Writing Group. Editors: Editor: Co-editor: Contributors: NEONATAL AND PEDIATRIC CARE ADULT CHD CARE RESOURCES RESOURCES

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1 Writing Group ADULT CHD CARE Editor: Mary Rummell, MN, RN, CNS, CPNC Clinical Nurse Specialist, Cardiac Services Oregon Health and Science University Portland, Oregon Co-editor: Sandy Staveski, PhD, RN, CPNP-AC/PC, CNS, CCRN Nurse Scientist, Research in Patient Services, Heart Institute Cincinnati Children s Hospital Medical Center Cincinnati, Ohio Editors: Dorothy M Beke, MS, RN, CPNP-PC/AC Clinical Nurse Specialist, Cardiac Intensive Care Unit Mechanical Circulatory Support Resource, Cardiac Intensive Care Unit Boston Children s Hospital Boston Mary Rummell, MN, RN, CNS, CPNP, FAHA Clinical Nurse Specialist, Cardiac Services Oregon Health and Science University Portland, Oregon Contributors: Loren Brown, BSN, RN, CCRN Clinical Nursing Educator, Cardiovascular Sandy Staveski, PhD, RN, CPNP-AC/PC, CNS, CCRN

2 ADULT CHD CARE Catheterization Lab Boston Children s Hospital Nurse Scientist, Research in Patient Services, Heart Institute Cincinnati Children s Hospital Medical Center Diana Arias, MSN, ARNP, FNP-C, CPN Clinical Specialist, Cardiac Intensive Care Unit Miami Children s Hospital Miami, Florida Kathryn Barrett, NP-C, RN, CCRN Nurse Practitioner, Pediatric Cardiac Intensive Care Unit Boston Children s Hospital Louise Callow RN, MSN, CPNP Pediatric Cardiac Surgery Nurse Practitioner University of Michigan, CS Mott Children s Cincinnati, Ohio Project Leads: Dorothy M Beke, RN, MS, CPNP-PC/AC Clinical Nurse Specialist, Cardiac Intensive Care Unit Mechanical Circulatory Support Resource, Cardiac Intensive Care Unit Boston Children s Hospital Louise Callow, MSN, RN, CPNP Pediatric Cardiac Surgery Nurse Practitioner University of Michigan Congenital Heart

3 ADULT CHD CARE Hospital Ann Arbor, Michigan Center CS Mott Children s Hospital Ann Arbor, Michigan Andrea Frederick, RN, NP Nurse Practitioner, Adult Congenital Cardiology Stanford Hospital and Clinics Palo Alto, California Lisa M. Kohr, MSN, RN, CPNP-PC/AC, MPH, FCCM PNP Cardiac Intensive Care Unit NP Children s Hospital of Philadelphia Philadelphia, Pennsylvania Annette Haynes, MS, RN, CNS, CCRN Cardiology Clinical Nurse Specialist Stanford Hospital and Clinics Palo Alto, California Mary Rummell, MN, RN, CNS, CPNP, FAHA Clinical Nurse Specialist, Cardiac Services Oregon Health and Science University Lindsey Katzmark, MSN, RN, APNP Portland, Oregon Nurse Practitioner, Adult Congenital Heart Disease Program Children s Hospital of Wisconsin Milwaukee, Wisconsin Sandy Staveski, PhD, RN, CPNP-AC/PC, CNS, CCRN Nurse Scientist, Research in Patient

4 ADULT CHD CARE Services, Heart Institute Jo Ann Nieves, MSN, CPN, ARNP, PNP- BC Nurse Practitioner, Adult Congenital Heart Cincinnati Children s Hospital Medical Center Cincinnati, Ohio Program Miami Children s Hospital Miami, Florida Cecilia St. George-Hyslop, M Ed, BScN, RN, CNCCP (C) Advanced Nursing Practice Educator Nancy Rudd, MS, RN, CPNP-AC/PC Nurse Practitioner, Pediatric Cardiology; Adult Congenital Heart Disease Program The Labatt Family Heart Centre The Hospital for Sick Children Toronto, Ontario, Canada Children s Hospital of Wisconsin Milwaukee, Wisconsin Dawn Tucker MSN, RN, CPNP-AC Director, Heart Center Margaret Schroder, RN, PNP-BC Nurse Practitioner, Cardiovascular Surgery Boston Children s Hospital APRN, Cardiac Intensive Care Unit Children s Mercy Hospital and Clinics Kansas City, Missouri Contributors:

5 ADULT CHD CARE Annierose D. Abogadie BSN, RN, CCRN, RN-BC Clinical Manger, Cardiac Intensive Care Unit Children s National Health System Washington, DC Lindsey Bradbury, BSN, RN, CCRN Nursing Department Director, Pediatric Intensive Care Unit Children s Mercy Hospitals and Clinics Kansas City, Missouri Bronwyn Bartle, DNP, CPNP-AC/PC Pediatric Nurse Practitioner Duke Children s Pediatric and Congenital Heart Center Durham, North Carolina

6 ADULT CHD CARE Catherine Baxter MSN, CPNP-AC Pediatric Nurse Practitioner, Pediatric Cardiac Surgery University of Michigan Congenital Heart Center CS Mott Children s Hospital Ann Arbor, Michigan Loren Brown, BSN, RN, CCRN Clinical Nursing Educator, Cardiovascular Catheterization Laboratory Boston Children s Hospital Elizabeth S Daley, BSN, RN, BA, CCRN Staff Nurse III, Cardiothoracic Intensive Care Unit Children s Hospital of Los Angeles Los Angeles, California

7 ADULT CHD CARE T. Lynn Dees, MNSc, APRN, PNP-BC, CPNP-AC Pediatric Cardiology APRN University of Arkansas for Medical Sciences Arkansas Children s Hospital Little Rock, Arkansas Amy Donnellan, MSN, CPNP-AC Clinical Nurse Specialist, Cardiac Intensive Care Unit Cincinnati Children s Hospital Medical Center Cincinnati, Ohio Misty Ellis, MSN, APRN Pediatric Nurse Practitioner University of Louisville and Kosair

8 ADULT CHD CARE Children s Hospital Department of Pediatric Critical Care Louisville, Kentucky Melanie Guerrero, MSN, RN, CPN Patient Care Services Clinical Manager, Cardiovascular Acute Unit Children s Hospital Los Angeles Los Angelis, California Nancy Hagberg, MS, RN, FNP Nurse Practitioner Child Heart Associates Worcester, Massachusetts Flerida Imperial-Perez, MN, RN, CNS-BC, CCNS-P Patient Care Services Clinical Manager, Clinical Nurse Specialist

9 ADULT CHD CARE Cardiothoracic Intensive Care Unit Children s Hospital Los Angeles Los Angelis, California Lindsey Justice, MSN, RN, CPNP-AC Nurse Practitioner, Cardiac Intensive Care Unit Cincinnati Children s Hospital Medical Center Cincinnati, Ohio Kim Kellogg, MS, CPNP Pediatric Nurse Practitioner, Pediatric Cardiac Surgery University of Michigan Congenital Heart Center CS Mott Children s Hospital Ann Arbor, Michigan

10 ADULT CHD CARE Jeannie Koo, RN, CPNP-AC Pediatric Critical Care Nurse Practitioner Duke Children s Hospital Durham, North Carolina Linda M. Lambert, MSN, RN, CFNP Nurse Practitioner, Pediatric Cardiothoracic Surgery Primary Children s Hospital Salt Lake City, Utah Patricia Lincoln, MS, RN, CCRN, CNS-BC Clinical Nurse Specialist, Cardiac Intensive Care Unit Boston Children s Hospital Justine Mize, MSN, RN, CCRN, CPN Professional Practice Specialist, Cardiac

11 ADULT CHD CARE Intensive Care Unit Children s National Health System Washington, DC Debra Forbes Morrow, BSN, RN, CCRN Staff Nurse Level III, Cardiac Intensive Care Unit Infection Prevention Coordinator, Cardiac Intensive Care Unit Children s Hospital Boston Candace Morton, MSN, APNP Pediatric Nurse Practitioner- Electrophysiology Children s Hospital of Wisconsin Milwaukee, Wisconsin Jenna Murray, MSN, RN, CPNP-AC

12 ADULT CHD CARE Ventricular Assist Device Coordinator/Heart Failure Nurse Practitioner Lucile Packard Children s Hospital Stanford Palo Alto, California Jo Ann Nieves, MSN, CPN, ARNP, PNP- BC, FAHA Nurse Practitioner, Cardiology Miami Children s Hospital Miami, Florida Courtney Petro, RN Staff Nurse Lucile Packard Children s Hospital Stanford Palo Alto, California Nida Sulit-Oriza, BSN, RN Clinical Nurse IV, Core Charge Nurse Cardiothoracic Intensive Care Unit

13 ADULT CHD CARE Children s Hospital Los Angeles Los Angeles, California Christine M. Rachwal, MSN, RN, CCRN Clinical Nurse Specialist, Cardiac Intensive Care Unit Boston Children s Hospital Kaye Remo, RN Staff Nurse, Cardiac Intensive Care Unit University of California San Francisco Benioff Children s Hospital San Francisco, California Gwen Rempel, PhD, RN Associate Professor, Faculty of Health Disciplines Athabasca University

14 ADULT CHD CARE Associate Adjunct Professor, Faculty of Nursing, University of Alberta Associate Adjunct Professor, Department of Pediatrics, University of Alberta Alberta, Canada Christine Riley, MSN, APRN, CPNP-AC Nurse Practitioner, Cardiac Intensive Care Unit Children s National Health System Washington, DC Melanie Sojka, MSN, RN, CPNP-AC/PC Advanced Practice Nurse, Pediatric Cardiac Surgery University of Chicago Medicine, Comer Children s Hospital Chicago, Illinois

15 ADULT CHD CARE Jennifer Strawn, BSN, RN, CPN Nurse Clinician, Pediatric Cardiology Children s Hospital & Medical Center Omaha, Nebraska Svetlana Streltsova MSN, RN, CCRN Clinical Nurse III Morgan Stanley Children s Hospital of New York Presbyterian New York, New York Kristen Sullivan, MSN, RN, CPNP-AC Nurse Practitioner, Cardiothoracic Surgery Phoenix Children s Hospital Heart Center Phoenix, Arizona Alisa Tortorich, RD, CSP, CNSC, LD Board Certified Specialist in Pediatric Nutrition

16 ADULT CHD CARE Certified Nutrition Support Clinician Doernbecher Children s Hospital Portland, Oregon Victoria Winter, RN, MSN, CNS, CCRN Clinical Nurse IV, Cardiothoracic Intensive Care Unit Children s Hospital Los Angeles Los Angeles, California Adjunct Professor Azusa Pacific University School of Nursing Azusa, California