SCHOOL RESOURCES For CHRONIC DISEASE MANAGEMENT Compiled by Oakland County Health Division School Quality Team August 2003
SCHOOL RESOURCES FOR CHRONIC DISEASE MANAGEMENT TABLE OF CONTENTS 1. Students with Chronic Illnesses: Guidance for Families, Schools, and Students. (www.nhlbi.nih.gov/health/public/lung/asthma/guidfam.pdf) 2. School Based Allergy Management Plan. 3. Resources Available to Schools to Help Manage Allergies. 4. School Based Seizure Disorder Management Plan. 5. Resources Available to Schools to Help Manage Seizure Disorders. 6. Resources Available to Schools to Help Manage Asthma. 7. Resources Available to Schools to Help Manage Diabetes. 8. Sample Cover Letter to Parent Regarding Health Management. 9. Michigan Department of Education Resources. This information is being provided to you as a service of Oakland County Health Division. Inclusion of a specific web site does not constitute endorsement by Oakland County Health Division.
Students With Chronic Illnesses: Guidance for Families, Schools, and Students Chronic illnesses affect at least 10 to 15 percent of American children. Responding to the needs of students with chronic conditions, such as asthma, allergies, diabetes, and epilepsy (also known as seizure disorders), in the school setting requires a comprehensive, coordinated, and systematic approach. Students with chronic health conditions can function to their maximum potential if their needs are met. The benefits to students can include better attendance, improved alertness and physical stamina, fewer symptoms, fewer restrictions on participation in physical activities and special activities, such as field trips, and fewer medical emergencies. Schools can work together with parents, students, health care providers, and the community to provide a safe and supportive educational environment for students with chronic illnesses and to ensure that students with chronic illnesses have the same educational opportunities as do other students. Family s Responsibilities Notify the school of the student s health management needs and diagnosis when appropriate. Notify schools as early as possible and whenever the student s health needs change. Provide a written description of the student s health needs at school, including authorizations for medication administration and emergency treatment, signed by the student s health care provider. Participate in the development of a school plan to implement the student s health needs: Meet with the school team to develop a plan to accommodate the student s needs in all school settings. Authorize appropriate exchange of information between school health program staff and the student s personal health care providers. Communicate significant changes in the student s needs or health status promptly to appropriate school staff. Provide an adequate supply of student s medication, in pharmacy-labeled containers, and other supplies to the designated school staff, and replace medications and supplies as needed. This supply should remain at school. Provide the school a means of contacting you or another responsible person at all times in case of an emergency or medical problem. Educate the student to develop age-appropriate self-care skills. Promote good general health, personal care, nutrition, and physical activity. School District s Responsibilities Develop and implement districtwide guidelines and protocols applicable to chronic illnesses generally and specific protocols for asthma, allergies, diabetes, epilepsy (seizure disorders), and other common chronic illnesses of students. Guidelines should include safe, coordinated practices (as age and skill level appropriate) that enable the student to successfully manage his or her health in the classroom and at all schoolrelated activities. Protocols should be consistent with established standards of care for students with chronic illnesses and Federal laws that provide protection to students with disabilities, including ensuring confidentiality of student health care information and appropriate information sharing. Protocols should address education of all members of the school environment about chronic illnesses, including a component addressing the promotion of acceptance and the elimination of stigma surrounding chronic illnesses. 1
Develop, coordinate, and implement necessary training programs for staff that will be responsible for chronic illness care tasks at school and schoolrelated activities. Monitor schools for compliance with chronic illness care protocols. Meet with parents, school personnel, and health care providers to address issues of concern about the provision of care to students with chronic illnesses by school district staff. School s Responsibilities Identify students with chronic conditions, and review their health records as submitted by families and health care providers. Arrange a meeting to discuss health accommodations and educational aids and services that the student may need and to develop a 504 Plan, Individualized Education Program (IEP), or other school plan, as appropriate. The participants should include the family, student (if appropriate), school health staff, 504/IEP coordinator (as applicable), individuals trained to assist the student, and the teacher who has primary responsibility for the student. Health care provider input may be provided in person or in writing. Provide nondiscriminatory opportunities to students with disabilities. Be knowledgeable about and ensure compliance with applicable Federal laws, including Americans With Disabilities Act (ADA), Individuals With Disabilities Education Act (IDEA), Section 504, and Family Educational Rights and Privacy Act of 1974 (FERPA). Be knowledgeable about any State or local laws or district policies that affect the implementation of students rights under Federal law. Clarify the roles and obligations of specific school staff, and provide education and communication systems necessary to ensure that students health and educational needs are met in a safe and coordinated manner. Communicate with families regularly and as authorized with the student s health care providers. Ensure that the student receives prescribed medications in a safe, reliable, and effective manner and has access to needed medication at all times during the school day and at schoolrelated activities. Be prepared to handle health needs and emergencies and to ensure that there is a staff member available who is properly trained to administer medications or other immediate care during the school day and at all school-related activities, regardless of time or location. Ensure that all staff who interact with the student on a regular basis receive appropriate guidance and training on routine needs, precautions, and emergency actions. Provide appropriate health education to students and staff. Provide a safe and healthy school environment. Ensure that case management is provided as needed. Ensure proper record keeping, including appropriate measures to both protect confidentiality and to share information. Promote a supportive learning environment that views students with chronic illnesses the same as other students except to respond to health needs. Promote good general health, personal care, nutrition, and physical activity. Student s Responsibilities Notify an adult about concerns and needs in managing his or her symptoms or the school environment. Participate in the care and management of his or her health as appropriate to his or her developmental level. Implement strategies that reduce disruption in the student s school activities, including physical education, recess, offsite events, extracurricular activities, and field trips. 2
School Based Allergy Management Plan ALLERGY TO: Student s Name: D.O.B.: Teacher: Place Child s Picture Here Asthmatic Yes* No *High risk for severe reaction SIGNS OF AN ALLERGIC REACTION Systems: Symptoms: MOUTH itching & swelling of the lips, tongue, or mouth THROAT* itching and/or a sense of tightness in the throat, hoarseness, and hacking cough SKIN hives, itchy rash, and/or swelling about the face or extremities GUT nausea, abdominal cramps, vomiting, and/or diarrhea LUNG* shortness of breath, repetitive coughing, and/or wheezing HEART* thready pulse, passing-out GENERAL fear, apprehension, sudden fatigue and chills The severity of symptoms can quickly change. *All above symptoms can potentially progress to a life threatening situation. ACTION FOR MINOR REACTION 1. If symptom(s) are: give Then call: medication/dose/route 2. Mother, Father, or emergency contacts. 3. Dr. at ACTION FOR MAJOR REACTION 1. If symptom(s) are: give medication/dose/route Call 911 (ask for advanced life support) 2. Mother, Father, or emergency contacts. 3. Dr. at DO NOT HESITATE TO CALL 911 Doctor s Signature Parent s Signature a\school Based Allergy Mgt. Plan 7/03 Date Date
1. EMERGENCY CONTACTS Relation: Phone: 2. TRAINED STAFF MEMBERS 1. Room 2. Room Relation: 3. Relation: Phone: Phone: 3. Room EPIPEN AND EPIPEN JR. DIRECTIONS 1. Pull off gray activation cap. 2. Hold black tip near outer thigh (always apply to thigh). 3. Swing and jab firmly into outer thigh until Auto-Injector mechanism functions. Hold in place and count to 10. The EpiPen unit should then be removed and taken with you to the Emergency Room. Massage the injection area for 10 seconds. For children with multiple allergies, use one form for each allergen. a:\school Based Allergy Mgt. Plan pg. 2 adapted from Food Allergy Network 7/03
RESOURCES AVAILABLE TO SCHOOLS TO HELP MANAGE ALLERGIES 1. THE FOOD ALLERGY NETWORK Suite 107 10400 Eaton Place www.foodallergy.org Fairfax Virginia, 22030-5647 Phone: 1-800-929-4040 1-703-691-3179 2. AMERICAN ACADEMY OF ALLERGY, ASTHMA, AND IMMUNOLOGY 611 East Well Street Milwaukee, WI 53202 www.aaaai.org Phone: 1-800-822-2762 1-414-272-6071 3. AMERICAN ACADEMY OF ALLERGY, ASTHMA, AND IMMUNOLGY Suite 550 85 West Algonquin Road www.allergy.mcg.edu Arlington Heights, IL 60005 Phone: 1-800842-7777 4. ASTHMA AND ALLERGY FOUNDATION OF AMERICA MICHIGAN CHAPTER Suite 102 17520 W. Twelve Mile Road www.aafa.org Southfield, MI 48075 Phone: 1-248-557-8050 5. ASTHMA AND ALLERGY FOUNDATION OF AMERICA NATIONAL HEADQUARTERS Suite 402 1233 20 th Street, NW www.aafa.org Washington, DC 20036 Phone: 1-800-7-ASTHMA 1-800-727-8462 6. FIRST AID EMERGENCY GUIDE Michigan Association of Nurses www.michiganschoolnurses.org a:\school Based Allergy Resources 7/03
School Based Seizure Disorder Management Plan Student s Name: D.O.B.: Teacher: Seizure Type: Place Child s Picture Here Date of last seizure: What happens during the seizure? Warnings or behavior changes before seizure occurs? Limitations in school related activities: Medications taken for condition (if any) This student s seizure disorder, may place him/her at risk for experiencing a seizure requiring emergency response. The following emergency plan is recommended: DO NOT HESITATE TO CALL 911 Physician s Signature Parent/Legal Guardian Signature a\school Based Seizure Mgt. Plan 7/03 Date Date
RESOURCES AVAILABLE TO SCHOOLS TO HELP MANAGE SEIZURE DISORDER 1. THE EPILEPSY FOUNDATION OF AMERICA (EFA) 4351 Garden City Drive Landover, MD 20785 Phone: 1-800-EFA-1000 2. THE EPILEPSY FOUNDATION OF MICHIGAN Suite 100 26211 Central Park Blvd. Southfield, MI 48076 Phone: 248-351-7979 3. FIRST AID EMERGENCY GUIDE Michigan Association of School Nurses www.michiganschoolnurse.org 4. MICHIGAN REHABILITATION SERVICES (MRS) A state and federally funded job assistance program. It assists those who are eligible to prepare for, find, and keep a job. Phone: 1-800-605-6722 a:\school Based Seizure Resources 7/03
For more information contact: RESOURCES AVAILABLE TO SCHOOLS TO HELP MANAGE ASTHMA The National Asthma Education and Prevention Program at the National Heart, Lung, and Blood Institute P.O. Box 30105 Bethesda, MD 20824-0105 (301) 951-3260 www.nhlbi.nih.gov/about/naepp The following organizations can provide additional materials and information about asthma: Asthma and Allergy Foundation of America National Headquarters 1233 20 th Street, NW Suite 402 Washington, DC 20036 1-800-7-ASTHMA or 1-800-727-8462 American Lung Association Michigan Headquarters 25900 Greenfield Road Suite 401 Oak Park, MI 48237 1-800-543-LUNG or (248) 784-2000 www.aafa.org www.alam.org Lung Line Information Service National Jewish Medicine and Research Center 1400 Jackson Street Denver, CO 80206 www.njc.org 1-800-222-5864 American Academy of Allergy, Asthma, and Immunology 611 East Well Street Milwaukee, WI 53202 1-800-822-2762 or 1-414-272-6071 www.aaaai.org Allergy and Asthma Network/Mothers of Asthmatics 2751 Prosperity Avenue www.aanma.org Suite 150 Fairfax, VA 22031 1-800-878-4403 American College of Allergy, Asthma, and Immunology 85 West Algonquin Road Suite 550 Arlington Heights, IL 60005 1-800-842-777 www.allergy.mcg.edu Source: Managing Asthma: A guide for Schools, National Heart, Lung, and Blood Institute(NHLBI), National Institute of Health, U.S. Department of Health and Human Services, and the Fund for the Improvement and Reform of Schools and Teaching, Office of Educational Research and Improvement (OERI), U.S. Department of Education, September 1991. NIH Publication No. 91-2650 Document in School Resources for Chronic Disease Mgmt (05/03)
RESOURCES AVAILABLE TO SCHOOLS TO HELP MANAGE DIABETES INTERNET RESOURCES Links to diabetes related resources: http://castleweb.com/diabetes/index.htm http://diabetes.org (American Diabetes Association) ORGANIZATIONS American Diabetes Association, MI Affiliate American Diabetes Association 30300 Telegraph 1660 Duke Street Ste. 117 Alexandria, VA 22314 Bingham Farms, MI 48025 1-800-ADA-DISC http:/www.diabetes.org Medic Alert Foundation International Oakland County Health Division 2323 Colorado Avenue Nutrition Services Turlock, CA 95382 Southfield, MI (209) 668-3333 (248) 424-7056 or 424-7068 National Information Center for Children and Youth with Disabilities PO Box 1492 Washington DC 20013 1-800-695-0285 Information: Individualized Ed Program See 504 Accom Plan Juvenile Diabetes Research Foundation 24359 Northwestern Ste. 225 Southfield, MI 48076 (248) 355-1133 D:\$Data\MyDocuments\FormLetters\OCHD.DiabeticResourcesforSchoolSettingJULY 24,2003 Loc.MyDocuments.dsw
SAMPLE COVER LETTER TO PARENT/LEGAL GUARDIAN REGARDING HEALTH MANAGEMENT SCHOOL LETTERHEAD Date Dear (Parent/Legal Guardian): You have indicated your child has. In order for school personnel to safely care for your child, please complete the following form(s) and return to the school office by. 1. School Based Management Plan (Requires parent/legal guardian and physician signature) 2. Medication Authorization form(s): (physician completes one form for each medication, test or treatment prescribed. Physician signature required) 3. Other. It is the responsibility of the parent/legal guardian to provide all prescribed medications, supplies and equipment to the school, and to arrange for staff training as needed. All forms and medication must be updated yearly and as changes occur. If an emergency arises before receipt of the necessary items, the school district policy and basic First Aid procedures will be followed. Prompt return of your child s information will assist us to respond to your child s needs. Sincerely, (Principal/Designee Signature)
Michigan Department of Education Resources School Health Services (Immunization, vision, medications issues) : Management of Students with Asthma in the School Setting (this document is listed as four separate items). Management of Students with Diabetes in the School Setting This information may be accessed through the MDE web site: www.michigan.gov/mde 1. Use Search box on top line and enter school health services, and select top pick of those which come up, or 2. Select: Programs and Offices/ School Excellence under Learning Support click on School Health Services.