Alzheimer Society of B.C. and Tyze Personal Networks

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1 Alzheimer Society of B.C Buswell Street, B.C. V6Y 2G5 Bulletin May June 2013 Working together to link individuals and families affected by Alzheimer s disease or another dementia to a community of learning, services and support. Alzheimer Society of B.C. and Tyze Personal Networks What is Tyze? Tyze is a tool that enables families to create their own private online community of support like other social networks but completely private and ad-free. What can Tyze do for caregivers and people with dementia? Tyze can help people: Organize appointments Store private documents (eg. Power of Attorney, Representation Agreement, Wills, etc.) Plan outings and events Ask for help and support Send updates quickly and easily to network members (eg. family members, health-care providers, neighbours, etc.) Share stories, photos, videos, information and resources For more information about Tyze, consult your local resource centre. Tyze is suitable for: People with dementia who are still able to actively participate in managing their own care and activities, and who are comfortable using a computer Family caregivers Other family members, including longdistance caregivers. (A Tyze network can be a way to stay in touch and still participate in supporting the person with dementia and their care partner.) Tyze subscriptions normally cost $129 per year for each network. However, the Alzheimer Society of B.C. has received funding to allow a limited number of families to set up a Tyze network at no charge. If you and your family are interested in setting up a network, please connect with the staff at your local resource centre at Visit for more information. For more information on First Link, referral forms, or feedback, lfeldman@alzheimerbc.org or call First Link is a partnership between the Vancouver Coastal Health Authority and the Alzheimer Society of B.C., and is funded by the B.C. Ministry of Health Services

2 Page 2 First Link Bulletin Calendar of Upcoming Programs Date Program Registration Location 9 Tuesdays Apr. 30 June 25 Minds in Motion - English A fitness and social program designed for people diagnosed with Alzheimer s or dementia and a friend or family member. The program includes 45 minutes of gentle exercise, led by a certified fitness instructor. After that, enjoy social time in a relaxed atmosphere with activities, conversation and light refreshments. Minds in Motion programs are offered on an ongoing basis. To register, call Kelly McLean at or kmclean@alzheimerbc.org $50.50 per couple New participants are welcome to join any week, if space is available. *South Arm Community Centre 8880 Williams Road *Please note day and location change to South Arm Community Centre. 8 Wednesdays May 1 June p.m. Minds in Motion - Cantonese Minds in Motion programs are offered on an ongoing basis. To register, call Cambie Community Centre at $45 per couple New participants are welcome to join any week, if space is available. Cambie Community Centre East Hall Cambie Rd. Thu. May 9 7 p.m. Heads Up: An Introduction to Brain Health Are you concerned about keeping your brain healthy as you age? This tele-workshop for people with dementia, their caregivers and the general public looks at Alzheimer s disease and how it impacts the brain, the latest research on reducing your risk for dementia, and everyday tips for improving brain health. No registration necessary How to Connect: Phone: Online : Enter as a guest lzheimerbc Tele-workshop Available across B.C.

3 First Link Bulletin Page 3 Date Program Registration Location 4 Mondays May 13, 27, June 3 & :30 p.m. Family Caregiver Education Series English An opportunity for family caregivers to learn effective ways to care for a person with Alzheimer s disease or another dementia. Four sessions (2.5 hours each) will cover: Understanding Alzheimer s disease and other dementias Communication strategies Understanding changes in behaviours Changing roles and taking care of yourself Planning ahead and understanding the health care system /South Delta Resource Centre at Multi-purpose Room Augustine House 3820 Arthur Dr. 5 Tuesdays May 14, 21, 28, June 4 & 11 Shaping the Journey-living with dementia A five-session education series for people with dementia and care partners. Explore the journey ahead in a supportive and informative environment. Learn about dementia, strategies to cope with change and maximize quality of life, learn about planning for the future, and meet others who are going through similar experiences. For more information and to register, First Link Program at or lfeldman@alzheimerbc.org Alzheimer Society /South Delta Resource Centre Buswell St. Thu. May p.m. Grief & Loss English Family caregivers of people with dementia experience grief and loss at many different points during the progression of the disease. Participants will learn about how loss and grief can impact caregivers as well as the person with dementia and will explore strategies for coping with and adjusting to changes. /South Delta Resource Centre at Centre for Supportive Care Delta Hospice 4631 Clarence Taylor Crescent Sat. May a.m. noon Getting to Know Dementia English Learn about the diagnosis of Alzheimer s disease and other dementias, different programs and services available in the community and how to access them, the importance of early planning for the future, and how to live well with dementia. People with a diagnosis of dementia, care partners and family members are welcome to attend. /South Delta Resource Centre at Room 345/350 Caring Place 7000 Minoru Boulevard Thu. May 30 7 p.m. Children, Teens and Dementia Do you have difficulty talking about dementia with children and teens in your family? Do you wonder how much you should say? This tele-workshop for family caregivers explains what children and teens need to know to better understand dementia and offers suggestions on how to help them interact with the person with dementia. No registration necessary How to Connect: Phone: Online : Enter as a guest lzheimerbc Tele-workshop Available across B.C.

4 Page 4 First Link Bulletin Date Program Registration Location 3 Saturdays June 15, 22 & 29 12:30 4:30 p.m. Family Caregiver Education Series Cantonese An opportunity for family caregivers to learn effective ways to care for a person with Alzheimer s disease or another dementia. Three sessions (4 hours each) will cover: Understanding Alzheimer s disease and other dementias Communication strategies Understanding changes in behaviours Changing roles and taking care of yourself Planning ahead and understanding the health care system Chinese Resource Centre at / or vlam@alzheimerbc.org Simon K.Y. Lee Seniors Care Home, Chieng s Adult Day Centre 555 Carrall St. Vancouver 5 Mondays June 17, 24, July 8, 15 & 22 6:30 8:30 p.m. Family Caregiver Education Series English An opportunity for family caregivers to learn effective ways to care for a person with Alzheimer s disease or another dementia. Five sessions (2 hours each) will cover: Understanding Alzheimer s disease and other dementias Communication strategies Understanding changes in behaviours Changing roles and taking care of yourself Planning ahead and understanding the health care system /South Delta Resource Centre at Room 340 Caring Place 7000 Minoru Boulevard Thu. June 27 7 p.m. Long Distance Caregiving Do you struggle with the challenges of providing care to someone with dementia from a distance? This tele-workshop offers family caregivers the opportunity to learn strategies to better cope with the challenges of long-distance caregiving, including: assessing needs, identifying resources, maximizing visits and sharing responsibilities with others. No registration necessary How to Connect: Phone: Online : Enter as a guest lzheimerbc Tele-workshop Available across B.C.

5 First Link Bulletin Page 5 1st Tuesday of month 7 8:30 p.m. Support Groups Caregiver Support Group - English For family and friends of people with Alzheimer s disease or other dementias who want to inform themselves with current information and share experiences with others. /South Delta Resource Centre at 1st Thursday of month 10:30 a.m. 12:30 p.m. Caregiver Support Group - English /South Delta Resource Centre at 4 th Thursday of month 10 a.m. 11:30 a.m. NEW: Spouses Only Caregiver Support Group English For husbands and wives of people with Alzheimer s disease or other dementias who want to inform themselves with current information and share experiences with others. /South Delta Resource Centre at 3rd Wednesday of month 1 2:30 p.m. Early Stage Support Group - English /South Delta Resource Centre at 2nd Thursday of month & 1st Wednesday of month Caregiver Support Group - Cantonese Chinese Resource Centre at or vlam@alzheimerbc.org 10 a.m. noon 1st Thursday of month 10 a.m. noon Memory Loss Group - Cantonese Early Stage support groups are for people with dementia who want to inform themselves with current information and share their experiences with others (in Cantonese). Chinese Resource Centre at or vlam@alzheimerbc.org 3rd Thursday of month Caregiver Support Group - Mandarin Chinese Resource Centre at or vlam@alzheimerbc.org

6 Page 6 First Link Bulletin Other Services Offered by the Alzheimer Society of B.C. Educational Bulletins Insight is a quarterly educational bulletin produced by the Alzheimer Society of B.C. The majority of the newsletter content is contributed by people with dementia. In Touch is a quarterly educational bulletin that provides up-to-date information and practical suggestions for caregivers living in B.C. Subscribe to these bulletins by visiting our website (see News and Events/Newsletters) or by calling (Toll-free: ) Dementia Helpline (Lower Mainland ) Hours: Monday to Friday, 9 a.m. to 4 p.m. Helping people with dementia, their friends, and their family members to build the confidence to maintain quality of life when facing dementia Free Telephone Workshops Learn from home participate in the Alzheimer Society of B.C. s free one-hour telephone workshops! Workshops include a live web video of the presentation, making it easy for you to follow along on your computer while you listen on the phone. Participation is easy! Phone: Website: (enter as a guest) To learn more about tele-workshops and to receive notifications about upcoming sessions, go to and click on We Can Help.