing to Attracting Chicks
The Greater Plains Collaborative: a PCORNet Clinical Data Research Network s Strategies for Creating an Interoperable Architecture From Fishing to Attracting Chicks Russ Waitman, PhD Associate Professor,
Gaining Ground in Translation Francis S. Collins, M.D., Ph.D. Director, National Institutes of Health
Gaining Ground in Translation Francis S. Collins, M.D., Ph.D. Director, National Institutes of Health Some Key Challenges in Biomedical Research Providing robust methods and tools for translation Conducting
Paul Harris, PhD. Planning, Collecting and Managing Data For Clinical And Translational Research
Planning, Collecting and Managing Data For Clinical And Translational Research Paul Harris, PhD Associate Professor Department of Biomedical Informatics Vanderbilt University Agenda Data Planning for Clinical
Data Collection Database options and Data Management considerations. Paul Donnelly George Clinical The George Institute for Global Health
Data Collection Database options and Data Management considerations Paul Donnelly George Clinical The George Institute for Global Health 1 Overview Introduction and types of studies Scope of research studies
Office of Clinical Research and the. Institute (CTSI) Patricia Emmanuel, MD
Office of Clinical Research and the Clinical and Translational Research Institute (CTSI) Patricia Emmanuel, MD Office of Clinical Research- Priorities Review processes for clinical study implementation,
EMR Systems and the Conduct of Clinical Research. Daniel E Ford, MD, MPH Vice Dean for Clinical Investigation Johns Hopkins School of Medicine
EMR Systems and the Conduct of Clinical Research Daniel E Ford, MD, MPH Vice Dean for Clinical Investigation Johns Hopkins School of Medicine Clinical Research Environment Research protocols are becoming
Connecting Health and Care for the Nation: A Shared Nationwide Interoperability Roadmap version 1.0
Connecting Health and Care for the Nation: A Shared Nationwide Interoperability Roadmap version 1.0 Calls to Action and Commitments for People and Organizations That Provide Health IT Capabilities Stakeholders
Good Data Practices VIREC Cyber Seminar Series. September 9 13, 2013
Good Data Practices VIREC Cyber Seminar Series September 9 13, 2013 1 Acknowledgements Initial concept development work by Michael Berbaum, PhD, University of Illinois at Chicago Review of existing public
Use of Electronic Health Records in Clinical Research: Core Research Data Element Exchange Detailed Use Case April 23 rd, 2009
Use of Electronic Health Records in Clinical Research: Core Research Data Element Exchange Detailed Use Case April 23 rd, 2009 Table of Contents 1.0 Preface...4 2.0 Introduction and Scope...6 3.0 Use Case
Healthcare and Biomedical Research (HBR) Spoke Overview Kevin Smith (for Brian Athey) March 21, 2016
BD Hubs: Midwest: SEEDCorn: Sustainable Enabling Environment for Data Collaboration One of four Big Data Regional Innovation Hubs (BD Hubs) funded by the National Science Foundation through award #1550320
What s Next for Data Sharing: Insight from the NIH Experience
What s Next for Data Sharing: Insight from the NIH Experience Jerry Sheehan Assistant Director for Policy Development National Library of Medicine National Institutes of Health SHARE In-Person Meeting
National Nursing Informatics Deep Dive Program
National Nursing Informatics Deep Dive Program What is Nursing Informatics and Why is it Important? Connie White Delaney, PhD, RN, FAAN, FACMI Dean and Professor, School of Nursing Director, Clinical and
Interoperability and Analytics February 29, 2016
Interoperability and Analytics February 29, 2016 Matthew Hoffman MD, CMIO Utah Health Information Network Conflict of Interest Matthew Hoffman, MD Has no real or apparent conflicts of interest to report.
TRANSFoRm: Vision of a learning healthcare system
TRANSFoRm: Vision of a learning healthcare system Vasa Curcin, Imperial College London Theo Arvanitis, University of Birmingham Derek Corrigan, Royal College of Surgeons Ireland TRANSFoRm is partially
University of Michigan Health Sciences Libraries Bioinformatics Support and Education. Jean Song University of Michigan jeansong@umich.
University of Michigan Health Sciences Libraries Bioinformatics Support and Education Jean Song University of Michigan jeansong@umich.edu March 2008 Overview The Bioinformationist National Center for Integrative
Strategic Health IT Advanced Research Projects (SHARP) Area 4: Secondary Use of EHR Data. SHARPfest Washington June 2-3, 2010
Strategic Health IT Advanced Research Projects (SHARP) Area 4: Secondary Use of EHR Data SHARPfest Washington June 2-3, 2010 PI: Christopher G Chute, MD DrPH Collaborations Agilex Technologies CDISC (Clinical
Tertiary Use of Electronic Health Record Data. Maggie Lohnes, RN, CPHIMS, FHIMSS VP Provider Relations Anolinx, LLC October 26, 2015
Tertiary Use of Electronic Health Record Data Maggie Lohnes, RN, CPHIMS, FHIMSS VP Provider Relations Anolinx, LLC October 26, 2015 Disclosure of Conflicts of Interest No relevant conflicts of interest
The course will run simultaneously with the MSCI students.
Introduction to Medical Informatics for Informaticians Fall 2015 BMSC-GA 4455 Course Description: This course will serve as an introduction to Biomedical Informatics, which is the interdisciplinary science
@mandl. Bringing Big Data to the Point of Care by Creating the App Store for Health
Bringing Big Data to the Point of Care by Creating the App Store for Health @mandl Kenneth D. Mandl, MD, MPH Professor, Harvard Medical School Director, Boston Children s Hospital Computational Health
BRISSkit: Biomedical Research Infrastructure Software Service kit http://www.le.ac.uk/brisskit Jonathan Tedds
BRISSkit: Biomedical Research Infrastructure Software Service kit http://www.le.ac.uk/brisskit Jonathan Tedds jat26@le.ac.uk Nick Holden (LCBRU BRICCS) Malcolm Newbury (GuildFoss) JISC University Modernisation
Enabling the Big Data Commons through indexing of data and their interactions
biomedical and healthcare Data Discovery Index Ecosystem Enabling the Big Data Commons through indexing of and their interactions 2 nd BD2K all-hands meeting Bethesda 11/12/15 Aims 1. Help users find accessible
Innovation in the LIS: Implications for Design, Procurement and Management
Innovation in the LIS: Implications for Design, Procurement and Management Ulysses J. Balis, M.D. Director, Division of Pathology Informatics & Director, Pathology Informatics Fellowship Program Department
Utility of Common Data Models for EHR and Registry Data Integration: Use in Automated Surveillance
Utility of Common Data Models for EHR and Registry Data Integration: Use in Automated Surveillance Frederic S. Resnic, MS, MSc Chairman, Department of Cardiovascular Medicine Co-Director, Comparative Effectiveness
The Future of Nursing and the. Role of Informatics
The Future of Nursing and the Role of Informatics Willa Fields, RN, DNSc, FHIMSS Professor, San Diego State University Program Manager, Sharp Grossmont Hospital Outline Future of Nursing Report Health
HIT AND HSR FOR ACTIONABLE KNOWLEDGE: HEALTH SYSTEM SUMMARY. PARTNER: Veterans Health Administration (VHA) Organization and IT Infrastructure
HIT AND HSR FOR ACTIONABLE KNOWLEDGE: HEALTH SYSTEM SUMMARY PARTNER: Veterans Health Administration (VHA) Organizational Description And History Organization and IT Infrastructure The U.S. Department of
Integrated Biomedical and Clinical Research Informatics for Translational Medicine and Therapeutics
Integrated Biomedical and Clinical Research Informatics for Translational Medicine and Therapeutics J. Richard Landis, PhD Robert M. Curley, MS Gregg Fromell, MD Center for Clinical Epidemiology and Biostatistics
Big Data Research for Transforming Health Care. 10 th Anniversary Minnesota e-health Summit 2014 St Louis Park, MN
Big Data Research for Transforming Health Care 10 th Anniversary Minnesota e-health Summit 2014 St Louis Park, MN Objectives Explore a national action plan to coordinate efforts to standardized data for
Professional Education for the Future of Health Informatics. Charles P. Friedman, PhD Schools of Information and Public Health University of Michigan
Professional Education for the Future of Health Informatics Charles P. Friedman, PhD Schools of Information and Public Health University of Michigan 1 Today s Menu What informatics is and isn t Informatics
Find the signal in the noise
Find the signal in the noise Electronic Health Records: The challenge The adoption of Electronic Health Records (EHRs) in the USA is rapidly increasing, due to the Health Information Technology and Clinical
Retrieve Form for Data Capture Integrating Epic with REDCap @ Duke
Retrieve Form for Data Capture Integrating Epic with REDCap @ Duke Amy Harris Nordo and Matt Gardner Duke Office of Research Informatics Supported in part by Duke s CTSA grant (UL1TR001117) Clinical Research
Translational & Interoperable Health Infostructure - The Servant of Three Masters. Abridged Presentation
Revolutionizing healthcare through independent lifetime health records Towards a universal health information language Translational & Interoperable Health Infostructure - The Servant of Three Masters
Technical Approaches for Protecting Privacy in the PCORnet Distributed Research Network V1.0
Technical Approaches for Protecting Privacy in the PCORnet Distributed Research Network V1.0 Guidance Document Prepared by: PCORnet Data Privacy Task Force Submitted to the PMO Approved by the PMO Submitted
Brad H. Pollock, MPH, PhD
Biostatistician s Perspective: Roles in Observational Studies, Electronic Health Records & Big Data Brad H. Pollock, MPH, PhD Professor and Chairman, Dept. of Epidemiology & Biostatistics, School of Medicine,
Federal Interagency Traumatic Brain Injury Research (FITBIR)
Federal Interagency Traumatic Brain Injury Research (FITBIR) Matthew J. McAuliffe, PhD Co-director FITBIR Chief, Biomedical Imaging Research Services Section (BIRSS) email: Matthew.McAuliffe@nih.gov (301)
Personalized Medicine: Humanity s Ultimate Big Data Challenge. Rob Fassett, MD Chief Medical Informatics Officer Oracle Health Sciences
Personalized Medicine: Humanity s Ultimate Big Data Challenge Rob Fassett, MD Chief Medical Informatics Officer Oracle Health Sciences 2012 Oracle Corporation Proprietary and Confidential 2 3 Humanity
Improving EHR Functionality
Date: Thursday, July 18, 2013; 1 pm Improving EHR Functionality Location: National Institute of Standards and Technology (NIST) Bldg. 101, Lecture Room B, Gaithersburg, MD Speaker: James Cimino, MD, Chief,
Good Data Practices VIReC Cyberseminar Series. May 2014
Good Data Practices VIReC Cyberseminar Series May 2014 Good Data Practices 2014 2 GDP 2014 Acknowledgements Laurel Copeland, San Antonio VA Brian C. Sauer, Salt Lake City VA Kevin Stroupe, Hines VA Linda
PONTE Presentation CETIC. EU Open Day, Cambridge, 31/01/2012. Philippe Massonet
PONTE Presentation CETIC Philippe Massonet EU Open Day, Cambridge, 31/01/2012 PONTE Description Efficient Patient Recruitment for Innovative Clinical Trials of Existing Drugs to other Indications Start
Collaborative Intelligence: Unlocking the Power of Narrative Documentation
M*Modal White Paper WP CI Collaborative Intelligence: Unlocking the Power of Narrative Documentation See us at HIMSS booth 5725 WP CI Page 2 Current Situation The healthcare industry is currently undergoing
STRIDE An Integrated Standards-Based Translational Research Informatics Platform
STRIDE An Integrated Standards-Based Translational Research Informatics Platform Henry J. Lowe MD, Todd A. Ferris MD, MS Penni M. Hernandez ND, RN, Susan C. Weber PhD Stanford Center for Clinical Informatics,
A Commercial Approach to De-Identification Dan Wasserstrom, Founder and Chairman De-ID Data Corp, LLC
A Commercial Approach to De-Identification Dan Wasserstrom, Founder and Chairman De-ID Data Corp, LLC De-ID Data Corp, LLC Founded to: ENHANCE DATA ACCESS WHILE PROTECTING PATIENT PRIVACY Founders Problem
Big Data for Patients (BD4P) Program Overview
Big Data for Patients (BD4P) Program Overview [Updated August 5, 2015] Proposal: Big Data for Patients (BD4P) Training Program Page 1 Background The new and emerging field of data science ( Big Data )
BRISSkit: Biomedical Research Infrastructure Software Service kit. Jonathan Tedds. http://www.le.ac.uk/brisskit #brisskit #umfcloud
BRISSkit: Biomedical Research Infrastructure Software Service kit http://www.le.ac.uk/brisskit #brisskit #umfcloud Jonathan Tedds University of Leicester jat26@le.ac.uk @jtedds JISC University Modernisation
Supporting Clinical Research
Supporting Clinical Research AAAS/Science Translational Medicine Panel Library-based Support for Translational Medicine Jennifer A. Lyon, MS, MLIS, AHIP Clinical Research Librarian UF Health Science Center
The Use of Electronic Health Records for Clinical Research: Recommendations to Advance the Field
The Use of Electronic Health Records for Clinical Research: Recommendations to Advance the Field Information Technology Roundtable Clinical Research Forum 4/4/14 Draft Contents Introduction... 1 High-Priority
TRANSLATIONAL BIOINFORMATICS 101
TRANSLATIONAL BIOINFORMATICS 101 JESSICA D. TENENBAUM Department of Bioinformatics and Biostatistics, Duke University Durham, NC 27715 USA Jessie.Tenenbaum@duke.edu SUBHA MADHAVAN Innovation Center for
erecord and You: Using the Electronic Health Record for Clinical Research
erecord and You: Using the Electronic Health Record for Clinical Research Adam Tatro, MS, RN Clinical Research Informatist Clinical and Translational Science Institute University of Rochester Agenda What
The HL7 CIMI Workgroup: Creating Detailed Clinical Models to Support FHIR Interoperability. HIMSS March 2, 2016 Las Vegas Stanley M.
The HL7 CIMI Workgroup: Creating Detailed Clinical Models to Support FHIR Interoperability HIMSS March 2, 2016 Las Vegas Stanley M. Huff, MD Current Situation Each EHR vendor uses a proprietary database
Medical Decision Logic, Inc.
Medical Decision Logic, Inc. mdlogix Registries and Health Science: Applied Health Informatics Presentation Plan Mission, Goals, and Vision Theoretical Foundation (models) Pragmatic Foundation (cases)
How to Create a New Clinical Research Study
How to Create a New Clinical Research Study 1 Contents 1. Create a Submission for an Existing eirb Study... 3 2. Create a New Submission in eirb... 4 3. CRMS Clinical Research Study... 5 4. Uploading a
ACCESSING AND USING PROMIS INSTRUMENTS. Nan Rothrock, PhD Northwestern University June 24, 2014
ACCESSING AND USING PROMIS INSTRUMENTS Nan Rothrock, PhD Northwestern University June 24, 2014 ACCESS VERSUS DATA COLLECTION ACCESS PDFs of short forms and item banks www.assessmentcenter.net DATA COLLECTION
Electronic Submission of Regulatory Information, and Creating an Electronic Platform for Enhanced Information Management
Written Notice of Participation by the Clinical Data Interchange Standards Consortium (CDISC) and Written Statement for Discussion Topics to be Addressed In the FDA Public Hearing: Electronic Submission
Data Analytics in Health Care
Data Analytics in Health Care ONUP 2016 April 4, 2016 Presented by: Dennis Giokas, CTO, Innovation Ecosystem Group A lot of data, but limited information 2 Data collection might be the single greatest
Five Things You Need to Know about NIH StrokeNet in Five Minutes
Five Things You Need to Know about NIH StrokeNet in Five Minutes Joseph P. Broderick, MD Department of Neurology University of Cincinnati Neuroscience Institute Comprehensive Stroke Center Financial Disclosures
Secondary Use of EMR Data View from SHARPn AMIA Health Policy, 12 Dec 2012
Secondary Use of EMR Data View from SHARPn AMIA Health Policy, 12 Dec 2012 Christopher G. Chute, MD DrPH, Professor, Biomedical Informatics, Mayo Clinic Chair, ISO TC215 on Health Informatics Chair, International
SHARPn SUMMIT SECONDARY USE
SHARPn SUMMIT SECONDARY USE 3rd Annual Face-to-Face University of Minnesota Rochester Center, 111 South Broadway Rochester, MN 55904 June 11-12, 2012 Join us to discuss: Standards, data integration & semantic
Summary of Responses to the Request for Information (RFI): Input on Development of a NIH Data Catalog (NOT-HG-13-011)
Summary of Responses to the Request for Information (RFI): Input on Development of a NIH Data Catalog (NOT-HG-13-011) Key Dates Release Date: June 6, 2013 Response Date: June 25, 2013 Purpose This Request
Big Data Analytics- Innovations at the Edge
Big Data Analytics- Innovations at the Edge Brian Reed Chief Technologist Healthcare Four Dimensions of Big Data 2 The changing Big Data landscape Annual Growth ~100% Machine Data 90% of Information Human
IT Coordination Group and ECRIN Data Centers
IT Coordination Group and ECRIN Data Centers Venizeleas D, Ohmann Ch April 16, 2007 DRAFT Version April 16, 2007 1 Contents Contents 2 1 Introduction 3 2 IT Platform 3 3 Platform Organization 4 3.1 IT
BRISSkit: Biomedical Research Infrastructure Software Service kit
BRISSkit: Biomedical Research Infrastructure Software Service kit http://www.le.ac.uk/brisskit Jonathan Tedds University of Leicester jat26@le.ac.uk BRISSkit 12/10/11 BRISSkit: Biomedical Research Infrastructure
Theodoros. N. Arvanitis, RT, DPhil, CEng, MIET, MIEEE, AMIA, FRSM
TRANSFoRm Theodoros. N. Arvanitis, RT, DPhil, CEng, MIET, MIEEE, AMIA, FRSM Biomedical Informatics, Signals & Systems Research Laboratory School of Electronic, Electrical & Computer Engineering College
STATE OF CONNECTICUT State Innovation Model Health Information Technology (HIT) Council Answers to Questions for Zato
STATE OF CONNECTICUT State Innovation Model Health Information Technology (HIT) Council Answers to Questions for Zato The HIT Design Group has identified the set of questions listed below to better understand
Genomic Medicine Centers Meeting VII. Summary of Themes Discussed in Keynote and Panel Discussions October 3, 2014
Genomic Medicine Centers Meeting VII Summary of Themes Discussed in Keynote and Panel Discussions October 3, 2014 Meeting Objectives GM 7 will convene key thought leaders in genomic implementation and
Harmonized Core Competencies in Clinical Research: evolutions and next steps for meeting the challenge
Harmonized Core Competencies in Clinical Research: evolutions and next steps for meeting the challenge Master of Applied Clinical and Preclinical Research macpr.osu.edu Consortium of Academic Programs
Research Data Networks: Privacy- Preserving Sharing of Protected Health Informa>on
Research Data Networks: Privacy- Preserving Sharing of Protected Health Informa>on Lucila Ohno-Machado, MD, PhD Division of Biomedical Informatics University of California San Diego PCORI Workshop 7/2/12
Data collection architecture for Big Data
Data collection architecture for Big Data a framework for a research agenda (Research in progress - ERP Sense Making of Big Data) Wout Hofman, May 2015, BDEI workshop 2 Big Data succes stories bias our
Searching biomedical data sets. Hua Xu, PhD The University of Texas Health Science Center at Houston
Searching biomedical data sets Hua Xu, PhD The University of Texas Health Science Center at Houston Motivations for biomedical data re-use Improve reproducibility Minimize duplicated efforts on creating
Data and Informatics Implementation
Data and Informatics Implementation Advisory Committee to the Director Meeting December 7, 2012 Lawrence A. Tabak, DDS, PhD Deputy Director, NIH Department of Health and Human Services Charge to the Working
HIM Master s Degree Competencies* Domains, Subdomains, and Tasks 2007 and Beyond
HIM Master s Degree Competencies* Domains, Subdomains, and Tasks 2007 and Beyond I. Domain: Health Data Management A. Data Structure 1. Evaluate reference terminologies to satisfy organizational information
HEALTHCARE DOES HADOOP: AN ACADEMIC MEDICAL CENTER S FIVE-YEAR JOURNEY. Charles Boicey, MS, RN-BC, CPHIMS Chief Innovation Officer Clearsense
HEALTHCARE DOES HADOOP: AN ACADEMIC MEDICAL CENTER S FIVE-YEAR JOURNEY Charles Boicey, MS, RN-BC, CPHIMS Chief Innovation Officer Clearsense The doctor of the future will give no medicine, but instead
Informatics Resources for Clinical Research. Jim Cimino, Geoff Gordon, Matt Wyatt and James Willig UAB Informatics Institute April 6, 2016
Informatics Resources for Clinical Research Jim Cimino, Geoff Gordon, Matt Wyatt and James Willig UAB Informatics Institute April 6, 2016 Today s Take-Home Messages Overview of the clinical informatics
Using the Grid for the interactive workflow management in biomedicine. Andrea Schenone BIOLAB DIST University of Genova
Using the Grid for the interactive workflow management in biomedicine Andrea Schenone BIOLAB DIST University of Genova overview background requirements solution case study results background A multilevel
NIH s Genomic Data Sharing Policy
NIH s Genomic Data Sharing Policy 2 Benefits of Data Sharing Enables data generated from one study to be used to explore a wide range of additional research questions Increases statistical power and scientific
DATA COLLECTION OPTIONS. Monica Prudencio, MS Medical Social Sciences, Northwestern University June 10, 2014
DATA COLLECTION OPTIONS Monica Prudencio, MS Medical Social Sciences, Northwestern University June 10, 2014 PAPER Available for short forms Requires manual data entry Scoring (use scoring manuals) PROMIS
Data at NIST: A View from the Office of Data and Informatics
Data at NIST: A View from the Office of Data and Informatics Robert Hanisch Office of Data and Informatics Material Measurement Laboratory National Institute of Standards and Technology Data and NIST 1
March 17, 2011. Re: Feedback on the NINR Draft Strategic Plan 2011
March 17, 2011 Patricia A. Grady, PhD, RN, FAAN Director National Institute of Nursing Research National Institutes of Health 31 Center Drive, Room 5B10 Bethesda, Maryland 20892-2178 Sent Via email to:
NOW!! Registry and BioBank Services for! Your Organization/Company/Clinic/Project!
NOW!! Registry and BioBank Services for! Your Organization/Company/Clinic/Project! What Does Genetic Alliance Registry and BioBank Offer?! Flexible, customizable, registry and biobank options One-on-one
Use of the Epic Electronic Health Record for Comprehensive Clinical Research Management at Duke
Use of the Epic Electronic Health Record for Comprehensive Clinical Research Management at Duke Iain Sanderson, BM, BCh, Denise Snyder, MS, RD, Terry Ainsworth, RN, MS, ACNP, Cory Ennis, MS, Julie McCauley,
ELECTRONIC HEALTH RECORDS/NATIONAL HEALTH INFORMATION INFRASTRUCTURE: LEGAL ISSUES IN HIPAA AND EMERGING TECHNOLOGIES
NINTH NATIONAL HIPAA SUMMIT SEPTEMBER 13, 2004 ELECTRONIC HEALTH RECORDS/NATIONAL HEALTH INFORMATION INFRASTRUCTURE: LEGAL ISSUES IN HIPAA AND EMERGING TECHNOLOGIES Paul T. Smith, Esq. Partner, Davis Wright
RFI Summary: Executive Summary
RFI Summary: Executive Summary On February 20, 2013, the NIH issued a Request for Information titled Training Needs In Response to Big Data to Knowledge (BD2K) Initiative. The response was large, with
End to End Solution to Accelerate Data Warehouse Optimization. Franco Flore Alliance Sales Director - APJ
End to End Solution to Accelerate Data Warehouse Optimization Franco Flore Alliance Sales Director - APJ Big Data Is Driving Key Business Initiatives Increase profitability, innovation, customer satisfaction,
Aiding the Data Integration in Medicinal Settings by Means of Semantic Technologies
Aiding the Data Integration in Medicinal Settings by Means of Semantic Technologies Vit Novacek 1 Loredana Laera 2 Siegfried Handschuh 1 1 Digital Enterprise Research Institute (DERI) National University
Managing and Integrating Clinical Trial Data: A Challenge for Pharma and their CRO Partners
Managing and Integrating Clinical Trial Data: A Challenge for Pharma and their CRO Partners Within the Pharmaceutical Industry, nothing is more fundamental to business success than bringing drugs and medical
TRANSFoRm: TRANSFoRming health care research and its implementation
TRANSFoRm: TRANSFoRming health care research and its implementation Frank Sullivan, on behalf of the TRANSFoRm Consortium. Health Informatics Centre Dundee TRANSFoRm is partially funded by the European
The Development of the Clinical Trial Ontology to standardize dissemination of clinical trial data. Ravi Shankar
The Development of the Clinical Trial Ontology to standardize dissemination of clinical trial data Ravi Shankar Open access to clinical trials data advances open science Broad open access to entire clinical
Transla6ng from Clinical Care to Research: Integra6ng i2b2 and OpenClinica
Transla6ng from Clinical Care to : Integra6ng i2b2 and OpenClinica Aaron Abend Managing Director, Recombinant Data Corp May 13, 2011 Copyright 2011 Recombinant Data Corp. All rights reserved. 1 About Recombinant
Clinical Knowledge Manager. Product Description 2012 MAKING HEALTH COMPUTE
Clinical Knowledge Manager Product Description 2012 MAKING HEALTH COMPUTE Cofounder and major sponsor Member and official submitter for HL7/OMG HSSP RLUS, EIS 'openehr' is a registered trademark of the
REDCap Web-interface Database System
REDCap Web-interface Database System Jonathan D. Mahnken, Ph.D. Associate Professor, Department of Biostatistics Director, October 6, 2012 1 What is REDCap? Research Electronic Data Capture (REDCap) [REDCap]
Pilot. Pathway into the Future for. Delivery. April 2010 Bron W. Kisler, CDISC Senior Director bkisler@cdisc.org
SHARE S&V Document and the Pilot Pathway into the Future for Standards Development and Delivery April 2010 Bron W. Kisler, CDISC Senior Director bkisler@cdisc.org 1 CDISC Mission To develop and support
EHR Archetypes in practice: getting feedback from clinicians and the role of EuroRec
EuroRec - EHTEL Conference, Vienna, October 2007 EHR Archetypes in practice: getting feedback from clinicians and the role of EuroRec Dr Dipak Kalra Centre for Health Informatics and Multiprofessional
ORGANIZING TRANSLATIONAL RESEARCH
DZHW-BIH REPORT No.2 JANUARY 2016 Clemens Blümel, Stephan Gauch, Anne K. Krüger ORGANIZING TRANSLATIONAL RESEARCH Report on the Establishment, Organization, and Evaluation of the Translational Research
Karl Lum Partner, LabKey Software klum@labkey.com. Evolution of Connectivity in LabKey Server
Karl Lum Partner, LabKey Software klum@labkey.com Evolution of Connectivity in LabKey Server Connecting Data to LabKey Server Lowering the barrier to connect scientific data to LabKey Server Increased