Osteoporosis: The patient s perspective. Claire Severgnini Chief Executive

Transcription

1 Osteoporosis: The patient s perspective Claire Severgnini Chief Executive 1

2 Osteoporosis A long-term condition, mainly affecting people in later life Bones are fragile and more likely to fracture easily In the UK 1 in 2 women and 1 in 5 men over 50 years will have a fracture

3 Changes in bone mass with age genes nutrition exercise age related bone loss reduced physical activity Bone mass Adapted from J Compston 1990 Age (years) 3

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5 Bone structure changes Strong healthy bone Fragile osteoporotic bone Tim Arnett, University College London

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8 Fragility fractures A low impact fracture following a fall from standing height or less 300,000 fragility fractures each year, compared to 275,000 heart attacks and 110,000 strokes Rob people of independence, mobility and quality of life

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11 Hip fractures 89,000 hip fractures each year and rising Health and social care costs of hip fracture 2.3 billion per year 30% of hip fracture sufferers die within one year Over 50% remain permanently disabled

12 Cooper, C. The crippling consequences of fractures and their impact on quality of life AJM 103.2A (1997) 12

13 Absolute risk A fracture increases the risk of a second 7 6 First fracture Second fracture % re-fractures 54% re-fractures Years of follow up Slide reproduced with kind permission of Dr Jonathan Bayly 13

14 Fracture Liaison Services Opportunity: a fracture is associated with 2-3x increase in future fracture risk Evidence-based effective case-finding Dedicated case worker (Nurse Specialist) Supported by hospital doctor or GP with an interest in osteoporosis Based in primary or secondary care

15 Fracture Liaison Services Saves money Effective Evidence based But Not universally available: 38% England, Wales and Northern Ireland 66% in Scotland

16 STOP AT ONE is a campaign to be launched in October 2013 by the National Osteoporosis Society to encourage anyone over 50 who has broken a bone to have a bone check and find out if they are at risk of osteoporosis. Visit for more information and to order posters and scratch cards to promote the campaign. 16

17 STOP AT ONE: Key Messages If you are over the age of 50, have broken a bone and not been assessed by a Fracture Liaison Service / Health Professional, get a bone check: Contact the National Osteoporosis Society by phone / online for info, advice and support. nos.org.uk/stopatone or Visit your GP to discuss your further fracture risk / bone health Osteoporosis should be picked up after the first bone break so get checked out and avoid more breaks: STOP AT ONE

18 STOP AT ONE: Campaign Activity Media and advertising, national and regional, from October 2013, focussing around World Osteoporosis Day (20 October). Toolkit for all stakeholders including messages, statistics, posters, contact details and campaign advice. STOP AT ONE: Help us spread the word.

19 National Osteoporosis Society The only UK-wide charity dedicated to improving the prevention, diagnosis and treatment of osteoporosis Campaigning to change the future for people with fragile bones

20 Our website Reaching 250,000 people a year

21 Our Helpline Nurses with specialist osteoporosis knowledge Up to date, evidence based information; reflecting best clinical practice Backed up by experts Call:

22 Free publications Get our FREE 68 page book covering everything you need to know about osteoporosis To order a copy go to or call

23 Support Groups 75 Support Groups across the UK Peer support for people with osteoporosis Activities, events and medical updates Connecting with the health service and MPs locally

24 Supporting health professionals Practical Guides Position statements Opportunities for education and training Allied Health Professional Network Support through Professional Membership UK scientific journal - Osteoporosis review

25 Osteoporosis Resources for Primary Care Clear, concise information on all aspects of osteoporosis management How to implement QOF, and much more Keep updated by joining our list Supported by 25

26 The Family

27 Grandpa Fall and fracture The hospital Fracture Liaison Nurse

28 Grandma Our website

29 Grandma Our Helpline

30 Grandpa The hospital, the nurse and the scan Health professional training

31 Grandpa and the consultant Professional membership Treatment and clinical guidance

32 Grandpa and the local Support Group Our volunteer in the waiting room Newly Diagnosed events Exercise classes Membership

33 Mum Our Helpline FRAX

34 Mum and the GP GP appointment NICE The GP contract Study days Publications Lifestyle advice

35 The Family

36 What do fractures mean to people? Loss of mobility and independence Difficulty with daily tasks Pain and distress Change of body shape Implications for internal organs Depression and anxiety Changes in other people s perceptions

37 Think bone! Give your patients confidence to exercise Stress the importance of remaining active for pain relief and bone strength Signpost patients to the charity s information and support Use our leaflets What you can do Encourage fracture patients over the age of 50 to speak to their GP if they haven t already had a bone health assessment