Creating a Specialized Oncology and Palliative Care Social Work Training Program. Today s Agenda. Program Development 5/18/2015

Transcription

1 Creating a Specialized Oncology and Palliative Care Social Work Training Program Taryn Lindhorst, PhD J May Rivara, LICSW Lynn Behar, PhD Robin Kelson, BA Today s Agenda Development of Carol LaMare Program Field Placements Survey of Graduates Seminar Case Example Curriculum Q & A Program Development 2005 began with $3000 scholarship to one student 2010 expanded program to 6 scholarships with 2 x month seminar 2015 $5000 scholarship 49 MSW students 3 PhD students Max and Carol LaMare 1

2 Field Placements Evolution of Selection of Scholarship Students Factors to consider breadth of organizations across MSW cohorts Competitive process over time Identified sites: (UWMC, SCCA, SCI, PHOS) Other designated settings (e.g., VA, Evergreen, Overlake, UW Valley) Survey of Graduates Percent CL students working in medical social work 35% CL students working in oncology or palliative care 30% Field placement provided helpful preparation 86.5% Seminar was helpful 89% CL network is helpful 79% Staying in touch with CL is important 95% Member of SWHPN or AOSW 65% 2

3 Student Comments The support I ve received from my CL cohort and other colleagues who had participated in CL has been invaluable. I m hopeful that these relationships will continue through my SW Career. Being in the seminars has been one of the most difficult things I have pushed myself to do because of the emotional nature of the program and our work... I ve been able to challenge and face my own fears. I have an incredible support network as a result of the CL cohort. I firmly believe that the CL scholarship, seminar, and overall community was by far the best part of my MSW program. Marta -- MICRO Biological Diagnosed with cervical cancer in 2014 at 30 weeks pregnant Underwent radical caesarian hysterectomy (in which the uterus is removed at the time of c-section) with bilateral pelvic lymph node dissection Received concurrent chemo and radiation; January 2015 presented to outpatient oncologist with difficult/painful urination; workup revealed pelvic mass and multiple lung nodules End of March, admitted to MICU with acute renal failure; Nephrology consulted, nephrostomy performed MICRO Psychological Marta is in great distress and struggling to cope with her prognosis. She is not comfortable articulating her fears and concerns. 3

4 MICRO: Social Marta is 28 years old and has 3 children a son (aged 7), a daughter (aged 5), and a baby boy (6 months). Marta and her children live with Marta s younger sister, Carla (aged 20), and Carla s boyfriend in an apartment in Renton. Carla has been the primary caregiver for Marta and her children since the onset of Marta s illness. Carla has bonded deeply with the baby in particular. Marta is the oldest of 4 siblings. Her parents and two younger siblings live in Mexico. MEZZO Moral distress among hospital staff re ethics of offering patient chemo at this stage Emotional difficulty/countertransference for many nursing staff due in part to patient s age Particular challenges for palliative care and social work re patient s reluctance to discuss issues openly MACRO Impact of national borders and visa restrictions on ability of family to be united and offer mutual support at time of death Issue of curative (chemo) option ruling out hospice referral 4

5 Topics Discussed Aggressive treatment when death is imminent Cultural values and challenges of patient preference for indirect communication Potentially complex issues re child custody Youthful age of patient and countertransference issues this raised Overall Curriculum Design Oncology Social Work Palliative Care Sustainability Post-Graduation Involvement Reunion, Breakfast, Special Events Financial support ACS support VA support Linkage to UW Cambia Palliative Care Center of Excellence 5

6 Questions?? 6