VULNERABILITY AND WASH: DATA COLLECTION TOOLS TOOL 7 INDEPTH INTERVIEWS (INDIVIDUAL) WATERAID/WEDC/LCD/LSHTM (2014) Data collection tool should be cited as WaterAid, WEDC, Leonard Cheshire Disability, London School of Hygiene and Tropical Medicine (2014), Vulnerability and WASH: data collection tools. Tool 7 in depth interviews (individual) 1
INTRODUCTION Thank you for agreeing to take part in this interview. My name is... and I am a data collector from INESOR at the University of Zambia/ATC Uganda. I am part of a team conducting a research study on behalf of the London School of Hygiene and Tropical Medicine and WaterAid on disability and access to water, sanitation and hygiene. I am now going to ask you some questions regarding your participation in community meetings and events around water, sanitation and hygiene, changes to your personal use of water, sanitation and hygiene facilities in and around your household and community and any difficulties you may face when using such facilities and how you think about the community s attitude towards you. As explained, you are free to stop the interview at any time. This interview will be audio-recorded (tape recorded) and will take approximately 30-40 minutes. Thank you for your time. Note to interviewer: Please complete ALL details in the table below before starting the interview. District Village/settlement Headman Area/Sub County/Parish Household No Name of person interviewed FIRST NAME SURNAME Gender Male Female Tick as appropriate Age Date of Interview Recording number Additional information 1. GENERAL BACKGROUND/CURRENT SITUATION 1.1 Please can you tell me about the difficulty you have that may limit your ability to get water, use the toilet or bathe/clean yourself? (Briefly describe functional limitation disability/chronic pain or illness/ old age & etc.) 1.2 Have there been any changes in your current condition over the past two years (functional limitation disability/chronic pain or illness/old age & etc.)? If yes, please describe what these changes have been? Prompt: Level and severity of condition (improved/worsened), other conditions? 1.3 Does your condition affect your daily life? If so, how? practical e.g. performing basic activities e.g. eating, washing, dressing, self-care (including use of toilet facilities), environmental e.g. local environment, social, physical 2
2. ACCESS TO AND USE OF WASH FACILITIES 2.1 Please can you tell me whether any of the following activities are difficult for you in anyway due to your condition reported/difficulty reported with (insert condition... impairment) a. Collecting drinking water ( IF YES, ASK QUESTIONS 2.2 TO 2.4) b. Accessing /using the toilet (IF YES, ASK QUESTIONS 2.5 to 2.7) c. Bathing/washing your body and keeping yourself clean (IF YES, ASK QUESTION 2.8) d. Hand washing with soap (IF YES, ASK QUESTION 2.9 and 2.10) (INSTRUCTION TO INTERVIEWER - IF YES, TO 2.1a, 2.1b and 2.1c ASK ALL QUESTIONs 2.2 to 2.10 DRINKING WATER ACCESS QUESTIONS 2.2 If you have trouble getting water to drink, tell me more about this: A. Do you get their own water, if so, do a Moment in Life - have them describe what they have to deal with when going to fetch water (i.e.) difficulties using path/ steps up to water source/ height-depth of well/ lack of strength or mobility for operating pump) etc.. Does this happen in both the rainy and dry seasons? B. If don t get own water go to Question 4 2.3 If other people bring water for you Who brings it? 2.4 Do you get enough water (use less water than you need/would like because difficult for you to carry it/ difficult for others to carry/ it is expensive) If you do not get enough water, do you use LESS water than others in your household? If so why?, (Do you want to or feel restricted/ guilty about using same amount)? Do you have to wait for someone to come home to get you water? If water is stored in house, can you get it by yourself or do you need help? If so, do you have to wait for someone to help you? Do you ever use water from a source that you know may not be clean (tap/ standing water/ other) rather than use water fetched/ treated water)? Why do you do this? SANITATION ACCESS QUESTIONS 2.5 Do you have trouble getting to/ using the toilet? A. If no, jump to 2.6 B. If yes, do a Moment in Life - Have them describe what they do when going to/ using toilet? (i.e. difficulties walking/moving to toilet/bush; / steps to toilet/ height of toilet/ size of latrine/ need to wait for someone to help them). Additional questions: (especially for physically disabled/ weak/frail) If need help, who helps? Is that person always available? If not, do you have to wait until they come home/ return from work? 3
Do you try to limit the number of times a day you use toilet? If yes, is it: Because of difficulty in getting to/from toilet? Because you do not want to ask for help too often? Do you limit the amount of food / water so you need to go less? (if yes, ask them to describe (i.e. I don t drink anything until later in the day/ I eat only at dinner) If difficult to walk, must you crawl across a dirty surface (dirt/ concrete/ etc.) to toilet? If so, what do you do to try to keep clean use different place in bush/fields, instead of family toilet? Buy hand sanitizers/soap because in contact with dirty surfaces? (If so, can they afford this?) 2.6 Do you use the same toilet as everyone else in your household? If not, how and what do you do that is different? 2.7 Why are you not using the same toilet? Are you ever discouraged from using/ told not to use the same toilet because people think that you cannot be as clean/ that others can become sick/disabled from using the same toilet (or other reason)? If yes, does it happen in your household? In the community? Does lack of toilet you can use keep you from travelling around/ doing things in your community? (i.e.: not going to the market/shopping/ church?). Kept you from going to school/ looking for job/ working outside household? PERSONAL HYGIENE ACCESS QUESTIONS 2.8 Do you need help washing yourself/ keeping yourself clean? If yes, ask all questions below. (If no, go to SECTION 3) Moment in Life: Describe what you have to do when they want to wash yourself? Wash clothes/ cleaning related activities? Does someone help you bathe/clean? If so, does this limit how clean you can keep yourself? (Ask if this is also linked to trying not to use too much water above) If cannot bathe/clean as often as you would like, do you think this leads to infections/ other problems? (i.e.: pressure sores/infections)? Women cleaning after menstruation for adult disabled women for example that are an issue because of need for help/ limited access to water? HAND WASHING ACCESS QUESTIONS 2.9 Do you have access to a suitable place in which to wash your hands after activities such as using the toilet/going for open defecation? (This can be a designated hand washing place or a device e.g. a leaky tin) If yes, where is this place? 4
Is water available at or near this place? If not, why and how do you access water Is soap available or another locally used cleaning agent If no, do you have access to any materials such as a bucket to wash hands in Is water available at or near this place? If not, why and how do you access water Is soap available or another locally used cleaning agent 2.10 Do you need help washing your hands after activities such as using the toilet, before preparing or handling food, feeding a baby? If yes, ask all questions below. (If no, go to SECTION 3) Moment in Life: Describe what you have to do when they want to wash hands for different critical times described above? Does someone help you hand wash? If so, does this limit how clean you can wash your hands after various activities? (Ask if this is also linked to trying not to use too much water above) If cannot hand wash as often as you would like, do you think this leads to infections/ other problems? (i.e.: diarrhoea and other related conditions)? 3. CHANGES/ADAPTATIONS TO WASH FACILITIES 3.1 Please can you tell me whether there have been any changes to your use of any of the following in the past 2 years: a. Collecting drinking water b. Accessing /using the toilet c. Keeping clean/washing yourself, your clothes etc.? If yes, what have these changes been, please can you describe them? Prompt: Type of change e.g. adaptations to facilities, increased/decreased assistance /New facilities installed e.g. latrines Probe: Why and how the changes came about, when, cost? 4. NATURE OF PARTICIPATION 5
4.1 Have there been any events or discussions in your community about people who may have a condition that restricts or makes it difficult for them to use household and other local facilities (e.g. latrine, collecting/using water and using bathing facilities) that you have been invited to? If so, please describe what happened? If yes, ask prompts below. If no, go to SECTION XXX Did they receive assistance to attend e.g. transport, financial assistance, assistive device/mobility aids) Were they able to speak during meetings and express their concerns/issues and did they feel listened to/ were their ideas considered? Was a decision made that addressed or responded to an issue/concern/question Were you able to make a decisionyourself or vote to approve or reject a group s decision? How has this made them feel? E.g. dignity, self respect, self confidence Do you think this has changed the way that other people view you? E.g. with greater respect 5. SOCIAL AND COMMUNITY SUPPORT 5.1 (Support mechanism) Who in your household helps you do things that may be difficult for you because of your age/disability/ sickness. (Water and toilet/ feeding/ dressing/ work & etc). Are there other family members who don t live with you who help out? Who? How far do they live from you? How do they help? Do they help all the time/sometimes/ once in a while? Has there any change in the level of help received in the past two years (e.g. less or more assistance)? 5.2 Are there some groups in the community women s groups, Community Health Committee, church groups, others that help you sometimes/ give you food, clothing, help with housing? What do they do? Do you ask them to help? Do others in your family ask for help? Do they just show up? 5.3 Do you get some funding from the Community Welfare Assistance Committee? Are there other funds/ organizations that help you with money, food, medicine & etc? If so what help do you get? Are there other things you would like these organizations to do? 6. SELF AND COMMUNITY PERCEPTION 6
6.1 (Stigma/Prejudice). Are there any traditional beliefs about people who are elderly/disabled/sick? Do others exclude them/ are disrespectful/tease/ bully /tease them? Do some people assume they ll always be angry/ in a bad mood? 6.2 Has there been any change in the way that you view yourself in the past two years? What do you think has caused this change? How has this change made you feel? (e.g. dignity, self respect, self confidence) 6.3 Do you feel that that there have been any change(s) in the way in which other members of your community behave and interact with you? What do you think has caused this change? How has this change made you feel? (e.g. dignity, self respect, self confidence) 7. FUTURE CHANGES 7.1 Is there anything that you would like to see changed in your household/community in relation to water, sanitation and hygiene facilities in your household/community environment? Prompt: What could have been done better? 7.2 Is there anything else that you would like to tell me? 7