Managed Service Network (MSN) Children & Young People with Cancer (CYPC)
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1 Managed Service Network (MSN) Children & Young People with Cancer (CYPC)
2 National Delivery Plan Background and history 3.2 million to Childhood Cancer 2012
3 MSN Children and Young Peoples Cancer Board ODG MSN Board Co Chairs, National Network Manager Administrative Lead Clinical Lead, MDT Lead, G&Q lead SGHD (SMO/Department) CE s/health Board Reps Nursing Representative Strategic Lead Patient Rep National MDT Governance and QA anatomy
4 What are the aims.... Sustainability Making sure that there is always a cancer service - whatever happens Centres working together 0-24y Single service National Multi-disciplinary teams - MDTs Best opinion ; best care
5 What are the aims.... Earliest Diagnosis General practitioners Accident and Emergency Departments Detect Cancer Early Scottish Referral Guidelines for suspected cancer
6 What are the aims.... Equality of Access Shared care Pathways for care Consistent Approach Antibiotic policy Blood transfusion policy Long-lines
7 What it is not.... cutting costs Or saving money
8 CYPC cases/y cases /y
9 Scottish Government Regional Planning Groups Outcome Analysis Internal Transitions Audit and Trials Patients and families/carers Surgery Managing HR Radiology Palliation MSN Board Governance & Quality Assurance Communication Operational Delivery Group Clinical Quality Assurance Third sector interfacing MDTs Patient Haematology Case Review Oncology Pathology Case Management Education Research Representative functions Stakeholders External Recording methods Networking Special NHS Boards Territorial NHS Boards Primary, Secondary and Tertiary Care Policy, Protocols and Prescribing Medical record standards
10 The people - (beyond patients and parents) Paediatric Surgeons Paediatric Oncologists Neurosurgeons Neuro oncologists Adult and Paediatric haematologists Orthopaedic surgeons Pathologists Radiologists Radiotherapists Adult and paediatric pharmacists Paediatric oncology outreach nurses Oncology nurses Paediatric nurses Pain nurses Paediatric intensivists Paediatric anaesthetists Hospital management Scottish government R&D Trial agencies Social work Primary care 3 rd sector Chaplaincy Psychology Bereavement Prof George G Youngson Co-chair MSN Board 10
11 The places Yorkhill and The Beatson RHSC and the Western General RACH & ARI Ninewells Hospital Raigmore Hospital Dumfries & Galloway Royal infirmary Prof George G Youngson CBE, Co-chair MSN Board 11
12 Work streams AHP Teenagers & Young Adults Pharmacy Palliative Care nursing Late Effects
13 Other work.... Clinical Trials Care pathways Chemocare Policy (GIRFEC) website Patient and parents reference group Cancer Registry QPI
14 Nat MDTs Leukaemia+ BMT Haematologists/Paediatrician Genetics + Laboratory Staff Data Manager & Coordinator Solid Tumours Oncologists/Paediatrician Surgeons + Radiotherapists Pathologists+ Radiologists Data Manager & Coordinator Cases & Attendances Audited Implementation recording Outside interest Newcastle Belfast
15 MSN - workstreams Medical sessions leads for palliative care, teenagers and young adults, late effects National nursing lead posts TYA, Late effects, Palliative AHP and Clinical Psychology Audit facilitators, MDT coordinators Pharmacy & Chemocare Cancer Registry Website Trials Care Pathways
16 Inform Communication & Website Development Empower Advocacy Feedback User Perspective & Peer Support Educational
17 Blind spots Rural /Urban/Age related remoteness Non specialist HB s International comparisons/developments Socioeconomic consequences
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