AGING and END OF LIFE ISSUES: A Special Forum. Sponsored by AAMR. and

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1 AGING and END OF LIFE ISSUES: A Special Forum Sponsored by AAMR and The Rehabilitation Research and Training Center on Aging with Intellectual/Developmental Disabilities, Department of Disability and Human Development, University of Illinois at Chicago This important Forum will explore the issues and ways in which individuals with intellectual developmental disabilities can be supported as they face the complexities of growing old, end of life care, and death. Thursday, December 1, :00 am until 5:00 p.m. Friday, December 2, :30 a.m. until 1:00 p.m. WASHINGTON COURT HOTEL 525 New Jersey Avenue, N.W. Washington, D.C (202) or PRELIMINARY PROGRAM

2 TOPICS-AT-A-GLANCE: Grief in Persons with Intellectual Disabilities Death, Self-Determination and Community Building: Antithesis or Opportunity Practical Advice on Supports at the End of Life End of Life Wishes: Communicating with Individuals with Intellectual Disabilities Quality Palliative Care: Principles and Practices in Support of a Good Death Hospice: An Important Partner Grief Support: Helping Agencies Face the Challenge Grief Support: Consumer-directed Family Support Health Care: Improving the Quality, Accessibility and Responsiveness for Individuals Who Are Aging: the North Carolina Experience Family Financed Housing: Creative Approaches, Benefits and Drawbacks Joint Futures Planning with Family Members and the Individual with Disabilities Older and Sibling Caregivers: Facing Caregiving Challenges Federal Initiatives Supporting Older Adults with Disabilities and their Families Alzheimers and Related Dementia s: Community Support Alternatives Assistive Technology: Supporting Functional Independence

3 SPEAKERS-AT-A-GLANCE (additional speakers pending) Harry R. Moody, Ph.D., International Speaker and Director of Academic Affairs, AARP, Washington, DC Kenneth J. Doka, Ph.D. Professor of Gerontology, Graduate School of The College of New Rochelle and Senior Consultant to the Hospice Foundation of America, National Consultant and Speaker, New Rochelle, NY DiAnn Baxley, Director, Training and Technical Assistance Center on Intellectual Disabilities, SUNY at Albany, Albany, NY Joe Caldwell, Project Coordinator, RRTC on Aging with Developmental Disabilities, Department of Disability and Human Development, University of Illinois at Chicago, IL Greg Case, Aging Services Specialist, Administration on Aging, US Department of Health and Human Services, Washington, DC Candice Cassin, Director of Learning and Development, Central/West Region, MA Department of Mental Retardation, MA Liz Craig, National Hospice & Palliative Care Organization, Boulder, CO Alan Factor, Associate Director for Training and Dissemination RRTC on Aging with Developmental Disabilities, Department of Disability and Human Development, University of Illinois at Chicago, IL Bill Gaventa, M.Div., Associate Professor, Director Community Congregational Supports, the Elizabeth M. Boggs Center, UMDNJ Robert Wood Johnson Medical School, New Brunswick, NJ Candace K. Ganz, Ed.D., Assistant Director, Research and Educational Planning Center, University of Nevada, Reno, NV Rick Greene, Aging Services Specialist, Administration on Aging, US Department of Health and Human Services, Washington, DC Tamar Heller, Ph.D., Professor and Head, Department of Disability & Human Development, University of Illinois at Chicago, IL C. Michael Henderson, MD, Assistant Professor, Division of Geriatrics, Dept. of Medicine, University of Rochester, Rochester, NY

4 SPEAKERS-AT-A-GLANCE Matthew Janicki, Research Associate Professor and Director for Technical Assistance, RRTC on Aging with Intellectual/Developmental Disabilities, Department of Disability and Human Development, University of Illinois at Chicago, IL Betsy Johnson, Medical Ethicist & Consultant, MA Jeffrey Kauffman, Instructor, Graduate School of Social Work & Social Research, Bryn Mawr College, PA Angela King, Program Director, Volunteers of America, Arlington, TX Leigh Ann Kingsbury, Gerontologist, InLeadS Consulting & Training, Wilmington, NC Irene D. Jurczyk, Director, CME, Dental and Allied Health Education, Mountain Area Health Education Center, Asheville, NC Patricia Morrissey, Commissioner, Administration on Developmental Disabilities, U.S. Department of Health and Human Services Kathryn Moss, Ph.D., Research Fellow and Head, Disability Research Center, Sheps Center for Health Services, University of North Carolina, Chapel Hill, NC Kim Musheno, Director of Legislative Affairs, Association of University Centers on Disabilities, Silver Spring, MD Margaret Nygren, Technical Assistance Director, Association of University Centers on Disabilities, Silver Spring, MD Genny Pugh, Director, Black Mountain Center, Black Mountain, NC Gary Stein, JD, MSW, Executive Director, New Jersey Health Decisions, Verona, NJ Anna Zendell, Doctoral Assistant, Center on Intellectual Disabilities, SUNY at Albany, Albany, NY

5 REGISTRATION FEES AND HOTEL INFORMATION Register online! Registration Fee $175 Pre-registration deadline: November 14, 2005 After November 14, 2005, you will have to register onsite at the increased rate of $199 Hotel Reservations WASHINGTON COURT HOTEL 525 New Jersey Avenue, N.W. Washington, D.C (202) or The cut-off date for making reservations is November 4, Special AAMR Rate: Single $169 Double $179

6 Mail this form to AAMR, 444 North Capitol St, NW Suite 846, Washington, DC By fax: Registration Fee before November 14, 2005 $175 After November 14, 2005, you will be required to register on-site at the increased rate of $199. REGISTRATION INFORMATION Registration Form PLEASE PRINT Name (First, M.I., Last) Badge Nickname Employer Mailing Address City State/Province Zip + 4 Daytime phone number Fax number Check here if you require special assistance to fully participate Please specify: Registration REGISTRATION Fees FEES Pre-registration Fee $175 Onsite registration Fee $199 PAYMENT TYPE (Payable in U.S. Currency only) Check State Voucher Purchase Order P. O. Number if Paying by Purchase Order: P. O. No. Please charge to my: VISA MasterCard Acct. # Signature Expiration Date REFUNDS No refunds or credits after November 14, All refunds must be requested in writing only. There is a $25 processing fee for each attendee refund.