ACCORD PROJECT FINAL RESULTS OF THE. 2 nd June, Rafael Matesanz, on behalf of the ACCORD consortium. Director

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1 FINAL RESULTS OF THE ACCORD PROJECT 2 nd June, 2015 Auditorium MUTUA MADRILEÑA Foundation, MADRID Director Rafael Matesanz, on behalf of the ACCORD consortium Achieving Comprehensive Coordination in Organ Donation throughout the European Union

2 1 FINAL RESULTS OF THE ACCORD PROJECT 2 nd June, :30 10:00 10:00 10:30 Registration OFFICIAL OPENING Rafael Matesanz Organización Nacional de Trasplantes Jacques Remacle european Commission, Health Unit, Executive Agency for Consumers, Health, Agriculture and Food Hélène Le Borgne european Commission, Directorate General for Health and Food Safety Lorenzo Cooklin General Manager Mutua Madrileña Foundation 10:30 11:30 10:30 11:00 11:00 11:20 11:20 11:30 DONATION AND TRANSPLANTATION IN THE EUROPEAN UNION: STEPPING FORWARD Chairs: Philippe Morel & José R. Núñez Donation and transplantation in the European Union: stepping forward Rafael Matesanz ACCORD: a global overview of the project Beatriz Domínguez-Gil Questions and answers

3 FUNDACIÓN MUTUA MADRILEÑA / ONT 2 11:30 13:00 11:30 11:50 11:50 12:10 12:10 12:30 ADRESSING THE IMPACT OF DONATING AN ORGAN DURING LIFETIME Chairs: Peter Doyle & Bernadette Haase-Kromwijk Living donor registries in the European Union Jaroslaw Czerwinski Recommendations for Living Donor Registries and for a European Registry of Living Donor Registries María Valentín Sharing data internationally on living organ donation: the experience with the ACCORD pilot Andries Hoitsma 13:00 14:00 14:00 15:40 14:00 14:15 14:15 14:45 LUNCH STRENGTHENING THE COOPERATION BETWEEN CRITICAL CARE PROFESSIONALS AND DONOR TRANSPLANT COORDINATORS Chairs: Paulo Maia & Eduardo Miñambres Upholding the principle of donation as an integral part of end-of-life care: Put the Donor First Chris Rudge End-of life practices relevant to organ donation in the European Union Paul Murphy 12:30 12:50 A look into the future of Living Donor Registries in the European Union Kirsten Ooms-de Vries 12:50 Questions and answers 13:00

4 3 FINAL RESULTS OF THE ACCORD PROJECT 2 nd June, :45 15:15 15:15 15:30 Hospital experiences with the Service Improvement Model in organ donation Sally Johnson Ospedale San Camillo-Forlanini- Rome, Italy Eartha A. Feller Vall d Hebrón Hospital- Barcelona, Spain teresa Pont Royal Victoria Infirmary- Newcastle, United Kingdom Angus Vincent A look into the future of the cooperation between critical care professionals and donor transplant coordinators in the European Union Sally Johnson 16:00 17:40 16:00 16:05 16:05 16:25 16:25 16:45 SUPPORTING EACH OTHER IN DONATION AND TRANSPLANTATION: THE ACCORD TWINNINGS Chairs: Francis Delmonico & Marta López-Fraga Twinning Activities: Aims and Objectives Candide Font-Sala A national surgical training in abdominal multiorgan retrieval Sándor Mihaly and Ágnes Nemeskéri Developing the donation and transplantation system in Bulgaria Maryana Doitchinova-Simeonova 15:30 Questions and answers 15:40 15:40 Coffee break 16:00

5 FUNDACIÓN MUTUA MADRILEÑA / ONT 4 16:45 17:25 17:25 17:40 17:40 17:50 A national system for authorizing and auditing transplant centers Approach and lessons learnt Paola Di Ciaccio Experience in Czech Republic Premysl Fryda Experience in Lithuania Audronė Būziuvienė Experience in Malta Paul Calleja Questions and answers Twinning concepts: Guidance for the Future Candide Font-Sala FINAL REMARKS AND CONCLUSIONS Jacques Remacle Hélène Le Borgne Rafael Matesanz Speakers (intervention order) Rafael Matesanz, Director, Organización Nacional de Trasplantes, Spain. Beatriz Domínguez-Gil, Medical Officer, Organización Nacional de Trasplantes, Spain. Jaroslaw Czerwinski, Medical Director, Poltransplant, Poland. María Valentín, Medical Officer, Organización Nacional de Trasplantes, Spain. Andries Hoitsma, Medical Advisor, Dutch Transplant Foundation, The Netherlands. Kirsten Ooms-de Vries, Senior Policy Advisor, Dutch Transplant Foundation, The Netherlands. Chris Rudge, Chairman Organ Donation and Transplantation Transitional Steering Group, Department of Health, United Kingdom. Paul Murphy, National Clinical Lead for Organ Donation, NHS Blood and Transplant, United Kingdom. Jacques Remacle, Head of Health Unit of Consumers, Health, Agriculture and Food Executive Agency, European Commission. Hélène Le Borgne, Policy Officer Directorate General for Health and Food Safety, European Commission.

6 5 FINAL RESULTS OF THE ACCORD PROJECT Sally Johnson, Director of Organ Donation & Transplantation, NHS Blood and Transplant, United Kingdom. Eartha A. Feller, Nurse, Organ and Tissue Donation Team, San Camillo Forlanini Hospital, Italy. Teresa Pont, Transplant Coordinator, Vall d Hebrón Hospital, Spain. Angus Vincent, Consultant in Intensive Care, Newcastle upon Tyne Hospitals. Regional Clinical Lead for Organ Donation, United Kingdom. Candide Font-Sala, EU-affairs, Agence de la Biomédecine, France. Sándor Mihály, Director of Organ Coordination Office Hungarian National Blood Transfusion Service, Hungary. Ágnes Nermeskéri, External expert from Semmelweis University, Department of Human Morphology and Developmental Biology, Hungary. Maryana Doitchinova-Simeonova, Executive Director, Executive Agency for Transplantation, Bulgaria. Paola Di Ciaccio, Head Foreign Affairs, National Transplant Centre, Italy. Premysl Fryda, Deputy Director, Czech National Transplant Coordinating Centre, Czech Republic. Audronė Būziuvienė, Deputy Director, National Transplant Bureau, Republic of Lithuania. Paul Calleja, Renal Transplant Coordinator, Mater Dei Hospital, Malta. CHAIRS (intervention order) Philippe Morel, Head Visceral and Transplantation Surgery Geneva University Hospital, Switzerland. José R. Núñez, Senior Advisor on Transplantation, Worl Health Organization-Headquarters, Switzerland. Peter Doyle, Independent Consultant on Transplantation, United Kingdom. Bernadette Haase-Kromwijk, Director Dutch Transplant Foundation, The Netherlands. Paulo Maia, Representative of the European Society of Intensive Care Medicine, Portugal. Eduardo Miñambres, Regional Transplant Coordinator of Cantabria, Transplant Coordinator, Marqués de Valdecilla Hospital, Spain. Francis L. Delmonico, Executive Director Declaration of Istanbul Custodian Group; Advisor for Human Transplantation to the World Health Organization, United States. Marta López-Fraga, Secretary to the European Committee on Organ Transplantation (CD-P-TO), European Directorate for the Quality of Medicines & HealthCare (EDQM), Council of Europe.

7 General Information Venue Auditorio Fundación MUTUA MADRILEÑA Paseo de la Castellana, MADRID Subway: Rubén Darío, línea 5 Bus: 14 y 27 Date: 2 nd June, 2015 Simultaneous translation English - Spanish / Spanish - English will be provided Information and Secretariat Fundación Mutua Madrileña C/ Fortuny, MADRID Tel.: Fax: info@fundacionmutua.es Registration Guidelines Registration is free and limited to auditorium capacity. Online registration

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