National ehealth strategies

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National ehealth strategies A review of success factors in 5 countries Panel coordinated by the Australian College of Health Informatics

Panel program Presentation on success factors in each country 1. Program description 2. Success factors 3. Issues and priorities Interactive session (30 ) What are the important success factors? What can we learn from each other? Summation (5 )

Panelists Australia Kenya NZ Chile Canada Teng Liaw Terry Hannan Brendan Kelly Evelyn Hovenga & Carola Hullin Nicola Shaw

Our assumptions Patient safety and quality of care is our mission Clinical decision support is our most important task Inter-professional is our approach Technology is NOT our problem Training and support is our need Evaluation & quality control essential Our involvement must be incremental

Success factors framework 1. Business case established 2. Formal strategic/business plans with budget and KPI 3. Governance & Accountability of responsible organisation Change management arrangements? Capacity building? Evaluation, quality control and monitoring arrangements? 4. Outcomes focus and deliverables? Products and services congruent with objectives? Safety & quality of clinical and population health outcomes? 5. Stakeholders and shared decision making? Expectations? Consulted on program objectives, agency and deliverables? How? 6. Critical environmental issues and government policies National plan and implementation strategy? Inter-sectoral support and issues?

Our questions What are our priorities for ehealth? How can we promote success?

Australia Professor Teng Liaw University of Melbourne President ACHI

National Shared EHR program National ehealth Transition Authority (NEHTA) not-for-profit company to develop better ways of electronically collecting and securely exchanging health information in an interoperable e-health environment Key accelerators UPI&UHPI, terminology, directories, messaging protocols, privacy, security, access control Business case & benefits realisation Efficiencies in processes and messaging initially, then benefits from EDS (10 years) Standards-based approach to engage industry Capacity building of health workforce Change management: HealthConnect

Report card 1. Clinical and population health focus not explicit 2. Strategic or business plans or budget not explicit 3. Business case for ehealth being developed 4. NEHTA organisation Governance structure does not reflect clinical & PHC stakeholders Accountability arrangements not clear Leadership style and communication/engagement strategy Change management arrangements not apparent No explicit capacity building strategy No formal evaluation, quality control and monitoring arrangements 5. Deliverables described but not linked to health outcomes 6. No shared decision making; expectations probably unrealistic 7. The critical environment factors are not apparent Supporting government policies and legislations? National plan and implementation strategy? Inter-sectoral support and issues HISA survey 2007

HISA survey 2007: successes Continue existing standards work SNOMED licensing Raising the awareness of ehealth in the broader health, business and consumer environments Creating order in the complex and dynamic health environment Constrained focus on interoperable and secure ehealth environment

HISA survey 2007: failures Does not understand the operational needs of Australian ehealth, leading to complex, costly and possibly unsafe systems and processes; Inappropriate leadership style and limited engagement with industry and external stakeholders (clinical, vendor and health manager); Lack of meaningful content in communications; Lack of transparency with apparently complex and bureaucratic processes within NEHTA; Lack of a defined vision, realistic goals for the organisation, and an appropriate strategy; Costly with a lack of useful outcomes; Currently a poor return on investment

Issues are a lack of a nationally consistent vision of ehealth a nationally coordinated implementation plan, supported by all jurisdictions, with a clear governance structure and an adequate budget a significant and adequately funded nationally coordinated ehealth R&D program, avoiding duplication of efforts and improved ROI a national capacity building strategy a national change management strategy based on incremental uptake a clinical focus on decision support to promote safety and quality of care a population health focus

Kenya Terry Hannan Physician & Informatics consultant

Regenstrief Medical Record System (IJMI 1999; 54) Retrieval times - Fast (blink times) Data and information - Comprehensive Data storage - Long-term and lifelong Data applications - Introspective of total database Data storage- 200 million coded observations 3.25 million narrative reports 15 million prescriptions 212,000 ECG tracings More than 1.3 million patients Access- 1300 medical nurses 1000 physicians 220 medical students Across health care institutions (16) Data access more than 628,000 / month

Kenyan project Jan 2000- Aug 2007 Resource poor nation Paper based records and reporting Unreliable energy resources Prior computer inexperience or illiteracy 14% prevalence of HIV Electronic data on 1500-2000 pats/day 10M electronic observations 400,000 visits 45,000 patients Managed by local Kenyan population A web based EMR - www.openmrs.org In 7 countries

Success factors Priority clinical domain - HIV/AIDS Involve multidisciplinary clinicians Researchers and quality improvement officers: data, data, data Well proven EHR, scalable and transferable; mutually supports health practice

MMRS data (2 years) 33,000 patients enrolled; 64,000 visits made Diagnoses # Visits Drugs # Visits Malaria 17,495 Paracetamol 24,944 URI 8,479 Fansidar 11,550 Septic wound 1,329 Quinine, injected 8,769 Gastroenteritis 964 Penicillin, injected 8,058 Tonsilitis 938 Quinine, oral 7,851 Wound (unspec.) 791 Penicillin, oral 4,753 Myalgia 700 Amoxicillin 4,725 Amebiasis 629 Depoprovera 4,443 Laceration 618 Piriton 3,766 Worms (unspec.) 544 Brufen 3,323

Issues: not IT but IM The CPR is an evolving concept Clinical decision support is the task Meeting User Needs Political change is critical Leadership Legal and Social Issues Standards Costs and Benefits Evaluation

New Zealand Brendan Kelly Interim Deputy Director-General, Information Directorate, NZ

NZ Program Description Health Information Strategy for New Zealand (HIS-NZ) (2005) a plan informed & led by the Health & Disability Sector to enhance the safe sharing of health information to meet emerging challenges & remedy identified gaps in health information the Ministerial Advisory Committee Health Information Strategy Action Committee (HISAC) provides governance, oversight and leadership for strategy implementation Primary Health Care Strategy: Key Directions for the Information Environment a proposal to create an information environment that helps achieve the Primary Health Care Strategy goals National Health Information Systems Upgrade a 4-year Ministry initiative with 5 key work streams Connected Health Access & Integration Recipient & Provider Identity Services (NHI, HPI) Statistics & Reporting Health Payment Systems

NZ Success Factors Extensive computerisation of patient information (eg 99% GPs with PMS in 2004) Broadly accepted strategy HIS-NZ 2005 Well-established information anchors patient (NHI), practitioner (HPI) & standardisation of key data Established national health network & clear direction for health connectivity Strong national, regional & local relationships in clinical, administrational & specialist areas

NZ Issues and Priorities National Network Strategy uptake of secure broadband nationally National Health Identifier improve awareness, access & processes Health Provider Index Implementation E-pharmacy including electronic transcriptions E-labs central tracking & monitoring of lab tests from order to result Hospital Discharge Summaries consistent & shared btwn providers Chronic Care and Disease Management to support clinical decisions Electronic Referrals standardise the processes & protocols National Outpatient Collection to better understand pattern of care Primary Care Information standardise data collection & KPIs National System Access improve analysis & reporting & avoid privacy issues Anchoring Framework retrofit NHI & HPI to link information

Reference Ministry of Health. 2005. Health Information Strategy for New Zealand 2005. Wellington: Ministry of Health.

Chile National Digital Agenda & Health Reform Evelyn Hovenga / Carola Hullin

Digital Agenda & Health Reform Digital Agenda initiative In Health: operationalised by DADES/Minsal Libro Azul Recognizes semantic interoperability as main requirement How to achieve it however unclear Strategic vision and focus? ICT infrastructure Often: non-existent or obsolete But: ambitious initiative to upgrade infrastructure Ambitious pilot projects Major differences between Santiago and regional/remote areas

Issues to consider No health information managers 50% of the population treated by primary healthcare centres and have access to secondary and tertiary healthcare for specified diseases only Government must have results by 2010 National dedicated network

Success factors Overall aim is to improve: Access to health services Primary health care and public health focus Sustainable health system Efficiencies Skilled health workforce in adequate numbers Patient safety effectiveness Consumer participation

Strategic Focus Promote Semantic Interoperability Identify National Business/Policy needs Electronic Health Records openehr approach Casemix Telehealth Critical pathways AUGE Plan Establish National Standards Infrastructure Technical standards Concept representation standards Statistics, classification, casemix, reporting, archetypes

Canada Infoway Nicola Shaw

Canada Dr. Nicola (Nikki) Shaw Research Chair, Health Informatics. icare,, University of Alberta & Capital Health

Canada Health Infoway Established in 2001 to accelerate the development and adoption of modern systems of health information and to define and promote standards governing the health infostructure to ensure interoperability Budget $1.6 billion $500 million (2001); $600 million (2002); $100 million Public Health Surveillance (2004); $400 million (2007) Goal: To have an interoperable Electronic Health Record covering 50 per cent of Canadians by 2010 Nine Investment programs Registries, Diagnostic Imaging, Drug Information Systems, Laboratory Information Systems, Telehealth, Public Health Surveillance, Interoperable EHR Systems, Innovation and Adoption & Infostructure

Success factors Infoway success model has six conceptual dimensions Three quality dimensions: Information System Service Plus: Use Satisfaction Net Benefits Infoway BE Tech Indicators Dec. 13, 2006

Issues & Priorities (2001) CURRENT PRIORITES Innovation and Adoption - $60 million Infoway s goal To have an interoperable Electronic health record Covering 50 per cent of Canadians by 2010 Telehealth $120 million Public Health Surveillance $100 million Chronic Disease Primary Care Cancer Patient Safety Wait Times Mental Health Etc. with The elements of the Solution in place across All jurisdictions Interoperable HER - $175 million Registries $134 million Drug Systems $185 million Laboratory Systems $150 million Diagnostic Imaging $310 million Infostructure - $32 million

Issues & Priorities (for 2015) 1 Ensure baseline HER and Public health infostructure Are In place across the country Elements Extend HER to 100 per cent of Canadians, With ability to bridge across continuum of care Through a viewer functionality LARGEST INVESTMENT REQUIRED 2 Unlock additional quality And safety benefits by Enabling decision support And communication across The care continuum Link primary/ambulatory care, starting with EMRs in physician offices (GPs and specialists) Install advanced clinical information systems to enable enhanced decision support Rationale 3 Significant jurisdictions will be unlocked by pursuing these priorities 4 Enable public visibility Into wait times Facilitate improvements In patient self-care Enable each jurisdiction to report and manage aggregated wait times by location, procedure (e.g., diagnostics, surgeries, specialist care), and provider Create patient portals with access to EHR and other basic information and self-care tools Stakeholders consistently articulate these as the highest priorites Some jurisdictions will be able to start on these elements soon (and in some cases already have) and create compelling examples of improved care delivery 5 Trial more advanced Functionality to meet High-priority system needs A) Create an integrated triaged scheduling and referral model solution with a case management priority assessment across the care continuum in one to two jurisdictions B) Create a model solution that demonstrates proactive approaches to chronic disease

What are the critical success factors for ehealth programs?

Success needs Energy The Laws of Thermodynamics Energy cannot be created or destroyed Disorder always tends to increase Perfect order is unattainable What it really means is 1. You can t win! 2. You can t break even! 3. You can t give up! Allen Ginsburg

We are in this together along with a common iceberg avoidance plan!