Update on Saskatchewan Lymphedema Working Group Initiatives. Glenda Cook, LAS Past president 2015
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1 Update on Saskatchewan Lymphedema Working Group Initiatives Glenda Cook, LAS Past president 2015
2 Introduction Breast Cancer Survivor, Stage 2 Arm/Hand Lymphedema Past LAS Board Member, Vice-President and President LAS representative on the Saskatchewan Ministry of Health s Lymphedema Working Group and Working Group on Implementation Lymphedema Patient Advocate
3 Lymphedema Working Group October 2011: The Ministry of Health convened a Working Group to review best practices, services, policies, procedures in the prevention and treatment of lymphedema in the province of Saskatchewan. Working Group: representatives from the Ministry of Health, Regional Health authorities, lymphedema service providers and lymphedema patients.
4 Lymphedema Working Group Tasks were identified and completed: An environmental scan of current services in the province Research on best practices, diagnosis and treatment Presentation by a practicing CDT therapist Gaps and needs in prevention, assessment and diagnosis, education, training, programs, services and policies were identified
5 Lymphedema Working Group April 2012: A summary report outlining possible solutions to address gaps in lymphedema services was submitted to Minister of Health (The Lymphedema Working Group Summary Report) Minister of Health Response: $100,000 in funding towards education, prevention and training $250,000 provided to SAIL for the purpose and distribution of compression pumps Review of the policy and processes for the SAIL Compression Pump and Garment Program
6 Lymphedema Working Group November 2012: A new Lymphedema Working Group on Implementation was been established to contribute to four prevention and education initiatives and policy and process review of the SAIL Compression Pump and Garment programs Working Group: representatives from the Ministry of Health, Regional Health authorities, lymphedema service providers and lymphedema Meetings from November 2012 to March 2013
7 Lymphedema Working Group Minister of Health commitment: Provision of education and training to regional health care providers regarding prevention and management of primary and secondary lymphedema and post surgical lymphedema treatment of patients. Complex Decongestive Therapy Training (CDT) will be offered to therapists throughout the province to build capacity in all health regions.
8 Health Regions with CDT Therapists Regina Qu Appelle Saskatoon Five Hills Sunrise Sun Country Prairie North Heartland Cypress Hills Kelsey Trail Mamewetan-Churchill River
9 Saskatchewan CDT Therapists *Please see complete list of public and private CDT therapists on LAS website
10 Lymphedema Working Group Minister of Health commitment: Development of a breast cancer patient education resource and video. Maintenance and enhancement of printed patient education materials and distribution of information to the regional health authorities.
11 Your Journey Breast Cancer Resource
12 Your Journey Breast Cancer Resource Written resource and video Distributed to newly diagnosed breast cancer patients at various entry points after diagnosis throughout the health regions 1000 copies printed Available online on the Saskatchewan Ministry of Health Website (search breast cancer)
13 Lymphedema Working Group Minister of Health commitment: Development and implementation of a referral protocol to specialized lymphedema services throughout the province to enhance treatment to patients in a timely manner. Development and implementation of a post surgical referral protocol to regional health authority rehabilitation therapies departments therefore enhancing the continuum of care and timely access to rehabilitation post treatment.
14 Lymphedema Working Group Ministry of Health commitment: Review of the policy and processes for the Saskatchewan Aids to independent Living (SAIL) Special Needs Equipment Program and Compression Garment Program. Purchase and distribution of compression pumps that meet best practise standards and maximize benefits to patients.
15 Saskatchewan Health Coverage Updated SAIL coverage: 2 compression day garments per affected limb for every 6 months 1 night garment every 2 years Compression bandaging supplies Swell spots (localized compression pads), fibrosis/scar pads Garment accessories (adhesive glue, stocking applicators, rubber gloves, etc.) Funding assistance for 12-chambered pumps for primary lymphedema
16 Lymphapress Lympha Press Optimal Model 1201
17 Conclusion We have made significant strides in lymphedema awareness and treatment services in Saskatchewan. Patient voice is vital in identifying needs and gaps in lymphedema care. Need further work in health care provider education, funding for treatment services, referral process, and lower extremity and breast cancer edema pathways.
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