Individual Referencing Systems. Anthea Springbett Programme Principal SHIS-R NHS Information Services Division
|
|
|
- Delphia York
- 10 years ago
- Views:
Transcription
1 Individual Referencing Systems Anthea Springbett Programme Principal SHIS-R NHS Information Services Division
2 Structure of workshop Introduction Referencing and linkage ISD linkage CHI Practical application of CHI Population spine Future
3 What is individual referencing? Administrative systems organising information retrieving information Audit Linking information over time across space
4 ISD: collecting data from cradle to grave Dental SMR13 Mental Health SMR04 Scottish Birth Record SBR Out patients SMR00 Hospital Admissions SMR01 BIRTH GP consultations Maternity Immunisation Prescribing Screening Cancer registry DEATH Child health surveillance A&E Cancer registrations SMR06
5 From conception through childhood... Mothers ante-natal records Abortion Notifications Maternity CHI Number Neonatal record Register birth - NHS number Register with GP Child-health surveillance Immunisation GP Appointments Dental Appointments Outpatients
6 adulthood until death Outpatients A&E attendance General hospital admission Prescribing Well woman/man screening Cancer registration Cancer treatment Audit of clinical treatment Stroke - hospitalisation & rehab Community care Death
7 Why is referencing so useful for linkage? Data collection systems point of delivery episodic many sources different protocols variable data quality
8 What is the alternative? Personal information name address date of birth Contextual information date/time of admission
9 What are the advantages of referencing? Simplicity Privacy Consistency Flexibility Efficiency
10 and what are the disadvantages? Completeness Accuracy Maintenance Fraud
11 ISD: collecting data from cradle to grave Dental SMR13 Mental Health SMR04 Scottish Birth Record SBR Out patients SMR00 Hospital Admissions SMR01 BIRTH GP consultations Maternity Immunisation Prescribing Screening Cancer registry DEATH Child health surveillance A&E Cancer registrations SMR06
12 CHI (Community Health Index) Scottish Introduced first in Tayside Assigned at birth Coverage all NHS patients Maintenance PSD Used by ISD for linkage
13 Record linkage in ISD History 1960s: routine recording of patient identifiers 1970s: linkage programs 1980s: permanently linked datasets 1990s: CHI Probability Matching Quantifies the quality of a potential match Enables routine linkage of datasets Use of CHI in linkage Unique patient identifier for each patient Protects patients privacy Efficient
14 Linking records (Donald Duck and Daisy Swan) Surname Soundex Forename Date of birth Post code CHI number Duck D200 Donald 1 January 1955 DL1 2BY Dukk D200 Donald 1 January 1955 DL2 3SL Surname Soundex Forename Date of birth Post code CHI number Swan S500 Daisy 24 December 1959 AZ1 2BY Duck D200 Daisy 24 December 1959 DL2 3SL
15 Cross-referencing
16 Population spine Master index Independent systems Read-through across systems Data obtained from several systems Linkage only as required
17 Example of recent ISD linkage T4 HEAT target to reduce emergency admissions Linkage of NHS24, SAS, ACaDMe, Out of Hours and A&E admissions National linkage to replace local data Follow patient pathways Partial CHI coverage
18 The future (1) - SHIP Scottish Health Informatics Programme Funded by Wellcome Trust, MRC, ESRC Academic/NHS consortium 2009/10 to 2012/13 SHIP is: an ambitious, Scotland-wide research platform for the collation, management, dissemination and analysis of Electronic Patient Records (EPRs)
19 ISD s contribution to SHIP (SHIS-R) Procedures for secure access Linkage agent and safe haven National routine NHS Scotland datasets available to researchers throughout UK Portal for knowledge about availability of appropriate health related data Archiving Metadata Indexing service
20 Datasource 1 Datasource 2 Project code Local IDs Study numbers Local IDs Names Addresses Dates of birth Local IDs Names Addresses Dates of birth Project code Local IDs Study numbers Indexing Service Datasource 1 Indexing service sends key to Linkage Agent within Safe Haven Datasource 2 Project code Study numbers Payload data Linkage Agent within Safe Haven Project code Study numbers Payload data Payload data Project code Study numbers Payload data
21 Indexing service The indexing service uses CHI as a population reference file Use of a population reference file maximises leverage of linkage The indexing service does not release CHI numbers or CHI data but only index numbers Different sets of index numbers are used for each data set to be linked Identifiers and payload data are always kept separate
22 The role of the research coordinator Data permissions Data release Non-NHS Data controller National PAC (ISD, GROS) Local PAC or equivalent (NHS HB) Non-NHS dataset ISD dataset Local HB dataset Data request Research Coordinator Referral of data request National Indexing Service Linker (NSS) Creation and storage of linked dataset Advice & guidance Training Researcher approval Safe haven Researcher approval and secure access
23 The future (2) - NDLC National Data Linkage Centre ISD and NRS Cross-sectoral data linkage Utilising existing expertise Population spine B2011
24 Sail gives way to steam
NHS Central Register (NHSCR) Governance Board Meeting 31 st July 2012
NHS Central Register (NHSCR) Governance Board Meeting 31 st July 2012 NHS Central Register Performance Targets 2011-12 and Objectives 2012-13 1. This paper describes the work of the NHS Central Register
Informatics: Opportunities & Applications. Professor Colin McCowan Robertson Centre for Biostatistics and Glasgow Clinical Trials Unit
Informatics: Opportunities & Applications Professor Colin McCowan Robertson Centre for Biostatistics and Glasgow Clinical Trials Unit Routine Data "routine data" is data collected as byproducts of clinical
Monitoring the health of our Nation s children
Health for all children 4 July 2001 Child Health Informatics Consortium www.chiconsortium.org.uk Monitoring the health of our Nation s children Key Indicators and the underlying Essential Core Data Set
Data platforms to support research, evaluation & practice. David V Ford Professor of Health Informatics School of Medicine, Swansea University
Data platforms to support research, evaluation & practice David V Ford Professor of Health Informatics School of Medicine, Swansea University Outline 1. Swift overview of SAIL Databank as used in Wales
UK Biobank. Integrating electronic health records into the UK Biobank Resource. Version 1.0. http://www.ukbiobank.ac.
UK Biobank Integrating electronic health records into the UK Biobank Resource Version 1.0 http://www.ukbiobank.ac.uk/ January 2014 This document provides details on the procedures involved in processing
HSCIC Statistical Publications
Author Julie Stroud Date 31 March 2015 1 Copyright 2015, Health and Social Care Information Centre. Contents Contents 2 Purpose 3 Background to HSCIC Official Statistics 3 Forthcoming Publications 3 Official
Deputy Director, Mental Health and Protection of Rights Division, Scottish Government
Privacy Impact Assessment (PIA): Mental Health and Learning Disability Bed Census: One Day Audit and the Mental Health and Learning Disability Patients: Out of Scotland and Out of NHS Placements Census
Connection with other policy areas and (How does it fit/support wider early years work and partnerships)
Illness such as gastroenteritis and upper respiratory tract infections, along with injuries caused by accidents in the home, are the leading causes of attendances at Accident & Emergency and hospitalisation
www.gov.uk/monitor The maternity pathway payment system: Supplementary guidance
www.gov.uk/monitor The maternity pathway payment system: Supplementary guidance Contents Introduction... 3 Inclusions and exclusions from the pathway payments... 4 Early pregnancy unit and emergency gynaecology
Information Governance. A Clinician s Guide to Record Standards Part 1: Why standardise the structure and content of medical records?
Information Governance A Clinician s Guide to Record Standards Part 1: Why standardise the structure and content of medical records? Contents Page 3 A guide for clinicians Pages 4 and 5 Why have standards
NHS number. Frequently Asked Questions For Patients
NHS number Frequently Asked Questions For Patients This document contains frequently asked questions (FAQs) about the NHS number for residents in England. For queries about residents of Wales, Northern
Measuring quality along care pathways
Measuring quality along care pathways Sarah Jonas, Clinical Fellow, The King s Fund Veena Raleigh, Senior Fellow, The King s Fund Catherine Foot, Senior Fellow, The King s Fund James Mountford, Director
A MODERN, INTUITIVE AND MARKET-LEADING ELECTRONIC PATIENT RECORD SOLUTION
A MODERN, INTUITIVE AND MARKET-LEADING ELECTRONIC PATIENT RECORD SOLUTION MEDWAY EPR IS A MODERN, FULLY-MODULAR, NHS-FOCUSED SOLUTION, WHICH CAN BE BUILT TO A CUSTOMER S SPECIFICATION FROM FOUR CATEGORIES
THE ROYAL COLLEGE OF RADIOLOGISTS
THE ROYAL COLLEGE OF RADIOLOGISTS TEL: 020-7636-4432 FAX: 020-7323-3100 38 PORTLAND PLACE LONDON W1B 1JQ BFCR(06)4 (updated February 2008) Retention and Storage of Images and Radiological Patient Data
What you should know about Data Quality. A guide for health and social care staff
What you should know about Data Quality A guide for health and social care staff Please note the scope of this document is to provide a broad overview of data quality issues around personal health information
Service Specification Template Department of Health, updated June 2015
Service Specification Template Department of Health, updated June 2015 Service Specification No. : 2 Service: Commissioner Lead: Provider Lead: Period: Anti-coagulation monitoring Date of Review: 31 st
PATIENT ACCESS POLICY
PATIENT ACCESS POLICY Completed Review Date: June 2015 Date for Review June 2016 1 NHS LANARKSHIRE PATIENT ACCESS POLICY 1. BACKGROUND NHS Lanarkshire is required by Scottish Government to deliver a consistent,
NHS outcomes framework and CCG outcomes indicators: Data availability table
NHS outcomes framework and CCG outcomes indicators: Data availability table December 2012 NHS OF objectives Preventing people from dying prematurely DOMAIN 1: preventing people from dying prematurely Potential
Child and Adolescent Mental Health Services Waiting Times in Scotland
Publication Report Child and Adolescent Mental Health Services Waiting Times in Scotland Quarter ending 30 September 2012 Publication date 27 November 2012 An Official Statistics Publication for Scotland
Child and Adolescent Mental Health Services Waiting Times in Scotland
Publication Report Child and Adolescent Mental Health Services Waiting Times in Scotland Quarter ending 31 December 2012 Publication date 26 February 2013 An Official Statistics Publication for Scotland
IAPT Data Standard. Frequently Asked Questions
IAPT Data Standard Frequently Asked Questions Version 1.0 March 2012 IAPT FAQs 1.0-1 - Contents Section 1: About the IAPT Data Standard.. 3 Section 2: Who is responsible for doing what?. 5 Section 3: How
Allscripts PAS is a part of our product family that covers all aspects of patient management and care ALLSCRIPTS PATIENT ADMINISTRATION SYSTEM (PAS)
allscripts.com ALLSCRIPTS PATIENT ADMINISTRATION SYSTEM (PAS) Allscripts PAS is a part of our product family that covers all aspects of patient management and care PATIENT ADMINISTRATION SYSTEM (PAS) Allscripts
IAAS Recommendation Report
Standardisation Committee for Care Information (SCCI) 30 April 2014 Agenda Item:09 For: (insert action/decision/info) IAAS Recommendation Report ISB 1513 Maternity Services Data Set (Amd 45/2012) IAAS
Institute of Applied Health Sciences. University of Aberdeen DATABASE REVIEW. Grampian University. Hospitals NHS Trust GRAMPIAN DIABETES
DATABASE REVIEW Grampian University Hospitals NHS Trust GRAMPIAN DIABETES SERVICES DATABASE Page 1 Contents Contents 2 Introduction 3 History 3 Overview of Database 3 Database Structure 4 Main Table Summary
Big Data and the social sciences a perspective from the ESRC. Peter Elias
Big Data and the social sciences a perspective from the ESRC Peter Elias What do we mean by Big data Electronic data generated from research infrastructures (e.g. astronomy, particle physics, micro-biology,
Funded Pre-School Education Registration Form 2014/15
REGISTRATION IS NOT THE SAME AS ENROLMENT This registration form should be completed if you wish to apply for a funded pre-school education place for your child. Please return this completed form to the
Institute of Health Records and Information Management
Institute of Health Records and Information Management HEALTH INFMATICS EXAMINATION Certificate Level Syllabus and Regulations [UK] Effective for May 2017 Examination P a g e 1 Examination Regulations
NHS public health functions agreement 2015-16. Service specification no.20 NHS Newborn Hearing Screening Programme
NHS public health functions agreement 2015-16 Service specification no.20 NHS Newborn Hearing Screening Programme February 2015 Title: Public health functions to be exercised by NHS England Service specification
CPRD Clinical Practice Research Datalink [email protected] Scotland Meeting May 2012
CPRD Clinical Practice Research Datalink [email protected] Scotland Meeting May 2012 Computational Biochemist PhD Liverpool Pharma Healthcare Food Advertising JWT Healthcare Medical Education UoD
Appendix 6.2 Data Source Described in Detail Hospital Data Sets
Appendix 6.2 Data Source Described in Detail Hospital Data Sets Appendix 6.2 Data Source Described in Detail Hospital Data Sets Source or Site Hospital discharge data set Hospital admissions reporting
Commissioning fact sheet for clinical commissioning groups
Commissioning fact sheet for clinical groups July 2012 This fact sheet sets out the services to be commissioned by clinical groups (CCGs) from April 2013. It also sets out the complementary services to
. Alcohol Focus Scotland. Response to Tackling poverty, Inequality and deprivation in Scotland
. Alcohol Focus Scotland. Response to Tackling poverty, Inequality and deprivation in Scotland Introduction Problem drinking and social groupings. Alcohol prob.lems affect people from all social groups.
Digital Health: Catapulting Personalised Medicine Forward STRATIFIED MEDICINE
Digital Health: Catapulting Personalised Medicine Forward STRATIFIED MEDICINE CRUK Stratified Medicine Initiative Somatic mutation testing for prediction of treatment response in patients with solid tumours:
Your health, your rights
Your health, your rights Hospital waiting times: how quickly you should receive hospital care Who is this factsheet for and what is it about? This factsheet is for anyone who requires hospital treatment
Assessing quality of NHS Numbers for Babies data and providing gestational age statistics
Assessing quality of NHS Numbers for Babies data and providing gestational age statistics Kath Moser Office for and Lisa Hilder Department of Midwifery, City University This paper investigates the quality
Date of birth Gender NHS number (if known) Town/Country of birth. Home Telephone no. Work Telephone no.
ADULT - FEB 15 Office use only Staff initials Date ID seen Welcome to Wokingham Medical Centre Thank you for completing this registration form. When registering in person at the surgery please supply two
Study-wide considerations: identifies the areas of the criterion the lead reviewer should consider when conducting the review
UK STUDY-WIDE GOVERNANCE CRITERIA FOR R&D REVIEW INTRODUCTION The following document is intended to provide operational guidance to the person taking the UK lead in conducting the R&D Study-Wide review
Shropshire Community Health Service NHS Trust Policies, Procedures, Guidelines and Protocols
Shropshire Community Health Service NHS Trust Policies, Procedures, Guidelines and Protocols Title Trust Ref No 1340-29497 Local Ref (optional) Main points the document covers Who is the document aimed
Patient Access Policy
Patient Access Policy NON-CLINICAL POLICY ACE 522 Version Number: 2 Policy Owner: Lead Director: Assistant Director of Operations Director of Operations Date Approved: Approved By: Management Executive
A Route Map to the 2020 Vision for Health and Social Care
A Route Map to the 2020 Vision for Health and Social Care 02 A Route Map to the 2020 Vision for Health and Social Care Introduction This paper sets out a new and accelerated focus on a number of priority
EHR Software Requirements Specification
Hospital Health Information System EU HIS Contract No. IPA/2012/283-805 Final version July 2015 Visibility: Public Target Audience: EU-IHIS Stakeholders EHR System Architects EHR Developers EPR Systems
Home Safe Home. Report on Home Accidents in Scotland. Art work courtesy of North Lanarkshire Council
Home Safe Home Report on Home Accidents in Scotland Art work courtesy of North Lanarkshire Council December 2010 Home Safe Home Report on Home Accidents in Scotland Contents Page Home Safe Home Summary
Protocol for Accessing Residential Detoxification & Rehabilitation
Protocol for Accessing Residential Detoxification & Rehabilitation Protocol - working group members: Julie Murray, Alcohol & Drugs Partnership Co-ordinator Lynda Mays, Clinical Services Manager, Addictions,
Report to the NHS Fife Board on 25 June 2013 NHS FIFE S PATIENT ACCESS POLICY
9.2b Report to the NHS Fife Board on 25 June 2013 NHS FIFE S PATIENT ACCESS POLICY 1. PURPOSE OF REPORT 1.1 Following NHS Fife s performance against Treatment Time Guarantee (TTG) during the winter months,
Integrated Performance Report
Integrated Performance Report Southwark Social Services and Southwark Primary Care Trust 2003/04 Provisional Indicators Integrated Performance Report: 2003/04 Provisional Indicators 1. Recommendation 1.1
School Pupil Data Capture Form (Primary)
Information on pupils and parents/carers is stored securely on a computer system. The information gathered is subject to the terms of the Data Protection Act 1998. The information may be used for teaching,
The Way Forward: Strategic clinical networks
The Way Forward: Strategic clinical networks The Way Forward Strategic clinical networks First published: 26 July 2012 Prepared by NHS Commissioning Board, a special health authority Contents Foreword...
How is RBAC used in SUS?
Role Based Access Control What is RBAC? SUS is a part of the NHS Care Record Service (NCRS) application from the National Programme for IT (NPfIT) and is accessed from the NHS national data network, the
Diagnostic Testing Procedures for Ophthalmic Science
V3.0 09/06/15 Table of Contents 1. Introduction... 3 2. Purpose of this Policy... 3 3. Scope... 3 4. Definitions / Glossary... 3 5. Ownership and Responsibilities... 3 5.2. Role of the Managers... 3 5.3.
Measures for the Australian health system. Belinda Emms Health Care Safety and Quality Unit Australian Institute of Health and Welfare
Measures for the Australian health system Belinda Emms Health Care Safety and Quality Unit Australian Institute of Health and Welfare Two sets of indicators The National Safety and Quality Indicators Performance
Data Quality Policy SH NCP 2. Version: 5. Summary:
SH NCP 2 Summary: Keywords (minimum of 5): (To assist policy search engine) Target Audience: The Trust provides a framework to ensure all data that is recorded by the Trust is accurate and complies to
Nursing and midwifery actions at the three levels of public health practice
Nursing and midwifery actions at the three levels of public health practice Improving health and wellbeing at individual, community and population levels June 2013 You may re-use the text of this document
Below you will find information relevant to CCPS members which has been taken from the Single Outcome Agreement published in June 2009.
East Ayrshire Below you will find information relevant to CCPS members which has been taken from the Single Outcome Agreement published in June 2009. Information is ordered in the following topic groups:
AMEX International Healthcare Plan Benefits schedule
Quality health plans & benefits Healthier living Financial well-being Intelligent solutions AMEX International Healthcare Plan Benefits schedule Effective 1 April 2015 46.06.933.1-EUAM D (4/15) Your flexible
ICT in HSE Where are we now. Fran Thompson
ICT in HSE Where are we now Fran Thompson HSE Overview The HSE is responsible for managing and delivering health and personal social services in Ireland. Employs in excess of 108,000 staff - largest employer
The Year of Care Funding Model. Sir John Oldham
The Year of Care Funding Model Sir John Oldham (c)sir John Oldham 2013 Multimorbidity is common in Scotland The majority of over-65s have 2 or more conditions, and the majority of over-75s have 3 or more
PATIENT ACCESS POLICY
PATIENT ACCESS POLICY Document Type Policy Document Number Version Number 1.0 Approved by NHS Borders Board on 18 October 2012 Issue date Nov 2012 Review date Nov 2013 Distribution Prepared by Developed
INVESTIGATION The care and treatment of Ms FG
INVESTIGATION Our aim We aim to ensure that care, treatment and support are lawful and respect the rights and promote the welfare of individuals with mental illness, learning disability and related conditions.
SUS R13 PbR Technical Guidance
SUS R13 PbR Technical Guidance Published 2nd April 2013 We are the trusted source of authoritative data and information relating to health and care. www.hscic.gov.uk [email protected] Contents Introduction
NHS LANARKSHIRE HEALTH RECORDS POLICY Management and Maintenance, Security, Storage, Distribution and Retention of Health Records
NHS LANARKSHIRE HEALTH RECORDS POLICY Management and Maintenance, Security, Storage, Distribution and Retention of Health Records Author: Responsible Lead Executive Director: Endorsing Body: Governance
Data Management Planning
DIY Research Data Management Training Kit for Librarians Data Management Planning Kerry Miller Digital Curation Centre University of Edinburgh [email protected] Running Order I. What is Research Data
Risk Management Policy and Framework
Risk Management Policy and Framework December 2014 phone 1300 360 605 08 89589500 email [email protected] location 1Bagot Street Alice Springs NT 0870 post PO Box 2257 Alice Springs NT 0871
Key Health Areas Mapped to Out of Hospital Programme Areas
1 Key Area (according to letter from David Nicholson) Reducing the number of years of life lost by the people of England from treatable conditions (e.g. including cancer, stroke, heart disease, respiratory
Presentation in Steering Group meeting Planning Commission, Govt of India. Public Health Informatics Group Discussion Inputs to Steering Committee
P i i Presentation in Steering Group meeting Planning Commission, Govt of India Public Health Informatics Group Discussion Inputs to Steering Committee References to Informatics Key Inputs to the 12 th
Managing the boundaries of NHS and privately funded healthcare Policy on the separation of private and NHS treatments
South Central Priorities Committees (Oxfordshire PCT) Policy Statement 67a: Managing the boundaries of NHS and privately-funded healthcare Clinical Executive decision: September 2009 Date of Issue: April