NTG Dementia Screening Tool

Transcription

1 NTG Dementia Screening Tool v.4.4 (5/10/12) [Field Test Version] Some adults with intellectual and developmental disabilities may be at risk for dementia. This screen, adapted from the DSQIID (Deb, 2007), can be used to aid agencies and caregivers with the identification of those adults who may be showing early signs of mild cognitive impairment or dementia. The NTG-DST is a not an assessment or diagnostic instrument, but an administrative screen that can be used to note functional decline and health problems and provide practitioners with information for further assessment, as well as serve as the mandatory cognitive assessment review that is part of the Affordable Care Act s annual wellness visit for Medicare recipients. It is recommended that this screen be used on an annual or as indicated basis with adults with Down syndrome beginning with age 35, with other persons with intellectual or developmental disabilities suspected of experiencing cognitive change beginning with age 50. The form can be completed by anyone who is familiar with the adult (has known him or her for over six months), is a family member or agency support staff worker, or is a behavioral or health specialist using information taken by observation or from the adult s personal record. (1) ID or NAME File #: ITEMS BLOCKED OUT FOR FIELD TEST ONLY (2) Date: Please use this block to record the time it took to (3) Name complete of person: this form: First: minutes (4) Last: Time Began: Time Ended: (5) Date of birth: (6) Age: (7) Sex: Male Female (8) Best description of level of intellectual disability No discernible intellectual disability Borderline (IQ 70-75) Mild ID (IQ 55-69) Moderate (IQ 40-54) Severe (IQ 25-39) Profound ID (IQ 24 and below) Unknown (9) Diagnosed condition (check all that apply) Autism Cerebral palsy Down syndrome Fragile X syndrome Intellectual disability Prader-Willi syndrome Other: Instructions: For each question block, check the item that best applies to the individual or situation, For agency use: DX History (29) Mild cognitive impairment [MCI] or dementia previously diagnosed?: [ ] no [ ] yes, MCI [ ] yes, dementia MCI: Type of dementia: Date of DX: Diagnosed by:

2 (10) General characterization of current health: Excellent Very good Good Fair Poor (11) Compared to one year ago, current physical health is: (27) Reported date of onset [When suspicion of dementia first arose] Note approximate year and month: (28) Comments/Explanations: Much better Somewhat better About the same Somewhat worse Much worse (12) Compared to one year ago, current mental health is: Much better Somewhat better About the same Somewhat worse Much worse (13) Conditions present (check all that apply) Vision impairment Blind (very limited or no vision) Hearing impairment Deaf (very limited or no hearing) Mobility impairment Not mobile uses wheelchair Not mobile is moved about in wheelchair (14) Significant recent [in past year] life event (check all that apply) (15) Seizures Death of someone close (parent, spouse, friend, worker, etc.) Recent move to new residence Recent illness or impairment due to accident Recent reaction to medication or over-medication Other: Recent onset seizures Long term occurrence of seizures No history of seizures Current living arrangement of person: Lives with family Lives in community group home, apartment, supervised housing, etc.) Lives in congregate residential setting Lives by self or with spouse/friend Lives in long term care facility Lives in other:

3 Amended Dementia Screening Tool (NTG version) - page 3 (16) Activities of Daily Living Cannot wash and/or bathe without help Cannot dress without help Dresses inappropriately (e.g., back to front, incomplete) Undresses inappropriately (e.g., in public) Needs help eating (cutting food, mouthful amounts, choking) Needs help using the bathroom Incontinent (including occasional accidents) (17) Language & Communication Does not initiate conversation Cannot find words Cannot follow simple instructions Stops in the middle of a task Cannot read Cannot write (including printing own name) (18) Sleep-Wake Pattern Excessive/inadequate (sleeping more or sleeping less) Wakes frequently at night Confused at night Sleeps during the day Wanders at night Wakes earlier than usual Sleeps later than usual (19) Ambulation Not confident walking over small cracks, lines on the ground, patterned flooring, or uneven surfaces Unsteady walk, loses balance Cannot walk unaided been the case but worse New symptom in past year Does not apply

4 Amended Dementia Screening Tool (NTG version) - page 4 (20) Memory Cannot recognize familiar persons (staff/relatives/friends) Cannot remember names of familiar people Cannot remember recent events (in past week or less) Cannot find way in familiar surroundings Loses track of time (time of day, day of the week, seasons) Problems with learning new tasks or names of new people (21) Behavior, Function, and Affect Wanders Withdraws from social activities Withdraws from people Loss of interest in hobbies and activities Seems to go into own world Obsessive or repetitive behavior (e.g., empties cupboards repeatedly, washes hands frequently, etc.) Hides or hoards objects Loses objects Puts familiar things in wrong places Does not know what to do with familiar objects Appears insecure Appears anxious or nervous Appears depressed Shows aggression (verbal or physical) Has seizures Shows lethargy or listlessness Has abnormal voluntary movements (head, neck, limbs, trunk) Talks to self (22) Self-reported problems Adult reports changes in ability to do things Adult reports hearing things Adult reports seeing things Adult reports changes in thinking Adult reports changes in interests Adult reports changes in memory (23) Notable significant changes Observed in gait (e.g., stumbling, falling, unsteadiness) Observed in personality (e.g., subdued when was outgoing) Observed in friendliness (e.g., now socially unresponsive) Observed in attention (e.g., misses cues, distracted) Observed in weight (e.g., weight loss) been the case but worse New symptom in past year Does not apply

5 NTG Dementia Screening Tool - page 5 [Check column option as appropriate] (24) Chronic Health Conditions* Recent condition Bone, Joint and Muscle 1 Arthritis 2 Osteoporosis Heart and Circulation 3 Heart condition 4 High cholesterol 5 High blood pressure 6 Low blood pressure 7 Stroke Hormonal 8 Diabetes (type 1 or 2) 9 Thyroid disorder Lungs/breathing 10 Asthma 11 Chronic bronchitis, emphysema 12 Sleep disorder Mental health 13 Alcohol or substance abuse 14 Anxiety disorder 15 Attention deficit disorder 16 Bipolar disorder 17 Dementia/Alzheimer s disease 18 Depression 19 Eating disorder (anorexia, bulimia) 20 Obsessive-compulsive disorder 21 Schizophrenia 22 Other: Pain / Discomfort 23 Back pain 24 Constipation 25 Foot pain 26 Gastrointestinal pain or discomfort 27 Headaches 28 Hip/knee pain 29 Neck/shoulder pain Sensory 30 Dizziness / vertigo 31 Hearing impairment Condition diagnosed in last 5 years Lifelong condition 32 Vision impairment (not including corrective lenses) Other 33 Cancer type: 34 Chronic fatigue 35 Epilepsy / seizure disorder 36 Heartburn / acid reflux 37 Urinary incontinence *Items drawn from the Longitudinal Health and Intellectual Disability Survey (University of Illinois at Chicago) Condition not present

6 NTG Dementia Screening Tool - page 6 (25) Comments: Form completion information (26) Date completed Name of person completing form NAME OF FORM COMPLETOR ITEM BLOCKED OUT FOR THIS FIELD TEST Relationship to individual (staff, relative, assessor, etc.) Date(s) previously completed Acknowledgements: Derived from the DSQIID (Dementia Screening Questionnaire for Individuals with Intellectual Disabilities; Deb, S., 2007) as adapted into the Southeast PA Dementia Screening Tool (DST) with the assistance of Carl V. Tyler, Jr., MD and the LHIDS (Rimmer & Hsieh) and as further adapted by the National Task Group on Intellectual Disabilities and Dementia Practice into the NTG Dementia Screening Tool for use in the US. NTGv.4.4 (5/10/12) [Field Test Version]